Guest guest Posted December 13, 2002 Report Share Posted December 13, 2002 Andy - Nice to hear from you. Please take care of yourself by drinking plenty of protein and water and taking all your vites. Glad you're back at school and returning to a somewhat normal life. Take care. Jeanne in WI Age 39 Open RNY 05/21/2002 314/ 233/150-175 5' 8 " djgraves@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 Hi Amy C! Great news!!! I am rejoicing with you. I just love when one of our members gets such great news :-) A creatinine of 1.0 is just so fantastic, especially in light of the fact that it is that good when you are sick! I hope the bronchitis clears up very fast and you feel better soon! Take care, In a message dated 11/19/2004 10:03:38 AM Pacific Standard Time, amyscarlton@... writes: > After my neph appointment on Tuesday, I am feeling a lots better now. I > was informed that my kidney function has improved and I am now in the normal > range. My creatinine was 1.0. Protein was still 3+ but my neph did not seem > overly concerned about that. As for my heart, I am having palpitations but > nothing he was real concerned about at this time. He changed all my meds once > again to Altace 10 mg, Toprol 200mg, Norvasc 5mg, Lasix 40mg, Lipitor 20mg > and of course my good old Prozac 20mg. He added a drug called Chlodine(sp?) > to help with the palpitations and I am still on my magnesium oxide because he > feels that my magnesium level being low is what started the palps. On top of > all this though I caught that crude going around and it turned into > bronchitis thank goodness I did my labs before I got it. Been running fever for 4 > days but I am doing better now since he also put me on Levaquin. I want to > thank everyone for responding back to my help this past week, I was ready for > questions when I saw my doc and I felt much better knowing what to ask. > > Thanks again, > Amy C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2004 Report Share Posted November 19, 2004 Oh Amy G, I hate to think of you having a flare up in the midst of your busy season! Please take time to get extra rest even though work is calling on you to sew. We will pray your function stays stable despite the dark urine and flank pain. Please take extra good care of yourself. Also, I am very happy you are getting to go to Arizona for Christmas. That sounds like such a fun family time to have all the family and all the cousins close in age to play together. All the makings for a wonderful Christmas :-) Just don't overdo it between now and then! In a message dated 11/19/2004 1:59:30 PM Pacific Standard Time, purrfect@... writes: > I got the creeping crud that is going around too..I have stuff running down > the back of my throat making me cough like crazy. I haven't had a fever or > anything else with it though just lovely dark urine and nasty flank > pain...my dear kids getting me sick again. (and right at the peak of my > busy season with sewing doll clothes) > > Amy G. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 HI Priya, How great to hear from you! Sorry you have been so busy, but I hope the family trips were wonderful. It is great news that your creatinine is still good, but your protein as you know is high. Hopefully the higher dose of Ace inhibitor will help to get that down. Check in when you can and let us know how you are doing. In a message dated 12/10/2004 1:39:56 PM Pacific Standard Time, kalyanav@... writes: > Hi all, > > Howz everyone doing??? Its been a long time that I checked and > posted mails....I was very busy with my work and family trips...So, > I couldn't even check my mails...Anyway I went to my neph today for > the first time after I was diagonised and the lab results were > ok...my protein is unfortunately still around 3.5gm/day but my > creatinine level is good...so happy about that...since proteinuria > has not decreased with altace 2.5mg, my neph increased the dosage to > 5mg. He also asked me to take more protein diet as my albumin level > in the blood was on the lower side...so thats from my side.... > > i hope everyone is doing fine....it will take a long time for me to > catch up with the mails...i hope i didn't miss too much....i would > be clearing my deadlines in my work only by january i guess...till > then i'll not be that active in posting or reading mails...haffun... > > HAPPY HOLIDAYS!!! > > Priya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 Thanks Amy, We havenot tested his urine yet, the last time before the taper it was 0.57gms. Our doc has further asked us to wean to 60 mg from Jan 1st. I will keep you posted how its going How are you doing , hope the pain has reduced atleast taking tylenol, when are you going to your doc for the tests ? I think it must be today, keep us posted about it Aruna --- Amy Griswold wrote: > Congrats on Manju's pred wean! Whenever my dose > drops I get a bit shaky for the first 3-4 days, my > heart seems to race a bit, and I don't sleep much. > After the 3-4 days everything settles back to > normal. I hope Manju's taper goes smoothly, but if > he has some sleep problems or shakiness over the > next few days it could be caused by the tapering of > the pred. > > I hope they are able to find out what is causing the > red eye problems. Prednisone at high doses can mask > so many things that sometimes it's hard for them to > make a proper diagnosis. > > How is his protein spill now? > > Thanks for the update! > Amy G. > Update > > > Hi All, > > Update on Manju > > Our Neph reduced the dosage to 80mg from 100 mg > pred > every other day,, Great news for us, but should > see > how it acts on Manjus body... keeping my fingers > crossed > > And also our neph too was clueless about Manjus > red > eye on every other day without pred,, infact he > showed > us how cataract is caused and Manjus redness is no > way > related to cataract. And our doc was too excited > about > a paper released by American Kidney Assoc which > has > found some promising facts that pred is indeed > good on > the IgAN patients, he will give us next time > sorry > > Priya - Sorry I couldnot ask our neph about the > protein issue you were asking y'day, really sorry > dear,, many of our questions were not properly > answered y'day, probably first time I saw our neph > to > be in a little hurry,, > > And we went to the ophthalmologist today. Manju > actually had seen him same time last yr due to > some > allergies in his eye, probably its the same thing > that > has repeated this yr, infact pred might have kept > it > less intense which other wise was bad last yr.That > could be the reason. Last yr when Manju had seen > him > Manju had no IgAN( I mean was not Dxed), but this > yr > we gave him list of drugs Manju takes and his > current > state, kind of weird feeling that within an yr our > lives has changed so much. The ophthalmologist was > well informed and he gave us suggestions keeping > an > eye on Manjus sugar, he was good, > Also we have to see him again after 2 or 3 weeks > to > find out what is causing Manjus allergies,, so > kind of > relieved that its not pred which is causing this, > > Thats about Manju, Thanks for listening, I am > relieved > ,, wanted to share with you guys, > > > Aruna > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 In a message dated 6/18/2005 5:18:09 AM Pacific Standard Time, credepenning55@... writes: These are some of my thoughts right now...I do know that I am getting more fatigued and tolerating things less...I am in bed ready for sleep by 8:00PM exhausted after 2 hours of commute time and 8+ hours of working with HRs in the 140-200s most days. I have all the confidence in the world that I will make the right decision for me, with a little help from my friends and loved ones. Thanks for being there. You are certainly on my mind, Barb, and please keep us posted on just what is recommended. Right now you are certainly carrying a lot on your shoulders and I hope life gets lighter and easier for you very soon. Lil in Ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 To My Supportive Friends on this board: I continue to have long afib episodes of 16+ hours daily with the longest being almost 3 days duration with high rates up to 200+. It's so weird...when I do break into NSR, and I am laying there doing nothing but minding my own business, it will just start and I am off to the races. I have vacillated re: getting a 2nd opinion, but my nursing and physician colleagues and friends have all strongly encouraged me to do so...so I re-scheduled my appointment at The Cleveland Clinic in Weston, FL and will see Dr. Pinski on July 5th. He is an EP and has extensive experience in both ablation and pacing. My primary focus will be to get his views on " Is AV Node Ablation with Pacemaker the best treatment of choice for me? " and then hear his views. After that I will make my decision. I am still strongly leaning towards no 3rd ablation or procedure that would just prolong the inevitable, but I have to give myself the benefit of the doubt in order to hear any convincing arguments that would steer me in another direction. The comments I have received from those of you who are " pacers " have been so helpful in curbing my fears about the idea of having one and in one way, it's creating more anxiety as I try and get medical records to get ready for this visit, and feeling unsettled and unsure as I re-introduce this second opinion, but I guess that I need to be absolutely sure without regret before the pacemaker is inserted. I am not thinking about biding my time to wait for greater innovation or new procedures in the future, for there is no guarantee that I will even be there to take advantage, and I want quality of life NOW. So, if pacemaker is a viable option (I would imagine that Dr. Pinski might say, " You can do this...or this... " ), then I will allow the AV Node to be ablated as well. I don't want to feel the effects of my AF. I will still ask for a pacemaker that has afib suppression algorithm capabilities so that my episodes and duration can be curbed. These are some of my thoughts right now...I do know that I am getting more fatigued and tolerating things less...I am in bed ready for sleep by 8:00PM exhausted after 2 hours of commute time and 8+ hours of working with HRs in the 140-200s most days. I have all the confidence in the world that I will make the right decision for me, with a little help from my friends and loved ones. Thanks for being there. --Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 In a message dated 6/18/2005 8:07:07 AM Pacific Standard Time, BABlocker@... writes: Cheryl, Thank you for your prayers and blessings. I too believe that God has a plan for me and that this journey is part of all of that. I believe that the outcome will be right for me and my growth. That does give me peace and tranquility just typing that truth. I actually think that any diagnosis of something that is challenging and is life changing (and afib certainly is that) is a powerful message for change and reflection. It is helping me to tone down my " A " type personality and work on being more calm and centered. It does no good to go running about in circles with one foot nailed to the floor.You go nowhere and you just get tired. Lil in Ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 Cheryl, Thank you for your prayers and blessings. I too believe that God has a plan for me and that this journey is part of all of that. I believe that the outcome will be right for me and my growth. That does give me peace and tranquility just typing that truth. Blessings to you all, Barbara Re: Update Barbara - Good luck in making the decision which in the end will be right for you. There's one more entity to bring into the picture as you decide how you would like to proceed. Remember prayer and God, without either one of them I feel I would not be here today. Blessings on what you decide. Cheryl R " Barbara A. Blocker " wrote: To My Supportive Friends on this board: I continue to have long afib episodes of 16+ hours daily with the longest being almost 3 days duration with high rates up to 200+. It's so weird...when I do break into NSR, and I am laying there doing nothing but minding my own business, it will just start and I am off to the races. I have vacillated re: getting a 2nd opinion, but my nursing and physician colleagues and friends have all strongly encouraged me to do so...so I re-scheduled my appointment at The Cleveland Clinic in Weston, FL and will see Dr. Pinski on July 5th. He is an EP and has extensive experience in both ablation and pacing. My primary focus will be to get his views on " Is AV Node Ablation with Pacemaker the best treatment of choice for me? " and then hear his views. After that I will make my decision. I am still strongly leaning towards no 3rd ablation or procedure that would just prolong the inevitable, but I have to give myself the benefit of the doubt in order to hear any convincing arguments that would steer me in another direction. The comments I have received from those of you who are " pacers " have been so helpful in curbing my fears about the idea of having one and in one way, it's creating more anxiety as I try and get medical records to get ready for this visit, and feeling unsettled and unsure as I re-introduce this second opinion, but I guess that I need to be absolutely sure without regret before the pacemaker is inserted. I am not thinking about biding my time to wait for greater innovation or new procedures in the future, for there is no guarantee that I will even be there to take advantage, and I want quality of life NOW. So, if pacemaker is a viable option (I would imagine that Dr. Pinski might say, " You can do this...or this... " ), then I will allow the AV Node to be ablated as well. I don't want to feel the effects of my AF. I will still ask for a pacemaker that has afib suppression algorithm capabilities so that my episodes and duration can be curbed. These are some of my thoughts right now...I do know that I am getting more fatigued and tolerating things less...I am in bed ready for sleep by 8:00PM exhausted after 2 hours of commute time and 8+ hours of working with HRs in the 140-200s most days. I have all the confidence in the world that I will make the right decision for me, with a little help from my friends and loved ones. Thanks for being there. --Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2005 Report Share Posted June 18, 2005 Shell, *hugs* I know things are still rough. You are still in my thoughts and prayers. As for the gain...what you have been dealing with is very stressful. 2 pounds is nothing! You will lose it in no time. Sorry to hear about your kidneys. Glad to hear you went to the doctor and are back to getting on meds and getting healthy. I worry about you. Please keep us posted! Coco tut by Kroeger Designs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 3, 2005 Report Share Posted July 3, 2005 Klein, Good luck with the mini-maze and do report back!. On the triggers, I know whenever I think I have found one, it turns out not really to be a trigger at all. It was just that for some reason the afib was taking a rest. With me, it just seems if I peturb the body in any way that it might help for a while, but it goes back to its afib eventually. Meds help for maybe a month or two, etc. I worry that people are giving up things they like, thus impacting their life more than they need to, and that is not the cause at all. Must say my one good habit is no caffeine, but now they are finding that coffee prevents alzheimers or some such thing so even that is not exactly a good habit! Judy Judith B. Currier Fairfax, Virginia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2006 Report Share Posted June 1, 2006 Steph, Thanks for letting us know. I will keep you in my prayers. I had CMF. Hugs nne Breast Cancer Patients Soul Mates for Lifehttp://www.geocities.com/chucky5741/breastcancerpatients.htmlCheck out my other ornaments atwww.geocities.com/chucky5741/bcornament.htmlLots of info and gifts at:www.cancerclub.comCinDWood Craftshttp://www.cindwoodcrafts.com update Well I got bad news and good news. Bad news first,,,,I have to have cemo,radition, and hormonal treatments.The good news is cemo I only have to do 8 rounds,,,,1 every 2 weeks onAdriamycin and a shot of something the next day after each.then go to cytoxan and no shot the next day on it. It is also every 2 weeks.The radiation I don't know about yet, My oncon said we would dicuss that when we are done with the cemo.I start my cemo June 20th.anyone out there that has had these drugs let me know how they affected you and what I might can do to help prevent side effects form them. Would appercite it, However I know that what effects one person doesn't mean I will have the same. Just need some imput!!!Steph Quote Link to comment Share on other sites More sharing options...
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