New to the list

[Guest guest]

Hi ,

A lot of people I've read about on this list are on GFCF and see even

more improvements when they add in enzymes. It sounds like enzymes

would be a good next step for your family. You might want to review

www.enzymestuff.com and/or purchase DeFelice's book Enzymes for

Autism and Other Neuro. Conditions.

Overwhelmingly people recommend the Houston Neutraceuticals enzymes.

www.houstonni.com. You will want to determine whether to start with

the regular Zyme Prime or the newer SCD version of Zyme Prime. If

your child has problems with phenols the SCD version would be

better. At first, give a small amount of ZP at every meal, working

slowly up to a full cap at every meal and maybe a half cap for snacks

if needed. Then add in the Peptizyde or AFP Peptizyde the same way.

Peptizyde is the product that has allowed many kids to ease back into

a " regular " diet, though you may find a food or two that your child

still may not be able to tolerate even with enzymes. Then you can

decide whether you'd like to add in No-Fenol, if your kids have

issues with phenols, or have chemical sensitivities, or yeast issues.

If they are still on the Nu Thera, you might find that once they're

on enzymes they don't need as high a dose of vitamins as they did

before.

HTH,

> Hello ladies

> New to this list we are getting pretty good at the GF/CF diet but I

> have been hearing alot about the enzymes and was wanting more

> information. First we are only giving Nu Thera and Calsium We were

> on several other but they shut down there bodies 27 monthe old b/g

> twins any way, what is the basic stuff we should be taking. I have

> heard DMG helps with speech. Sammy (BOY) has no speech Eleni girl,

> has some about 25 words I would love any help or suggestion that

you

> all might have thanks

[Guest guest]

I am new to the this discussion group and not sure how it works. I

do have a couple of questions, however.

Does anyone know of a Dr in Manitoba, Canada who is willing to treat

RA with antibiotics? I live in Northern Man and though my local Dr

is willing he doesn't know anything about this treatment and is

relying on me for information.

At the moment I am taking 100mg Doxycylcine Mon, Wed, Fri at

bedtime. Is this an appropriate dosage? I requested brand name

Minocycline but they had none in stock at our little pharmacy and so

I took what they had (generic Dox).

I am scheduled to see my Rheumatologist for a second time at the end

of November. He gave me Plaquenil which I stopped taking after 2

weeks because of headache and muddled thinking. I would like to

have some information to take to him when I go.

Bev Krul

Snow Lake, Manitoba

[Guest guest]

Hi

I have a 23 month old daughter who we think has verbal Dyspraxia and some

chewing

issues. We have seen a private speech pathologist twice now and are on various

early

intervention waiting lists. I live in Australia. My daughter Bella doesn't

really speak.

Words pop in and out, she doesn't say mama or dada and everything is

inconsistant. The

speechie says she is about 12 months behind. Just over a week ago I started her

on ProEfa

1/2 teaspoon which delivers a bit more oil than the gel capsule. About 2 days

later Bella

began to sleep longer. Bub used to wake at about 5;30 or 6am, but now she wakes

at

around 7 or 7:30am. Bella has actually began talking a bit more. She said her

name for

the first time, told me no and said dab dab dab when painting, all on the same

day. Today

in the bath she said dig dig dig when pretending to shovel water into a bucket

and said

pour. It may all be a coincidence, but I'm not stopping the oil. I am very

confused about

the best treatment for her. She will be doing PROMPT with this private

speechie and will

learn PECS next week. We are not sure if sign would also be good. Bella is

able to get

everything she wants without talking, we just know what she wants. I'm not sure

how the

PECS will go. I wonder if she could do sign and how would it complement PECS

(picture

cards)? Anybody have any advice?

Our therapist says it is up to us, but I don't know how it all works in real

life and how Bella

will respond, so I guess we will try and see. I think when we go to the

Children's Hospital

they will do some form of drill therapy for Bella and not PROMPT. Perhaps the

different

therapies might complement each other?

What kind of Speech therapy has worked for people?

Regards

Possy

[Guest guest]

PROMPT is excellent for children with apraxia. It sounds like you have

good speech therapy system already going.

I would highly recomend teaching her sign language and working up to

encouraging signing at the same time as speaking. My son has seen

tremendous improvement with this method. I believe that it is really

helping his brain to re-wire for he spoken word, because he uses a

different part of his brain while signing..

He started signing only, 2 years ago. Then he moved into signing at

the same time as speaking, now he is speaking some of the words he has

mastered and dropping the sign altogether. It is a natural

progression. I would start learning sign yourself and then teach your

daughter. Just sign all day everyday for whatever words you know.

Like.. if you know the sign EAT .. say, daughter do you want to EAT

(sign eat) then when you learn WANT sign: daughter, do you WANT to EAT

(signing WANT and EAT at the same time as speaking). After a couple

months of you doing this.. or maybe less, she will begin to sign back

to you. It is a natural progression of learning sign, then signing and

speaking, then dropping the sign, so encourage that but don't force

it. she will progress at her own speed. in my opinion sign has worked

better than any other alternative communication and it has the added

benefit of actually being useful to my child after he acquires the

spoken word.

later on in life my child can help bridge the gap between deaf and

hearing peers. what a wonderful gift for my child to be bilingual and

help others with communication when in the begining they said he might

never speak and he needed so much help with communication! of course

we don't know yet if he will eventually speak, but i am so hopefull

lately because he is doing SO well! What has really helped him

recently is having a sign interpreter with him one on one in the

class. she helps him with communicating in whatever way he can..

whether it be through speech or sign, and he can even put together

complex sentences, with one word signed, then some spoken, then a

sign, and so on.

good luck ! sounds like you are already doing really well with a

timely intervention for your daughter!

Annie

[Guest guest]

Hi Suzanne:

Welcome to the group!!! You sound like you are up to speed for

helping your daughter with dyspraxia! At her age play-based therapy

usually works best. For my son, he didn't like drills at that age and

preferred to do therapy while playing. If you have a good therapist

they will recognize how to interact with the child to get the best

results out of therapy. Kauffman cards are popular for SLPs to use

for therapy...and may appear like drilling if it isn't made into a

game or something similiar. My son doesn't do Prompt therapy, but

there are many on this board that rave about it helping their

children. We did sign language with my son to help cut down on the

frustration he was feeling when he couldn't communicate his needs or

wants. As he learned the word, he dropped the sign. He only uses

one sign now (candy) and I think he does that so that we know for

sure he wants candy!! I personaly don't think you could go wrong

trying new things and seeing what your daughter responds better

to...try not to overwhelm her though with lots of different therapies

all at once. A lot to Apraxia is trial and error...you will find out

as you go what works best for your daughter!! Here are some links of

articles or archived messages you may be interested in reading. You

can also find more information in the links sections on many

subjects. A lot of parents on this board will also be very

informative so ask away when you have questions.

Hope these help,

Tina

/links

click on a folder for links on the subject.

/message/24580

Information about one-on-one therapy.

Links for sign language and Pecs.

/message/32854

Article: Using Sign Language With Children Who Have Apraxia of Speech

By Sharon Gretz,M.Ed., President - Childhood Apraxia of Speech

Association

/message/35658

Archived message about using PECS.

You mentioned chewing difficulties...does your daughter have oral

apraxia as well? Here is some info for that.

/message/38272

Archived message with links re: oral apraxia

/message/36854

Articles: Feeding and Speech Relationships

/message/5401

Archived message-Re: Need advice on mouthstuffing & insufficient

chewing.

There is a folder for Essential Fatty Acids in the links section and

you might consider starting vitamin E (folder also located in the

links section). There is tons of information on EFAs and Vitamin E in

the links section and archives.

>

> Hi

> I have a 23 month old daughter who we think has verbal Dyspraxia

and some chewing

> issues. We have seen a private speech pathologist twice now and

are on various early

> intervention waiting lists. I live in Australia. My daughter

Bella doesn't really speak.

> Words pop in and out, she doesn't say mama or dada and everything

is inconsistant. The

> speechie says she is about 12 months behind. Just over a week ago

I started her on ProEfa

> 1/2 teaspoon which delivers a bit more oil than the gel capsule.

About 2 days later Bella

> began to sleep longer. Bub used to wake at about 5;30 or 6am, but

now she wakes at

> around 7 or 7:30am. Bella has actually began talking a bit more.

She said her name for

> the first time, told me no and said dab dab dab when painting, all

on the same day. Today

> in the bath she said dig dig dig when pretending to shovel water

into a bucket and said

> pour. It may all be a coincidence, but I'm not stopping the oil.

I am very confused about

> the best treatment for her. She will be doing PROMPT with this

private speechie and will

> learn PECS next week. We are not sure if sign would also be good.

Bella is able to get

> everything she wants without talking, we just know what she wants.

I'm not sure how the

> PECS will go. I wonder if she could do sign and how would it

complement PECS (picture

> cards)? Anybody have any advice?

>

> Our therapist says it is up to us, but I don't know how it all

works in real life and how Bella

> will respond, so I guess we will try and see. I think when we go

to the Children's Hospital

> they will do some form of drill therapy for Bella and not PROMPT.

Perhaps the different

> therapies might complement each other?

> What kind of Speech therapy has worked for people?

> Regards

> Possy

>