Re: First Post - Saying Hi and a little about me and why I'm here --- Suzanne

[Guest guest]

Hi Suzanne,

So nice to hear from you. I am sure you will like it here. There

are a lot of great people. Just jump in and start to tell us your

thoughts or ask us your questions. I am sorry you feel so isolated.

I take it you do not work. Please feel free to email me

(agott@...) anytime you just want to talk or just talk

to the group, we love that.

I hope your pain level goes way down.

Love,

Annie

>

> Hey!

>

> My name is Suzanne. I am from Alabama, happily married. My husband

> and I fell in love and got married in 3 short months, 1 month of

> which was spent planning a wedding. This was most unfortunate for

> him, because we lived in different cities 2 hours apart, and he

> never had to deal with me having a flare up until we were married.

> Just after getting married (think... 3 days) I went on the road

with

> him. He was a truck driver. All of the sudden, this poor 25 year

old

> was trapped in a truck in Limon, Colorado with a new wife in a

> severe flare up. Poor thing. And thats how Jon got introduced to

> fibromyalgia.

>

> I am far from new to the fibro world. I was diagnosed 7 years ago.

> What makes this unusual is that I am only 19.

>

> I have been to countless doctors, most of which have told me to

> either A) grow up and deal with it (literally, they said that)

it

> was in my head, they didnt believe me, or the most common answer C)

> lose weight. Well, I had gastric bypass, lost over 100 lbs, and am

> having the worst flares of my life. I guess lose weight wasn't the

> magic answer huh.

>

> I woke up crying today. When I woke up, I was crying because of the

> pain, then I started crying because of the isolation. I wear long

> sleeves and long pants all the time, because anything brushing my

> skin feels like a severe sunburn getting scratched. My mom hugging

> me is horribly painful. I can't even deal with the fabric on the

> couch touching me most days.

>

> My loved ones try so hard to understand, but they just don't. God

> bless him, I have the most wonderful husband. Sure he isnt perfect,

> but he does try to understand, but I can tell that even with his

> patience, he gets frustrated with me always hurting.

>

> I guess I am here for a few reasons. First off, I have come to the

> conclusion that I can't do this alone anymore. I need to be able to

> have someone that has a clue what I mean and doesnt look at me all

> puzzled when I am having fibrofog. Secondly, I figure that as many

> people as are here reading and finding out info has a better chance

> of coming up with ideas that might help than me alone Googling.

>

> Well, enough for now. I hope to be very active here, it looks like

> an informative, fun, and compassionate place, and I really need

that

> right now.

>

> Take care!

> -_Suzanne

>