Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Is it possible that someone can read this ???? > > So I guess it is time for me to be able to vent and say " this sucks. " > > > > We didn't go to Dr. H's for 's 3-month checkup because our 5- > > yr-old's surgery date kept getting moved around. So we went local up > > to Children's Hospital. I love the endo, but it is very hard to base > > growth rates on growth hormone on two completely different measuring > > devices. According to his measuring, grew ZERO in the last > > three months on GH. That SUCKS!!!! He wanted to increase her Gh > > dosage by 33%. Dr. H countered with 14% increase. Dr. H felt that > > the growth may be low, but not zero due to measuring differences. > > So.... from now on, we will be flying to NY every 3 months again!!! > > > > On top of that, out of the blue at swim lessons, stands in > > front of the mirror naked and says to me in this sad voice " Mom, why > > am I so skinny? Why can't I look like my friends. " OK, this is a > > little girl who used to be SOO short, and is now in the 50%'tile for > > height, and now she is sad about her WEIGHT!!! She is 6!!! I almost > > cried. > > > > Then she said something like " it isn't fair that I have to get a shot > > every night. " So we sat down and I said something like " you're > > right. It isn't fair. And you know I get sad sometimes none of my > > friends have to give their daughters' a shot every night. But the > > medicine is working, right? " And we talked about how great she feels > > that she is taller. But then said again that it isn't fair that she > > can only swim for a little time before she is so cold because she is > > so skinny, and her little brother can swim for so much longer. > > > > So here is my question. My husband and I feel like we are over our > > heads here. has to eat every hour at school, so even though > > she may " look " more similar to her peers now due to the GH, she is > > still different. Does it make sense to talk to a therapist? Let her > > have someone she can talk to? The doctors drive me CRAZY with all of > > their talk about her being underweight. I am definitely going to > > warn them ahead of time to tone it down. She is picking up on it > > already!!! > > > > Anyone with older kids. Do I just wing it and see if she brings it > > up again? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Is it possible that someone can read this ???? > > So I guess it is time for me to be able to vent and say " this sucks. " > > > > We didn't go to Dr. H's for 's 3-month checkup because our 5- > > yr-old's surgery date kept getting moved around. So we went local up > > to Children's Hospital. I love the endo, but it is very hard to base > > growth rates on growth hormone on two completely different measuring > > devices. According to his measuring, grew ZERO in the last > > three months on GH. That SUCKS!!!! He wanted to increase her Gh > > dosage by 33%. Dr. H countered with 14% increase. Dr. H felt that > > the growth may be low, but not zero due to measuring differences. > > So.... from now on, we will be flying to NY every 3 months again!!! > > > > On top of that, out of the blue at swim lessons, stands in > > front of the mirror naked and says to me in this sad voice " Mom, why > > am I so skinny? Why can't I look like my friends. " OK, this is a > > little girl who used to be SOO short, and is now in the 50%'tile for > > height, and now she is sad about her WEIGHT!!! She is 6!!! I almost > > cried. > > > > Then she said something like " it isn't fair that I have to get a shot > > every night. " So we sat down and I said something like " you're > > right. It isn't fair. And you know I get sad sometimes none of my > > friends have to give their daughters' a shot every night. But the > > medicine is working, right? " And we talked about how great she feels > > that she is taller. But then said again that it isn't fair that she > > can only swim for a little time before she is so cold because she is > > so skinny, and her little brother can swim for so much longer. > > > > So here is my question. My husband and I feel like we are over our > > heads here. has to eat every hour at school, so even though > > she may " look " more similar to her peers now due to the GH, she is > > still different. Does it make sense to talk to a therapist? Let her > > have someone she can talk to? The doctors drive me CRAZY with all of > > their talk about her being underweight. I am definitely going to > > warn them ahead of time to tone it down. She is picking up on it > > already!!! > > > > Anyone with older kids. Do I just wing it and see if she brings it > > up again? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2002 Report Share Posted May 3, 2002 Hi ne, Message received just fine. I think we are making progress on this e-mail address problem. Ken M > > > So I guess it is time for me to be able to vent and say " this > sucks. " > > > > > > We didn't go to Dr. H's for 's 3-month checkup because our > 5- > > > yr-old's surgery date kept getting moved around. So we went local > up > > > to Children's Hospital. I love the endo, but it is very hard to > base > > > growth rates on growth hormone on two completely different > measuring > > > devices. According to his measuring, grew ZERO in the > last > > > three months on GH. That SUCKS!!!! He wanted to increase her Gh > > > dosage by 33%. Dr. H countered with 14% increase. Dr. H felt > that > > > the growth may be low, but not zero due to measuring > differences. > > > So.... from now on, we will be flying to NY every 3 months > again!!! > > > > > > On top of that, out of the blue at swim lessons, stands > in > > > front of the mirror naked and says to me in this sad voice " Mom, > why > > > am I so skinny? Why can't I look like my friends. " OK, this is a > > > little girl who used to be SOO short, and is now in the 50%'tile > for > > > height, and now she is sad about her WEIGHT!!! She is 6!!! I > almost > > > cried. > > > > > > Then she said something like " it isn't fair that I have to get a > shot > > > every night. " So we sat down and I said something like " you're > > > right. It isn't fair. And you know I get sad sometimes none of > my > > > friends have to give their daughters' a shot every night. But > the > > > medicine is working, right? " And we talked about how great she > feels > > > that she is taller. But then said again that it isn't fair that > she > > > can only swim for a little time before she is so cold because she > is > > > so skinny, and her little brother can swim for so much longer. > > > > > > So here is my question. My husband and I feel like we are over > our > > > heads here. has to eat every hour at school, so even > though > > > she may " look " more similar to her peers now due to the GH, she > is > > > still different. Does it make sense to talk to a therapist? Let > her > > > have someone she can talk to? The doctors drive me CRAZY with > all of > > > their talk about her being underweight. I am definitely going to > > > warn them ahead of time to tone it down. She is picking up on it > > > already!!! > > > > > > Anyone with older kids. Do I just wing it and see if she brings > it > > > up again? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2004 Report Share Posted January 24, 2004 Sorry for this again guys!!! I will get it working yet!!! Candi Quote Link to comment Share on other sites More sharing options...
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