Re: SCD - one year and beyond

[Guest guest]

I've been on SCD for over five years. I didn't have UC, though. But

I think my experience is fairly common to everyone who has been on

SCD a while.

The healing phases/die-off episodes were frequent during the first

year on SCD, then slowly tapered off over the next year and a half.

None of the flares after my first year were as severe or as long-

lasting. I felt I had finally achieved complete healing by the end

of my 3rd year on SCD.

My digestive disorders are functional, so I still have occasional

symptom flares after year 3, but they are connected to a " new " food I

try, or part of my ongoing neurological deterioration. In other

words they aren't part of the healing process.

I think the length of time varies with everyone, but the worst is

usually over by the end of 18 months on SCD.

Kim M.

SCD 5 years

>

> This is really a question for those 'veterans' and anyone who is

past

> the year mark. I am currently in the middle of my third 'die-off'

> period which I finding much easier to deal with than the first two I

> must say. I remember reading both on here and in the BVTC book about

> the three die-offs that one might expect but I have no idea of what

to

> expect passed this point.

>

> I know that most peoples SCD experiences are different but I would

be

> interested to hear from those who have been there and done it to see

> what I can expect in the coming months.

>

> Thanks,

>

> Mike

>

> UC 6 years

> SCD 9 months

>

[Guest guest]

At 08:13 AM 1/25/2009, you wrote:

I know that most peoples SCD

experiences are different but I would be interested to hear from those

who have been there and done it to see what I can expect in the coming

months.

I was ill for 25 years before I found SCD. My first year or so was

fraught with an amazing collection of How I Screwed Up On SCD stories. If

there was a mistake it was possible to make, I made it.

I still have occasional issues which I can usually trace back to

Something Stupid I Did Without Thinking. Typically, these days, it's

errors when we eat out. (Yeesh! Last night, we were at a different

restaurant, and I had to send my darned burger back four times before

they got it right! What IS it with people who insist on piling french

fries and onion rings on a platter " because that's the way it

comes " when the ticket says plainly, " NO bun, NO fries, NO

onion rings, NO seasoning, CHEDDAR not American cheese, NO croutons on

salad, NO dressing on salad.... " )

In general, though, what I experienced past the desperate early days has

been a slow and fairly steady improvement.

As an example of what SCD can do, I had major surgery for endometrial

cancer in April of 2008. Because of my obesity issues which are slowly

resolving under SCD, my surgeon included a panniculectomy to remove a

belly fat pad so she would have better surgical clearance. I was told by

the plastic surgeon that it was not IF I would have infection from this,

it was how much. It was not IF I had wound separation, it was how much.

And so on and so forth with a list of things that it was not IF but how

MUCH I would have. Well, I shocked the socks off both the plastic surgeon

and the oncologist, because I didn't have ANY of those issues. The

plastic surgeon had different interns in every time I saw him in the 10

weeks after the surgery so they could see how an incision of my type

OUGHT to heal.

I had a colonoscopy 2 January 2009. Despite all those years of gut issues

where the docs kept telling me to stop stuffing my face and lose weight

and it would all clear up, or to take a little Lomotil if it bothered me,

there was no sign of Crohn's or UC, no sign of diverticulitis, no sign of

any scarring. On the macro level, whatever was wrong with me has fully

healed. Now I just need to finish healing on the micro level, which

includes getting the weight off by NOT eating their Deity-cursed low-fat

and high complex carbohydrate diet, as I did for 25 years because I

didn't know better.

—

Marilyn

New Orleans, Louisiana, USA

Undiagnosed IBS since 1976, SCD since 2001

Darn Good SCD Cook

No Human Children

Shadow & Sunny Longhair Dachshund