Re: Guaifenesin protocol??

[Guest guest]

I must admit to knowing nothing about the Guaifenesin protocol, but what on

earth does one have to do with the other? Why these no-nos? Really curious.

~Jennie

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[Guest guest]

Yup, link worked fine. Thanks! I've gotta look into this. Interesting. Don't

think I will try it though. I have too many issues with Guaifenesin as it

is. My body does not handle any type of chemical or drug.

I am going to read this though.

~Jenn

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products.

(http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

[Guest guest]

See, I'm just no disciplined enough to do this. I'm like you - too many

no-no's. What's left?

Caroline Witte wrote:

> I finally decided to do a more in-depth check on the guaifenesin protocol.

What I found is that nearly all of my favourite products are no-nos. Even the

one brand of facial care products I am able to use, including their lipstick and

mascara would be no-nos. I COULD do without the lipstick and mascara, but I do

need creams and lotions. My skin is SO dry. Of course there are a multitude of

foods on the no-no list, and my foods have already been cut following the IBS

diet, I don't know what there would be left for me to eat. This seems so

extreme. I just don't know how people can do this. I mean, things I love like

mint and lavender are also no-nos. I use those and others on the 'no' list as

aromatherapy, which brings me a lot of relief. I guess I am simply in shock,

reading of all the things one must forego, and so many of them are things I have

found helpful. NO herbal supplements are allowed on this, and only certain

vitamin supplements. No toothpastes with mint. No soaps with glycerin. No...just

about anything it would seem. HOW do people manage doing this? I always said I

would do anything it took to get rid of the monster, but maybe I just don't

really mean it? Has anyone here ever done this, eliminating everything on the

'no-no' list? I am so curious.

>

> Peace and Love

> Caroline

>

>

[Guest guest]

Apparently anything containing salicylates interfere with the guaif working as

it should. The theory behind this seems to be that our bodies (Those with

CFS/FM) build up an excess of phosphates, and the guaif can eliminate them. He

says that: " Guaifenesin’s effect on the kidney is blocked by the chemical

salicylate "

You can read more about it here:

http://www.immunesupport.com/library/showarticle.cfm?id=7514 & T=CFIDS_FM & B1=EM120\

507F

That link printed out strangely, I hope it's useable.

Peace and Love

Caroline

I must admit to knowing nothing about the Guaifenesin protocol, but what on

earth does one have to do with the other? Why these no-nos? Really curious.

~Jennie

____________________________________________________________

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Check it out at http://www.crawler.com/earth

[Guest guest]

My body doesn't handle a lot of drugs well, either, but the guiafenisen

hasn't been a problem for me. I bought some guiafenesin and started taking

it and tried to ease into the protocol. I switched toothpaste and mouthwash,

and cut back on some other things and then got that " awwww screw it "

attitude and stopped taking it. I had noticed that my IBS problems had

significantly improved, but did not attribute it to the guiafenesin. I

didn't completely make that connection until I quit taking the guai. Makes

me wonder if FMS causes some type of absorption problem. (for me at least)

I was experimenting with the guai - taking 1200mg sustained release twice

daily for a while, and then bought some capsules that were 400mg (NOT

sustained release) and was taking those 3-4 times a day.

I may be imagining it, but I think I feel a little better taking them than

not taking them, even if I don't follow the protocol exactly. I do try to

cut way back on sugar and caffeine and drink more water. I think I will

start keeping a symptoms journal that also journals my supplements - which

now consists of SAM-E, guaifenesin, multivitamin, chromium picolinate, ALA,

CLA, milk thistle - these are the ones I don't feel I can do without without

being completely miserable and getting the tin-man effect.

in Louisiana

>

> Yup, link worked fine. Thanks! I've gotta look into this. Interesting.

> Don't

> think I will try it though. I have too many issues with Guaifenesin as it

> is. My body does not handle any type of chemical or drug.

>

> I am going to read this though.

>

> ~Jenn

>

> **************************************Check out AOL's list of 2007's

> hottest

> products.

> (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001)

>

>

[Guest guest]

When I went on it, it was advised to begin with a basic soap and moisturizer

that were on the OK list. You have to use products with only chemicals, no

natural ingredients. That's not an easy thing in this day and age. The

nation is on a natural products kick. Also, some people are more salicylate

sensitive then others. I was able to get by using Crest orange or cinnamon

toothpaste even though there is a touch of mint in those. I found some

Suave shampoos without natural ingredients, an Equate brand shower gel(blue

anti-bacterial like Dial), Neutrogena T-Gel shampoos for my psoriasis(one

had some natural product, but I only used it once or twice a week) and at

the time, Jergens made a lotion that had no natural ingredients.

As you've said, you seem to need Aveeno products and such for your dry

skin, so these may interfere with the protocol. It takes a long time to

purge the phosphates or whatever they're called from the kidneys, so you may

not notice an improvement right away. But some people did notice a dramatic

improvement in their pain levels after that initial slam of flaring. And I

know that some people try to get around the salycilate thing by taking

higher doses of the guaifenesin. Don't know if any of this helps or not.

Jeanne in WI

Guaifenesin protocol??

>I finally decided to do a more in-depth check on the guaifenesin protocol.

>What I found is that nearly all of my favourite products are no-nos. Even

>the one brand of facial care products I am able to use, including their

>lipstick and mascara would be no-nos. I COULD do without the lipstick and

>mascara, but I do need creams and lotions. My skin is SO dry. Of course

>there are a multitude of foods on the no-no list, and my foods have already

>been cut following the IBS diet, I don't know what there would be left for

>me to eat. This seems so extreme. I just don't know how people can do this.

>I mean, things I love like mint and lavender are also no-nos. I use those

>and others on the 'no' list as aromatherapy, which brings me a lot of

>relief. I guess I am simply in shock, reading of all the things one must

>forego, and so many of them are things I have found helpful. NO herbal

>supplements are allowed on this, and only certain vitamin supplements. No

>toothpastes with mint. No soaps with glycerin. No...just about anything it

>would seem. HOW do people manage doing this? I always said I would do

>anything it took to get rid of the monster, but maybe I just don't really

>mean it? Has anyone here ever done this, eliminating everything on the

>'no-no' list? I am so curious.

>

> Peace and Love

> Caroline

[Guest guest]

I bet it works for some people. But I was just thinking .... the shopping trip

alone would put me into a flare. LOL.

Seriously though, I hope it works for alot of people and I have heard some

good things about it. I have also heard that the first few days or weeks makes

you feel even worse until the protocol is followed for a while. I just fear

that I don't have enough time to get use to the protocol and would have to miss

alot of work I cannot afford.

love,

Debra V.

Dave and Jeanne wrote:

When I went on it, it was advised to begin with a basic soap and

moisturizer

that were on the OK list. You have to use products with only chemicals, no

natural ingredients. That's not an easy thing in this day and age. The

nation is on a natural products kick. Also, some people are more salicylate

sensitive then others. I was able to get by using Crest orange or cinnamon

toothpaste even though there is a touch of mint in those. I found some

Suave shampoos without natural ingredients, an Equate brand shower gel(blue

anti-bacterial like Dial), Neutrogena T-Gel shampoos for my psoriasis(one

had some natural product, but I only used it once or twice a week) and at

the time, Jergens made a lotion that had no natural ingredients.

As you've said, you seem to need Aveeno products and such for your dry

skin, so these may interfere with the protocol. It takes a long time to

purge the phosphates or whatever they're called from the kidneys, so you may

not notice an improvement right away. But some people did notice a dramatic

improvement in their pain levels after that initial slam of flaring. And I

know that some people try to get around the salycilate thing by taking

higher doses of the guaifenesin. Don't know if any of this helps or not.

Jeanne in WI

Guaifenesin protocol??

>I finally decided to do a more in-depth check on the guaifenesin protocol.

>What I found is that nearly all of my favourite products are no-nos. Even

>the one brand of facial care products I am able to use, including their

>lipstick and mascara would be no-nos. I COULD do without the lipstick and

>mascara, but I do need creams and lotions. My skin is SO dry. Of course

>there are a multitude of foods on the no-no list, and my foods have already

>been cut following the IBS diet, I don't know what there would be left for

>me to eat. This seems so extreme. I just don't know how people can do this.

>I mean, things I love like mint and lavender are also no-nos. I use those

>and others on the 'no' list as aromatherapy, which brings me a lot of

>relief. I guess I am simply in shock, reading of all the things one must

>forego, and so many of them are things I have found helpful. NO herbal

>supplements are allowed on this, and only certain vitamin supplements. No

>toothpastes with mint. No soaps with glycerin. No...just about anything it

>would seem. HOW do people manage doing this? I always said I would do

>anything it took to get rid of the monster, but maybe I just don't really

>mean it? Has anyone here ever done this, eliminating everything on the

>'no-no' list? I am so curious.

>

> Peace and Love

> Caroline

---------------------------------

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[Guest guest]

Have read about this before with the guiafen. " cure " , not enough evidence to

prove it works, from what I remember reading, not something I would personally

try but if u believe it will it might work for you. Jodi

Dave and Jeanne wrote: When I went on it,

it was advised to begin with a basic soap and moisturizer

that were on the OK list. You have to use products with only chemicals, no

natural ingredients. That's not an easy thing in this day and age. The

nation is on a natural products kick. Also, some people are more salicylate

sensitive then others. I was able to get by using Crest orange or cinnamon

toothpaste even though there is a touch of mint in those. I found some

Suave shampoos without natural ingredients, an Equate brand shower gel(blue

anti-bacterial like Dial), Neutrogena T-Gel shampoos for my psoriasis(one

had some natural product, but I only used it once or twice a week) and at

the time, Jergens made a lotion that had no natural ingredients.

As you've said, you seem to need Aveeno products and such for your dry

skin, so these may interfere with the protocol. It takes a long time to

purge the phosphates or whatever they're called from the kidneys, so you may

not notice an improvement right away. But some people did notice a dramatic

improvement in their pain levels after that initial slam of flaring. And I

know that some people try to get around the salycilate thing by taking

higher doses of the guaifenesin. Don't know if any of this helps or not.

Jeanne in WI

Guaifenesin protocol??

>I finally decided to do a more in-depth check on the guaifenesin protocol.

>What I found is that nearly all of my favourite products are no-nos. Even

>the one brand of facial care products I am able to use, including their

>lipstick and mascara would be no-nos. I COULD do without the lipstick and

>mascara, but I do need creams and lotions. My skin is SO dry. Of course

>there are a multitude of foods on the no-no list, and my foods have already

>been cut following the IBS diet, I don't know what there would be left for

>me to eat. This seems so extreme. I just don't know how people can do this.

>I mean, things I love like mint and lavender are also no-nos. I use those

>and others on the 'no' list as aromatherapy, which brings me a lot of

>relief. I guess I am simply in shock, reading of all the things one must

>forego, and so many of them are things I have found helpful. NO herbal

>supplements are allowed on this, and only certain vitamin supplements. No

>toothpastes with mint. No soaps with glycerin. No...just about anything it

>would seem. HOW do people manage doing this? I always said I would do

>anything it took to get rid of the monster, but maybe I just don't really

>mean it? Has anyone here ever done this, eliminating everything on the

>'no-no' list? I am so curious.

>

> Peace and Love

> Caroline

Jodi (JEM)

---------------------------------

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