Guest guest Posted October 22, 2000 Report Share Posted October 22, 2000 In a message dated 10/22/00 7:12:45 PM Mountain Daylight Time, lisa.ackerman@... writes: << I know there is a few of us out there that have a child that is diagnosed autistic and apraxic. (for those thinking what the heck is apraxia? A brief description: when you child knows what they want to say and cannot get the words out - similar to a stroke victim. Sorry to be simple and crude.) >> Hi , My autistic son has trouble too with getting his words out but has never been diagnosed with apraxia. I didn't even know what it was until this post. He will know exactly what he wants to say but then he stumbles on words and it may take him forever just to get one simple sentence out. And when he does his words are not in the right order. He was born premature and had bleeding in the ventricles of his brain that caused his brain injury. He was diagnosed as Mentally Retarded with Autistic Characteristics <~ whatever that means. He also has mild Cerebral Palsy. We just started the ABA program last month and I'm already seeing some improvement. I just found out from a friend about this gf/cf diet and I'm getting as much info about it to start it, hopefully soon. I'm glad to get to know you, it sure does help talking to other parents going through this. Could you also tell me more about apraxia maybe I should ask his doctor (like they know anything anyway LOL) Thank You! Bridgett in KY Mommy to: (8) and (7) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Hi , This sounds very like my son when he was younger and he certainly did not have apraxia. From observing the children I know that have apraxia, even getting the word MOMMY out is very difficult as it is a motor issue and they literally cannot get their mouth around the words and it can be very difficult to understand their pronunciations. It would be my semi-educated guess that if the (even a few)words she says are really clear, she does not have apraxia. The reason she cannot get the words out are most likely related to the autism, not apraxia, but a good speech therapist should definately be able to tell you for certain. Best of luck, Kirrily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Hi , This sounds very like my son when he was younger and he certainly did not have apraxia. From observing the children I know that have apraxia, even getting the word MOMMY out is very difficult as it is a motor issue and they literally cannot get their mouth around the words and it can be very difficult to understand their pronunciations. It would be my semi-educated guess that if the (even a few)words she says are really clear, she does not have apraxia. The reason she cannot get the words out are most likely related to the autism, not apraxia, but a good speech therapist should definately be able to tell you for certain. Best of luck, Kirrily Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Hi all I know there is a few of us out there that have a child that is diagnosed autistic and apraxic. (for those thinking what the heck is apraxia? A brief description: when you child knows what they want to say and cannot get the words out - similar to a stroke victim. Sorry to be simple and crude.) I want to keep in touch with you all. I was hoping you could email me (if we already do not know each other!!) I want to share ideas and thoughts on helping our wonderful kids. A - Proud mother of Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 Autism and apraxia go hand in hand for a majority of the kids. The problem is that very few people know how to diagnose it. My son is both. His apraxia was so severe that it took us almost 2 years to cut through ti before we could even deal with his autism. email me privately if you want specific information in treating apraxia. Holly ----- Original Message ----- > > I know there is a few of us out there that have a child that is diagnosed > autistic and apraxic. (for those thinking what the heck is apraxia? A > brief description: when you child knows what they want to say and cannot > get the words out - similar to a stroke victim. Sorry to be simple and > crude.) > > I want to keep in touch with you all. I was hoping you could email me (if > we already do not know each other!!) I want to share ideas and thoughts on > helping our wonderful kids. > > A - Proud mother of Jeff Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 There are SOOOO many labels out there. My son was " Apraxic " Until he started talking again. (He was out to lunch for a little while, then he " came back " but was frustrated when he couldn't communicate his " apraxic " stage.) then he was " hyperlexic " - for those who don't know, that was that he couldn't communicate, but he could read & write...NOW he is just " delayed " since he can communicate (AND BOY can he EVER...TONIGHT I yelled at him for hitting his sister, and when I went to kiss him goodnight I said " I love you " and he said " NO " , I asked " No what? " He said " I don't like you very much at all " I smiled (see and most parents would be upset...) and I said " it's ok to get mad at mommy, I know it's frustrating when you get yelled at " and he said " Fine I am Frusterated, and I love you. " : ) SO CUTE...BUT BACK on the ORIGINAL note, I don't know WHY they constantly label our kids...if there is no special cure for each special name...I don't know what the point is...-Shari MAD at the Mets, and head FULL of labels, Shane has had 14 already...and I'm sure we have several more to go Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 , My son is 5 and is autistic and apraxic. He only has a few words and they come and go. He is very frustrated by this. Feel free to contact me. Phyllis ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 , My son is 5 and is autistic and apraxic. He only has a few words and they come and go. He is very frustrated by this. Feel free to contact me. Phyllis ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 the no pointing could be part of motor apraxia. Max was like this too where you had to guess and guess. Get PECS cards of all her fav things and show her two cards and let her choose. the card should have a picture and the word below it. say each one and shwo them both, when she chooses one, hand her the card - or put the cards on a table and make her give you the card. eventually she will be able to getsure to the card by pointing or just grabbing it. Holly ----- Original Message ----- > My daughter doesn't ask for anything unless I give her choices. She > knows what she wants and I am learning to guess so that I can help her > say it, but it can be frustrating. I know she knows the words. We > went through this big thing trying to teach her sentences. One of the > main ones was " I want milk please " . She can repeat it just great. > Sometimes she will come in and get my attention and just go " I (pause > if i don't say anything back while waiting for her to finish her > sentence) mommy I " and she wants me to tell her the sentence so she can > repeat it. Other times I just guess and guess until she agrees that I > finally figured out what she wants. She doesn't point either so that > doesn't help. She doesn't appear to be doing it on purpose. Is this > an apraxia thing or an autism thing? I just assumed it was autism. If > this is apraxia and there is a way to help it, could you send me some > information please. > Schaffer > sarahschaffer@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2000 Report Share Posted October 23, 2000 This is interesting and confusing to me. Evan has never gotten a label on his speech. Mostly he just makes sounds and they are so pleased with his mamamam. It is not big deal to me and maybe it should be but he has done that for years. About once a year, he comes out with about 3 very plain and understandable words and then nothing again. His ABA aide has pressured him into sounds and words but she said he really gets mad before he will do it. But if she nags him enough, long enough he will do it. Just once and then no more. Betty in Central California Quote Link to comment Share on other sites More sharing options...
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