Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 , Hang in there, sweetie, you are not alone! You know that. We are all here for you and you KNOW that WE understand because we are all in the same boat..... You are in my thoughts and prayers and will be........ Sending lots and lots of good thoughts, prayers, and hugs, Love ya, Darlene (((((((((((( hugs ))))))))))))> > > > > > i am writing to openly ask for whatever positive thoughts, prayers, > meditations you may be able to send my way. Things are snowballing for > me to a point that for only the second time in the nine years I've been > battling very serious attacks that I am getting very terrified, and yet > I still and ever cannot communicate to the walking and talking folks > around here that things are boiling down to critical mass. > > I'm just too tired and sick to explain. I just know that you can help > me and I don't do to well asking for help, especially face to face. > > THANKS > > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 I am here for you hunny, and I know how bad it can be also. I wil tell you what you have always told me, let the disease do what it needs to do for now, then when you get some of your strength back, start fighting again. We are all here for you, so please let us be there for you and let us into your heart and help the healing. Lynneesther reubens wrote: i am writing to openly ask for whatever positive thoughts, prayers, meditations you may be able to send my way. Things are snowballing for me to a point that for only the second time in the nine years I've been battling very serious attacks that I am getting very terrified, and yet I still and ever cannot communicate to the walking and talking folks around here that things are boiling down to critical mass.I'm just too tired and sick to explain. I just know that you can help me and I don't do to well asking for help, especially face to face.THANKS ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityNS CHAT:- Has been cancelled for now.Message Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Sweet , It's perfectly understandable why you are feeling this way. You have so much going on with you and your body right now and all the emotions that go along with it. And then you throw in the stressors from the outside like the doctors and this medication and that medication and you wonder if its all worth it....... Well, even though it doesn't feel like it right now, , it is. Take things one step at a time. Try not to overwhelm yourself ( one of my little habits). We are all here for you almost anytime of the day. We care. We know you have a terrific support system in your family who cares about you too. When you feel up to letting them in, talk to them. They are there for you. You will be in my thoughts and prayers . Hang in there kid, we need our BSF!!!!!! LUV, Debbie esther reubens wrote: i am writing to openly ask for whatever positive thoughts, prayers, meditations you may be able to send my way. Things are snowballing for me to a point that for only the second time in the nine years I've been battling very serious attacks that I am getting very terrified, and yet I still and ever cannot communicate to the walking and talking folks around here that things are boiling down to critical mass.I'm just too tired and sick to explain. I just know that you can help me and I don't do to well asking for help, especially face to face.THANKS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 1, 2004 Report Share Posted December 1, 2004 Reneness, next time have or Hayden call me if you aren't up to it yourself. Somehow, being around you seems to help me. Actually it seems like I've gone downhill since I saw you the night of Hayden's play. I've been off the list because I just didn't have the energy or heart to sit down & do it. Physically not a lot of change, except my feet are much worse. Mentally I feel like my skull is full of molasses. I can't decide anything. I stood in the bathroom for several minutes debating about my toothbrush & it's the only one I have. Emotionally, I'm shot to hell. I would consider drowning every member of my family. Unfortunately, that's more reality than a joke. I feel like I'm in the middle of a bunch of octopuses, octopi, whatever, all pulling at me & wrapping their tentacles around me. Sam has screwed up big time & is having a raging pity party because she doesn't like the consequences that are looming ahead. I've finally realized that my mother isn't doing most of the annoying things she does just to drive me up the wall, but because she truly doesn't remember what I've said, or what she's done just a few minutes ago. This has hit me hard because I no longer have the hope that she will be able to help me more as I need it, but that she will be an even greater responsibility. She used to keep track of my appts. & remind me, but now she gets them all mixed up, so between the two of us, we are missing or late to many appts. My phones are going haywire, fans are burning up, my unopened mail is breeding like rabbits, my dog has developed a serious neurosis or something. He keeps dragging stuff out into the yard through the dog door--5# bag of sugar, bag of clothespins I bought for the kids to make reindeer ornaments, popcorn, tupperware (clean), beads, scissors, etc., etc., etc. I have mousetraps all over my cabinet doors & countertops. I even put a huge rat trap on the counter & he managed to pull a dishtowel & mug around it. He's really a wonderful dog & I love him dearly, but a crazy mother & a crazy dog, plus 2 crazy daughters is more craziness than I can stand, and that isn't even counting my own craziness. Well, I've got to get some sleep. I'll try to pull myself together & get back on track. I cried in physical therapy last week and I cried in my group therapy (for depression) last night. I feel like cutting my feet off; if they aren't hurting like crazy, they're itching like crazy. I saw my psychiatrist today. He's considering changing my Effexor to a new anti-depressant, something like Simbalist or something, but he's concerned about interaction with all the other crap I'm on. Don't worry about me; after enough dirt & rocks have fallen on my head, I'll decide to get out of my pit of despair. Love you all. Rose please help me > > i am writing to openly ask for whatever positive thoughts, prayers, > meditations you may be able to send my way. Things are snowballing for > me to a point that for only the second time in the nine years I've been > battling very serious attacks that I am getting very terrified, and yet > I still and ever cannot communicate to the walking and talking folks > around here that things are boiling down to critical mass. > > I'm just too tired and sick to explain. I just know that you can help > me and I don't do to well asking for help, especially face to face. > > THANKS > > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > NS CHAT:- Has been cancelled for now. > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2004 Report Share Posted December 2, 2004 Oh my, Rose, I am so sorry you are going through such a rough time right now. I feel so bad, when I noticed that you hadn't been on I thought something was wrong with "old sparky". I wish you would have let us known - but I can understand at the same time when you just don't have the energy, physical or mental, to get onto the computer. You are being pulled in a lot of directions - but you have to think of your health too. Can you increase appts. with your therapist? Definitely try that new med if possible. I know my therapist has helped me immensely especially throughout these two years that I have been sick. She is there for me anytime day or night. I got her beeper & her cell phone #'s. She's very supportive. You got too much on your plate to handle this all on your own. You need some extra support right now. If not from a therapist, is there a friend that could just be there for you? I hate to see you like this. You aren't the Rambling Rosie we all know. We all love you and are here for you though and there is someone usually around if you need to talk. So hang in there, You will be in my thoughts and prayers, Rose. Luv, DebbieRose wrote: Reneness, next time have or Hayden call me if you aren't up to ityourself. Somehow, being around you seems to help me. Actually it seemslike I've gone downhill since I saw you the night of Hayden's play. I'vebeen off the list because I just didn't have the energy or heart to sit down & do it. Physically not a lot of change, except my feet are much worse.Mentally I feel like my skull is full of molasses. I can't decide anything.I stood in the bathroom for several minutes debating about my toothbrush & it's the only one I have. Emotionally, I'm shot to hell. I would considerdrowning every member of my family. Unfortunately, that's more reality thana joke. I feel like I'm in the middle of a bunch of octopuses, octopi,whatever, all pulling at me & wrapping their tentacles around me. Sam hasscrewed up big time & is having a raging pity party because she doesn't likethe consequences that are looming ahead. I've finally realized that mymother isn't doing most of the annoying things she does just to drive me upthe wall, but because she truly doesn't remember what I've said, or whatshe's done just a few minutes ago. This has hit me hard because I no longerhave the hope that she will be able to help me more as I need it, but thatshe will be an even greater responsibility. She used to keep track of myappts. & remind me, but now she gets them all mixed up, so between the twoof us, we are missing or late to many appts. My phones are going haywire,fans are burning up, my unopened mail is breeding like rabbits, my dog hasdeveloped a serious neurosis or something. He keeps dragging stuff out intothe yard through the dog door--5# bag of sugar, bag of clothespins I boughtfor the kids to make reindeer ornaments, popcorn, tupperware (clean), beads,scissors, etc., etc., etc. I have mousetraps all over my cabinet doors & countertops. I even put a huge rat trap on the counter & he managed to pulla dishtowel & mug around it. He's really a wonderful dog & I love himdearly, but a crazy mother & a crazy dog, plus 2 crazy daughters is morecraziness than I can stand, and that isn't even counting my own craziness.Well, I've got to get some sleep. I'll try to pull myself together & getback on track. I cried in physical therapy last week and I cried in mygroup therapy (for depression) last night. I feel like cutting my feet off;if they aren't hurting like crazy, they're itching like crazy. I saw mypsychiatrist today. He's considering changing my Effexor to a newanti-depressant, something like Simbalist or something, but he's concernedabout interaction with all the other crap I'm on. Don't worry about me;after enough dirt & rocks have fallen on my head, I'll decide to get out ofmy pit of despair. Love you all. Rose please help me>> i am writing to openly ask for whatever positive thoughts, prayers,> meditations you may be able to send my way. Things are snowballing for> me to a point that for only the second time in the nine years I've been> battling very serious attacks that I am getting very terrified, and yet> I still and ever cannot communicate to the walking and talking folks> around here that things are boiling down to critical mass.>> I'm just too tired and sick to explain. I just know that you can help> me and I don't do to well asking for help, especially face to face.>> THANKS> >>>>> ~~~~ *** ~~~ *** ~~~ *** ~~~~> The Neurosarcoidosis Community>> NS CHAT:- Has been cancelled for now.>> Message Archives:-> http://groups.yahoo.com/group/Neurosarcoidosis/messages>> Members Database:-> Listings of locations, phone numbers, and instant messengers.> http://groups.yahoo.com/group/Neurosarcoidosis/database>> Quote Link to comment Share on other sites More sharing options...
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