Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 In a message dated 7/22/04 8:05:54 AM Pacific Daylight Time, RSD-CRPSofAmerica writes: Jai..I dont think it was me that wrote that. I've been having BP probalems lately which I think are associated with both pain and anxiety but its never been quite that high and doesnt stay high all the time. But its sound advice regardless and thank you Hi Donna, and all, Donna I am sorry to direct that post to you, I thought that you had sent that post. Whoever sent it is who it was directed to. Hope to not cause any probs. Jai RN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 In a message dated 7/22/04 8:05:54 AM Pacific Daylight Time, RSD-CRPSofAmerica write Hi Barbara, (Sorry Donna) I am so glad to hear that you are getting the treatment you need. I understand about being "slammed" with meds, only too much! I run a very low BP naturally too about 80/50 I guess we can't all be perfect, right!!! Please be well! Love Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 In a message dated 7/22/04 8:05:54 AM Pacific Daylight Time, RSD-CRPSofAmerica writes: Dear Group: I have to admit, when I joined this group, I was desperate. I thought this group would be a way for me to learn information that is out there on RSD and would also be a group that would be there in my darkest hour. I also, of course, wanted to be there for others too. However, this is not what I found on a whole for this group. I have met 2 people that are wonderful and I keep in touch with them, but I thought that there would be more support than I found. What I found was a click of people who only helped each other. I have tried to join in, answering email that wasn't directed toward me, adding my "two cents" but never received any response. I have posted messages and never received a response. I have recommended this group as caring and loving people, but I guess I should have told them that that only applies to those within the click. I felt that I needed to get this out in the air. I haven't been part of this group for about a month, no one has asked where I was or even noticed that I was gone. I wanted to make sure that you all took notice of this for future group members. Make sure you don't leave them out, you (meaning the whole group) could leave out the wrong person, someone who is really bad off mentally and you could be a catalyst in that persons fate. I pray that all of you will experience pain free or at the least pain less days. I will keep all of you in my prayers as we all seek out the right to have a life, despite our disease. Hi I hope this post finds you well. I have been a part of this group for about four years. There are a lot of GREAT people on the list and there is much to be learned. You must remember this list is open to ANYONE on this planet that hopes to join. We all come and go for what ever reason. I didn't post for a very long time due to my health status. But when I came back there were still some people I remembered. But in the meantime, I have met so many more people! The people on the list change all the time. All I am saying is give it a chance. With the amount of posts and everyone's ability or inability to post due to health, family, work, well you know, please just give us a chance, OK? Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Jai - Hope you slept well and have a terrific day. I for one plan to have a f a b u l o u s one......the first day of my vacation !! Barbarajaismonkey@... wrote: In a message dated 7/22/04 8:05:54 AM Pacific Daylight Time, RSD-CRPSofAmerica write Hi Barbara, (Sorry Donna) I am so glad to hear that you are getting the treatment you need. I understand about being "slammed" with meds, only too much! I run a very low BP naturally too about 80/50 I guess we can't all be perfect, right!!! Please be well! Love Jai Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 , Please hang in there. As for what Tonia said, summer is a very busy time for all of us. Even if we don't have family to deal with. I see your address is Iowa. I'm in Minnesota. Take time for some pain,and emotional free moments. Laurie Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.