Guest guest Posted February 20, 2000 Report Share Posted February 20, 2000 Ginny, Hey, are you from Mississippi? I live around the area. Would love to have a friend in the area that also wants to have the MGB. Hope to hear from you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2000 Report Share Posted February 21, 2000 Good luck to all of those who are having surgery this week may god go with you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 Congrats ! Keep up the great job! I'm so jealous! Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 16 lbs is just unbelievable provided you didn't have a leg taken off. Way to go . Keep up the good work. I can't wait to join you. NV Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 29, 2000 Report Share Posted February 29, 2000 MIchelle, Congrads !!!!!!!!!!!!!!! that is great. I am so happy for you. Hang in there litter mate friend. Keep in touch Wanda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2000 Report Share Posted March 4, 2000 Anne, I'm glad you are here. This group has been a great source of support for me. We understand each other and don't pass judgements. Stay, I haven't had my surgery yet either. It may take awhile for me too. God Bless, Sue sen future MGB Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2000 Report Share Posted March 5, 2000 I know people are using this list to get our email addresses. I have gotten several emails regarding different weight loss products and strategies. The funny thing is...I've already tried them all! If they worked so great, I wouldn't even need the surgery!!! Jill, don't feel bad. Talking about this stuff is really hard, and I think harder when it's someone who hasn't walked in our shoes. Only someone who is morbidly obese (or who has been) can really understand why after eating dinner, a dessert, a snack, and another snack, we still don't feel " satisfied " . Please feel free to " talk " . That's what this list is for! God bless, Amy. From: jme1969@... I am so mad, I just got an email from someone I don't even know telling me not to have the surgery. She says she had a friend who did not do well after having it done. Than she goes and tells me about a diet she is on and how a friend of hers needed to lose 20 pounds and it worked for her. Like 20 pounds is going to do it for me. I hate people trying to talk me out of this. I am also a compulsive eater. In fact I have been eating even more lately. I think its all the stress I have been under. Well sorry to go on like this. I just don't have anyone to talk to. Jill S.C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 So I do not feel crazy it helps to hear others go back and forth. I have only taken my son off the diet temporarily and will try again when I see the DAN doctor in November. I will continue with this list as it is very supportive and helpful. Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 I have really tried. I am just taking a short break from the diet until I can get an appt with a DAN dr or nutritionist. It is difficult to watch my son eat practically nothing for over a week. Lana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Dear Lana and : I know exactly how you both feel!! I drive my husband crazy! He is constantly telling me how crazy I am about my indecision or " changing my mind " . I have never " decided to not do the diet " due to the major change in is so apparent since the diet but...anytime something doesn't go just right w/her I panick since I feel like I'm " flying by the seat of my pants " . I'm always like " Oh my God, should I change this supplement or that, or maybe she is allergic to corn, or whatever " . It was so much " easier " when I lived in the dark and just took them to the professionals and didn't have to rely on " my judgement " . Hang in ladies! FYI- is already better! After only 3 days of having a cold this is truly a miracle! (Actually, I think I'm finally on the right track w/her) hanging in in Central FL-Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Dear lana: Is you son on Nystan? Or any anti-Fungal meds? My 4 yr old was non-verbal too. We started the diet and I put her on that the same day (now I know do one thing at a time..live and learn). With in a few days she started talking. I recently took her off the nystan (sp?) because this weekend were doing the stool test and I wanted an accurate look at her. Well she is getting more quiet every day. Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2000 Report Share Posted October 24, 2000 Yes, it does. There have been many days that I have hoped we could return to the old foods, but the minute we have had an infraction the evidence is obvious that we can't. My son has gone from being 22 months languaged delayed to 8 months. Grant it, not all is due to the diet, but a good portion is. Not everyone sees incredible results, but even small advances whether it be in focus, behavior or language is better than none. The first few weeks of the diet are very, very difficult. The best advice I can give you is to replicate his old foods as closely as possible. Use the old boxes and bags to fool him. I use to leave them on the counter while I prepared dinner, so that he thought it was the old stuff. He went months refusing and eating small quantities. Once we hit the 10 to 12 week mark things changed. He is now the first to try foods and eats things I would have never dreamed he would touch. Hang in there, it does get better. Trust me, we've been doing the diet for 14 months. a - Madison WI mom to Alec 6.3, 4.5 (ASD/SID, resolved apraxia), 2.8 > Hi everybody, > > My son started on the GFCF diet yesterday. He has not eaten anything! I > spent all last night crying. I am so scared that I may be harming him. He walks > around the house crying because he's hungry but refuses the soy drinks and all > the GFCF foods I just bought. Watching him like that is breaking my heart. Do you > guys think this diet reaaly works for autistic children. I really don't want to > give up! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2002 Report Share Posted October 17, 2002 Sharon, I don't know if they always do this,but they ask me to bring a "history" on since birth. Info on all milestones achived as well as any skills lost.All illnesses and/or surguries. I wrote her's in letter form and included every thing I could think of.Everything she had ever been able to do and every thing she was no longer able to do. , Mom to (no subject) Hey all GOT the callfrom Atlanta and the letter from my insurance company. THey are going to be paying for Clayton to go to Dr. Shoffner and for all the testing and biopsy. Our appointments are for: Nover 13, 14 & 15th. He will be doing a whole bunch of tests and a muscle biopsy, Cant beleive insurance actually approved it that quick after my letter and phone call and call with neuro.So from someone who as been there can you tell me what to expect - etc. And any info I need. so looks like we will be in Atlanta from the 12 -1 6.Love,Sharon Please contact mito-owner with any problems or questions. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 I can identify with frustrations of Western medicine and the "why" factor of not introducing the diet to ALL of their patients. I try not to take it as a selfish or stubborn motive on their part - for me, this allows me the choice of trying to educate them. The way I see it, the medical collective of "they," is based on factual science - tests that show numbers and hardened facts within case studies. SCD and how people respond is different for everyone - it simply does not fit into the scientific matrix. Look at the statistic proof that is needed to get a drug approved through FDA - SCD just is not set up to meet this criteria. This knowledge helps me be the main advocate for what works for me and not just to blindly follow medical protocol as I once did.AiazeenUC 5.75SCD 6 months(LDN 4.5mg.day) - 6 day newby Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.