Re:Cold Meds and L Glutamine

[Guest guest]

I have 2 more questions.

Since we are on the subject of colds, are there any cold meds out there that are legal?

What exactly does L-glutamine help? My daughter takes it with her probiotic every night.

But after awhile I lose sight of why is she taking some of the things she's taking.

Marla

To: BTVC-SCD Sent: Monday, January 26, 2009 8:14:14 PMSubject: Success Story

When my dd first started the SC diet, I found success stories veryhelpful, so here is ours:My dd was dx'ed at age 8.5 w. a very severe case of Crohn's disease. It took us three months to get a proper dx, and, by that time, her SEDrate was 95, which was so off-the-charts that, if the GI consultdidn't pan out, our next stop was the cancer docs, b/c it was mostlikely to be lymphoma.... .She was hospitalized a week and we started the SC diet two days aftershe was discharged. It's been (and I can't believe I can say this) 2 1/2 years. Everyone has their trials and challenges when they start the diet. Ours were that dh and I had been vegetarians since we were teens andwe felt that it was really impossible to eat only dairy and eggs andhave a complete diet on SCD. So we added some fish, chicken and meatto our diets. Since we are Jewish and keep kosher, this meant addingan entirely new

set of dishes, pots, cabinets, etc, and re-learninghow to keep a kosher kitchen with two sets of dishes in it, somethingI had not done since I was a child.Our other big challenges were that we had a newborn baby (dd got sickwhen I was 7 months pregnant), and one of our four children has ananaphylactic allergy to nuts. Whee! If we could make it through 2 1/2 years with this @#$^@#!$ against us,I hope I have given some inspiration that, whatever challenges you arefacing in implementing the diet, it CAN be done.We also had lots of good things to help us: very supportive family(including my mother and brother-in-law who cooked all off dd's nutproducts at their house so I wouldn't risk "dosing" the nut-allergicchild), a GI doc who STRONGLY supports the SC diet and tries to getall his IBD patients to follow it, parents who came to help with thebaby [my dad] and help me figure out what the

heck to cook [my mom],and the financial ability (for a little while, at least!) to hiresomeone to come 3 hours 3x/week to clean the kitchen that I repeatedlyand continually trashed cooking for six people.....It was also a bighelp that dd has always been homeschooled so we didn't have to dealwith packing her lunches for school and dealing with tons of parties. dd left the hospital on a ton of meds and has weaned off ofprednisone, flagyl, prevacid, and (the last one to go) Imuran. She'sbeen over 5 months totally med-free (no supplements either) with onlythe SC diet for treatment. We have begun experimenting with herhaving a few bites of things that aren't SCD, and she's had twocomplete meals off for major family events (one was a year ago and herGI doc gave approval since she had been symptom-free for quite a while).I am starting to use some ingredients that are not completely SCD (Ibought my

first package of pre-shredded cheese in three yearsrecently!). The way that I've presented it to my dd is that it's great we have theSC diet "in our pocket" for the future. I picture her eating mostlySCD but without the diet-recommended fanaticism. Like how I heardthat Elaine Gotschall's daughter ate/eats 80% SCD and 20% SAD(Standard American Diet). Maybe/probably there will be times in herlife where she'll have to go back to it (for women, notably hormonalchanges of adolescence and pregnancy/postpartu m seem to induce badflares), but how great we know something other than meds and surgery.Wishing everyone on this list good health,Ellen11 y/o dd scd since 5/06 for Crohn'smed-free since 9/08

[Guest guest]

supposed to heal the intestines - my comp pharm mentioned it so i

started in oct -am better since but not great always- coincidence???

not sure -for now i'll stay on - that with the diet should heal me

faster he said

you can get tylenol and sudaded compounded - a lot of stuff actually

eileen

>

> I have 2 more questions.

> Since we are on the subject of colds, are there any cold meds out

there that are legal?

> What exactly does L-glutamine help? My daughter takes it with her

probiotic every night.

> But after awhile I lose sight of why is she taking some of the

things she's taking.

> Marla

>

>

>

> ________________________________

>

> To: BTVC-SCD

> Sent: Monday, January 26, 2009 8:14:14 PM

> Subject: Success Story

>

>

> When my dd first started the SC diet, I found success stories very

> helpful, so here is ours:

>

> My dd was dx'ed at age 8.5 w. a very severe case of Crohn's

disease.

> It took us three months to get a proper dx, and, by that time, her

SED

> rate was 95, which was so off-the-charts that, if the GI consult

> didn't pan out, our next stop was the cancer docs, b/c it was most

> likely to be lymphoma.... .

>

> She was hospitalized a week and we started the SC diet two days

after

> she was discharged. It's been (and I can't believe I can say this)

> 2 1/2 years.

>

> Everyone has their trials and challenges when they start the diet.

> Ours were that dh and I had been vegetarians since we were teens and

> we felt that it was really impossible to eat only dairy and eggs and

> have a complete diet on SCD. So we added some fish, chicken and meat

> to our diets. Since we are Jewish and keep kosher, this meant adding

> an entirely new set of dishes, pots, cabinets, etc, and re-learning

> how to keep a kosher kitchen with two sets of dishes in it,

something

> I had not done since I was a child.

>

> Our other big challenges were that we had a newborn baby (dd got

sick

> when I was 7 months pregnant), and one of our four children has an

> anaphylactic allergy to nuts. Whee!

>

> If we could make it through 2 1/2 years with this @#$^@#!$ against

us,

> I hope I have given some inspiration that, whatever challenges you

are

> facing in implementing the diet, it CAN be done.

>

> We also had lots of good things to help us: very supportive family

> (including my mother and brother-in-law who cooked all off dd's nut

> products at their house so I wouldn't risk " dosing " the nut-allergic

> child), a GI doc who STRONGLY supports the SC diet and tries to get

> all his IBD patients to follow it, parents who came to help with the

> baby [my dad] and help me figure out what the heck to cook [my mom],

> and the financial ability (for a little while, at least!) to hire

> someone to come 3 hours 3x/week to clean the kitchen that I

repeatedly

> and continually trashed cooking for six people.....It was also a big

> help that dd has always been homeschooled so we didn't have to deal

> with packing her lunches for school and dealing with tons of

parties.

>

> dd left the hospital on a ton of meds and has weaned off of

> prednisone, flagyl, prevacid, and (the last one to go) Imuran. She's

> been over 5 months totally med-free (no supplements either) with

only

> the SC diet for treatment. We have begun experimenting with her

> having a few bites of things that aren't SCD, and she's had two

> complete meals off for major family events (one was a year ago and

her

> GI doc gave approval since she had been symptom-free for quite a

while).

>

> I am starting to use some ingredients that are not completely SCD (I

> bought my first package of pre-shredded cheese in three years

> recently!).

>

> The way that I've presented it to my dd is that it's great we have

the

> SC diet " in our pocket " for the future. I picture her eating mostly

> SCD but without the diet-recommended fanaticism. Like how I heard

> that Elaine Gotschall's daughter ate/eats 80% SCD and 20% SAD

> (Standard American Diet). Maybe/probably there will be times in her

> life where she'll have to go back to it (for women, notably hormonal

> changes of adolescence and pregnancy/postpartu m seem to induce bad

> flares), but how great we know something other than meds and

surgery.

>

> Wishing everyone on this list good health,

>

> Ellen

> 11 y/o dd scd since 5/06 for Crohn's

> med-free since 9/08

>