6 month mark on SCD - making lemonaid out of lemons

January 27, 2009

Hi all - just wanted to tell someone that 1/28/09 I will have been on

the SCD for six months. YEAH ME!

I write this in the hopes that it give others inspiration as so many

of you have for me, I hope to show that aside from healing there are

other moments of happiness that come out of this journey. Thanks for

reading and thanks for all that contribute here.

Here is where I am at: I have been struggling with a flare since Dec

14th,2008 (I guess it's the three month flare that I never got). I am

pleased to say that I am finally off of the Prednisone as of 1/27/09

(I did a 20mg taper to try and manage this current flare) I still

have D with trace bleeding, but visits to the loo are manageable (3-7

times within a 24 hour period.) The level of irritation on any given

day appears directly related to what I eat. It's sort of become a

game with the food log to find out what works and what does not.

Prior to the flare I was pretty much eating all stages of Pecanbread's

diet and was symptom free for about 4 1/2 months. With the current

situation. I am at stage 2 foods with some intro of stage 3 foods -

while it's not as much variety and convenient as I would like, I

really enjoy finding something that I can introduce (which has become

a treat given the deprivation). I never thought I would get so

excited about being able to have guacamole (avocado, cilantro and lime

juice). Not out of the woods yet, but I am hopeful. I am trying to

look at flares as learning experiences. I am generally impatient and

this diet really forces me to get over that - I am learning to cope in

ways that I down right refused to think I ever could. This flare has

taught me about potential meds other than Prednisone with less or no

side effects - things like LDN and Entocort(still need to research

further). I have discovered and eliminated vegetable oil (which is

actually soy oil - had that in my kitchen as an illegal using it for

the last five months), I have a well documented list of things that I

can and cannot eat when I have to go back down to intro and intro

stages of foods so less trial and tail spin errors in the future -

this alone should reduce some of my flare time I think. I really can

see the masking that Prednisone can do in terms of the food I can eat

- as I was tapering, I found that I really had a problem with red meat

(ate a lot during the holidays and could not make the correlation till

I started tapering more - what a great find - made my life a lot

easier once I cut that out and healing sped up rapidily). Lastly my

boyfriend of two years and I split up in November, I had to make so

many life changes as we were living together and had contemplated

marriage. The day I got this flare I thought for sure I would never

make it alone - I felt so much fear and sadness. Truth was that he

never really was much support and people like you and family and

friends were there for me - I have made it to the other side of what I

perceived as trudging through a dark abyss and I am alive, having a

better time than I thought I would and cherishing the resources of

support that are around me. I am not as alone as I had thought and I

did not " need " the toxic source I was once turning to for

support...talk about dodging a bullet. Gifts come in many forms.

P.S. Tonight will be my sixth day of the LDN therapy - I have not

really seen any notable improvement. From what I read that is ok -

could take up to three or so weeks to see a change I seem to recall.

Aiazeen

UC 5.75 years

SCD 6 months!!!! Woo hoo

(med free aside from 4.5 LDN)

January 27, 2009

can you see my pom-poms waving - you go girl!!!!!!!!!!!!

glad you're healing and moving on in all ways to a better future -

God Bless!!!

eileen

1 year scd

>

> Hi all - just wanted to tell someone that 1/28/09 I will have been

on

> the SCD for six months. YEAH ME!

>

> I write this in the hopes that it give others inspiration as so many

> of you have for me, I hope to show that aside from healing there are

> other moments of happiness that come out of this journey. Thanks

for

> reading and thanks for all that contribute here.

>

> Here is where I am at: I have been struggling with a flare since

Dec

> 14th,2008 (I guess it's the three month flare that I never got). I

am

> pleased to say that I am finally off of the Prednisone as of 1/27/09

> (I did a 20mg taper to try and manage this current flare) I still

> have D with trace bleeding, but visits to the loo are manageable (3-

7

> times within a 24 hour period.) The level of irritation on any given

> day appears directly related to what I eat. It's sort of become a

> game with the food log to find out what works and what does not.

> Prior to the flare I was pretty much eating all stages of

Pecanbread's

> diet and was symptom free for about 4 1/2 months. With the current

> situation. I am at stage 2 foods with some intro of stage 3 foods -

> while it's not as much variety and convenient as I would like, I

> really enjoy finding something that I can introduce (which has

become

> a treat given the deprivation). I never thought I would get so

> excited about being able to have guacamole (avocado, cilantro and

lime

> juice). Not out of the woods yet, but I am hopeful. I am trying to

> look at flares as learning experiences. I am generally impatient

and

> this diet really forces me to get over that - I am learning to cope

in

> ways that I down right refused to think I ever could. This flare

has

> taught me about potential meds other than Prednisone with less or no

> side effects - things like LDN and Entocort(still need to research

> further). I have discovered and eliminated vegetable oil (which is

> actually soy oil - had that in my kitchen as an illegal using it for

> the last five months), I have a well documented list of things

that I

> can and cannot eat when I have to go back down to intro and intro

> stages of foods so less trial and tail spin errors in the future -

> this alone should reduce some of my flare time I think. I really can

> see the masking that Prednisone can do in terms of the food I can

eat

> - as I was tapering, I found that I really had a problem with red

meat

> (ate a lot during the holidays and could not make the correlation

till

> I started tapering more - what a great find - made my life a lot

> easier once I cut that out and healing sped up rapidily). Lastly

my

> boyfriend of two years and I split up in November, I had to make so

> many life changes as we were living together and had contemplated

> marriage. The day I got this flare I thought for sure I would never

> make it alone - I felt so much fear and sadness. Truth was that he

> never really was much support and people like you and family and

> friends were there for me - I have made it to the other side of

what I

> perceived as trudging through a dark abyss and I am alive, having a

> better time than I thought I would and cherishing the resources of

> support that are around me. I am not as alone as I had thought and

I

> did not " need " the toxic source I was once turning to for

> support...talk about dodging a bullet. Gifts come in many forms.

>

> P.S. Tonight will be my sixth day of the LDN therapy - I have not

> really seen any notable improvement. From what I read that is ok -

> could take up to three or so weeks to see a change I seem to recall.

>

> Aiazeen

> UC 5.75 years

> SCD 6 months!!!! Woo hoo

> (med free aside from 4.5 LDN)

>

January 27, 2009

Congratulations that gives us newbies something to shoot for!!!

scd 1 month

To: BTVC-SCD Sent: Tuesday, January 27, 2009 2:04:39 PMSubject: 6 month mark on SCD - making lemonaid out of lemons

Hi all - just wanted to tell someone that 1/28/09 I will have been onthe SCD for six months. YEAH ME! I write this in the hopes that it give others inspiration as so manyof you have for me, I hope to show that aside from healing there areother moments of happiness that come out of this journey. Thanks forreading and thanks for all that contribute here.Here is where I am at: I have been struggling with a flare since Dec14th,2008 (I guess it's the three month flare that I never got). I ampleased to say that I am finally off of the Prednisone as of 1/27/09(I did a 20mg taper to try and manage this current flare) I stillhave D with trace bleeding, but visits to the loo are manageable (3-7times within a 24 hour period.) The level of irritation on any givenday appears directly related to what I eat. It's sort of become agame with the food log to find out what works and what does not. Prior to

the flare I was pretty much eating all stages of Pecanbread'sdiet and was symptom free for about 4 1/2 months. With the currentsituation. I am at stage 2 foods with some intro of stage 3 foods -while it's not as much variety and convenient as I would like, Ireally enjoy finding something that I can introduce (which has becomea treat given the deprivation) . I never thought I would get soexcited about being able to have guacamole (avocado, cilantro and limejuice). Not out of the woods yet, but I am hopeful. I am trying tolook at flares as learning experiences. I am generally impatient andthis diet really forces me to get over that - I am learning to cope inways that I down right refused to think I ever could. This flare hastaught me about potential meds other than Prednisone with less or noside effects - things like LDN and Entocort(still need to researchfurther). I have discovered and eliminated

vegetable oil (which isactually soy oil - had that in my kitchen as an illegal using it forthe last five months), I have a well documented list of things that Ican and cannot eat when I have to go back down to intro and introstages of foods so less trial and tail spin errors in the future -this alone should reduce some of my flare time I think. I really cansee the masking that Prednisone can do in terms of the food I can eat- as I was tapering, I found that I really had a problem with red meat(ate a lot during the holidays and could not make the correlation tillI started tapering more - what a great find - made my life a loteasier once I cut that out and healing sped up rapidily). Lastly myboyfriend of two years and I split up in November, I had to make somany life changes as we were living together and had contemplatedmarriage. The day I got this flare I thought for sure I would nevermake it alone

- I felt so much fear and sadness. Truth was that henever really was much support and people like you and family andfriends were there for me - I have made it to the other side of what Iperceived as trudging through a dark abyss and I am alive, having abetter time than I thought I would and cherishing the resources ofsupport that are around me. I am not as alone as I had thought and Idid not "need" the toxic source I was once turning to forsupport...talk about dodging a bullet. Gifts come in many forms. P.S. Tonight will be my sixth day of the LDN therapy - I have notreally seen any notable improvement. From what I read that is ok -could take up to three or so weeks to see a change I seem to recall.AiazeenUC 5.75 yearsSCD 6 months!!!! Woo hoo (med free aside from 4.5 LDN)

January 27, 2009

Congrats!Best wishes,Kim H.