Re: Robyn

[Guest guest]

Thanks Melinda,

Yes, I know that the prednisone can cause problems with blood pressure, eyesight, bones etc. But I just can't seem to get the doseage under 8mg. I've been on pred now for more than 18 months (up to 40mg at one stage). The minute I try to drop to 7mg I'm in arthritic pain again.

On top of the prednisone, the Arava I'm also on causes blood pressure, cholesterol, sugar, thyroid problems as well as heaps of others. But it's the same thing there - I can't give it up because without it I'm a vegetable just sitting in a chair and in constant pain and crying.

I've never had blood pressure problems, cholesterol problems, diabetes before so it's all come as a bit of a shock to hit at once. My doctor told me I was a stroke victim just waiting to happen. This scares me. My Grandmother died of a stroke. My paternal grandfather had diabetes and lost his sight and a foot to it. My Father has had several heart attacks and has had a triple bi-pass. It's bad omens to me.

Losing weight is like a dream to me. I'm struggling just to maintain any resemblance of my previous weight thanks to the pred. I never eat fast food - I hate it and can't tolerate the fat and oils etc. Sugar is my weakness. I find I need sugar bursts regularly just to get through the day. I suppose this is linked to the diabetes condition.

Yes, I had my eyes checked late last year because I was concerned that my vision had deteriorated. But they were okay - just getting older.

Thanks for your concern and hugs and prayers. I value them at present.

(((Hugs)))

Robyn

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[Guest guest]

Robyn,

Big hugs from here.

I know how you feel about the meds. You take medication for a disease, then you get side effects & take meds for that, which leads to more side effects, & it never stops. Sometimes I wonder if I'd really feel worse without my meds, but I know I would. If I stop the meds, I'll be miserable & die (adrenals have shut down). Of course, that wouldn't really happen because someone would take me to the hospital when I got too sick to argue. Besides, I do want to live. But wouldn't it be great to live without depending on all these pills & injections & infusions? So, we'll all just hold on to each other & help each other live with all this stuff.

It will get better. I'm sure of it.

More hugs,

-- Re: Robyn

Thanks Melinda,

Yes, I know that the prednisone can cause problems with blood pressure, eyesight, bones etc. But I just can't seem to get the doseage under 8mg. I've been on pred now for more than 18 months (up to 40mg at one stage). The minute I try to drop to 7mg I'm in arthritic pain again.

On top of the prednisone, the Arava I'm also on causes blood pressure, cholesterol, sugar, thyroid problems as well as heaps of others. But it's the same thing there - I can't give it up because without it I'm a vegetable just sitting in a chair and in constant pain and crying.

I've never had blood pressure problems, cholesterol problems, diabetes before so it's all come as a bit of a shock to hit at once. My doctor told me I was a stroke victim just waiting to happen. This scares me. My Grandmother died of a stroke. My paternal grandfather had diabetes and lost his sight and a foot to it. My Father has had several heart attacks and has had a triple bi-pass. It's bad omens to me.

Losing weight is like a dream to me. I'm struggling just to maintain any resemblance of my previous weight thanks to the pred. I never eat fast food - I hate it and can't tolerate the fat and oils etc. Sugar is my weakness. I find I need sugar bursts regularly just to get through the day. I suppose this is linked to the diabetes condition.

Yes, I had my eyes checked late last year because I was concerned that my vision had deteriorated. But they were okay - just getting older.

Thanks for your concern and hugs and prayers. I value them at present.

(((Hugs)))

Robyn

Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com

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[Guest guest]

Thanks ,

You have no idea how much I appreciate your support.

(((Hugs)))

Robyn wrote:

Robyn,

Big hugs from here.

I know how you feel about the meds. You take medication for a disease, then you get side effects & take meds for that, which leads to more side effects, & it never stops. Sometimes I wonder if I'd really feel worse without my meds, but I know I would. If I stop the meds, I'll be miserable & die (adrenals have shut down). Of course, that wouldn't really happen because someone would take me to the hospital when I got too sick to argue. Besides, I do want to live. But wouldn't it be great to live without depending on all these pills & injections & infusions? So, we'll all just hold on to each other & help each other live with all this stuff.

It will get better. I'm sure of it.

More hugs,

-- Re: Robyn

Thanks Melinda,

Yes, I know that the prednisone can cause problems with blood pressure, eyesight, bones etc. But I just can't seem to get the doseage under 8mg. I've been on pred now for more than 18 months (up to 40mg at one stage). The minute I try to drop to 7mg I'm in arthritic pain again.

On top of the prednisone, the Arava I'm also on causes blood pressure, cholesterol, sugar, thyroid problems as well as heaps of others. But it's the same thing there - I can't give it up because without it I'm a vegetable just sitting in a chair and in constant pain and crying.

I've never had blood pressure problems, cholesterol problems, diabetes before so it's all come as a bit of a shock to hit at once. My doctor told me I was a stroke victim just waiting to happen. This scares me. My Grandmother died of a stroke. My paternal grandfather had diabetes and lost his sight and a foot to it. My Father has had several heart attacks and has had a triple bi-pass. It's bad omens to me.

Losing weight is like a dream to me. I'm struggling just to maintain any resemblance of my previous weight thanks to the pred. I never eat fast food - I hate it and can't tolerate the fat and oils etc. Sugar is my weakness. I find I need sugar bursts regularly just to get through the day. I suppose this is linked to the diabetes condition.

Yes, I had my eyes checked late last year because I was concerned that my vision had deteriorated. But they were okay - just getting older.

Thanks for your concern and hugs and prayers. I value them at present.

(((Hugs)))

Robyn

Find local movie times and trailers on Yahoo! Movies.Please visit our website at:http://ACES_Autoimmune.tripod.com

____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com

Find local movie times and trailers on Yahoo! Movies.

[Guest guest]

Thanks Melinda,

I actually have very good readings on my B12 and B vitamins (mind you, I take heaps of supplements so something must be working there because it certainly isn't the food that gets digested with my Crohns!) But I'll check out the neuropathy site.

Congratulations on getting down to 5mg of prednisone. I just don't seem to be able to get below 8mg regardless of what I try. But I also suspect that once we have been on prednisone for a long time - and for me it's now longer than 18 months straight that it has already done the damage and it won't matter how far we reduce it, nothing will alleviate the mess our bodies are in.

I certainly hope you can get away for your holiday for some "fun and enjoyment". I just wish I could live without sex but I'm like a volcano waiting to explode when I haven't had it for even a couple of days and now it's starting to be more like a month since the last orgasm. is really good about it and I try to at least keep him happy but he hates the imbalance in this side of our relationship. So I certainly need to solve this aspect of my condition for both our sakes.

Good luck with your doctor's visit tomorrow. I hope he has all the answers to your questions.

(((Hugs)))

Robyn

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[Guest guest]

Yep--I actually am in the process of weaning off the neurontin. I'm doing this with one of my meds at a time to see if I can't get off some of them. So far the Bextra is apparently doing something because my pain got alot worse when I tried to wean off that. So are my asthma meds--I know I won't be able to get off them for the entire year because of my allergies, but usually I can for a few months each year--but not this last year. Now I'm weaning the neurontin. So far so good. I suspect it hasn't been doing much for me.

Kathy

RE: Robyn

I get the burning feet --sometimes to the point that I can't stand anything covering them even though they are cold. I'm on neurontin for the off-label pain use , also 1800 mgs a day but can't say it's made much of a difference for me.

Ditto what Kathy said here about the burning feet. I'm not on neurontin tho, I was but just couldn't tell any difference. Why take a med when you can't tell its helping.

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