Guest guest Posted April 15, 2007 Report Share Posted April 15, 2007 Thanks Carol. WHat exactly are we testing for and how does Lyme relate to Sjogrens? I heard it does before but dont know how. Thank you. carol_fisch <EJFISCH@...> wrote: There is a New Test For The Detection of Borrelia burgdorferi that will make a great difference in the testing of the causative agent for Lyme Disease. The new test name is " Rapid Antigen Identificatiion of Bb by Flow They are all very excited about the test as it is State and CLIA Certified and now is approved for Medicare. This is the first blood 'Rapid Antigen Identification for Bb' test that has State and CLIA approval and now Medicare approval. Afain an Antigen test checks for the organism itself and is not dependent upon the body to build antibodies to an organism. Antigen test are much more reliable as again, they check for the organism itself. For additional information on certification #'s, validation, and flow cytometry etc. go to the labs website at: www.centralfloridaresearch.com Best wishes, Adjunct Professor Emeritus, Carol Fisch > > I am a firm believer that nearly everything happens for a reason. Not > to say that there aren't exceptions to the rule, but something weird > happened yesterday that really got me thinking. In November, we moved > into our dream home that we spent 2 years building. We have 3 dogs, > but always keep them well groomed and chemically protected from fleas > and ticks. We have never had a problem in that area. > > I mention the new house just to say that no one lived here prior. > Seven years ago when we were building the last house we lived in > before the this one, we took a short term rental in a house that was > near my business. Within 2 months of moving in, we noticed a massive > tick infestation. The people living there prior to us had a dog. We > had none at the time. We left our stuff there, but moved in with my > in-laws since the ticks were that bad and I wasn't going to subject my > wife to fumigation as she was pregnant. > > Well, long story made short.... > > I found a tick in our new house yesterday in the bathroom of all > places. It was not swollen, so it had not feasted on any of our dogs > or my kids (luckily). It got me thinking so I googled Lyme disease > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > are virtually identical to many of the rheumatic disorder symptoms > that many of you suffer from. It gets better...In 60% of the patients > with Lyme disease there are secondary mycoplasma infections present. > These are the exact same mycoplasmas suspected to cause rheumatic > diseases. Here is the link to the study: > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > > The same PCR testing used to detect mycoplasma infection is used to > detect the bacteria responsible for Lyme disease. However, it is > important to mention that it is a specific test. In other words, you > would need to have one PCR test for mycoplasma and another for Lyme > disease. It is also important to note that PCR testing should occur > at least 6 weeks after stopping antibiotics to achieve the highest > possible yield. > > I am simply bringing this up as food for thought. I know I will be > getting my wife tested for Lyme disease just to be sure. Hope this > helps.... > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 Vicki, Read my short story on Lyme that it what Carol was responding to. I since found out that what I thought was my little discovery is already discussed on here. I am very new to this and have a lot to learn. Long story short....the majority of people who acquire Lyme disease end up with Mycoplasma infections that, as as almost all of us on here believe, ultimately leads to rheumatic disease. I still can¹t believe that not one doctor my wife saw even asked if she ever had Lyme disease; then again, most don¹t see mycoplasma as a real problem in the first place. Carol, Thanks very much for the valuable info. I will follow up on this. My only concern is that my wife is on Cipro for a bladder/kidney infection. She has another few days to go. I need to find out if the test you mention can be impacted by the current antibiotics. Jon From: Vicki <genuinelysweet2002@...> Reply-<rheumatic > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) <rheumatic > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea Thanks Carol. WHat exactly are we testing for and how does Lyme relate to Sjogrens? I heard it does before but dont know how. Thank you. carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> > wrote: There is a New Test For The Detection of Borrelia burgdorferi that will make a great difference in the testing of the causative agent for Lyme Disease. The new test name is " Rapid Antigen Identificatiion of Bb by Flow They are all very excited about the test as it is State and CLIA Certified and now is approved for Medicare. This is the first blood 'Rapid Antigen Identification for Bb' test that has State and CLIA approval and now Medicare approval. Afain an Antigen test checks for the organism itself and is not dependent upon the body to build antibodies to an organism. Antigen test are much more reliable as again, they check for the organism itself. For additional information on certification #'s, validation, and flow cytometry etc. go to the labs website at: www.centralfloridaresearch.com Best wishes, Adjunct Professor Emeritus, Carol Fisch > > I am a firm believer that nearly everything happens for a reason. Not > to say that there aren't exceptions to the rule, but something weird > happened yesterday that really got me thinking. In November, we moved > into our dream home that we spent 2 years building. We have 3 dogs, > but always keep them well groomed and chemically protected from fleas > and ticks. We have never had a problem in that area. > > I mention the new house just to say that no one lived here prior. > Seven years ago when we were building the last house we lived in > before the this one, we took a short term rental in a house that was > near my business. Within 2 months of moving in, we noticed a massive > tick infestation. The people living there prior to us had a dog. We > had none at the time. We left our stuff there, but moved in with my > in-laws since the ticks were that bad and I wasn't going to subject my > wife to fumigation as she was pregnant. > > Well, long story made short.... > > I found a tick in our new house yesterday in the bathroom of all > places. It was not swollen, so it had not feasted on any of our dogs > or my kids (luckily). It got me thinking so I googled Lyme disease > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > are virtually identical to many of the rheumatic disorder symptoms > that many of you suffer from. It gets better...In 60% of the patients > with Lyme disease there are secondary mycoplasma infections present. > These are the exact same mycoplasmas suspected to cause rheumatic > diseases. Here is the link to the study: > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > > The same PCR testing used to detect mycoplasma infection is used to > detect the bacteria responsible for Lyme disease. However, it is > important to mention that it is a specific test. In other words, you > would need to have one PCR test for mycoplasma and another for Lyme > disease. It is also important to note that PCR testing should occur > at least 6 weeks after stopping antibiotics to achieve the highest > possible yield. > > I am simply bringing this up as food for thought. I know I will be > getting my wife tested for Lyme disease just to be sure. Hope this > helps.... > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 jon, i am confused what came first, the SS or Lyme? I assume I would do the testing Carol mentioned to know if I have Lyme or not? And regardless if I do, isn't the treatment protocol the same? How long before the antibiotics help? What would I take besides Mincocycline? I took it a month before but quit. Thanks. Jon Krutchik <jkrutchik@...> wrote: Vicki, Read my short story on Lyme that it what Carol was responding to. I since found out that what I thought was my little discovery is already discussed on here. I am very new to this and have a lot to learn. Long story short....the majority of people who acquire Lyme disease end up with Mycoplasma infections that, as as almost all of us on here believe, ultimately leads to rheumatic disease. I still can¹t believe that not one doctor my wife saw even asked if she ever had Lyme disease; then again, most don¹t see mycoplasma as a real problem in the first place. Carol, Thanks very much for the valuable info. I will follow up on this. My only concern is that my wife is on Cipro for a bladder/kidney infection. She has another few days to go. I need to find out if the test you mention can be impacted by the current antibiotics. Jon From: Vicki <genuinelysweet2002@...> Reply-<rheumatic > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) <rheumatic > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea Thanks Carol. WHat exactly are we testing for and how does Lyme relate to Sjogrens? I heard it does before but dont know how. Thank you. carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> > wrote: There is a New Test For The Detection of Borrelia burgdorferi that will make a great difference in the testing of the causative agent for Lyme Disease. The new test name is " Rapid Antigen Identificatiion of Bb by Flow They are all very excited about the test as it is State and CLIA Certified and now is approved for Medicare. This is the first blood 'Rapid Antigen Identification for Bb' test that has State and CLIA approval and now Medicare approval. Afain an Antigen test checks for the organism itself and is not dependent upon the body to build antibodies to an organism. Antigen test are much more reliable as again, they check for the organism itself. For additional information on certification #'s, validation, and flow cytometry etc. go to the labs website at: www.centralfloridaresearch.com Best wishes, Adjunct Professor Emeritus, Carol Fisch > > I am a firm believer that nearly everything happens for a reason. Not > to say that there aren't exceptions to the rule, but something weird > happened yesterday that really got me thinking. In November, we moved > into our dream home that we spent 2 years building. We have 3 dogs, > but always keep them well groomed and chemically protected from fleas > and ticks. We have never had a problem in that area. > > I mention the new house just to say that no one lived here prior. > Seven years ago when we were building the last house we lived in > before the this one, we took a short term rental in a house that was > near my business. Within 2 months of moving in, we noticed a massive > tick infestation. The people living there prior to us had a dog. We > had none at the time. We left our stuff there, but moved in with my > in-laws since the ticks were that bad and I wasn't going to subject my > wife to fumigation as she was pregnant. > > Well, long story made short.... > > I found a tick in our new house yesterday in the bathroom of all > places. It was not swollen, so it had not feasted on any of our dogs > or my kids (luckily). It got me thinking so I googled Lyme disease > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > are virtually identical to many of the rheumatic disorder symptoms > that many of you suffer from. It gets better...In 60% of the patients > with Lyme disease there are secondary mycoplasma infections present. > These are the exact same mycoplasmas suspected to cause rheumatic > diseases. Here is the link to the study: > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > > The same PCR testing used to detect mycoplasma infection is used to > detect the bacteria responsible for Lyme disease. However, it is > important to mention that it is a specific test. In other words, you > would need to have one PCR test for mycoplasma and another for Lyme > disease. It is also important to note that PCR testing should occur > at least 6 weeks after stopping antibiotics to achieve the highest > possible yield. > > I am simply bringing this up as food for thought. I know I will be > getting my wife tested for Lyme disease just to be sure. Hope this > helps.... > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 jon, sorry the doctors missed your wifes Lyme disease, they are such idiots most of them it's so sad. I assume you found out based on the tests Carol spoke of? Sorry I dont know where your story is. My eyes are burning like crazy and I have to get off the comp. Please send the link to your story if you can, thanks. Jon Krutchik <jkrutchik@...> wrote: Vicki, Read my short story on Lyme that it what Carol was responding to. I since found out that what I thought was my little discovery is already discussed on here. I am very new to this and have a lot to learn. Long story short....the majority of people who acquire Lyme disease end up with Mycoplasma infections that, as as almost all of us on here believe, ultimately leads to rheumatic disease. I still can¹t believe that not one doctor my wife saw even asked if she ever had Lyme disease; then again, most don¹t see mycoplasma as a real problem in the first place. Carol, Thanks very much for the valuable info. I will follow up on this. My only concern is that my wife is on Cipro for a bladder/kidney infection. She has another few days to go. I need to find out if the test you mention can be impacted by the current antibiotics. Jon From: Vicki <genuinelysweet2002@...> Reply-<rheumatic > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) <rheumatic > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea Thanks Carol. WHat exactly are we testing for and how does Lyme relate to Sjogrens? I heard it does before but dont know how. Thank you. carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> > wrote: There is a New Test For The Detection of Borrelia burgdorferi that will make a great difference in the testing of the causative agent for Lyme Disease. The new test name is " Rapid Antigen Identificatiion of Bb by Flow They are all very excited about the test as it is State and CLIA Certified and now is approved for Medicare. This is the first blood 'Rapid Antigen Identification for Bb' test that has State and CLIA approval and now Medicare approval. Afain an Antigen test checks for the organism itself and is not dependent upon the body to build antibodies to an organism. Antigen test are much more reliable as again, they check for the organism itself. For additional information on certification #'s, validation, and flow cytometry etc. go to the labs website at: www.centralfloridaresearch.com Best wishes, Adjunct Professor Emeritus, Carol Fisch > > I am a firm believer that nearly everything happens for a reason. Not > to say that there aren't exceptions to the rule, but something weird > happened yesterday that really got me thinking. In November, we moved > into our dream home that we spent 2 years building. We have 3 dogs, > but always keep them well groomed and chemically protected from fleas > and ticks. We have never had a problem in that area. > > I mention the new house just to say that no one lived here prior. > Seven years ago when we were building the last house we lived in > before the this one, we took a short term rental in a house that was > near my business. Within 2 months of moving in, we noticed a massive > tick infestation. The people living there prior to us had a dog. We > had none at the time. We left our stuff there, but moved in with my > in-laws since the ticks were that bad and I wasn't going to subject my > wife to fumigation as she was pregnant. > > Well, long story made short.... > > I found a tick in our new house yesterday in the bathroom of all > places. It was not swollen, so it had not feasted on any of our dogs > or my kids (luckily). It got me thinking so I googled Lyme disease > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > are virtually identical to many of the rheumatic disorder symptoms > that many of you suffer from. It gets better...In 60% of the patients > with Lyme disease there are secondary mycoplasma infections present. > These are the exact same mycoplasmas suspected to cause rheumatic > diseases. Here is the link to the study: > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > > The same PCR testing used to detect mycoplasma infection is used to > detect the bacteria responsible for Lyme disease. However, it is > important to mention that it is a specific test. In other words, you > would need to have one PCR test for mycoplasma and another for Lyme > disease. It is also important to note that PCR testing should occur > at least 6 weeks after stopping antibiotics to achieve the highest > possible yield. > > I am simply bringing this up as food for thought. I know I will be > getting my wife tested for Lyme disease just to be sure. Hope this > helps.... > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Hi Vicki; It took several years for me to find aan AP system that would work for me.Had to do a complete diet change and get Celiac under control before anything worked.Today I am 99% better and no visible sighn of Scleroderma.I do have acky days but not enough to slow me down Lynne G/SD Vicki wrote: > jon, i am confused what came first, the SS or Lyme? I assume I would > do the testing Carol mentioned to know if I have Lyme or not? And > regardless if I do, isn't the treatment protocol the same? How long > before the antibiotics help? What would I take besides Mincocycline? I > took it a month before but quit. Thanks. > > Jon Krutchik <jkrutchik@... <mailto:jkrutchik%40comcast.net>> > wrote: Vicki, > > Read my short story on Lyme that it what Carol was responding to. I since > found out that what I thought was my little discovery is already discussed > on here. I am very new to this and have a lot to learn. > > Long story short....the majority of people who acquire Lyme disease end up > with Mycoplasma infections that, as as almost all of us on here believe, > ultimately leads to rheumatic disease. I still can¹t believe that not one > doctor my wife saw even asked if she ever had Lyme disease; then > again, most > don¹t see mycoplasma as a real problem in the first place. > > Carol, > > Thanks very much for the valuable info. I will follow up on this. My only > concern is that my wife is on Cipro for a bladder/kidney infection. > She has > another few days to go. I need to find out if the test you mention can be > impacted by the current antibiotics. > > Jon > > From: Vicki <genuinelysweet2002@... > <mailto:genuinelysweet2002%40>> > Reply-<rheumatic <mailto:rheumatic%40>> > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) > <rheumatic <mailto:rheumatic%40>> > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to > consider New Test For Lyme Disea > > Thanks Carol. WHat exactly are we testing for and how does Lyme relate to > Sjogrens? I heard it does before but dont know how. Thank you. > > carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> > <mailto:EJFISCH%40aol.com> > wrote: > There is a New Test For The Detection of Borrelia burgdorferi that > will make a great difference in the testing of the causative agent > for Lyme Disease. > The new test name is " Rapid Antigen Identificatiion of Bb by Flow > > They are all very excited about the test as it is State and CLIA > Certified and now is approved for Medicare. This is the first > blood 'Rapid Antigen Identification for Bb' test that has State and > CLIA approval and now Medicare approval. Afain an Antigen test > checks for the organism itself and is not dependent upon the body to > build antibodies to an organism. Antigen test are much more reliable > as again, they check for the organism itself. > > For additional information on certification #'s, validation, and flow > cytometry etc. > go to the labs website at: > www.centralfloridaresearch.com > > Best wishes, > Adjunct Professor Emeritus, Carol Fisch > > > > > > I am a firm believer that nearly everything happens for a reason. > Not > > to say that there aren't exceptions to the rule, but something weird > > happened yesterday that really got me thinking. In November, we > moved > > into our dream home that we spent 2 years building. We have 3 dogs, > > but always keep them well groomed and chemically protected from > fleas > > and ticks. We have never had a problem in that area. > > > > I mention the new house just to say that no one lived here prior. > > Seven years ago when we were building the last house we lived in > > before the this one, we took a short term rental in a house that was > > near my business. Within 2 months of moving in, we noticed a > massive > > tick infestation. The people living there prior to us had a dog. > We > > had none at the time. We left our stuff there, but moved in with my > > in-laws since the ticks were that bad and I wasn't going to subject > my > > wife to fumigation as she was pregnant. > > > > Well, long story made short.... > > > > I found a tick in our new house yesterday in the bathroom of all > > places. It was not swollen, so it had not feasted on any of our > dogs > > or my kids (luckily). It got me thinking so I googled Lyme disease > > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > > are virtually identical to many of the rheumatic disorder symptoms > > that many of you suffer from. It gets better...In 60% of the > patients > > with Lyme disease there are secondary mycoplasma infections > present. > > These are the exact same mycoplasmas suspected to cause rheumatic > > diseases. Here is the link to the study: > > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > <http://www.immunesupport.com/library/showarticle.cfm/id/3160> > > > > The same PCR testing used to detect mycoplasma infection is used to > > detect the bacteria responsible for Lyme disease. However, it is > > important to mention that it is a specific test. In other words, > you > > would need to have one PCR test for mycoplasma and another for Lyme > > disease. It is also important to note that PCR testing should > occur > > at least 6 weeks after stopping antibiotics to achieve the highest > > possible yield. > > > > I am simply bringing this up as food for thought. I know I will be > > getting my wife tested for Lyme disease just to be sure. Hope this > > helps.... > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 OOPS! forgot to say that the Lyme could be the trigger that started the SD Vicki wrote: > jon, i am confused what came first, the SS or Lyme? I assume I would > do the testing Carol mentioned to know if I have Lyme or not? And > regardless if I do, isn't the treatment protocol the same? How long > before the antibiotics help? What would I take besides Mincocycline? I > took it a month before but quit. Thanks. > > Jon Krutchik <jkrutchik@... <mailto:jkrutchik%40comcast.net>> > wrote: Vicki, > > Read my short story on Lyme that it what Carol was responding to. I since > found out that what I thought was my little discovery is already discussed > on here. I am very new to this and have a lot to learn. > > Long story short....the majority of people who acquire Lyme disease end up > with Mycoplasma infections that, as as almost all of us on here believe, > ultimately leads to rheumatic disease. I still can¹t believe that not one > doctor my wife saw even asked if she ever had Lyme disease; then > again, most > don¹t see mycoplasma as a real problem in the first place. > > Carol, > > Thanks very much for the valuable info. I will follow up on this. My only > concern is that my wife is on Cipro for a bladder/kidney infection. > She has > another few days to go. I need to find out if the test you mention can be > impacted by the current antibiotics. > > Jon > > From: Vicki <genuinelysweet2002@... > <mailto:genuinelysweet2002%40>> > Reply-<rheumatic <mailto:rheumatic%40>> > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) > <rheumatic <mailto:rheumatic%40>> > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to > consider New Test For Lyme Disea > > Thanks Carol. WHat exactly are we testing for and how does Lyme relate to > Sjogrens? I heard it does before but dont know how. Thank you. > > carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> > <mailto:EJFISCH%40aol.com> > wrote: > There is a New Test For The Detection of Borrelia burgdorferi that > will make a great difference in the testing of the causative agent > for Lyme Disease. > The new test name is " Rapid Antigen Identificatiion of Bb by Flow > > They are all very excited about the test as it is State and CLIA > Certified and now is approved for Medicare. This is the first > blood 'Rapid Antigen Identification for Bb' test that has State and > CLIA approval and now Medicare approval. Afain an Antigen test > checks for the organism itself and is not dependent upon the body to > build antibodies to an organism. Antigen test are much more reliable > as again, they check for the organism itself. > > For additional information on certification #'s, validation, and flow > cytometry etc. > go to the labs website at: > www.centralfloridaresearch.com > > Best wishes, > Adjunct Professor Emeritus, Carol Fisch > > > > > > I am a firm believer that nearly everything happens for a reason. > Not > > to say that there aren't exceptions to the rule, but something weird > > happened yesterday that really got me thinking. In November, we > moved > > into our dream home that we spent 2 years building. We have 3 dogs, > > but always keep them well groomed and chemically protected from > fleas > > and ticks. We have never had a problem in that area. > > > > I mention the new house just to say that no one lived here prior. > > Seven years ago when we were building the last house we lived in > > before the this one, we took a short term rental in a house that was > > near my business. Within 2 months of moving in, we noticed a > massive > > tick infestation. The people living there prior to us had a dog. > We > > had none at the time. We left our stuff there, but moved in with my > > in-laws since the ticks were that bad and I wasn't going to subject > my > > wife to fumigation as she was pregnant. > > > > Well, long story made short.... > > > > I found a tick in our new house yesterday in the bathroom of all > > places. It was not swollen, so it had not feasted on any of our > dogs > > or my kids (luckily). It got me thinking so I googled Lyme disease > > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > > are virtually identical to many of the rheumatic disorder symptoms > > that many of you suffer from. It gets better...In 60% of the > patients > > with Lyme disease there are secondary mycoplasma infections > present. > > These are the exact same mycoplasmas suspected to cause rheumatic > > diseases. Here is the link to the study: > > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > <http://www.immunesupport.com/library/showarticle.cfm/id/3160> > > > > The same PCR testing used to detect mycoplasma infection is used to > > detect the bacteria responsible for Lyme disease. However, it is > > important to mention that it is a specific test. In other words, > you > > would need to have one PCR test for mycoplasma and another for Lyme > > disease. It is also important to note that PCR testing should > occur > > at least 6 weeks after stopping antibiotics to achieve the highest > > possible yield. > > > > I am simply bringing this up as food for thought. I know I will be > > getting my wife tested for Lyme disease just to be sure. Hope this > > helps.... > > > > --------------------------------- > Ahhh...imagining that irresistible " new car " smell? > Check outnew cars at Autos. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Vicki, Based purely on supposition at this point, I believe my wife possibly contracted Lyme disease. We have ordered the test that Carol recommended. Hope to have a result on Monday. My guess is that my wife, Tammy, contracted Lyme while we were living in a rental home awaiting the completion of our house. The rental house ended up being infested with ticks within a month or so of us moving in. The previous tenant had dogs. I think the Lyme disease weakened her immune system then led to a mycoplasma infection which ultimately caused a rheumatic disorder. This is the ultimate cause of the erosion on her pubic bone. Let¹s see how good my diagnostic skills are.... I will definitely post the outcome on here. Thanks, Jon From: Vicki <genuinelysweet2002@...> Reply-<rheumatic > Date: Mon, 16 Apr 2007 20:47:21 -0700 (PDT) <rheumatic > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea jon, i am confused what came first, the SS or Lyme? I assume I would do the testing Carol mentioned to know if I have Lyme or not? And regardless if I do, isn't the treatment protocol the same? How long before the antibiotics help? What would I take besides Mincocycline? I took it a month before but quit. Thanks. Jon Krutchik <jkrutchik@... <mailto:jkrutchik%40comcast.net> > wrote: Vicki, Read my short story on Lyme that it what Carol was responding to. I since found out that what I thought was my little discovery is already discussed on here. I am very new to this and have a lot to learn. Long story short....the majority of people who acquire Lyme disease end up with Mycoplasma infections that, as as almost all of us on here believe, ultimately leads to rheumatic disease. I still can¹t believe that not one doctor my wife saw even asked if she ever had Lyme disease; then again, most don¹t see mycoplasma as a real problem in the first place. Carol, Thanks very much for the valuable info. I will follow up on this. My only concern is that my wife is on Cipro for a bladder/kidney infection. She has another few days to go. I need to find out if the test you mention can be impacted by the current antibiotics. Jon From: Vicki <genuinelysweet2002@... <mailto:genuinelysweet2002%40> > Reply-<rheumatic <mailto:rheumatic%40> > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) <rheumatic <mailto:rheumatic%40> > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea Thanks Carol. WHat exactly are we testing for and how does Lyme relate to Sjogrens? I heard it does before but dont know how. Thank you. carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> <mailto:EJFISCH%40aol.com> > wrote: There is a New Test For The Detection of Borrelia burgdorferi that will make a great difference in the testing of the causative agent for Lyme Disease. The new test name is " Rapid Antigen Identificatiion of Bb by Flow They are all very excited about the test as it is State and CLIA Certified and now is approved for Medicare. This is the first blood 'Rapid Antigen Identification for Bb' test that has State and CLIA approval and now Medicare approval. Afain an Antigen test checks for the organism itself and is not dependent upon the body to build antibodies to an organism. Antigen test are much more reliable as again, they check for the organism itself. For additional information on certification #'s, validation, and flow cytometry etc. go to the labs website at: www.centralfloridaresearch.com Best wishes, Adjunct Professor Emeritus, Carol Fisch > > I am a firm believer that nearly everything happens for a reason. Not > to say that there aren't exceptions to the rule, but something weird > happened yesterday that really got me thinking. In November, we moved > into our dream home that we spent 2 years building. We have 3 dogs, > but always keep them well groomed and chemically protected from fleas > and ticks. We have never had a problem in that area. > > I mention the new house just to say that no one lived here prior. > Seven years ago when we were building the last house we lived in > before the this one, we took a short term rental in a house that was > near my business. Within 2 months of moving in, we noticed a massive > tick infestation. The people living there prior to us had a dog. We > had none at the time. We left our stuff there, but moved in with my > in-laws since the ticks were that bad and I wasn't going to subject my > wife to fumigation as she was pregnant. > > Well, long story made short.... > > I found a tick in our new house yesterday in the bathroom of all > places. It was not swollen, so it had not feasted on any of our dogs > or my kids (luckily). It got me thinking so I googled Lyme disease > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > are virtually identical to many of the rheumatic disorder symptoms > that many of you suffer from. It gets better...In 60% of the patients > with Lyme disease there are secondary mycoplasma infections present. > These are the exact same mycoplasmas suspected to cause rheumatic > diseases. Here is the link to the study: > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > > The same PCR testing used to detect mycoplasma infection is used to > detect the bacteria responsible for Lyme disease. However, it is > important to mention that it is a specific test. In other words, you > would need to have one PCR test for mycoplasma and another for Lyme > disease. It is also important to note that PCR testing should occur > at least 6 weeks after stopping antibiotics to achieve the highest > possible yield. > > I am simply bringing this up as food for thought. I know I will be > getting my wife tested for Lyme disease just to be sure. Hope this > helps.... > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Hi Jon, I hope the results are helpful in treating your wife disease. I am never around any animals and have not been around ticks as far as I know. And since Ethel said this disease mimics 300 other diseases I am kind of thinking I may be barking up the wrong tree with this one. It's all so frustrating. Besides the excessive dryness I walk around dizzy ALL the time since September and these dumb doctors cant help with that either, I cant stand it anymore I am tired of having to think for myself ALL the time, tired of having to ask for this test or that when the doc should KNOW what to test for. I am the sick one, I am the one paying for their expertise. Ugh, I could scream. Jon Krutchik <jkrutchik@...> wrote: Vicki, Based purely on supposition at this point, I believe my wife possibly contracted Lyme disease. We have ordered the test that Carol recommended. Hope to have a result on Monday. My guess is that my wife, Tammy, contracted Lyme while we were living in a rental home awaiting the completion of our house. The rental house ended up being infested with ticks within a month or so of us moving in. The previous tenant had dogs. I think the Lyme disease weakened her immune system then led to a mycoplasma infection which ultimately caused a rheumatic disorder. This is the ultimate cause of the erosion on her pubic bone. Let¹s see how good my diagnostic skills are.... I will definitely post the outcome on here. Thanks, Jon From: Vicki <genuinelysweet2002@...> Reply-<rheumatic > Date: Mon, 16 Apr 2007 20:47:21 -0700 (PDT) <rheumatic > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea jon, i am confused what came first, the SS or Lyme? I assume I would do the testing Carol mentioned to know if I have Lyme or not? And regardless if I do, isn't the treatment protocol the same? How long before the antibiotics help? What would I take besides Mincocycline? I took it a month before but quit. Thanks. Jon Krutchik <jkrutchik@... <mailto:jkrutchik%40comcast.net> > wrote: Vicki, Read my short story on Lyme that it what Carol was responding to. I since found out that what I thought was my little discovery is already discussed on here. I am very new to this and have a lot to learn. Long story short....the majority of people who acquire Lyme disease end up with Mycoplasma infections that, as as almost all of us on here believe, ultimately leads to rheumatic disease. I still can¹t believe that not one doctor my wife saw even asked if she ever had Lyme disease; then again, most don¹t see mycoplasma as a real problem in the first place. Carol, Thanks very much for the valuable info. I will follow up on this. My only concern is that my wife is on Cipro for a bladder/kidney infection. She has another few days to go. I need to find out if the test you mention can be impacted by the current antibiotics. Jon From: Vicki <genuinelysweet2002@... <mailto:genuinelysweet2002%40> > Reply-<rheumatic <mailto:rheumatic%40> > Date: Sun, 15 Apr 2007 22:57:10 -0700 (PDT) <rheumatic <mailto:rheumatic%40> > Subject: Re: rheumatic Re: Could it be Lyme disease? You might want to consider New Test For Lyme Disea Thanks Carol. WHat exactly are we testing for and how does Lyme relate to Sjogrens? I heard it does before but dont know how. Thank you. carol_fisch <EJFISCH@... <mailto:EJFISCH%40aol.com> <mailto:EJFISCH%40aol.com> > wrote: There is a New Test For The Detection of Borrelia burgdorferi that will make a great difference in the testing of the causative agent for Lyme Disease. The new test name is " Rapid Antigen Identificatiion of Bb by Flow They are all very excited about the test as it is State and CLIA Certified and now is approved for Medicare. This is the first blood 'Rapid Antigen Identification for Bb' test that has State and CLIA approval and now Medicare approval. Afain an Antigen test checks for the organism itself and is not dependent upon the body to build antibodies to an organism. Antigen test are much more reliable as again, they check for the organism itself. For additional information on certification #'s, validation, and flow cytometry etc. go to the labs website at: www.centralfloridaresearch.com Best wishes, Adjunct Professor Emeritus, Carol Fisch > > I am a firm believer that nearly everything happens for a reason. Not > to say that there aren't exceptions to the rule, but something weird > happened yesterday that really got me thinking. In November, we moved > into our dream home that we spent 2 years building. We have 3 dogs, > but always keep them well groomed and chemically protected from fleas > and ticks. We have never had a problem in that area. > > I mention the new house just to say that no one lived here prior. > Seven years ago when we were building the last house we lived in > before the this one, we took a short term rental in a house that was > near my business. Within 2 months of moving in, we noticed a massive > tick infestation. The people living there prior to us had a dog. We > had none at the time. We left our stuff there, but moved in with my > in-laws since the ticks were that bad and I wasn't going to subject my > wife to fumigation as she was pregnant. > > Well, long story made short.... > > I found a tick in our new house yesterday in the bathroom of all > places. It was not swollen, so it had not feasted on any of our dogs > or my kids (luckily). It got me thinking so I googled Lyme disease > symptoms. Well, sure enough, the symptoms of long-term Lyme disease > are virtually identical to many of the rheumatic disorder symptoms > that many of you suffer from. It gets better...In 60% of the patients > with Lyme disease there are secondary mycoplasma infections present. > These are the exact same mycoplasmas suspected to cause rheumatic > diseases. Here is the link to the study: > http://www.immunesupport.com/library/showarticle.cfm/id/3160 > > The same PCR testing used to detect mycoplasma infection is used to > detect the bacteria responsible for Lyme disease. However, it is > important to mention that it is a specific test. In other words, you > would need to have one PCR test for mycoplasma and another for Lyme > disease. It is also important to note that PCR testing should occur > at least 6 weeks after stopping antibiotics to achieve the highest > possible yield. > > I am simply bringing this up as food for thought. I know I will be > getting my wife tested for Lyme disease just to be sure. Hope this > helps.... > --------------------------------- Ahhh...imagining that irresistible " new car " smell? Check outnew cars at Autos. 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