Re: Thanks too: Was Advice please: Crohn's testing

[Guest guest]

My doctor had me get the test from Prometheus. If I had known how much

it cost, I wouldn't have gone along with it. It was hell to get

insurance to pay for it, but they finally did. But only after a

collection agency harassed me for several months. If I recall, the

cost was $500, and this was 6 years ago. The ironic part is that I

only had that GI doctor for a month or two before I had to move again,

so I never actually got the results.

Holly

Crohn's

SCD 12/01/08

>

> Dear and Adam,

>

> Thank you for the help with Crohn's testing. I appreciate the input.

>

> I'm curious , do you know what the cost of the Prometheus test

> is in case I would have to pay for it out-of-pocket?

>

> Thanks again.

>

> Cheers,

> Stocker

>

[Guest guest]

I also had the Prometheus testing done and paid almost $500 out of pocket. I

was really mad

when my GI dr didn't give me a head's up about that one. My test came back

" uncertain "

about which disease I have. My markers are similar for both UC and Crohn's, so

I have an

" indeterminant " diagnosis right now until I have another colonoscopy. I was

first diagnosed

with UC in 2003 and then after developing an abcessed fistula, it was changed to

Crohn's in

2007 because apparently, fistulas " ONLY " occur if you have Crohn's disease. I

personally

think I was wounded during a sigmoidoscopy, but that cannot be proven. So even

if I could

get off the Remicade for my UC/C, I shouldn't because Remicade is the only thing

that works

for fistulas.

UC/C

Remicade

SCD 1 year

[Guest guest]

Hey ..

My diagnosis has been toggled as well.

It first developed as CD so I consider it such but all doctors read my

file and say Crohn's Colitis. One said it's Crohn's in the Colon

while a different doc said it's classic Colitis in the colon but I

proceeded to ask " I have all of this disease in my small intestine how

can you label it Colitis " . Different complications also had this

toggling thing going on- is it CD or Colitis?

I just couldn't care anymore.

Not really sure at this point if the exact terminology makes a difference?

Jodi