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Re: diary on progress

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I am trying to keep record of what Evan eats each day. If he has any unusual

behaviors or health problems. He recently started Risperdal and I keep

track of how many days he has been on that. I keep it here in my email so I

don't forget to write in it. Now that I have said that, I'd better put a

copy in Microsoft works in case I lose it here. So far it has helped some

in dating certain behaviors. Like just recently he started having problems

getting to the bathroom in time at school and needing a change of clothes.

Some days even two changes. That was not normal for him. I don't know what

caused it but I do know that it started before he started his Risperdal. So

it helps me there.

Betty in Central California

----- Original Message -----

> Do any of you keep dairies of how your child's day has been, foods they

have eaten, behaviors, etc? If so, how often do you write in it and do you

see it as being helpful.

>

> Just wondering. Rhonda

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I believe this to be very important, I have kept a diary, mainly the first 2

months, we have not had many real accidents.

One reason to do this is for proof should you need it. As in a visit from

Division of Family Services (which happened to us a couple of weeks ago)

Thanks to my records and my supportive pediatrician, we were completely

cleared with in 24 hours of any wrong doing and commended for our hard work

in helping my daughter.

By the way, one of the reasons we were hotlined was a mention to an

uneducated person that we were planning to give charcoal during the first 5

days of Diflucan to minimize yeast dieoff. DFS was under the impression my

daughter was being fed charcoal from the BBQ pit out back, LOL, watch what

you assume a person can understand about medical issues.

>

> Reply-To: GFCFKidsegroups

> Date: Sat, 21 Oct 2000 20:23:55 -0500

> To: <GFCFKidsegroups>

> Subject: diary on progress

>

> Do any of you keep dairies of how your child's day has been, foods they have

> eaten, behaviors, etc? If so, how often do you write in it and do you see it

> as being helpful.

>

> Just wondering. Rhonda

>

>

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<Do any of you keep dairies of how your child's day has been, foods they

have eaten, behaviors, etc? If so, how often do you write in it and do you

see it as being helpful>

Rhonda,

For about the first two months or so we were on the diet, and I

religiously kept a daily diary on . We kept track not only of what

and how much he ate, but also how he slept, what his bm's looked like and we

even rated his disposition on a scale of 1 to 10. However, we sort of let

it go after awhile and we haven't picked it back up. It's one of those

things where we keep saying we need to get back to it, but we just haven't

managed even though it was pretty valuable.

Pat

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Yes, I do keep a daily diary in Word perfect which I have set up to

start-up when I turn on my computer. Otherwise I would never

remember, Remy comes by his traits honestly! It is very general,

mostly telling how his day went, and loosely what he is eating. If he

was severely autistic, I would probably be more specific as is

doing.

> Do any of you keep dairies of how your child's day has been, foods

they have eaten, behaviors, etc? If so, how often do you write in it

and do you see it as being helpful.

>

> Just wondering. Rhonda

>

>

>

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>Being a parent of an autistic child is like being Sherlock Holmes on

>steriods.

>Watch out, next I will get a magnifying glass!

- you are priceless - thanks I'm going to use this quote.

Sandie

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I try to do it weekly or as often as I can. I just write down any changes I

see or behaviors. It helps.

Lana

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DEFINITELY keep a diary. If it wasn't for my diary I would have gone crazy.

For the first 4 months I wrote in it every day. I wrote what he ate, what he

did at school, how he acted anywhere I took him, how he slept, how he pooped,

EVERYTHING. I'm so happy I did because now I look back at it and I can't

believe that this was the same boy. It lets you know what kind of progress

is going on and helps you to know that the diet is really working event

though you want to give up.

I now write in it every few days and I write about what has happened in those

days. If something dramatic or wonderful has happened I write in it right

away. Believe me it is the best thing you can do for yourself.

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,

We would love a copy of the forms you used to record food, behavior, etc.

Thank you so much for all your help thus far!!!!!!

NBA

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Dear ,

I would very much appreciate the Diary lay out you have, please.

Please could you email me at: mo@...

Many Thanks in advance

Mo

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