Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 I can relate to your story. I came down with sudden-onset of arthritic symptoms in December of 08. Like you, became my own advocate. Tested positive for mycoplasma hominis and toxoplasmosis. I also have high EBV and CMV titers (per your blood tests). A rheumatologist diagnosed Reactive Arthritis, with a swollen ankle, tight calves and knees. Started AP therapy in April 2009 and had no response. After prompting from friends on www.roadback.org, was tested for lyme by Igenex, and was negative. I was equivocal for babesia, and am being treated by an LLMD. I wouldn't bother with the synovial fluid aspiration. I tried the same thing. Finally got an orthopedic doctor to test for a number of infectious gents, and the result was negative. They thought I was crazy. I also went in for my knee, and then the pain moved to my ankle. It was migratory, which is a common symptom of lyme. I was clinically diagnosed with lyme/babesia and have improved greatly with parasite/protozoa treatment. An LLMD will be able to sift through your symptoms, and recommend a treatment protocol for your clinical diagnosis. Are there any LLMD's in Brazil? What lab is testing for lyme? I was tested for lyme many times, always with a negative response - you can't trust the tests. From: Renato <rrsantana@...> Subject: rheumatic Mycoplasma Hominis rheumatic Date: Tuesday, November 2, 2010, 12:48 PM  Hi all, I am suffering with joint pain since Aug/2008. Since 2009 I have seen three rheumatologists (+ GPs and other specialties) and have done many lab tests. Til this date there no dx established, athough it seems to be one of those espondiloarthropaty. My sed rate went as high as 100. I have RF negative. Symptoms: pain on ankles (with swollen), plantar, knees, hips, shoulders and finger (swollen). I had strong pain on my chest, rips and sacro-illiac also, but those went away. Currently I have a strong burning sensation on my legs and feet. Most of the lab tests I requested my self, since I become a researcher myself about the problem (just as most you here). Just recently I found that I have mycoplasma hominis (PCR of urine test). I would like to test the synovial liquid for mycoplasmas but not one rheumatologist wanted to do the puncture of my knee. They say it is not swollen and it is to risky b/c could infect it. If anyone had a similar situation I would love to receive comments on this. I requested test for Lyme and Brucella and anti-CCP but don't have results for those yet. I tried also to request antibody tests for different kinds of mycoplasma, but it is hard to find labs that run those. Please check my lab tests http://www.renatosantana.com/health/tests.htm I had started mino early this year but felt no difference and after 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) and then azithromicine (7 days 500mg). Also no differece. Currently I'm taking clyndamicine. Started 300g once a day for 2 days, then 300mg twice a day (still in the 5th day). After a week, I plan to take 300mg once a week. Taking also: Harpagophytum procumbens extract, echinacea extract, probiotics and vitamins/minerals. I feel like walking alone with all this. I live in Brazil and here there is not one doctor that would AP to treat rheumatism. I really would love to receive some guidance or comments from anyone. Thanks for any help, -- Renato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 Look into Reactive arthritis Ankylosing spondylitis how I cured mine: http://www.allergyfreeheaven.co.uk/ On 2 Nov 2010, at 20:48, Renato wrote: > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not > one rheumatologist wanted to do the puncture of my knee. They say > it is not swollen and it is to risky b/c could infect it. If anyone > had a similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, > I plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 Hi Renato, I also have mycoplasma Hominis. It is the worst of the bunch. I did Minocin for about 6 months in 1997 along with Clindamycin IM with no results. I finally started IV Clindamycin in October 1998 and all my symptoms started to go away very slowly. My story along with many others is here wwwrheumatic.org/medhist I would not test the synovial fluid at this point. If you want a PCR blood test it would be OK but you already know you have hominis. .. From what I understand this is the newest test for RA An anti-CCP (anti-cyclic citrullinated peptide antibody) is a blood test to assist in confirming the presence of rheumatoid arthritis (RA). As part of the diagnostic process ... Don't know if you had it done. .. .. Sometimes a test does not show anything right away.it may take a long time to show up. Or you may have a different disease caused by the hominis. Treatment with antibiotics is not a quick treatment. Six weeks is not long enough to show an improvement. Here is another web site you may want to look at. Wyburn-Mason and Jack M. Blount Foundation You will read about it in my bio Here is another group of people on antibiotics and more informationanother site http://roadback.org With antibiotics as treatment we are here to help but you may just have to be your own doctor. You can also print off the instruction for AP (antibiotic protocol) and give them to a doctor so he can help. There are also books by McPherson Brown that you can order on the internet. All of us will help you...we're open 7 days a week (grinning)! Anything else you want to know just ask. Good luck cooky From: rheumatic [mailto:rheumatic ] On Behalf Of Renato Sent: Tuesday, November 02, 2010 3:48 PM rheumatic Subject: rheumatic Mycoplasma Hominis Hi all, I am suffering with joint pain since Aug/2008. Since 2009 I have seen three rheumatologists (+ GPs and other specialties) and have done many lab tests. Til this date there no dx established, athough it seems to be one of those espondiloarthropaty. My sed rate went as high as 100. I have RF negative. Symptoms: pain on ankles (with swollen), plantar, knees, hips, shoulders and finger (swollen). I had strong pain on my chest, rips and sacro-illiac also, but those went away. Currently I have a strong burning sensation on my legs and feet. Most of the lab tests I requested my self, since I become a researcher myself about the problem (just as most you here). Just recently I found that I have mycoplasma hominis (PCR of urine test). I would like to test the synovial liquid for mycoplasmas but not one rheumatologist wanted to do the puncture of my knee. They say it is not swollen and it is to risky b/c could infect it. If anyone had a similar situation I would love to receive comments on this. I requested test for Lyme and Brucella and anti-CCP but don't have results for those yet. I tried also to request antibody tests for different kinds of mycoplasma, but it is hard to find labs that run those. Please check my lab tests http://www.renatosantana.com/health/tests.htm I had started mino early this year but felt no difference and after 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) and then azithromicine (7 days 500mg). Also no differece. Currently I'm taking clyndamicine. Started 300g once a day for 2 days, then 300mg twice a day (still in the 5th day). After a week, I plan to take 300mg once a week. Taking also: Harpagophytum procumbens extract, echinacea extract, probiotics and vitamins/minerals. I feel like walking alone with all this. I live in Brazil and here there is not one doctor that would AP to treat rheumatism. I really would love to receive some guidance or comments from anyone. Thanks for any help, -- Renato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 Hi Renato, There are many of us on this site that can relate to your problem and like Cooky said, Six weeks and even six months is not long enough to test the minocin. I went into remission after 5 years and still take minocin 3 times a week for precautionary reasons. A/P therapy is low dose, long term use of antibiotics. It is not a quick fix. Also, Minocin does not kill off the micoplasma. They are tiny viral like type bacteria who do not have a cell wall, so they easily penetrate our immune cells and live as parasites a very long time before we feel ill. They are slow growing and slow dying. So they take a very long time to die off. While they are dying they get really nasty and emit a toxin that makes us very sick. As they start to weaken, our immune system begins to get stronger.and we make antibodies to fight off the toxin of the micoplasma. Minocin interfers with the replication of the Micoplasma.   There is a war going on inside our bodies and that takes a while. We get worse rather than better during this phase. Look up Jarisch Herxheimer reation. It explains what is going on. It is not an easy war and takes a lot out of us, but if we are patient, our immune system will start to not only destroy the micos they will eat them up, spit them out and clean up our system.....Depending on how infected you are, the time frame could be several years. Mine took 5 years to go into remission..  I agree with Cooky about putting a needle into your synovial fluid. You could introduce more bacteria. Avoid anything invasive as much as you can. There are some labs that will do urine and blood, but since you already know that you have the hominus type, then continue to treat with antibiotics. I used as many as 6 or more different antibiotics of the tetracycline family. I was going to an infectious disease doc and we had a party figuring out which antibiotics were the best at different times during my therapy. Some of my antibiotics overlapped others.. Starting with IV Clindy is a good choice. Don't fret if you get diarrhea. Sometimes that is a side effect of antibiotics. It is your bodies way of clearing out the toxic material in your body. Besides off and on again diarrhea, I would throw up often. I was glad to be getting rid of all the accumulated toxic waste I was carrying. Don't use the A/C too much either. It is a good thng to sweat it out too. Some people go to indian sweat huts, but they could be dangerous if you get dehydrated. Best to keep drinking lots of water during your therapy. But don't overdo anything.  Too much could be as bad as too little. Take it easy, rest a lot, be kind to your immune system and it will heal itself and in the long term, it will heal you. Eat well and eat right for your body. We are all different and sometimes develop different sensitivities. Pay special attention to what your body tells you. You must become yourown doctor at home and get instruction from an expert at the office. You are both working to make you better.  Keep posting from Brazil. We would like to reach the entire world. I am in Puerto Rico and am bilingual. Get a copy of the FAQ. antibiotic protocol. This site just posted it a few days ago, but you can also google it. and if you can, get a copy of, " The New Arthtritis Breakthrough, " by Henry Scammell, please read it thoroughly several times along with the book that is midway through that book, called " The Road Back, by MacPherson Brown, M.D., the discoverer of the micoplasma group of bacteria. You can purchase it, new or used at Amazon.com. I think I paid about $10.00 or $15.00 american dollars for mine. Take care, We love hearing from our friends abroad. Dolores . . .. From: Cooky Stonkey <cookee1@...> Subject: RE: rheumatic Mycoplasma Hominis rheumatic Date: Tuesday, November 2, 2010, 4:38 PM  Hi Renato, I also have mycoplasma Hominis. It is the worst of the bunch. I did Minocin for about 6 months in 1997 along with Clindamycin IM with no results. I finally started IV Clindamycin in October 1998 and all my symptoms started to go away very slowly. My story along with many others is here wwwrheumatic.org/medhist I would not test the synovial fluid at this point. If you want a PCR blood test it would be OK but you already know you have hominis. .. From what I understand this is the newest test for RA An anti-CCP (anti-cyclic citrullinated peptide antibody) is a blood test to assist in confirming the presence of rheumatoid arthritis (RA). As part of the diagnostic process ... Don't know if you had it done. .. .. Sometimes a test does not show anything right away.it may take a long time to show up. Or you may have a different disease caused by the hominis. Treatment with antibiotics is not a quick treatment. Six weeks is not long enough to show an improvement. Here is another web site you may want to look at. Wyburn-Mason and Jack M. Blount Foundation You will read about it in my bio Here is another group of people on antibiotics and more informationanother site http://roadback.org With antibiotics as treatment we are here to help but you may just have to be your own doctor. You can also print off the instruction for AP (antibiotic protocol) and give them to a doctor so he can help. There are also books by McPherson Brown that you can order on the internet. All of us will help you...we're open 7 days a week (grinning)! Anything else you want to know just ask. Good luck cooky From: rheumatic [mailto:rheumatic ] On Behalf Of Renato Sent: Tuesday, November 02, 2010 3:48 PM rheumatic Subject: rheumatic Mycoplasma Hominis Hi all, I am suffering with joint pain since Aug/2008. Since 2009 I have seen three rheumatologists (+ GPs and other specialties) and have done many lab tests. Til this date there no dx established, athough it seems to be one of those espondiloarthropaty. My sed rate went as high as 100. I have RF negative. Symptoms: pain on ankles (with swollen), plantar, knees, hips, shoulders and finger (swollen). I had strong pain on my chest, rips and sacro-illiac also, but those went away. Currently I have a strong burning sensation on my legs and feet. Most of the lab tests I requested my self, since I become a researcher myself about the problem (just as most you here). Just recently I found that I have mycoplasma hominis (PCR of urine test). I would like to test the synovial liquid for mycoplasmas but not one rheumatologist wanted to do the puncture of my knee. They say it is not swollen and it is to risky b/c could infect it. If anyone had a similar situation I would love to receive comments on this. I requested test for Lyme and Brucella and anti-CCP but don't have results for those yet. I tried also to request antibody tests for different kinds of mycoplasma, but it is hard to find labs that run those. Please check my lab tests http://www.renatosantana.com/health/tests.htm I had started mino early this year but felt no difference and after 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) and then azithromicine (7 days 500mg). Also no differece. Currently I'm taking clyndamicine. Started 300g once a day for 2 days, then 300mg twice a day (still in the 5th day). After a week, I plan to take 300mg once a week. Taking also: Harpagophytum procumbens extract, echinacea extract, probiotics and vitamins/minerals. I feel like walking alone with all this. I live in Brazil and here there is not one doctor that would AP to treat rheumatism. I really would love to receive some guidance or comments from anyone. Thanks for any help, -- Renato Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 Hi. I am on minocycline and did not feel any effects until 3 months, now feeling better. I have heard others say that 6 weeks may not be long enough? Any one? On Nov 2, 2010, at 3:48 PM, Renato wrote: > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is > not swollen and it is to risky b/c could infect it. If anyone had a > similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, I > plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2010 Report Share Posted November 2, 2010 I was on minocycline for approx 8 months before I saw any results from the mino, and that was herxheimer....I herxed for about 4 weeks....BUT IT WAS WORTH IT....I have been in remission since May of 2010. I understand that you should take mino for one to two years (or longer) before giving up on it. frank > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is > not swollen and it is to risky b/c could infect it. If anyone had a > similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, I > plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 You are extremely fortunate. I took Minocin 100mg twice daily for 5 years, then went into remission. That is when all my blood work converted back to normal and all symptoms of the disease were gone. Then I went to 50mg. Minocin on Mon. Wed. & Fri. to prevent getting infected again. It is not unusual to get re-infected. I will stay on Minocin for the rest of my life as long as I can tolerate it and if I develop a sensitivity, I will switch to one of the other antibiotics in the tetracycline family. Dolores > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is > not swollen and it is to risky b/c could infect it. If anyone had a > similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, I > plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 , can you share what you have experienced during Herxmeir reaction. What symptoms did you have? thanks > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is > not swollen and it is to risky b/c could infect it. If anyone had a > similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, I > plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Hi, , Thanks for your reply. Except for the toxo, we have very similar data in common. My IgM antibodies for CMV e EBV are normal indicating I have immunity against those. We don't have LLMD in Brazil, since the country is not considered an epidemic area. But we do have what is called Lyme-simile which is a variant (this is a recent discovery). I have done the test for the regular Lyme but don't have the result yet. There is only one laboratory in Brazil that tests for Lyme-simile (in Sao o, far from the south, where I live); maybe I should test for it too, since we had a big infestation of ticks in the backyard (2007), just before symptoms came up. Babesia is on the list of the next tests because we have two small-port dogs. I will do those tests before starting long term bx. Thanks again, -- Renato > > From: Renato <rrsantana@...> > Subject: rheumatic Mycoplasma Hominis > rheumatic > Date: Tuesday, November 2, 2010, 12:48 PM > > > > > > > > Â > > > > > > > > > > Hi all, > > > > I am suffering with joint pain since Aug/2008. Since 2009 I have seen three rheumatologists (+ GPs and other specialties) and have done many lab tests. Til this date there no dx established, athough it seems to be one of those espondiloarthropaty. > > > > My sed rate went as high as 100. I have RF negative. > > > > Symptoms: > > pain on ankles (with swollen), plantar, knees, hips, shoulders and finger (swollen). I had strong pain on my chest, rips and sacro-illiac also, but those went away. Currently I have a strong burning sensation on my legs and feet. > > > > Most of the lab tests I requested my self, since I become a researcher myself about the problem (just as most you here). > > > > Just recently I found that I have mycoplasma hominis (PCR of urine test). > > > > I would like to test the synovial liquid for mycoplasmas but not one rheumatologist wanted to do the puncture of my knee. They say it is not swollen and it is to risky b/c could infect it. If anyone had a similar situation I would love to receive comments on this. > > > > I requested test for Lyme and Brucella and anti-CCP but don't have results for those yet. > > > > I tried also to request antibody tests for different kinds of mycoplasma, but it is hard to find labs that run those. > > > > Please check my lab tests > > http://www.renatosantana.com/health/tests.htm > > > > I had started mino early this year but felt no difference and after 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) and then azithromicine (7 days 500mg). Also no differece. > > > > Currently I'm taking clyndamicine. Started 300g once a day for 2 days, then 300mg twice a day (still in the 5th day). After a week, I plan to take 300mg once a week. > > > > Taking also: Harpagophytum procumbens extract, echinacea extract, probiotics and vitamins/minerals. > > > > I feel like walking alone with all this. I live in Brazil and here there is not one doctor that would AP to treat rheumatism. > > > > I really would love to receive some guidance or comments from anyone. > > > > Thanks for any help, > > > > -- Renato > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Hi, Thank for the reply. It makes a lot of sense to me. Reactive Arthritis is the pattern the most fits for me. I had something very similar to keratoma blennorhagica on my feet at the begining. I also have two sausage toes. I currently away from dairy (I suspected of it), but when occasionally I drink even a small amount of milk, joint pain increases and it takes days to decrease again. Another suspected is the caffeine. I have no intestinal symptoms. I will read everything on your website. Thanks again, -- Renato > > > Hi all, > > > > I am suffering with joint pain since Aug/2008. Since 2009 I have > > seen three rheumatologists (+ GPs and other specialties) and have > > done many lab tests. Til this date there no dx established, athough > > it seems to be one of those espondiloarthropaty. > > > > My sed rate went as high as 100. I have RF negative. > > > > Symptoms: > > pain on ankles (with swollen), plantar, knees, hips, shoulders and > > finger (swollen). I had strong pain on my chest, rips and sacro- > > illiac also, but those went away. Currently I have a strong burning > > sensation on my legs and feet. > > > > Most of the lab tests I requested my self, since I become a > > researcher myself about the problem (just as most you here). > > > > Just recently I found that I have mycoplasma hominis (PCR of urine > > test). > > > > I would like to test the synovial liquid for mycoplasmas but not > > one rheumatologist wanted to do the puncture of my knee. They say > > it is not swollen and it is to risky b/c could infect it. If anyone > > had a similar situation I would love to receive comments on this. > > > > I requested test for Lyme and Brucella and anti-CCP but don't have > > results for those yet. > > > > I tried also to request antibody tests for different kinds of > > mycoplasma, but it is hard to find labs that run those. > > > > Please check my lab tests > > http://www.renatosantana.com/health/tests.htm > > > > I had started mino early this year but felt no difference and after > > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > > and then azithromicine (7 days 500mg). Also no differece. > > > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > > days, then 300mg twice a day (still in the 5th day). After a week, > > I plan to take 300mg once a week. > > > > Taking also: Harpagophytum procumbens extract, echinacea extract, > > probiotics and vitamins/minerals. > > > > I feel like walking alone with all this. I live in Brazil and here > > there is not one doctor that would AP to treat rheumatism. > > > > I really would love to receive some guidance or comments from anyone. > > > > Thanks for any help, > > > > -- Renato > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Hi Cooky, Thanks for your answer. > > Hi Renato, > > I also have mycoplasma Hominis. It is the worst of the bunch. I did Minocin > for about 6 months in 1997 along with Clindamycin IM with no results. I read it is hard to get rid of. Although it has been proved it is pathogenic, there is a controversy saying it part of the normal vaginal/urethral flora. What info you have on this? > I finally started IV Clindamycin in October 1998 and all my symptoms started > to go away very slowly. After starting oral clindamycin (6th day now), morning stiffing became unbearable - I can't walk. Herxheimer? > My story along with many others is here > wwwrheumatic.org/medhist > I had read your story top-bottom. > I would not test the synovial fluid at this point. If you want a PCR blood > test it would be OK but you already know you have hominis. > I agree about not doing the synovial fluid test. But I think I have to test (sero antibodies) for other organisms since antibiotic susceptibility is another problem. For example, hominis is not susceptible to mino. > > . From what I understand this is the newest test for RA An > anti-CCP (anti-cyclic citrullinated peptide antibody) is a blood test to > assist in confirming the presence of rheumatoid arthritis (RA). As part of > the diagnostic process ... Don't know if you had it done. > I have done it recently but don't the result yet. ANA and FR are still negatives. > . > > . Sometimes a test does not show anything right away.it may take a > long time to show up. Or you may have a different disease caused by the > hominis. > > Treatment with antibiotics is not a quick treatment. Six weeks is not long enough to show an improvement. I was expecting some herxheimer within six weeks. In addition, by the time I had not tested for any mycoplasma; having ho herxheimer made stop it to do some tests. What do you think about mino for hominis? It is said that hominis is resistent to it. > Here is another web site you may want to look > at. > > Wyburn-Mason and Jack M. Blount Foundation You will read about it in > my bio Here is another group of people on antibiotics and more > informationanother site http://roadback.org > The roadback.org is where I found this group. I'm checking the other one. > > With antibiotics as treatment we are here to help but you may just have to > be your own doctor. You can also print off the instruction for AP > (antibiotic protocol) and give them to a doctor so he can help. There are > also books by McPherson Brown that you can order on the internet. > I have it and read it already. > > > All of us will help you...we're open 7 days a week (grinning)! Anything else > you want to know just ask. > > Thanks a lot for that, Cooky. I'm feeling much better now, after communicating with people that know exactly how I feel. -- Renato > > > > > From: rheumatic [mailto:rheumatic ] On Behalf > Of Renato > Sent: Tuesday, November 02, 2010 3:48 PM > rheumatic > Subject: rheumatic Mycoplasma Hominis > > > > > > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have seen three > rheumatologists (+ GPs and other specialties) and have done many lab tests. > Til this date there no dx established, athough it seems to be one of those > espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and finger > (swollen). I had strong pain on my chest, rips and sacro-illiac also, but > those went away. Currently I have a strong burning sensation on my legs and > feet. > > Most of the lab tests I requested my self, since I become a researcher > myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is not > swollen and it is to risky b/c could infect it. If anyone had a similar > situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have results > for those yet. > > I tried also to request antibody tests for different kinds of mycoplasma, > but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after 6 weeks > I stopped it. Then later tried amoxiciline (5 days 500mg) and then > azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 days, then > 300mg twice a day (still in the 5th day). After a week, I plan to take 300mg > once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, probiotics > and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here there is > not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 During the 6-week with mino I felt no difference - no improvement and no herx. Would it be because hominis is resistant to mino? > > > Hi all, > > > > I am suffering with joint pain since Aug/2008. Since 2009 I have > > seen three rheumatologists (+ GPs and other specialties) and have > > done many lab tests. Til this date there no dx established, athough > > it seems to be one of those espondiloarthropaty. > > > > My sed rate went as high as 100. I have RF negative. > > > > Symptoms: > > pain on ankles (with swollen), plantar, knees, hips, shoulders and > > finger (swollen). I had strong pain on my chest, rips and sacro- > > illiac also, but those went away. Currently I have a strong burning > > sensation on my legs and feet. > > > > Most of the lab tests I requested my self, since I become a > > researcher myself about the problem (just as most you here). > > > > Just recently I found that I have mycoplasma hominis (PCR of urine > > test). > > > > I would like to test the synovial liquid for mycoplasmas but not one > > rheumatologist wanted to do the puncture of my knee. They say it is > > not swollen and it is to risky b/c could infect it. If anyone had a > > similar situation I would love to receive comments on this. > > > > I requested test for Lyme and Brucella and anti-CCP but don't have > > results for those yet. > > > > I tried also to request antibody tests for different kinds of > > mycoplasma, but it is hard to find labs that run those. > > > > Please check my lab tests > > http://www.renatosantana.com/health/tests.htm > > > > I had started mino early this year but felt no difference and after > > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > > and then azithromicine (7 days 500mg). Also no differece. > > > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > > days, then 300mg twice a day (still in the 5th day). After a week, I > > plan to take 300mg once a week. > > > > Taking also: Harpagophytum procumbens extract, echinacea extract, > > probiotics and vitamins/minerals. > > > > I feel like walking alone with all this. I live in Brazil and here > > there is not one doctor that would AP to treat rheumatism. > > > > I really would love to receive some guidance or comments from anyone. > > > > Thanks for any help, > > > > -- Renato > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is > not swollen and it is to risky b/c could infect it. If anyone had a > similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, I > plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 > Hi all, > > I am suffering with joint pain since Aug/2008. Since 2009 I have > seen three rheumatologists (+ GPs and other specialties) and have > done many lab tests. Til this date there no dx established, athough > it seems to be one of those espondiloarthropaty. > > My sed rate went as high as 100. I have RF negative. > > Symptoms: > pain on ankles (with swollen), plantar, knees, hips, shoulders and > finger (swollen). I had strong pain on my chest, rips and sacro- > illiac also, but those went away. Currently I have a strong burning > sensation on my legs and feet. > > Most of the lab tests I requested my self, since I become a > researcher myself about the problem (just as most you here). > > Just recently I found that I have mycoplasma hominis (PCR of urine > test). > > I would like to test the synovial liquid for mycoplasmas but not one > rheumatologist wanted to do the puncture of my knee. They say it is > not swollen and it is to risky b/c could infect it. If anyone had a > similar situation I would love to receive comments on this. > > I requested test for Lyme and Brucella and anti-CCP but don't have > results for those yet. > > I tried also to request antibody tests for different kinds of > mycoplasma, but it is hard to find labs that run those. > > Please check my lab tests > http://www.renatosantana.com/health/tests.htm > > I had started mino early this year but felt no difference and after > 6 weeks I stopped it. Then later tried amoxiciline (5 days 500mg) > and then azithromicine (7 days 500mg). Also no differece. > > Currently I'm taking clyndamicine. Started 300g once a day for 2 > days, then 300mg twice a day (still in the 5th day). After a week, I > plan to take 300mg once a week. > > Taking also: Harpagophytum procumbens extract, echinacea extract, > probiotics and vitamins/minerals. > > I feel like walking alone with all this. I live in Brazil and here > there is not one doctor that would AP to treat rheumatism. > > I really would love to receive some guidance or comments from anyone. > > Thanks for any help, > > -- Renato > > > Quote Link to comment Share on other sites More sharing options...
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