Re: re: OK...someone made me mad again (work)/Debra (and Tigger)

[Guest guest]

I too loved the " wooden nickels " story. It gave me a much needed smile and a

great visual.

I've always known too that this has to be progressive. If not why do almost

all of us get progressively worse. It doesn't matter what doctors or others

say, my fibro definitely has gotten worse. When I was dx in 1991 I was

extremely active. I had to start giving up things one at a time with extremely

active things first and as the years roled by working full time and finally in

2001 giving up working at all. I think everyday how much I would love to go

back to work, but know I can't do anything for long and it wouldn't work out.

It slowly but surely took my life away and I have had to make a new one that is

frustrating in its lack of positive things. Even giving up church. The pews

hurt my back so badly and even singing hurts my neck. I'm also too fatigued and

sluggish to accomplish much of anything. That to me is definitely progressive.

Take care,

Marti

Caroline Witte wrote:

Tigger, I loved your anology too. Plus, I know for a fact that it IS

progressive. Part of it is getting older, but not all of it. After my first year

and a half or so of being bedridden by CFS in 72, I was able to get back to life

slowly but surely. My pain was usually easily controlled by OTC meds except for

migraine pain. I did *almost* everything other people did, though it was much

harder for me. But year by year the symptoms and the severity of the symptoms

increased. There is no way all of it can be blamed on the aging process. When I

consider all the years I worked as a chef...which is VERY hard physical

work...and I often worked 12 hour plus shifts and sometimes up to 2 weeks in a

row with no days off...well, I'm just amazed. NO WAY could I begin to do that

now. Not to say I didn't suffer a lot doing that, I did, but first of all, I HAD

to have a job, as I had a child and no child support...long story...but

secondly, I LOVED my job. That makes a huge

difference. Except that now, I would STILL love it, but I couldn't do it

despite that. So for SURE it's gotten worse and worse over the years. Nobody can

tell me it hasn't.

BTW, Debra, apparently not all fibromites have learned their lessons in

humility. I have no doubt that woman will get her 'commupance' sooner or later.

She will move into the 'next' phase, and will find nothing works for her, just

as we have found out. By then she will probably have turned so many people

against her she won't be able to find any support at all. I think that's part of

what's happened vis a vis those new members who left without giving us a chance.

They're 'newbies' with only minor symptoms, and could well get worse like the

rest of us. Of course, I have heard that some people never do get very bad. If

that's the case, they will compare themselves to us and consider us 'whiners'

just like the normals. Rather than understanding their luck, they will simply

believe if their symptoms aren't that bad, then the rest of us are making all of

ours up for attention and sympathy. That sure doesn't help us at all. They seem

to look down their noses at us in the same way

'normals' do. Well, now I've done my venting too.....

Peace and Love

Caroline

That's why we are here. We DO get it. We are not drug seekers, just

seekers of something that will help us live with the pain we endure. I

swear if someone told me I'd feel better if I stood on my head and spit

wooden nickels. you can bet I'd be on my head with lots of wooden nickels

spewing out.

I think it all depends on the severity of the fibro. I've had doctors say

that it's not progressive.. HA! Yes, mine has been. I'm trying to stay

calm because that seems to help the most. but some people just pi** me off.

Tigger (Ruth) in Rhode Island

__________________________________________________________

GET FREE SMILEYS FOR YOUR IM & EMAIL - Learn more at

http://www.crawler.com/smileys

Works with AIM®, MSN® Messenger, Yahoo!® Messenger, ICQ®, Google Talk™ and

most webmails

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.