For Gail - Re: SD - Opinions needed please.

[Guest guest]

Gail,

Just reading through your symptoms piqued my attention, because migrating

arthraligias and myalgias, photosensitivity and heightened hypersensitivity, in

general, are very akin to some of the mryiad symptoms that many Lyme patients

report.

Of course, most of us with some type of rheumatoid disease have heightened

hypersensitivity reactions we may not have experienced before and it's easy to

jump to the conclusion of Lyme, but the migrating pains are pretty typical of

it. In fact, in a Lyme conference video I watched where a well-known LLMD was

speaking (Dr H in NY - see link below), he said that when migrating pain

presents, it is pretty much the only diagnosis to consider as no other disease

process presents like this. I was somewhat surprised to hear this, because I had

understood that palindromic RA did actually present as migrating pain. Made me

think that perhaps many " idiopathic " diseases of unknown etiology could well be

undiagnosed Lyme quite apart from the ones it is known to mimic...or at the

very least be a part of the overall pathogen load. In fact, I spoke with my

LLMD recently about the possibility of there being a connection with scleroderma

and Lyme and he said, " Absolutely, yes! " I've found morphea studies where skin

biopsies actually showed spirochetes in the samples.

Anyway....just thought to pass this along just in case it may be relevant. If

you live in the NE, the chances of Lyme are heightened and, even if not a

recent infection, it is known that Lyme can remain latent...dormant...for many

years before something comes along to trigger it manifesting in

immuno-compromised folk.

Here are the lyme conference videos, if you're interested in watching some of

the clips....some very well known doctors and researchers (Lida Mattman,

Trevor Marshall, Nicholson, etc) to listen to:

http://www.ctlymedisease.org/videoclips.htm

Do hope you find some answers soon!

Peace, Maz