RE: Protocol for sero negative rheumatoid arthritis

[Guest guest]

Everyone is different. I had sero-negative inflammatory arthritis

and the dr. started me on minocycline 200 mg a day. Way, way too

much. Then tried 100 mg, still way way too much. I finally could

tolerate 50 mg 3x a week and stuck with it for a year. After 5

months my poor knee that was full of inflammatory cells was far

better after 18 months of pain. I tried to stick with it for a few

other joints but didn't tolerate it. I refused any really nasty

drugs (but did try plaquenil for several months--that worked only

slightly). From my experience, starting slowly on the minocycline

might be a good approach.

>Dear Folks,

>

>Well, it's been a week since I found you good people in a quest to find

>better outcomes for my client. It feels like a year, so much has

>happened. Can anyone clarify the best protocol to start on for my

>client? There are so many versions available it seems and we really

>need to get clear of where the best place to start is. What have a

>supportive doctor, but would appreciate your thoughts on the matter.

>

>Thanks the Naturopath.

>

--

Esther Warkov, Ph.D

Member OMTA, SMTA

Founder, The Piano Connection

www.thepianoconnection.com

971.255-0388 (Portland)

pianos@...

esther_warkov@...

[Guest guest]

After reading thousands of statements.. and remembering that I'm only

a newbie.. I think that the typical process of starting people on

minocin is totally unnecessary. Too many people drop out because of

tolerance issues.

There are several medications that are less effective - which I read

easier to tolerate as they kill off less antigens.

Try starting with Tetracycline itself, it's listed as the least

effective, and it is the one Dr Brown used.

250 mg 2x day MWF

After 6 months try something a bit stronger, Erythromycin, 333 mg 2x

day MWF for another 6 months.

Then Doxycycline, 100mg 2x day MWF for another 6 months.

And only then move to the really strong one... minocin 100mg 2x day

MWF. By now the other antibiotics should have significantly reduced

the amount of antigens available and thus the minocin will be easier

to tolerate... I hope.

The 6 months is only an estimate and has to be evaluated based on the

tolerance. I'm allowing a minimum of 6 months, and up to a year

before rotating if there are still tolerance issues.

This is the procedure we have decided on for Mr Perfect, and so far

it's working great. (about 2 weeks now)

I thought that this would be most effective, and least harsh, as

we're starting with the least effective and most gentle and working

our way up to the strongest one with the broadest action.

Adding the MSM which reduces inflamation and does other stuff to

reduce pain and repair the joints might make it easier as well.

According to what I've read a minimum of 2000 mg a day and up to 6000

mg a day has been effective and safe. Mr Perfect takes 1500mg 2x a

day now that he's not taking pain pills any more.

Anyway, that's what we've decided on.

But remember that we're not talking from experience here, only

research, and we're just as new as you are.

I told a friend about the protocl and she was very interested as she

has a friend with RA, and I wrote up some stuff for her to get

started on. If you want a copy, you can write me off list.

See if it would help your people get started.

>

> Dear Folks,

>

> Well, it's been a week since I found you good people in a quest to

find

> better outcomes for my client. It feels like a year, so much has

> happened. Can anyone clarify the best protocol to start on for my

> client? There are so many versions available it seems and we

really

> need to get clear of where the best place to start is. What have a

> supportive doctor, but would appreciate your thoughts on the matter.

>

> Thanks the Naturopath.

>

[Guest guest]

Please focus: It is not the antibiotic that kills the micoplasma, it is the

immune system doing it's job and that is to kill bacteria. The one it was

designed to do. The kind of antibiotic you use,should be the one you tolerate

the best and does the best job to weaken the bacteria. Dolores

wiccantwinpaths <Shilnagig@...> wrote: After reading thousands of

statements.. and remembering that I'm only

a newbie.. I think that the typical process of starting people on

minocin is totally unnecessary. Too many people drop out because of

tolerance issues.

There are several medications that are less effective - which I read

easier to tolerate as they kill off less antigens.

Try starting with Tetracycline itself, it's listed as the least

effective, and it is the one Dr Brown used.

250 mg 2x day MWF

After 6 months try something a bit stronger, Erythromycin, 333 mg 2x

day MWF for another 6 months.

Then Doxycycline, 100mg 2x day MWF for another 6 months.

And only then move to the really strong one... minocin 100mg 2x day

MWF. By now the other antibiotics should have significantly reduced

the amount of antigens available and thus the minocin will be easier

to tolerate... I hope.

The 6 months is only an estimate and has to be evaluated based on the

tolerance. I'm allowing a minimum of 6 months, and up to a year

before rotating if there are still tolerance issues.

This is the procedure we have decided on for Mr Perfect, and so far

it's working great. (about 2 weeks now)

I thought that this would be most effective, and least harsh, as

we're starting with the least effective and most gentle and working

our way up to the strongest one with the broadest action.

Adding the MSM which reduces inflamation and does other stuff to

reduce pain and repair the joints might make it easier as well.

According to what I've read a minimum of 2000 mg a day and up to 6000

mg a day has been effective and safe. Mr Perfect takes 1500mg 2x a

day now that he's not taking pain pills any more.

Anyway, that's what we've decided on.

But remember that we're not talking from experience here, only

research, and we're just as new as you are.

I told a friend about the protocl and she was very interested as she

has a friend with RA, and I wrote up some stuff for her to get

started on. If you want a copy, you can write me off list.

See if it would help your people get started.

>

> Dear Folks,

>

> Well, it's been a week since I found you good people in a quest to

find

> better outcomes for my client. It feels like a year, so much has

> happened. Can anyone clarify the best protocol to start on for my

> client? There are so many versions available it seems and we

really

> need to get clear of where the best place to start is. What have a

> supportive doctor, but would appreciate your thoughts on the matter.

>

> Thanks the Naturopath.

>

---------------------------------

Never miss a thing. Make your homepage.

[Guest guest]

----- Original Message -----

From: " doolan_a " <doolan_a@...>

Sent: Friday, February 29, 2008 1:45 AM

> Dear Folks,

>

> Well, it's been a week since I found you good people in a quest to find

> better outcomes for my client. It feels like a year, so much has

> happened. Can anyone clarify the best protocol to start on for my

> client? There are so many versions available it seems and we really

> need to get clear of where the best place to start is. What have a

> supportive doctor, but would appreciate your thoughts on the matter.

>

> Thanks the Naturopath.

You will find the protocol of Dr. McPherson Brown, the rheumatologist

who developed it. at www.rheumatic.org under the FAQ section. Over the

years doctors have put their own spin on the protocol - not necessarily

better. The MIRA study used 100 mg. of Minocin twice daily, and there may

be periods of time when taking it at that dose is necessary, but since these

organisms do not replicate that fast, there is no need to flood the body

with more antibiotic than necessary which can cause the patient needless

discomfort as well as lead to candida and leaky gut.

Start slowly - possibly 50 mg. Monday and Friday for a couple of weeks and

then add 50 mg. Wednesdsay - slowly building up to the standard dose of 100

mg. once or twice daily M-W-F.

All the information you need is contained in that FAQ.

Ethel

>

>

>

> To unsubscribe, email: rheumatic-unsubscribe

>

[Guest guest]

Dear Ethel,

You are a legend. Thank you so much for the information. I think your advice to

go slowly is very wise.

Thanks you so much for your support and insight,

Kindest regards,

.

Re: rheumatic Protocol for sero negative rheumatoid arthritis

----- Original Message -----

From: " doolan_a " <doolan_a (DOT) com>

Sent: Friday, February 29, 2008 1:45 AM

> Dear Folks,

>

> Well, it's been a week since I found you good people in a quest to find

> better outcomes for my client. It feels like a year, so much has

> happened. Can anyone clarify the best protocol to start on for my

> client? There are so many versions available it seems and we really

> need to get clear of where the best place to start is. What have a

> supportive doctor, but would appreciate your thoughts on the matter.

>

> Thanks the Naturopath.

You will find the protocol of Dr. McPherson Brown, the rheumatologist

who developed it. at www.rheumatic. org under the FAQ section. Over the

years doctors have put their own spin on the protocol - not necessarily

better. The MIRA study used 100 mg. of Minocin twice daily, and there may

be periods of time when taking it at that dose is necessary, but since these

organisms do not replicate that fast, there is no need to flood the body

with more antibiotic than necessary which can cause the patient needless

discomfort as well as lead to candida and leaky gut.

Start slowly - possibly 50 mg. Monday and Friday for a couple of weeks and

then add 50 mg. Wednesdsay - slowly building up to the standard dose of 100

mg. once or twice daily M-W-F.

All the information you need is contained in that FAQ.

Ethel

>

>

>

> To unsubscribe, email: rheumatic-unsubscri begroups (DOT) com

>

[Guest guest]

I've been gone awhile and I may be reapeating but.I started on 100mgm

MINOCIN not minocycline MWF twice a day. I personally think its too much to

start out on. If I had to do it all over again I would have started out

100mgm Minocin twice a week once a day for 2 weeks and increased it to

tolerance of the MWF 100mg twice a day. I also did the Clindamycin IV's

after about 6 months. I was having no luck with the Minocin alone or maybe I

was still having a herx from the too high dose.I don't know. Good luck.

cooky I had no pain in my right hand after the first week of IV's. Then I

continued with the IV " S as in the protocol and Minocin. If you go to

rheumatic/org and rheumatic/histories you will get different peoples

reactions to their way of taking Minocin.

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of doolan_a

Sent: Friday, February 29, 2008 1:46 AM

rheumatic

Subject: rheumatic Protocol for sero negative rheumatoid arthritis

Dear Folks,

Well, it's been a week since I found you good people in a quest to find

better outcomes for my client. It feels like a year, so much has

happened. Can anyone clarify the best protocol to start on for my

client? There are so many versions available it seems and we really

need to get clear of where the best place to start is. What have a

supportive doctor, but would appreciate your thoughts on the matter.

[Guest guest]

Hi All

Australian naturopath here updating you on my client. We finished the gut detox

and started in on the AP. She's done 50mg Minocyclin on Friday and Monday.

Pain levels are up already, expectorating yellow mucus. For months I used

expectorant herbs in an attempt to clear mycoplasma pneumoniae. Client always

felt being mucusy but could never get it up. First week in and here it is! We

think these are very good signs. Will keep you posted with other developments.

rheumatic Protocol for sero negative rheumatoid arthritis

Dear Folks,

Well, it's been a week since I found you good people in a quest to find

better outcomes for my client. It feels like a year, so much has

happened. Can anyone clarify the best protocol to start on for my

client? There are so many versions available it seems and we really

need to get clear of where the best place to start is. What have a

supportive doctor, but would appreciate your thoughts on the matter.