Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Hi , I stopped taking the mino because eth naturop[ath I went to said it was casuing a rash. I was off from Oct through Dec. My Rheumy put me back on at 200mg a day. Has anyone ever had a rash from the mino? Thanks, Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2010 Report Share Posted January 27, 2010 Hello , How does your rash looks like? is it red, bumpy and itches? is it mostly on swollen joints or on your trunk? does it come and go? I got a rash while on cefalexin; it went away when antibiotic was stopped. EMAILING FOR THE GREATER GOOD Join me rheumatic From: nowyoga@... Date: Wed, 27 Jan 2010 08:25:23 -0800 Subject: Re: rheumatic mino question Diane, Do you think it could have been a yeast related rash? Were you taking good probiotics daily to keep yeast in check? Take care, Ute At 05:11 AM 1/27/2010, you wrote: > > >Hi , >I stopped taking the mino because eth naturop[ath I went to said it was >casuing a rash. I was off from Oct through Dec. My Rheumy put me back on >at 200mg a day. Has anyone ever had a rash from the mino? >Thanks, >Diane > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 It started unnder my arems...so I switched deoderants, even though I had been using teh same one for years. It then spreas to my neck and chest. Looked like acne. My Rheumy put me back on it and i have eth armpit thing starting. I do take a probiotic. I lso had a bout with pneumonia. Went back to my family doc yesterday who put me on Zpac. Do I keep taking the mino with the Z? Ugh D > > > > > >Hi , > >I stopped taking the mino because eth naturop[ath I went to said it was > >casuing a rash. I was off from Oct through Dec. My Rheumy put me back on > >at 200mg a day. Has anyone ever had a rash from the mino? > >Thanks, > >Diane > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 Check the FAQ on www.rheumatic.org for info on taking zithromax and minocycline. rheumatic Re: mino question > > It started unnder my arems...so I switched deoderants, even though I had > been using teh same one for years. It then spreas to my neck and chest. > Looked like acne. My Rheumy put me back on it and i have eth armpit thing > starting. I do take a probiotic. > I lso had a bout with pneumonia. Went back to my family doc yesterday who > put me on Zpac. > Do I keep taking the mino with the Z? > Ugh > D > >> > >> > >> >Hi , >> >I stopped taking the mino because eth naturop[ath I went to said it was >> >casuing a rash. I was off from Oct through Dec. My Rheumy put me back on >> >at 200mg a day. Has anyone ever had a rash from the mino? >> >Thanks, >> >Diane >> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2010 Report Share Posted January 29, 2010 The answer is yes. The z-pac is of short and decreasing duration and you need that to get the inflammation down. I had to do the z-pac twice while I was on the antibiotics.  It is not good to take those two medications together on a long term basis, but for a week, you need the extra boost. The antibiotics weaken the offending microorganisms, while the immune system kills and discards them. The medication in the z-pac reduces the inflammation so that the antibiotic can do it's job. Good luck to you. Hope the rash goes away soon. Did the doctor give you any topical ointment to put on to stop the itch, if there is one? I use small amounts of hydrocortisone creme 1% when I get itchy mosquito bites. I live in the tropics and that helps. Best to you, Dolores & Mike From: deekudos <deekudos@...> Subject: rheumatic Re: mino question rheumatic Date: Friday, January 29, 2010, 7:00 AM  It started unnder my arems...so I switched deoderants, even though I had been using teh same one for years. It then spreas to my neck and chest. Looked like acne. My Rheumy put me back on it and i have eth armpit thing starting. I do take a probiotic. I lso had a bout with pneumonia. Went back to my family doc yesterday who put me on Zpac. Do I keep taking the mino with the Z? Ugh D > > > > > >Hi , > >I stopped taking the mino because eth naturop[ath I went to said it was > >casuing a rash. I was off from Oct through Dec. My Rheumy put me back on > >at 200mg a day. Has anyone ever had a rash from the mino? > >Thanks, > >Diane > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2010 Report Share Posted January 30, 2010 Dr Mirkin used to treat his patients with mino on MWF and zithromax on Tue, Thursday. good luck, EMAILING FOR THE GREATER GOOD Join me rheumatic From: emsnooks@... Date: Fri, 29 Jan 2010 09:38:37 -0500 Subject: Re: rheumatic Re: mino question Check the FAQ on www.rheumatic.org for info on taking zithromax and minocycline. rheumatic Re: mino question > > It started unnder my arems...so I switched deoderants, even though I had > been using teh same one for years. It then spreas to my neck and chest. > Looked like acne. My Rheumy put me back on it and i have eth armpit thing > starting. I do take a probiotic. > I lso had a bout with pneumonia. Went back to my family doc yesterday who > put me on Zpac. > Do I keep taking the mino with the Z? > Ugh > D > >> > >> > >> >Hi , >> >I stopped taking the mino because eth naturop[ath I went to said it was >> >casuing a rash. I was off from Oct through Dec. My Rheumy put me back on >> >at 200mg a day. Has anyone ever had a rash from the mino? >> >Thanks, >> >Diane >> > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 that's exactly the protocol I've been on for a couple of years. Works for me! Judy Keels In a message dated 1/31/2010 12:19:48 A.M. Eastern Standard Time, petrumarzea@... writes: Dr Mirkin used to treat his patients with mino on MWF and zithromax on Tue, Thursday. good luck, EMAILING FOR THE GREATER GOOD Join me rheumatic From: emsnooks@... Date: Fri, 29 Jan 2010 09:38:37 -0500 Subject: Re: rheumatic Re: mino question Check the FAQ on www.rheumatic.org for info on taking zithromax and minocycline. rheumatic Re: mino question > > It started unnder my arems...so I switched deoderants, even though I had > been using teh same one for years. It then spreas to my neck and chest. > Looked like acne. My Rheumy put me back on it and i have eth armpit thing > starting. I do take a probiotic. > I lso had a bout with pneumonia. Went back to my family doc yesterday who > put me on Zpac. > Do I keep taking the mino with the Z? > Ugh > D > >> > >> > >> >Hi , >> >I stopped taking the mino because eth naturop[ath I went to said it was >> >casuing a rash. I was off from Oct through Dec. My Rheumy put me back on >> >at 200mg a day. Has anyone ever had a rash from the mino? >> >Thanks, >> >Diane >> > >> > >> >> [Non-text portions of this message have been removed] >> >> >> >> >> >> >> [Non-text portions of this message have been removed] >> > > > > > ------------------------------------ > > To unsubscribe, email: rheumatic-unsubscribe@...! Groups > Links > > > [Non-text portions of this message have been removed] ------------------------------------ To unsubscribe, email: rheumatic-unsubscribe@...! Groups Links Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 Hi Dolores, I take 100 mg Minocin T/W/F morning..... 250 mg Zithramax Tu/Th morning. Backtracking a bit, I was on only Minocin for a long time (much more often though), then Dr. Brownstein switched to Doxy (I felt I had reached a plateau) but that didn't work well for me, and even Flagyl mixed with the minocin and zith for a short while. Dr B tweaks and adjusts accordingly. So, about 3 yrs ago he put me on this protocol (Min and Zith) and I've felt better these last three yrs than I have since being diagnosed with RA 10 yrs ago. Of course, I can't swear it's the protocol b/c....might be the combo of supps I take or just the fact that it's taken a very LONG TIME for me to get these results. I know you do a great job in investigating and looking at all your options. Hope this helps a little. Judy In a message dated 1/31/2010 6:15:17 P.M. Eastern Standard Time, martysfolks2004@... writes: Hi Judy. How much Mino and Zith did you take? How long was it before you noticed improvement with symptoms and with lab reports? R U still on those therapeutic doses? I went from Mino only to the Marshall Protocol where I added Clindamycin, and zithro along with Mino and then for a while I took Bactrim and substituted Doxy for Mino. I am back on straight mino now MWF-100mg/day. Just started that recently and have not noticed any further changes. Dolores [Non-text portions of this message have been removed] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 Dolores, you asked also about lab reports. My blookwork has been better and better slowly over these last few years and normal on some numbers, still elevated slightly on a few. Am continuing to work on this. Judy In a message dated 1/31/2010 6:04:48 P.M. Eastern Standard Time, martysfolks2004@... writes: Hi ! What dosage mino on MWF and what dosage Zithromycin did Dr. Mirkin put you on? For how long did or are you taking it? And have you seen any progress both with symptoms and with lab reports. Am curious because I went from Minocin to the Marshall Protocol and I used Bactrim, Clindamycin and Zithromycin at different times and in different dosages. I also substituted Doxy for Mino for a while. Thanks for sharing. Dolores > From: M <_petrumarzea@petrumarzea_ (mailto:petrumarzea@...) > > Subject: RE: rheumatic Re: mino question > _rheumatic@grourheuma_ (mailto:rheumatic ) > Date: Sunday, January 31, 2010, 12:17 AM > > Dr Mirkin used to treat his patients with mino on MWF and > zithromax on Tue, Thursday. > > good luck, > > > > > > > > > > > > > > EMAILING FOR THE GREATER GOOD > Join me > > > > > > _rheumatic@grourheuma_ (mailto:rheumatic ) > From: _emsnooks@..._ (mailto:emsnooks@...) > Date: Fri, 29 Jan 2010 09:38:37 -0500 > Subject: Re: rheumatic Re: mino question > > > > > > Check the FAQ on www.rheumatic. Check the FAQ on > zithromax and > minocycline. > > rheumatic Re: mino question > > > > > It started unnder my arems...so I switched deoderants, > even though I had > > been using teh same one for years. It then spreas to > my neck and chest. > > Looked like acne. My Rheumy put me back on it and i > have eth armpit thing > > starting. I do take a probiotic. > > I lso had a bout with pneumonia. Went back to my > family doc yesterday who > > put me on Zpac. > > Do I keep taking the mino with the Z? > > Ugh > > D > > > >> > > >> > > >> >Hi , > >> >I stopped taking the mino because eth > naturop[ath I went to said it was > >> >casuing a rash. I was off from Oct through > Dec. My Rheumy put me back on > >> >at 200mg a day. Has anyone ever had a rash > from the mino? > >> >Thanks, > >> >Diane > >> > > >> > > >> > >> [Non-text portions of this message have been > removed] > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > > > > > > > ------------ ---- ---- - > > > > To unsubscribe, email: _rheumatic-unsubscrirheumatic-unsubrheumati_ (mailto:rheumatic-unsubscribe@...) ! > Groups > > Links > > > > > > > > > > > > > > > > [Non-text portions of this message have been removed] > > > > ------------ ---- ---- - > > To unsubscribe, email: _rheumatic-unsubscrirheumatic-unsubrheumati_ (mailto:rheumatic-unsubscribe@...) ! > Groups Links > > > _rheumatic-fullfeaturheumatic-fullferhe_ (mailto:rheumatic-fullfeatured ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 Hi ! What dosage mino on MWF and what dosage Zithromycin did Dr. Mirkin put you on? For how long did or are you taking it? And have you seen any progress both with symptoms and with lab reports. Am curious because I went from Minocin to the Marshall Protocol and I used Bactrim, Clindamycin and Zithromycin at different times and in different dosages. I also substituted Doxy for Mino for a while. Thanks for sharing. Dolores > From: M <petrumarzea@...> > Subject: RE: rheumatic Re: mino question > rheumatic > Date: Sunday, January 31, 2010, 12:17 AM > > Dr Mirkin used to treat his patients with mino on MWF and > zithromax on Tue, Thursday. > > good luck, > > > > > > > > > > > > > > EMAILING FOR THE GREATER GOOD > Join me > > > > > > rheumatic > From: emsnooks@... > Date: Fri, 29 Jan 2010 09:38:37 -0500 > Subject: Re: rheumatic Re: mino question > > Â > > > > Check the FAQ on www.rheumatic.org for info on taking > zithromax and > minocycline. > > rheumatic Re: mino question > > > > > It started unnder my arems...so I switched deoderants, > even though I had > > been using teh same one for years. It then spreas to > my neck and chest. > > Looked like acne. My Rheumy put me back on it and i > have eth armpit thing > > starting. I do take a probiotic. > > I lso had a bout with pneumonia. Went back to my > family doc yesterday who > > put me on Zpac. > > Do I keep taking the mino with the Z? > > Ugh > > D > > > >> > > >> > > >> >Hi , > >> >I stopped taking the mino because eth > naturop[ath I went to said it was > >> >casuing a rash. I was off from Oct through > Dec. My Rheumy put me back on > >> >at 200mg a day. Has anyone ever had a rash > from the mino? > >> >Thanks, > >> >Diane > >> > > >> > > >> > >> [Non-text portions of this message have been > removed] > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > > > > > > > ------------------------------------ > > > > To unsubscribe, email: rheumatic-unsubscribe@...! > Groups > > Links > > > > > > > > > > > Â Â Â > Â Â Â Â Â Â Â Â > Â Â Â Â Â Â Â Â Â > Â > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010  Hi Judy. How much Mino and Zith did you take? How long was it before you noticed improvement with symptoms and with lab reports? R U still on those therapeutic doses? I went from Mino only to the Marshall Protocol where I added Clindamycin, and zithro along with Mino and then for a while I took Bactrim and substituted Doxy for Mino. I am back on straight mino now MWF-100mg/day. Just started that recently and have not noticed any further changes. Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 Hi Judy, Thank you for your prompt reply. I have scleroderma and read that S/D people do not herx as much as people with some of the other diseases of the immune system. In my case, I found this to be true. It was easier for me to distinguish a herx from the usual disease symptoms I had experienced which led to the diagnosis of S/D. the very last symptom I still have is inflammation of the G.I. tract and off and on again diarrhea. I just learned that my new HMO will cover OTC Lactaid, Immodium, Prevacid, Benadryl, and Probiotics. I take these last medications, except the benadryl, as necessary for the indigestion problems.  Dairy products are my worst enemy. And homemade Limeade is my salvation. I try to keep my PH level at around 7.5. by using the saliva strips prior to breakfast. All other symptoms are gone and my ANA & RF is normal. Everything else remains within normal limits. I was diagnosed in 2005. So, it took me about 4.5 years of using A/P (alterating various antibiotics) to get to this point. I started out bedridden and now I'm fully functional although a bit slower due to the aging process. I am 73. I have aged at least 10 yrs in the past 5 and it shows on my face. This is due to the collagen I have lost. My once round face looks drawn and elongated. R there any other S/D people with this same facial thing going on. Dolores > From: M <_petrumarzea@ petrumarzea_ (mailto:petrumarzea@ hotmail.com) > > Subject: RE: rheumatic Re: mino question > _rheumatic@gro urheuma_ (mailto:rheumatic@grou ps.com) > Date: Sunday, January 31, 2010, 12:17 AM > > Dr Mirkin used to treat his patients with mino on MWF and > zithromax on Tue, Thursday. > > good luck, > > > > > > > > > > > > > > EMAILING FOR THE GREATER GOOD > Join me > > > > > > _rheumatic@gro urheuma_ (mailto:rheumatic@grou ps.com) > From: _emsnooks@bellsouth .ems_ (mailto:emsnooksbellsouth (DOT) net) > Date: Fri, 29 Jan 2010 09:38:37 -0500 > Subject: Re: rheumatic Re: mino question > > > > > > Check the FAQ on www.rheumatic. Check the FAQ on > zithromax and > minocycline. > > rheumatic Re: mino question > > > > > It started unnder my arems...so I switched deoderants, > even though I had > > been using teh same one for years. It then spreas to > my neck and chest. > > Looked like acne. My Rheumy put me back on it and i > have eth armpit thing > > starting. I do take a probiotic. > > I lso had a bout with pneumonia. Went back to my > family doc yesterday who > > put me on Zpac. > > Do I keep taking the mino with the Z? > > Ugh > > D > > > >> > > >> > > >> >Hi , > >> >I stopped taking the mino because eth > naturop[ath I went to said it was > >> >casuing a rash. I was off from Oct through > Dec. My Rheumy put me back on > >> >at 200mg a day. Has anyone ever had a rash > from the mino? > >> >Thanks, > >> >Diane > >> > > >> > > >> > >> [Non-text portions of this message have been > removed] > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > > > > > > > ------------ ---- ---- - > > > > To unsubscribe, email: _rheumatic-unsubscr irheumatic- unsubrheumati_ (mailto:rheumatic-unsubscri begroups (DOT) com) ! > Groups > > Links > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2010 Report Share Posted January 31, 2010 Thank you Judy for this information. While I was on the Marshall, I took the Zith at 1/8 th of the 250 dosage every 10th day as per the protocol. It was a mini dosage, but enough to bring the RF, which was the last lab test to go back to normal. I am no longer on anything but Mino 100mg MWF.  Onto another question:  Is there anyone using a CPAP machine? I have been sleeping with one for a year and a half. I recently moved to a remote Island in the Caribbean off the coast of P.R. and no longer have a neurologist. Do I have to sleep with this machine for the rest of my life? I developed sleep apnea somewhere along the way and find this machine cumbersome while traveling and a nuisance to scrub clean every night. I don't always have hot water and need to boil some to clean it and for humidity.  Are there any other alternatives? Dolores From: Judkeels@... <Judkeels@...> Subject: Re: rheumatic Re: mino question rheumatic Date: Sunday, January 31, 2010, 7:11 PM  Hi Dolores, I take 100 mg Minocin T/W/F morning..... 250 mg Zithramax Tu/Th morning. Backtracking a bit, I was on only Minocin for a long time (much more often though), then Dr. Brownstein switched to Doxy (I felt I had reached a plateau) but that didn't work well for me, and even Flagyl mixed with the minocin and zith for a short while. Dr B tweaks and adjusts accordingly. So, about 3 yrs ago he put me on this protocol (Min and Zith) and I've felt better these last three yrs than I have since being diagnosed with RA 10 yrs ago. Of course, I can't swear it's the protocol b/c....might be the combo of supps I take or just the fact that it's taken a very LONG TIME for me to get these results. I know you do a great job in investigating and looking at all your options. Hope this helps a little. Judy In a message dated 1/31/2010 6:15:17 P.M. Eastern Standard Time, martysfolks2004 writes: Hi Judy. How much Mino and Zith did you take? How long was it before you noticed improvement with symptoms and with lab reports? R U still on those therapeutic doses? I went from Mino only to the Marshall Protocol where I added Clindamycin, and zithro along with Mino and then for a while I took Bactrim and substituted Doxy for Mino. I am back on straight mino now MWF-100mg/day. Just started that recently and have not noticed any further changes. Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Hi Dolores, Dr Mirkin puts his patients on 6 months of mino 100 mg twice a day. after that he changes the protocol to mino on MWF, twice a day and adds 250 mg zithro once a day on Tue and Thur. you may want to go to his website and research: www.drmirkin.com ________________________________ From: mike rosner <martysfolks2004@...> rheumatic Sent: Sun, January 31, 2010 9:31:18 PM Subject: Re: rheumatic Re: mino question  Hi Judy, Thank you for your prompt reply. I have scleroderma and read that S/D people do not herx as much as people with some of the other diseases of the immune system. In my case, I found this to be true. It was easier for me to distinguish a herx from the usual disease symptoms I had experienced which led to the diagnosis of S/D. the very last symptom I still have is inflammation of the G.I. tract and off and on again diarrhea. I just learned that my new HMO will cover OTC Lactaid, Immodium, Prevacid, Benadryl, and Probiotics. I take these last medications, except the benadryl, as necessary for the indigestion problems.  Dairy products are my worst enemy. And homemade Limeade is my salvation. I try to keep my PH level at around 7.5. by using the saliva strips prior to breakfast. All other symptoms are gone and my ANA & RF is normal. Everything else remains within normal limits. I was diagnosed in 2005. So, it took me about 4.5 years of using A/P (alterating various antibiotics) to get to this point. I started out bedridden and now I'm fully functional although a bit slower due to the aging process. I am 73. I have aged at least 10 yrs in the past 5 and it shows on my face. This is due to the collagen I have lost. My once round face looks drawn and elongated. R there any other S/D people with this same facial thing going on. Dolores > From: M <_petrumarzea@ petrumarzea_ (mailto:petrumarzea @ hotmail.com) > > Subject: RE: rheumatic Re: mino question > _rheumatic@gro urheuma_ (mailto:rheumatic@ grou ps.com) > Date: Sunday, January 31, 2010, 12:17 AM > > Dr Mirkin used to treat his patients with mino on MWF and > zithromax on Tue, Thursday. > > good luck, > > > > > > > > > > > > > > EMAILING FOR THE GREATER GOOD > Join me > > > > > > _rheumatic@gro urheuma_ (mailto:rheumatic@ grou ps.com) > From: _emsnooks@bellsouth .ems_ (mailto:emsnooks@ bellsouth. net) > Date: Fri, 29 Jan 2010 09:38:37 -0500 > Subject: Re: rheumatic Re: mino question > > > > > > Check the FAQ on www.rheumatic. Check the FAQ on > zithromax and > minocycline. > > rheumatic Re: mino question > > > > > It started unnder my arems...so I switched deoderants, > even though I had > > been using teh same one for years. It then spreas to > my neck and chest. > > Looked like acne. My Rheumy put me back on it and i > have eth armpit thing > > starting. I do take a probiotic. > > I lso had a bout with pneumonia. Went back to my > family doc yesterday who > > put me on Zpac. > > Do I keep taking the mino with the Z? > > Ugh > > D > > > >> > > >> > > >> >Hi , > >> >I stopped taking the mino because eth > naturop[ath I went to said it was > >> >casuing a rash. I was off from Oct through > Dec. My Rheumy put me back on > >> >at 200mg a day. Has anyone ever had a rash > from the mino? > >> >Thanks, > >> >Diane > >> > > >> > > >> > >> [Non-text portions of this message have been > removed] > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > > > > > > > ------------ ---- ---- - > > > > To unsubscribe, email: _rheumatic-unsubscr irheumatic- unsubrheumati_ (mailto:rheumatic- unsubscri begroups (DOT) com) ! > Groups > > Links > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 In a message dated 1/31/2010 11:31:42 P.M. Eastern Standard Time, martysfolks2004@... writes: Hi Judy, Thank you for your prompt reply. I have scleroderma and read that S/D people do not herx as much as people with some of the other diseases of the immune system. In my case, I found this to be true. It was easier for me to distinguish a herx from the usual disease symptoms I had experienced which led to the diagnosis of S/D. the very last symptom I still have is inflammation of the G.I. tract and off and on again diarrhea. I just learned that my new HMO will cover OTC Lactaid, Immodium, Prevacid, Benadryl, and Probiotics. I take these last medications, except the benadryl, as necessary for the indigestion problems. Dairy products are my worst enemy. And homemade Limeade is my salvation. I try to keep my PH level at around 7.5. by using the saliva strips prior to breakfast. All other symptoms are gone and my ANA & RF is normal. Everything else remains within normal limits. I was diagnosed in 2005. So, it took me about 4.5 years of using A/P (alterating various antibiotics) to get to this point. I started out bedridden and now I'm fully functional although a bit slower due to the aging process. I am 73. I have aged at least 10 yrs in the past 5 and it shows on my face. This is due to the collagen I have lost. My once round face looks drawn and elongated. R there any other S/D people with this same facial thing going on. Dolores > From: M <_petrumarzea@ petrumarzea_ (mailto:petrumarzea_petrumarzea@ p > > Subject: RE: rheumatic Re: mino question > _rheumatic@gro urheuma_ (mailto:rheumatic@ _rheumatic@ya > Date: Sunday, January 31, 2010, 12:17 AM > > Dr Mirkin used to treat his patients with mino on MWF and > zithromax on Tue, Thursday. > > good luck, > > > > > > > > > > > > > > EMAILING FOR THE GREATER GOOD > Join me > > > > > > _rheumatic@gro urheuma_ (mailto:rheumatic@ _rheumati > From: _emsnooks@bellsouth .ems_ (mailto:emsnooks@ From: _emsn > Date: Fri, 29 Jan 2010 09:38:37 -0500 > Subject: Re: rheumatic Re: mino question > > > > > > Check the FAQ on www.rheumatic. Check the FAQ on > zithromax and > minocycline. > > rheumatic Re: mino question > > > > > It started unnder my arems...so I switched deoderants, > even though I had > > been using teh same one for years. It then spreas to > my neck and chest. > > Looked like acne. My Rheumy put me back on it and i > have eth armpit thing > > starting. I do take a probiotic. > > I lso had a bout with pneumonia. Went back to my > family doc yesterday who > > put me on Zpac. > > Do I keep taking the mino with the Z? > > Ugh > > D > > > >> > > >> > > >> >Hi , > >> >I stopped taking the mino because eth > naturop[ath I went to said it was > >> >casuing a rash. I was off from Oct through > Dec. My Rheumy put me back on > >> >at 200mg a day. Has anyone ever had a rash > from the mino? > >> >Thanks, > >> >Diane > >> > > >> > > >> > >> [Non-text portions of this message have been > removed] > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > > > > > > > ------------ ---- ---- - > > > > To unsubscribe, email: _rheumatic-unsubscr irheumatic- unsubrheumati_ (mailto:rheumatic-(mailto:rheumatic-<WBR>unsubscri be@y > Groups > > Links > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Hello Delores. Long time no see. I hope you are eating all the Lechón and arroz con pollo that you can hold. God, I love the food down there! My wife was diagnosed with apnea and put on CPAP immediately before her lupus manifested last April. I have always wondered if there was any correlation between the two. She was also put on allergy shots (also a concern, but she has been freed from the allergy problems) due to multitudes of sinus infections. Turns out she was allergic to quite a few things here in the south and they were not bacterial infections. Anyway, due to the lupus, polymyocitis and (we just found out about in December) malabsorption syndrome (LGS), she has lost about 100 lbs. Now she no longer snores without the CPAP and had not used it for about two months. Her EENT doc says she should still use it and she has started recently, while trying to see if it may improve her sleep habits. She was on sleeping pills for about 4 months with relatively small favorable results. Her EENT finally pulled her off of them and made her start getting up when she could not sleep, read or watch TV (or work on the computer, in her case) until she got tired and then go back to bed. It " seems " to have gotten better but it is still a problem. But we are both happier having her off of the meds. Other than that she is doing much better being on the mino and zith plus the multitude of supplements and probiotics she is on. She is still on the Imuran and Dr. Whitman (I think that is where we left off before you left) also put her back on Plaquenil with the plan of weaning her of the mino, Imuran and as low a dose as possible on the prednisone. We are hoping to get her weight turned around and she has been stable for about two months and feeling more of her old self ever since we saw Dr. Whitman and her naturalist has been working on her LGS. The DO also found out that she had a systemic yeast infection which she has just finished her treatment for. Lot's of " STUFF " . All for now. Glad you are doing well on the isla. Rick Re: rheumatic Re: mino question rheumatic Date: Sunday, January 31, 2010, 7:11 PM Hi Dolores, I take 100 mg Minocin T/W/F morning..... 250 mg Zithramax Tu/Th morning. Backtracking a bit, I was on only Minocin for a long time (much more often though), then Dr. Brownstein switched to Doxy (I felt I had reached a plateau) but that didn't work well for me, and even Flagyl mixed with the minocin and zith for a short while. Dr B tweaks and adjusts accordingly. So, about 3 yrs ago he put me on this protocol (Min and Zith) and I've felt better these last three yrs than I have since being diagnosed with RA 10 yrs ago. Of course, I can't swear it's the protocol b/c....might be the combo of supps I take or just the fact that it's taken a very LONG TIME for me to get these results. I know you do a great job in investigating and looking at all your options. Hope this helps a little. Judy In a message dated 1/31/2010 6:15:17 P.M. Eastern Standard Time, martysfolks2004 writes: Hi Judy. How much Mino and Zith did you take? How long was it before you noticed improvement with symptoms and with lab reports? R U still on those therapeutic doses? I went from Mino only to the Marshall Protocol where I added Clindamycin, and zithro along with Mino and then for a while I took Bactrim and substituted Doxy for Mino. I am back on straight mino now MWF-100mg/day. Just started that recently and have not noticed any further changes. Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Hi Rick, so sorry to hear about the new diagnosis of lupus for your wife and the polyomyositis. Dr. Whitman is a good doctor, but it will take time to unravel all the symptoms. Yes, I have had sleep problems since childhood. I sort of outgrew them in my middle years because I worked at a hospital (nursing) and would come home so exhausted. In those days, there was no computer and I had kids to take care of so there was not leisure time and I would drop into bed exhausted and sleep like a baby. It wasn't until my retirement, that the old bad sleep habits returned. I didn't know I had sleep apnea till my husband woke up and found me not breathing. It scared him. The overnight sleep lab testing confirmed that I was definitely in danger of not waking up at all one of these days. I didn't connect the Scleroderma with the apnea. But, I still have awful sleeplessness. It seems like just when I get comfortable, and ready to doze off, my body jerks me wide awake. There are times when I go two or three days without sleep. Then there are days when all I want to do is sleep. It is a horrible situation. I used to take ambien, but found out that I had no recollection about mornings, so I stopped taking any drug and just try to sleep whenever I can. I hate and love that CPAP machine. I hate that I have to use it and yet, I am confident to fall asleep with it, knowing that I will wake up in the morning. My best to you and your wife. It is freezing in N.Y., but I miss it so much. I wish I knew how to make lechon and arroz con pollo. I was not raised with my parents, so I never learned much about the Puerto Rican culture. I am learning now. It is very different down here. Everything is slower and sometimes it gets to me. I have to learn to calm down and get on Island time. Take care and good wishes to you and your wife. And good luck with the digestive problems. I develop irritable bowel function if I don't watch what I eat also. I find simple food to be the easiest to digest. No dairy, no white, no fried. Bananas are good especially right off the tree. Our best to you and family, Dolores & mike From: Judkeelsaol (DOT) com <Judkeelsaol (DOT) com> Subject: Re: rheumatic Re: mino question rheumatic@grou ps.com Date: Sunday, January 31, 2010, 7:11 PM Hi Dolores, I take 100 mg Minocin T/W/F morning..... 250 mg Zithramax Tu/Th morning. Backtracking a bit, I was on only Minocin for a long time (much more often though), then Dr. Brownstein switched to Doxy (I felt I had reached a plateau) but that didn't work well for me, and even Flagyl mixed with the minocin and zith for a short while. Dr B tweaks and adjusts accordingly. So, about 3 yrs ago he put me on this protocol (Min and Zith) and I've felt better these last three yrs than I have since being diagnosed with RA 10 yrs ago. Of course, I can't swear it's the protocol b/c....might be the combo of supps I take or just the fact that it's taken a very LONG TIME for me to get these results. I know you do a great job in investigating and looking at all your options. Hope this helps a little. Judy In a message dated 1/31/2010 6:15:17 P.M. Eastern Standard Time, martysfolks2004 writes: Hi Judy. How much Mino and Zith did you take? How long was it before you noticed improvement with symptoms and with lab reports? R U still on those therapeutic doses? I went from Mino only to the Marshall Protocol where I added Clindamycin, and zithro along with Mino and then for a while I took Bactrim and substituted Doxy for Mino. I am back on straight mino now MWF-100mg/day. Just started that recently and have not noticed any further changes. Dolores Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2010 Report Share Posted February 1, 2010 Thank you , I will check out Dr. Mirkin's website. Hope the rash is subsiding. Dolores > From: M <_petrumarzea@ petrumarzea_ (mailto:petrumarzea @ hotmail.com) > > Subject: RE: rheumatic Re: mino question > _rheumatic@gro urheuma_ (mailto:rheumatic@ grou ps.com) > Date: Sunday, January 31, 2010, 12:17 AM > > Dr Mirkin used to treat his patients with mino on MWF and > zithromax on Tue, Thursday. > > good luck, > > > > > > > > > > > > > > EMAILING FOR THE GREATER GOOD > Join me > > > > > > _rheumatic@gro urheuma_ (mailto:rheumatic@ grou ps.com) > From: _emsnooks@bellsouth .ems_ (mailto:emsnooks@ bellsouth. net) > Date: Fri, 29 Jan 2010 09:38:37 -0500 > Subject: Re: rheumatic Re: mino question > > > > > > Check the FAQ on www.rheumatic. Check the FAQ on > zithromax and > minocycline. > > rheumatic Re: mino question > > > > > It started unnder my arems...so I switched deoderants, > even though I had > > been using teh same one for years. It then spreas to > my neck and chest. > > Looked like acne. My Rheumy put me back on it and i > have eth armpit thing > > starting. I do take a probiotic. > > I lso had a bout with pneumonia. Went back to my > family doc yesterday who > > put me on Zpac. > > Do I keep taking the mino with the Z? > > Ugh > > D > > > >> > > >> > > >> >Hi , > >> >I stopped taking the mino because eth > naturop[ath I went to said it was > >> >casuing a rash. I was off from Oct through > Dec. My Rheumy put me back on > >> >at 200mg a day. Has anyone ever had a rash > from the mino? > >> >Thanks, > >> >Diane > >> > > >> > > >> > >> [Non-text portions of this message have been > removed] > >> > >> > >> > >> > >> > >> > >> [Non-text portions of this message have been > removed] > >> > > > > > > > > > > ------------ ---- ---- - > > > > To unsubscribe, email: _rheumatic-unsubscr irheumatic- unsubrheumati_ (mailto:rheumatic- unsubscri begroups (DOT) com) ! > Groups > > Links > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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