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Hi , My grandson had his first full blown attack on January 4th

2000. The ER said it was food posioning. For the next few months every

morning after breakfast he would complain about his stomach hurting. His

teacher felt he didnt want to come to school and was just faking it, (He was

in an excelarated class, with alot of pressure) so I agreed to send him

anyway . In March he had another bout, this time the ER said it was the

stomach flu. By now I felt I needed to make sure just in case, that there

wasnt anything wrong with him. The soonest I could get him in to a GI Dr.

was July. At first the Dr was more concerned about his obesity. He had

gained 15 pounds in 3 months with out any change in his diet and even an

increase in his energy output, but after blood tests came back she informed

me that he had Pancreatitis. They told me he was to be on a NO fat diet. I

asked is that healthy for a growing boy to have no fats? They upped it to 5

grs a day. We have had a heck of a time getting his Lipase down. Have you

been able to get your daughters levels down? also has idiopathic

Chronic Pancreatitis. Is there any history of it in either side of her

parents? Anyway can be reached at my email. Just have her put his name

in the subject line.

I don't know how to set up an email address for him. My husband does, but he

has to completely redo our computer due to a viris that killed our new haard

drive. We are using our old one and he doesnt want to spend time with this

one.

I think would love a pen pal I know he would like to be able to talk to

someone who goes thru the pain that he does. has been pretty lucky so

far. The LOW FAT diet has kept him pain free. except for the one time at

Christmas and stupid Granny felt sorry for him and let him splurge, that was

an awful mistake, expensive too, one that I won't make again.

Mikki.

.. Re: Need info on handleing this condition

> Hi my name is and my 11 year old daughter has

> idiopathic Chronic Pancreatitis. She was diagnosed

> with this Jan 2000. We struggle with the same issues

> and all the boring food. She has done well with some

> of the frozen entrees like healthy choice pizzas or

> Smart Ones Lasagna...stuff with pretty low fat. She

> does well with Fat Free Ravioli...she adds a piece of

> fat free cheese. He may be not able to tolerate some

> things though. She tolerates carbohydrates fine...but

> she has a weight problem so these do not help with

> that. I cook a lot of chicken and use some lean beef

> with 7 grams per serving but only once a week or less.

> I would love to chat more with you and will answer as

> much as I can and I am here just to listen cuz I know

> how hard this is. She has been in pain now for a

> couple of months and is just starting to feel a little

> better. Where do ya'll live?, we live in SC. When was

> he diagnosed? I would be happy to send you my

> daughters email address for him to talk to her

> personally, I do not let her on here as sometimes the

> info on here can be scary. Hope to talk to you soon,

>

> --- Sageharper@... wrote:

> > I do not have pancreatitis but my first husband did

> > and the Drs.

> > never told him to cut out the fats, now my 11 year

> > old grandson that

> > I have raised since 2.5 years of age has been dx

> > with it.I have been

> > struggling with fixing a livly kid meals with out

> > fat or 5 grams or

> > less and I could use any help or ideas to enlarge on

> > my boreing meal

> > preparations. He has idiopathic pancreatitis. WE

> > cant get his Lipaze

> > levels down past 500, any ideas? Thanks for any

> > help or ideas

> >

> >

>

>

> __________________________________________________

>

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Hey Mikki,

Yes I would love ideas for new dishes to make...but we

are like you and we buy a lot of fat free products.

And Jackie has a normal gallbladder too so we know

your frustrations.

How is doing? Jackie is still pretty good, all

the emotions of this illness is kinda hard though.

I hope is still pain free...Talk to you soon

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