Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 I have been on the Minocin since 2001. To get in remission I did 100mg Minocin... twice daily for six months. That was the prescribed dose from Dr Sentif at his arthritis clinic. After that my blood tests were all in totally normal ranges, no signs of RA. I went back to my GP doc here in Nashvill, Tenn and have been on 100 mg mon-wed-Friday since. The few times I have come out of remission I have gone back for a few weeks on the twice a day schedule. My doc has put others on the Minocin and had excellent results. Since once remission is accomplished you are on a very small non-daily dose it is highly unlikely it will lose effectiveness. I understand it is on the Harvard list as a dmard. Certainly a lot less dangerous drug than many others. At Vanderbuilt Hospital here in Nashville, they have had such success with it they are currently enrolling people in a study to see if it will also work on MS. I have found that most general practitioners are much more willing to prescribe minocin than rheumatologists. When I brought in a copy of Henry Scammels book " the Arthritis Breakthrough " for the doctor to keep, I never had any trouble getting Minocin from a general practitioner. When my daughter had symptoms we took a book to her doctor and she was more than willing to give it a try. She had heard about it but never tried it. My daughter has had no deformaties of her hands and feet as a result of getting on this med right away. I have also discovered that the longer I am on it....the less recurrences of RA I seem to have. If you cannot get this through your rheumatologist, may I suggest you try your general practitioner or internist. I have found they are much more likely to give it a try. Martha **************Biggest Grammy Award surprises of all time on AOL Music. (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 48) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Have you suspected anything to have influenced the disturbance of your remission? Also, can you/anyone tell me why most are using minocin, rather than the tetracycline mentioned in Henry Scammel's book My doctor wants to use doxycycline - is that bad? Thanks. Amy MRSROSE2000@... wrote: > > > I have been on the Minocin since 2001. To get in remission I did 100mg > Minocin... twice daily for six months. That was the prescribed dose > from Dr > Sentif at his arthritis clinic. After that my blood tests were all in > totally > normal ranges, no signs of RA. I went back to my GP doc here in Nashvill, > Tenn and have been on 100 mg mon-wed-Friday since. The few times I > have come > out of remission I have gone back for a few weeks on the twice a day > schedule. > My doc has put others on the Minocin and had excellent results. > Since once remission is accomplished you are on a very small non-daily > dose it is highly unlikely it will lose effectiveness. I understand it > is on > the Harvard list as a dmard. Certainly a lot less dangerous drug than > many > others. At Vanderbuilt Hospital here in Nashville, they have had such > success with it they are currently enrolling people in a study to see > if it will > also work on MS. I have found that most general practitioners are much > more > willing to prescribe minocin than rheumatologists. When I brought in a > copy > of Henry Scammels book " the Arthritis Breakthrough " for the doctor to > keep, I > never had any trouble getting Minocin from a general practitioner. > When my daughter had symptoms we took a book to her doctor and she was > more than willing to give it a try. She had heard about it but never > tried > it. My daughter has had no deformaties of her hands and feet as a > result of > getting on this med right away. I have also discovered that the longer > I am on > it....the less recurrences of RA I seem to have. If you cannot get this > through your rheumatologist, may I suggest you try your general > practitioner or > internist. I have found they are much more likely to give it a try. Martha > > **************Biggest Grammy Award surprises of all time on AOL Music. > (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 > <http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5> > 48) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Amy, just a suggestion but talk to your doc about Azithromycin, it is far easier on the system than the other two that you mentioned. I unfortunately cannot take either and was put on Zithromax, it was wonderful and it worked very well. Thanks, Robbin --- Amy <Evanesce@...> wrote: > Have you suspected anything to have influenced the > disturbance of your > remission? > > Also, can you/anyone tell me why most are using > minocin, rather than the > tetracycline mentioned in Henry Scammel's book My > doctor wants to use > doxycycline - is that bad? Thanks. > Amy > > MRSROSE2000@... wrote: > > > > > > I have been on the Minocin since 2001. To get in > remission I did 100mg > > Minocin... twice daily for six months. That was > the prescribed dose > > from Dr > > Sentif at his arthritis clinic. After that my > blood tests were all in > > totally > > normal ranges, no signs of RA. I went back to my > GP doc here in Nashvill, > > Tenn and have been on 100 mg mon-wed-Friday since. > The few times I > > have come > > out of remission I have gone back for a few weeks > on the twice a day > > schedule. > > My doc has put others on the Minocin and had > excellent results. > > Since once remission is accomplished you are on a > very small non-daily > > dose it is highly unlikely it will lose > effectiveness. I understand it > > is on > > the Harvard list as a dmard. Certainly a lot less > dangerous drug than > > many > > others. At Vanderbuilt Hospital here in Nashville, > they have had such > > success with it they are currently enrolling > people in a study to see > > if it will > > also work on MS. I have found that most general > practitioners are much > > more > > willing to prescribe minocin than rheumatologists. > When I brought in a > > copy > > of Henry Scammels book " the Arthritis Breakthrough " > for the doctor to > > keep, I > > never had any trouble getting Minocin from a > general practitioner. > > When my daughter had symptoms we took a book to > her doctor and she was > > more than willing to give it a try. She had heard > about it but never > > tried > > it. My daughter has had no deformaties of her > hands and feet as a > > result of > > getting on this med right away. I have also > discovered that the longer > > I am on > > it....the less recurrences of RA I seem to have. > If you cannot get this > > through your rheumatologist, may I suggest you try > your general > > practitioner or > > internist. I have found they are much more likely > to give it a try. Martha > > > > **************Biggest Grammy Award surprises of > all time on AOL Music. > > > (http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5 > > > > <http://music.aol.com/grammys/pictures/never-won-a-grammy?NCID=aolcmp00300000002\ 5> > > 48) > > > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > Robbin ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 OH. So Azithromycin is easier on the system. Doesnt' sound as though anyone uses the stuff Dr. Brown used. Is Azithromycin expensive? (I'm poor). Martha's story about easily finding doctors who agree to AP was heartening. I only seem to have a good doctor experience when it's a doctor who does not work with insurance providers (read: the expensive doctors) :-( Amy Robbin wrote: > > Amy, just a suggestion but talk to your doc about > Azithromycin, it is far easier on the system than the > other two that you mentioned. I unfortunately cannot > take either and was put on Zithromax, it was wonderful > and it worked very well. > > Thanks, > Robbin > --- Amy <Evanesce@... <mailto:Evanesce%40rcn.com>> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 On 2/7/08 3:41 PM, " Amy " <Evanesce@...> wrote: > OH. So Azithromycin is easier on the system. Doesnt' sound as though > anyone uses the stuff Dr. Brown used. Is Azithromycin expensive? (I'm > poor). In this group, over the nearly 10 years I have been here, I would say the first antibiotic of choice has been minocin, followed by doxycyline as a distant second. Others have used various other antibiotics for specific reasons: mostly because of problems with minocin. Many have had success with others. -- Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Amy, mine was covered by insurance so I'm not sure how expensive it is. My wonderful doc made sure that all is covered. I cannot imagine that it is anymore expensive than the tetracycline or Doxy since with those two you need to take more. The beauty of Zithromax is that you only need to take 250 mgs 3 times a week and can actually taper down to 2 or 1 per week. The Zitromax is long acting and stays in the system longer. Even when given for an infection you only take a 5 day dose and it continues to work for another 5 days. Worht checking out. Hope that this helps. --- Amy <Evanesce@...> wrote: > OH. So Azithromycin is easier on the system. > Doesnt' sound as though > anyone uses the stuff Dr. Brown used. Is > Azithromycin expensive? (I'm > poor). > > Martha's story about easily finding doctors who > agree to AP was > heartening. I only seem to have a good doctor > experience when it's a > doctor who does not work with insurance providers > (read: the expensive > doctors) :-( > > Amy > > Robbin wrote: > > > > Amy, just a suggestion but talk to your doc about > > Azithromycin, it is far easier on the system than > the > > other two that you mentioned. I unfortunately > cannot > > take either and was put on Zithromax, it was > wonderful > > and it worked very well. > > > > Thanks, > > Robbin > > --- Amy <Evanesce@... > <mailto:Evanesce%40rcn.com>> wrote: > > > > > [Non-text portions of this message have been > removed] > > Robbin ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Azithromycin was my first choice and it worked very well for me so well that I am now off of all treatment and have been for the past 6 months. I began taking it in December of 2005 and stopped taking it in June of 2007. It started working very quickly for me and remission was achieved within 6 months then I began to taper to 2 250 mgs per week then down to 1 250 mgs now none. I know that Minocin is the number one choice but how much research has been done with the Azithromycin? Maybe something worth looking into. Thanks --- Probert <jpro2@...> wrote: > On 2/7/08 3:41 PM, " Amy " <Evanesce@...> wrote: > > > OH. So Azithromycin is easier on the system. > Doesnt' sound as though > > anyone uses the stuff Dr. Brown used. Is > Azithromycin expensive? (I'm > > poor). > > In this group, over the nearly 10 years I have been > here, I would say the > first antibiotic of choice has been minocin, > followed by doxycyline as a > distant second. > > Others have used various other antibiotics for > specific reasons: mostly > because of problems with minocin. Many have had > success with others. > > -- > Jean > > > Robbin ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 That was helpful information. Thank you, Jean. So my doc isn't too far off with his idea for doxy. Have you tried generics & have they worked for you? I think generics are allowed by law to be less potent than the brand drug. I think they can be up to 25% less, but I'm not sure. Amy Probert wrote: > > On 2/7/08 3:41 PM, " Amy " <Evanesce@... > <mailto:Evanesce%40rcn.com>> wrote: > > In this group, over the nearly 10 years I have been here, I would say the > first antibiotic of choice has been minocin, followed by doxycyline as a > distant second. > > Others have used various other antibiotics for specific reasons: mostly > because of problems with minocin. Many have had success with others. > > -- > Jean > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Holy smokes... fantastic for you! That's quite an endorsement. If you have any other things you thought helped you, I'd love to hear them. (such as foods, or whatever) Amy Robbin wrote: > > Azithromycin was my first choice and it worked very > well for me so well that I am now off of all treatment > and have been for the past 6 months. I began taking it > in December of 2005 and stopped taking it in June of > 2007. It started working very quickly for me and > remission was achieved within 6 months then I began to > taper to 2 250 mgs per week then down to 1 250 mgs now > none. > > I know that Minocin is the number one choice but how > much research has been done with the Azithromycin? > Maybe something worth looking into. > > Thanks > --- Probert <jpro2@... <mailto:jpro2%40swbell.net>> wrote: > > > On 2/7/08 3:41 PM, " Amy " <Evanesce@... > <mailto:Evanesce%40rcn.com>> wrote: > > > > > OH. So Azithromycin is easier on the system. > > Doesnt' sound as though > > > anyone uses the stuff Dr. Brown used. Is > > Azithromycin expensive? (I'm > > > poor). > > > > In this group, over the nearly 10 years I have been > > here, I would say the > > first antibiotic of choice has been minocin, > > followed by doxycyline as a > > distant second. > > > > Others have used various other antibiotics for > > specific reasons: mostly > > because of problems with minocin. Many have had > > success with others. > > > > -- > > Jean > > > > > > > > Robbin > > __________________________________________________________ > Looking for last minute shopping deals? > Find them fast with Search. > http://tools.search./newsearch/category.php?category=shopping > <http://tools.search./newsearch/category.php?category=shopping> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2008 Report Share Posted February 7, 2008 Along with the AP I took MSM and Fish Oil to help with the inflammation and Quercitin to help with the immune system as well as the inflammation and Florastor was my probiotic of choice, and a full body massage every other week. I do not take any of the pills on a regular basis but I still have the bi-weekly massage. I am back to playing tennis weekly, whitewater kayaking and went snow skiing last month. Hope that this helps. Robbin --- Amy <Evanesce@...> wrote: > Holy smokes... fantastic for you! That's quite an > endorsement. > > If you have any other things you thought helped you, > I'd love to hear > them. (such as foods, or whatever) > > Amy > > Robbin wrote: > > > > Azithromycin was my first choice and it worked > very > > well for me so well that I am now off of all > treatment > > and have been for the past 6 months. I began > taking it > > in December of 2005 and stopped taking it in June > of > > 2007. It started working very quickly for me and > > remission was achieved within 6 months then I > began to > > taper to 2 250 mgs per week then down to 1 250 mgs > now > > none. > > > > I know that Minocin is the number one choice but > how > > much research has been done with the Azithromycin? > > Maybe something worth looking into. > > > > Thanks > > --- Probert <jpro2@... > <mailto:jpro2%40swbell.net>> wrote: > > > > > On 2/7/08 3:41 PM, " Amy " <Evanesce@... > > <mailto:Evanesce%40rcn.com>> wrote: > > > > > > > OH. So Azithromycin is easier on the system. > > > Doesnt' sound as though > > > > anyone uses the stuff Dr. Brown used. Is > > > Azithromycin expensive? (I'm > > > > poor). > > > > > > In this group, over the nearly 10 years I have > been > > > here, I would say the > > > first antibiotic of choice has been minocin, > > > followed by doxycyline as a > > > distant second. > > > > > > Others have used various other antibiotics for > > > specific reasons: mostly > > > because of problems with minocin. Many have had > > > success with others. > > > > > > -- > > > Jean > > > > > > > > > > > > > Robbin > > > > > __________________________________________________________ > > Looking for last minute shopping deals? > > Find them fast with Search. > > > http://tools.search./newsearch/category.php?category=shopping > > > > <http://tools.search./newsearch/category.php?category=shopping> > > > > > > > [Non-text portions of this message have been > removed] > > Robbin ________________________________________________________________________________\ ____ Never miss a thing. Make your home page. http://www./r/hs Quote Link to comment Share on other sites More sharing options...
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