Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 Hi all I have a question about cognitive function. I have had CFS for 10 years and for most of that time I worked. I quite 18 months ago.. in part because of the neuro-cognitive problems....but since then my mental capacities seem to have deteriorated even more. I'm finally on an anti-viral treatment and that, plus glutathione, seems to be helping.. but I'm wondering what else I can do to speed up the mental repairs. I'm running out of money and I need to go back to work. I'm wondering if jumping in at the deep end (as I did once before) will work... ie on-the-job retraining of the brain. Thanks Louella --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2006 Report Share Posted September 21, 2006 I still have the (terrible) fatigue, but I have found some (partial) relief from my (mold induced) neurocognitive issues from vinpocetine, piracetam, GPC-choline, acetyl-l-carnitine, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 B12 injections did wonders for my brain, And after that the program from neuroscienceinc.com is having remarkable effect. I feel more balanced and stable than I have since I first got chronic-abt 25 yrs ago. Adrienne Re: cognitive function Hi all I have a question about cognitive function. I have had CFS for 10 years and for most of that time I worked. I quite 18 months ago.. in part because of the neuro-cognitive problems....but since then my mental capacities seem to have deteriorated even more. I'm finally on an anti-viral treatment and that, plus glutathione, seems to be helping.. but I'm wondering what else I can do to speed up the mental repairs. I'm running out of money and I need to go back to work. I'm wondering if jumping in at the deep end (as I did once before) will work... ie on-the-job retraining of the brain. Thanks Louella --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2006 Report Share Posted September 24, 2006 Louella, I've been taking DMAE for 15 years and I've said many times that it gave me my brain back. It keeps the spaciness at bay, and though I still have concentration difficulties, it has helped there quite a lot also. I take DMAE-H3 (Twin Labs) 25 drops a day (you have to experiment with the amount, starting at 10 drops, until you find a level that works...I use 25-30drops), Phosphatidyl Choline, and B-5 (500mg)...the B-5 apparently has a synergistic effect. These are all fairly inexpensive, and the cheapest way I've found is through www.beyond-a-century.com, (Maine) where I get the DMAE in powder form, and buy their Lecithin (1 TBSP has the amount of PC needed each day), and B-5 in powder form. Re: cognitive function Hi all I have a question about cognitive function. I have had CFS for 10 years and for most of that time I worked. I quite 18 months ago.. in part because of the neuro-cognitive problems....but since then my mental capacities seem to have deteriorated even more. I'm finally on an anti-viral treatment and that, plus glutathione, seems to be helping.. but I'm wondering what else I can do to speed up the mental repairs. I'm running out of money and I need to go back to work. I'm wondering if jumping in at the deep end (as I did once before) will work... ie on-the-job retraining of the brain. Thanks Louella --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2007 Report Share Posted November 9, 2007 Hi Emma, Never, ever, ever give up. Hope is a strong influence on getting better. I am in my second year of recovery. There is definitely a light at the end of the tunnel. Keep that dream of yours alive. We need people like you who have done that and been there and know what it feels like. Learning is not from a text book alone, but from life experiences, The fog has probably already begun to lift. You just don't recognize it yet. This is a long slow process. These bacteria that cause these Th 1 diseases are slow growing and slow to dying. In my second, going on third year, I am in the process of writing a book on the subject. You can recover it all, just don't ever give up. You'll just have to take a little longer, work a little harder and have supportive people around you. There is nothing that you can not do. In 2005, I was bedridden. Couldn't even open the bathroom door. Needed help with everything. I've just returned from my aerobics and aquatics class. Am a regular spokesperson at a support group. My husband and I are on the comittee for the scleroderma yearly walkathon. Last winter I went to Puerto Rico where I did snorkeling, mountain climbing, kayaking at midnight in the bioluminescent bay, hiking and cave exploring. Swam in the Caribbean as often as I wanted to and had a wonderful time and hit the thermal baths. In 2005, I was told that I was terminal and probably wouldn't last 6 months. I went on A/P and now just started M/P. Had a setback this week, Irregular heart beats for 3 days. Thought it was a herx. Found out I was just a little low in Magnesium. Two doses of Slow Mag later and my heart is beating perfectly. Just got back from the cardiologist! Everything is perfect. Don't let these set backs, set you back. Go for the Gold. I'll be your biggest cheerleader. I know the rest will join me in wishing you the best. Good luck! And hit those books. The best to you, Dolores emluv23@... wrote: Hi group, I know many people have commented on " brain fog " as a symptom of the disease process itself. Many of you have mentioned short term memory loss, difficulty concentrating, etc. I'm wondering though, among those of you who have recovered, does this too resolve completely? I'm thrilled with my progress physically, but find that my brain is working no better then when I was at my sickest. This is of great concern, as I was planning on spending the next ten years in school, getting an MD and PhD. I'm starting to wonder what good my health is without my brain! Wondering if I will ever perform like I did before the illness. Wondering if I should forget being an academic. The whole hope, of course, is to become a physician to help people like us. I'm only in month 7 of AP. Hoping there is still more progress to come. Thanks all, Emma ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2007 Report Share Posted November 9, 2007 Hi Emma; I had and sometimes still have the same problem.Thank God my years and years of serious study are behind me but in retirement I find myself studying again.I have a wonderful doctor that specialises in environmental medecine who suggested I try vitaminB12 Methylcobalamin.It is the neurologically active coenzyme form of B12 which supports the healthy structure and functioning of the brain and nervous system.You can get it in the inhalor form with glutathion or as a lozenge(do not know the english word) that is only the B12 and is taken sublingually.One must also remember that the brain is basically fat and that you really need your EFA s.The trick is to find the best that have the least seco-steroid D in them.I use pumpkin seed ,black currant and flax oil instead of fish oil. Lynne emluv23@... wrote: > Hi group, > > I know many people have commented on " brain fog " as a symptom of the > disease > process itself. Many of you have mentioned short term memory loss, > difficulty > concentrating, etc. I'm wondering though, among those of you who have > recovered, does this too resolve completely? I'm thrilled with my > progress physically, > but find that my brain is working no better then when I was at my > sickest. > This is of great concern, as I was planning on spending the next ten > years in > school, getting an MD and PhD. I'm starting to wonder what good my > health is > without my brain! Wondering if I will ever perform like I did before > the illness. > Wondering if I should forget being an academic. The whole hope, of > course, is > to become a physician to help people like us. I'm only in month 7 of AP. > Hoping there is still more progress to come. > Thanks all, > Emma > > ************************************** > See what's new at > http://www.aol.com <http://www.aol.com> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Hi Dolores! Thank you so so much for you ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Hi Dolores! Thank you so so much for all your words of encouragement! You are one of my biggest inspirations- I think of you often when I'm studying- it's patients like you that I am in this for. I'm thinking if I stick with this path of study either my cognitive function will come back as I recover, or I will find a method for overcoming it! Some sort of cognitive behavioral therapy or some recently discovered research in neuroscience will come to the rescue. I will keep at it! Thank you for everything- I wouldn't be doing so incredibly well physically without all the advice of this group. Best wishes! Emma ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Thanks Lynne! I do recall that I was on a program of B vitamins that seriously improved my mind for awhile. Maybe I should go back to that. I've never tried those oils you mentioned, and I'm going to go out and find them. Your advice is always so appreciated, Thank you SO much! Best wishes! Emma ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Speaking of B vitamins, does anyone know a brand that has all B vitamins and folic acid in one easy to swallow gel capsule or even softgel? My dr did advise me to take the all in one B that has B1,2,3,6 & 12 and to make sure it was balanced with folic acid to improve my thinking and ease neuropathy. The bottle I have is long tablets which are not enteric coated and are extremely hard to get down. It starts dissolving as soon as its in my mouth and of course it takes horrendous. Plus it just doesn't glide down the throat well. > > Thanks Lynne! > > I do recall that I was on a program of B vitamins that seriously improved my > mind for awhile. Maybe I should go back to that. I've never tried those oils > you mentioned, and I'm going to go out and find them. Your advice is always so > appreciated, Thank you SO much! > Best wishes! > Emma > > > ************************************** > See what's new at > http://www.aol.com > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 I take niacinamide (B3) and a B complex, but can anyone tell me about B-13 Thanks, Skip rheumatic Re: cognitive function Speaking of B vitamins, does anyone know a brand that has all B vitamins and folic acid in one easy to swallow gel capsule or even softgel? My dr did advise me to take the all in one B that has B1,2,3,6 & 12 and to make sure it was balanced with folic acid to improve my thinking and ease neuropathy. The bottle I have is long tablets which are not enteric coated and are extremely hard to get down. It starts dissolving as soon as its in my mouth and of course it takes horrendous. Plus it just doesn't glide down the throat well. > > Thanks Lynne! > > I do recall that I was on a program of B vitamins that seriously improved my > mind for awhile. Maybe I should go back to that. I've never tried those oils > you mentioned, and I'm going to go out and find them. Your advice is always so > appreciated, Thank you SO much! > Best wishes! > Emma > > > ************************************** > See what's new at > http://www.aol.com?wp_ml=0 > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2007 Report Share Posted November 11, 2007 Hi Emma! The others know so much more about the B vitamins. Especially Lynne. I spoke to her about trace minerals also. There is so much to learn! Two years of research and I've only just begun to scratch the surface. I think you will make a great doctor. Write whenever you need a boost. We all need that sometimes! Thanks for the compliments.~~~~~~Dolores emluv23@... wrote: Hi Dolores! Thank you so so much for all your words of encouragement! You are one of my biggest inspirations- I think of you often when I'm studying- it's patients like you that I am in this for. I'm thinking if I stick with this path of study either my cognitive function will come back as I recover, or I will find a method for overcoming it! Some sort of cognitive behavioral therapy or some recently discovered research in neuroscience will come to the rescue. I will keep at it! Thank you for everything- I wouldn't be doing so incredibly well physically without all the advice of this group. Best wishes! Emma ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
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