Thanks for Encouragement

[Guest guest]

Kirk, you making a good start just take it day by day. Everyone feels the

same in the beginning the why " me " attitude jumps right in and takes us over.

Fight it all the way is the best medicine. I don't know how mobile you are

right now but they are ways of doing things from a different point of view or

angle. I say that because I'm one stubborn lady. Nobody can do it better

then me. Like I can't mop my floor the regular way but by god I can on my

butt on the floor and scoot with my pail and cleaner. I know, everyone laughs

but I do IT. I also sit on my walker seat and accomplish many things that

way. I know everyone is effected differently, some are more disabled then

other

but I still have to try.

Many of us are sensitive to cold weather. We've always gone up to No

Carolina to visit my husbands aunt and uncle but we kinda stick to the warmer

month

now. We went up one Christmas and I couldn't get my chin to stop quivering

nor my legs to bend. I called it the tin man walk.............Yes, PLS is

lifetime of adjustments but you can find many new things to venture

into...........................Take care ..............Flora/Florida.

[Guest guest]

Thanks to all who responded. The adjustment to this diagnosis isn't

as easy as I thought. I had, over the past year, resigned myself to

probably not making it another year based on how rapidly my symptoms

were getting worse. Now I have to accept a probable long life

basically the way I am. It sounded easy (a relief) at first. Then I

got to dwelling on it until I started getting depressed. Your

message, to accept and live each day doing what I CAN do and leave

the rest for tomorrow, is finally sinking in. Today was a good day,

and that's all that counts!

We are located in the beautiful hills of northern Pennsylvania. The

cold bothers me very much in the winter, but we don't have giant bugs

or hurricanes. We just moved into a small ranch house in town

(Coudersport) because I could no longer take care of our log home in

the country which we built as a family project 21 years ago. I have

a wonderful wife, and children nearby, that provide support as I need

it. I have always done everything for myself, so I find it very hard

to watch others do things for me.

I'm at 30 mg of Baclofen now, working my way up to 60. I actually

believe I can " feel " a difference already in the mobility of my

tongue and legs. I hope its a good sign.

Thanks to everyone again. I'll keep reading the posts and asking

questions as I think of them.

Kirk

[Guest guest]

Hi Kirk:

Glad to hear our group has been able to give you the encouragement that we

all need to get through from day to day. There are days that are harder

than others, but I can honestly say that without this group I would have

been in BIG TROUBLE!

I, like you (minus the spouse) have a very supportive family and some close

friends, but there are days when I just need to reach out to people who are

going through the same as me.

It must have been very hard for you to give up your home (21 years in the

making) but glad you are able to focus on your loving wife and family.

We will be here through the good days and the bad so post anytime.

Jo (Northern Ontario)

Thanks for Encouragement

> Thanks to all who responded. The adjustment to this diagnosis isn't

> as easy as I thought. I had, over the past year, resigned myself to

> probably not making it another year based on how rapidly my symptoms

> were getting worse. Now I have to accept a probable long life

> basically the way I am. It sounded easy (a relief) at first. Then I

> got to dwelling on it until I started getting depressed. Your

> message, to accept and live each day doing what I CAN do and leave

> the rest for tomorrow, is finally sinking in. Today was a good day,

> and that's all that counts!

>

> We are located in the beautiful hills of northern Pennsylvania. The

> cold bothers me very much in the winter, but we don't have giant bugs

> or hurricanes. We just moved into a small ranch house in town

> (Coudersport) because I could no longer take care of our log home in

> the country which we built as a family project 21 years ago. I have

> a wonderful wife, and children nearby, that provide support as I need

> it. I have always done everything for myself, so I find it very hard

> to watch others do things for me.

>

> I'm at 30 mg of Baclofen now, working my way up to 60. I actually

> believe I can " feel " a difference already in the mobility of my

> tongue and legs. I hope its a good sign.

>

> Thanks to everyone again. I'll keep reading the posts and asking

> questions as I think of them.

>

> Kirk

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