Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Thank you so much for the welcome. I already feel at home. I think you are right. I think any major trauma, be it emotional or physical wreaks havoc on our immmune system and we are setup big time for autoimmune problems. I also believe, because of that and how it works (and the study of NIDS) that autism will turn out to be an autoimmune problem as well. Adelle*********** REPLY SEPARATOR *********** Oh, I can't even imagine what that must be like. My hubby has Hep C and stage two liver disease and is on chemo for that right now, but the chemo has the virus clear--they don't consider it cured because the darn virus hides and often comes back into the blood. He cleared it once before. I'm hoping this time it sticks. It seems autoimmune stuff often follows a trauma of some kind. They think that my FMS is a result of a whiplash injury I had in 1994, and all of this kicked into high gear after I lost two grandparents--one in 1999 and one in 2000. They were at my mom's house when they died, both from cancer, one was 98 the other was 87. That in and of itself would only be a minor setback, because of their age, but I organized the schedule for their care, and spend many nights at Mom providing care, worked during the day, etc, and we were with them when they died. I'm an RN, btw. So I think the physical over-doing helped kick off this stuff. Not to mention that I was very worried about the fact that my daughter had recently been diagnosed with MCTD and PCOS. Also I had years of working massive numbers of hours. I think it just all added up. Combine that with the genetic tendancy toward this stuff--it's a bad cocktail. The reason I'm unable to work anymore--I can't drive at all due to constant dizziness and lightheadedness (I was a home health nurse and saw about 6-8 patients a day, minimum of 100 miles a day driving). My endurance is really pitiful and I am in pain constantly. I do what I can, a little at a time. I'm ever hopeful that they will be able to fix me up enough to at least work flex time, I REALLY loved my job and miss it, sigh. So--welcom again, Adelle. I'm sure you'll find this a great support group. We provide info and share experiences, but we also just chat and send some jokes, etc. It's been quiet this week due to the holidays, but sometimes it is very active. Kathy Re: New Member Thank you so much. I found all of you because I thought a little support and talking to people who understood would be good for me. I have Primary 's, Celiac, most likely Sjogren's, and now we are looking into ankylosing spondylitis and possibly (and hopefully not) scleroderma. Autoimmune stuff is awful and no one understands but those who have it so here I am. I have two kids at home - one of them is autistic, and I have many hobbies, primarily kitting and reading. I am widowed as of 21 months ago and miss my DH more than words can say. I am sure there is more but that gets you something so I am not just a lurker. Looking forward to meeting with everyone. BlueDenim*********** REPLY SEPARATOR *********** Welcome to bluedenimlady. Tell us a little about yourself. I'm ; I have Crohn's Disease & I'm on Remicade & a bunch of other meds. ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Please visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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