Guest guest Posted January 2, 2004 Report Share Posted January 2, 2004 Thank you for the welcome Christy. I am in Nebraska. Beautiful prairies and all. My kids handle it all fairly well I think - of course I have been sick since the last two were born and one is autistic so I am unsure how he thinks about it or even if he does. They just don't know me any other way. They have seem me getting better - right before Floyd died - and I think all the security in their world died that night too. They do know I am doing everything to get things back on track and are very helpful. Very good kids. I am really pleased with this list. So many support group lists are full of people who define themselves by their disease. It's like "Hi I'm Lupus" rather than "Hi I am and I have Lupus" or whatever. I refuse to define myself or my life by a disease. It is something I just have and won't have when I shed the "mortal coil." I so appreciate the friendships you all have here and look forward to being part of that. To be understood because of what plagues us yet not to be patronized for it. What a wonderful combination! Adelle*********** REPLY SEPARATOR *********** Welcome to the list Adelle. Can I ask what state you live in? I'm so very sorry to hear about your husband and I can only imagine how you must be suffering. That's certainly more than enough to activate the "lurking" autoimmune diseases and stir things up. The holidays must have been particularly difficult for you and your kids. How do your children handle your autoimmune problems? By the way, I'm Christy, I'm the list mama here, and I live in Georgia. Feel free to read about most of us on our website at http://groups.yahoo.com/group/autoimmune-ills/ is the member who keeps it up to date for us although many of us (me included) need to update our stories. I'm sure you'll find a lot of care and understanding here and don't worry about jumping in... that's the best thing to do. I can safely say that at least one member on the list will have your exact disease and many others will have the same symptoms and medications (by the way... I have AS) Welcome aboard and make yourself at home. ChristyPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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