Re: I have not been reconized in this group at all.

[Guest guest]

I posted my Hi and intro in the middle of all that mess last night, and felt

like it was just shoved to the side so that all the fighting/emotional

emailing threads could continue. I did get welcomed by two kind souls,

otherwise

I think I might have already been scared away!

Lesa

In a message dated 11/26/2007 9:23:10 P.M. Central Standard Time,

teddyt222@... writes:

Since I've been in this group a whole three days, all I have read

is anger, shaming and blaming etc. Plus the fact that you all seem

to ignore the fact that there is new people in here that need to be

" recognized " and one understand that word ?

You all are so busy with being so self enmeshed that we newbies

are left out of all of your conversations. So, I too am out of here.

I have never in my life read so many emails full of self enmeshed

people.

Hope in the future some of you can get your heads of out of your

butts and take notice of the newbies, they came into your group

for a reason and you all are so busy with your selves they go

completely unnoticed !!!

So long,

Terry

PS really nice three days. Not one person talk to me

Terry

You teach people how to treat you

Self-respect is when you develope boundaries.

---------------------------------

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[Guest guest]

Since I've been in this group a whole three days, all I have read

is anger, shaming and blaming etc. Plus the fact that you all seem

to ignore the fact that there is new people in here that need to be

" recognized " and one understand that word ?

You all are so busy with being so self enmeshed that we newbies

are left out of all of your conversations. So, I too am out of here.

I have never in my life read so many emails full of self enmeshed

people.

Hope in the future some of you can get your heads of out of your

butts and take notice of the newbies, they came into your group

for a reason and you all are so busy with your selves they go

completely unnoticed !!!

So long,

Terry

PS really nice three days. Not one person talk to me

Terry

You teach people how to treat you

Self-respect is when you develope boundaries.

---------------------------------

Get easy, one-click access to your favorites. Make Yahoo! your homepage.

[Guest guest]

I am also leaving this site. All I have seen is whining. Face it---we have

fibro, we have pain, but get on with it already. If you stay in bed or lay on

the couch all day you're going to be in severe pain. Get up and go for a walk

and get your mind off your self. I'm outta here.

Lesal01@... wrote: I posted my Hi and intro in the middle of all

that mess last night, and felt

like it was just shoved to the side so that all the fighting/emotional

emailing threads could continue. I did get welcomed by two kind souls, otherwise

I think I might have already been scared away!

Lesa

In a message dated 11/26/2007 9:23:10 P.M. Central Standard Time,

teddyt222@... writes:

Since I've been in this group a whole three days, all I have read

is anger, shaming and blaming etc. Plus the fact that you all seem

to ignore the fact that there is new people in here that need to be

" recognized " and one understand that word ?

You all are so busy with being so self enmeshed that we newbies

are left out of all of your conversations. So, I too am out of here.

I have never in my life read so many emails full of self enmeshed

people.

Hope in the future some of you can get your heads of out of your

butts and take notice of the newbies, they came into your group

for a reason and you all are so busy with your selves they go

completely unnoticed !!!

So long,

Terry

PS really nice three days. Not one person talk to me

Terry

You teach people how to treat you

Self-respect is when you develope boundaries.

---------------------------------

Get easy, one-click access to your favorites. Make Yahoo! your homepage.

[Guest guest]

>

> I posted my Hi and intro in the middle of all that mess last

night, I did get welcomed by two kind souls, otherwise

> I think I might have already been scared away!

> Lesa

>

>

> In a message dated 11/26/2007 9:23:10 P.M. Central Standard Time,

> teddyt222@... writes:

>

>

>

>

> Since I've been in this group a whole three days, all I have read

> is anger, shaming and blaming etc. Plus the fact that you all seem

> to ignore the fact that there is new people in here that need to be

> " recognized " and one understand that word ?

>

> You all are so busy with being so self enmeshed that we newbies

> are left out of all of your conversations. So, I too am out of

here.

>

> So long,

> Terry

>

> PS really nice three days. Not one person talk to me

>

> Terry

> You teach people how to treat you

> Self-respect is when you develope boundaries.

>

> ---------------------------------

>To Lesa and Terry,

I am sorry you both either joined or posted while those messages were

going back and forth. If you DO decide to stay, you will find the

group really is supportive of all members. Just that the one message

that set off the flurry of back and forth, was, I think that too many

of us felt as if the individual seemed to be implying that we are

closed minded, that we didn't care for what was implied by the

individual who said they were leaving the group apparently because

fibro does not exist.

I have been reading and posting here for at least 8 months, and have

never read so many protests in response to one person's posting.

I, do believe that fibro IS A CONDITION and while we may not all have

the same symptoms, the condition is recognized, FINALLY, by the

medical community AND at least one pharmacuetical company has found

through much research, testing and also all of the amazing amount of

effort ANY pharmacuetical company has to put forth before the FDA

approves a drug for any condition. (this I can attest to, as I have

been on the inside and KNOW some of costs the pharma companies

spended on every drug that is on the market in addition to the ones

you never hear of that don't make it past the testing --- I once had

the pleasure, if it could be called that, of working with a group of

10 other temporary employees who for 4 months worked at doing NOTHING

but putting together all of the various reports that the companies

are required to submit to the FDA! And when those were all bounded

and packaged, it was several pallets of box after box of the reports

the company was required to submit while the drug was still awaiting

approval!! Then think about what the pharmacuetical company paid

just for the 10 or so of us who did nothing but put binders together -

-- if we made $14.00 an hour from the temp agency, the final bill

had to be at least an additional $5 or $6 more that the temp agency

charged so that they could pay for the training, recruitment, etc.

for each individual they placed! --- yes, it is big business but it

is also one that is so regulated that someone on the outside looking

in would not belief what it cost from the initial concept until it

reaches the shelves in your neighborhood drug store. And then, if so

many adverse reactions are experienced, and the drug is taken off the

market either voluntarily by the drug company or order to do so by

the FDA, there are millions of dollars that have just gone down the

drain and the company eats the lost. Then there is the flurry of

lawsuits that they may encounter.)

I know that my own perspective of the pharmacuetical industry is from

their point of view than that of the general population, but I have

worked in so many areas of two different big name companies,so I know

some of what it takes to keep a drug on the market.

To the long time members who have had the misfortune to read my point

of view from the inside of the pharmacuetial companies, I apologize,

but there is one drug that one of those companies I worked for, that

many of you may have taken over the years and that my saved your life

just as it saved my brother's life in 1947 -- penicillin! It's still

out there, still saving lives and I am quite certain the company may

still do tests on it if they still hold the patent. So perhaps

people should stop bashing the drug companies.

And, here's another thought you might want to keep in mind about most

of the drug companies --- many of them provide many people with

certain drugs they can't afford at low or no cost to the patient.

(ever seen the Montiel commercial??? if not check out the

Partnership with America!)

[Guest guest]

Well, I for one will appologize for that. It is just that sometimes my time is

so limited with work and stuff. It is a very large group and sometimes I

accidentally miss new people here. I would never ignore you intentionally. I

think there are over a 1000 members here. Most of the time I have to skim over

the posts and don't get a chance to read everything. That is probably alot of

the problem with several people here.

Sorry, write me anytime. I will do my best to read and answer everything I

can. I only have about 30 minutes to an hour a day to get on here most days

especially on work days.

Debra V.

Terry Tabar wrote:

Since I've been in this group a whole three days, all I have read

is anger, shaming and blaming etc. Plus the fact that you all seem

to ignore the fact that there is new people in here that need to be

" recognized " and one understand that word ?

You all are so busy with being so self enmeshed that we newbies

are left out of all of your conversations. So, I too am out of here.

I have never in my life read so many emails full of self enmeshed

people.

Hope in the future some of you can get your heads of out of your

butts and take notice of the newbies, they came into your group

for a reason and you all are so busy with your selves they go

completely unnoticed !!!

So long,

Terry

PS really nice three days. Not one person talk to me

Terry

You teach people how to treat you

Self-respect is when you develope boundaries.

---------------------------------

Get easy, one-click access to your favorites. Make Yahoo! your homepage.

[Guest guest]

I appologize to you too Lesa. I promise it is not always this way. As a matter

of fact, it is rare to have such anger here. I did get very offended by a

particular post. I guess I should have just shut up and not said anything. But

I never meant to overlook anyone here. As I just explained in my last post, I

have limited time here and there are over a 1000 members.

So I get about 200 or more emails in my box in just 2 days time..... sometimes

more than that.

But welcome anyway,

I hope you stay,

Thanks,

Debra V.

Lesal01@... wrote:

I posted my Hi and intro in the middle of all that mess last night,

and felt

like it was just shoved to the side so that all the fighting/emotional

emailing threads could continue. I did get welcomed by two kind souls, otherwise

I think I might have already been scared away!

Lesa

In a message dated 11/26/2007 9:23:10 P.M. Central Standard Time,

teddyt222@... writes:

Since I've been in this group a whole three days, all I have read

is anger, shaming and blaming etc. Plus the fact that you all seem

to ignore the fact that there is new people in here that need to be

" recognized " and one understand that word ?

You all are so busy with being so self enmeshed that we newbies

are left out of all of your conversations. So, I too am out of here.

I have never in my life read so many emails full of self enmeshed

people.

Hope in the future some of you can get your heads of out of your

butts and take notice of the newbies, they came into your group

for a reason and you all are so busy with your selves they go

completely unnoticed !!!

So long,

Terry

PS really nice three days. Not one person talk to me

Terry

You teach people how to treat you

Self-respect is when you develope boundaries.

---------------------------------

Get easy, one-click access to your favorites. Make Yahoo! your homepage.

[Guest guest]

Lesa, I hope sincerely that you don't give up on us because of the mess that

was going on. I'm sorry that you didn't get the immediate acknowledgement

that you needed for being new here, but it happens...I didn't either, but I

have been involved with so many different support groups, so I know that it

will happen that it can take participating before you get noticed. In this

group, it is so big and every day there are quite a few new people joining and

then with all of us being in different stages of pain and flares it can be hard

to respond to a new member. I'm glad that you found us and I hope that you

will give us a chance to be here for you...and maybe you can be there for me,

too. Welcome to the group and I look forward to getting to know you.

Love and gentle hugs,

Debi/So. Cal.-54

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[Guest guest]

HI Mona

you and I spoke before. please email me cindyinmd55at aol.com. yahoo

drops the address after the @ sign so i cannot see your address to

email you...

I posted my Hi and intro in the middle

of all that mess last night, and felt

> like it was just shoved to the side so that all the

fighting/emotional

> emailing threads could continue. I did get welcomed by two kind

souls, otherwise

> I think I might have already been scared away!

> Lesa

>

>

> In a message dated 11/26/2007 9:23:10 P.M. Central Standard Time,

> teddyt222@... writes:

>

> Since I've been in this group a whole three days, all I have read

> is anger, shaming and blaming etc. Plus the fact that you all seem

> to ignore the fact that there is new people in here that need to be

> " recognized " and one understand that word ?

>

> You all are so busy with being so self enmeshed that we newbies

> are left out of all of your conversations. So, I too am out of

here.

> I have never in my life read so many emails full of self enmeshed

> people.

>

> Hope in the future some of you can get your heads of out of your

> butts and take notice of the newbies, they came into your group

> for a reason and you all are so busy with your selves they go

> completely unnoticed !!!

>

> So long,

> Terry

>

> PS really nice three days. Not one person talk to me

>

> Terry

> You teach people how to treat you

> Self-respect is when you develope boundaries.

>

> ---------------------------------

> Get easy, one-click access to your favorites. Make Yahoo! your

homepage.

>

>