Re: Permanent SCS Implantation - Mark

[Guest guest]

Mark - Well, it's 5:20AM here and I'm about to jump in my car and head to Boston for a conference. I figure that about the time Ithat I pull into the hotel parking lot you will be in deep slumber and finally getting your SCS. I hope that your post-op discomfort is minimal (okay, it won't likely be minimal but at least you know that it will get better !!) and that it all works out well for you.

With the recent stresses I've been struggling through, a fairly significant flare-up has occurred despite the SCS. They will be putting in a continuous axillary catheter again on Monday to quiet things down. Even if it doesn't manage to do that, I will at least get a couple of weeks respite from things (and thank you Tricia for your advocacy to our docs....The poor guys probably didn't know what hit them as they were double-tagged by us. I owe you lunch.). My SCS remains quite positional but the docs assure me that that their is hope on the horizon. As you know, instead of just the electrodes, I had a plate of them implanted in the epidural space. Even with the implant, the positional thing has remained a problem for me....my epidural space is abnormally large ("capacious, " they say...well like duh !! ...of course it is....I'm not Minnie Mouse). For those of you

with similar problems, they are coming out with a new electrode plate later this year that will actually automatically conform to your epidural space. So Mark, if you run into similar difficulty, know that they are getting better with fine-tuning this procedure. I hope that yours works smoothly for you. Please keep us posted about how you are feeling. Wishing you the very best, o patient one. Barbara

[Guest guest]

With the recent stresses I've been struggling through, a fairly significant flare-up has occurred despite the SCS. They will be putting in a continuous axillary catheter again on Monday to quiet things down. Even if it doesn't manage to do that, I will at least get a couple of weeks respite from things (and thank you Tricia for your advocacy to our docs....The poor guys probably didn't know what hit them as they were double-tagged by us.

Barbara,

Does the continuous axillary catheter require hospital stay? Glad you and Tricia got to meet, maybe you gals should take the docs to lunch Lol! Way to go gals!

Take care,

Sandi

[Guest guest]

Mark- Hope that all goes well today and that you find the permanent SCS to be just as successful for you as the trial was. Here's wishing you a quick post-op recovery, so you can get down to the business of enjoying the rewards

And Barbara, no problem with the heads up to The Three Musketeers......I'm just glad they're going to be able to get you some much needed relief. You try and take it easy on that Boston trip.

TriciaBARBARA TORREY wrote:

(and thank you Tricia for your advocacy to our docs....The poor guys probably didn't know what hit them as they were double-tagged by us. I owe you lunch.)

[Guest guest]

No, Sandi....they do it right there at the clinic. While Tricia and I have yet to meet, it sure has been nice to have someone so nice in my neck of the woods. A real treat. Take care - Barbara

Barbara,

Does the continuous axillary catheter require hospital stay? Glad you and Tricia got to meet, maybe you gals should take the docs to lunch Lol! Way to go gals!

Take care,

Sandi

[Guest guest]

While Tricia and I have yet to meet, it sure has been nice to have someone so nice in my neck of the woods. A real treat.

My mistake Barbara, I thought you gals had already met. We have met several other RSDer's at a couple of RSD conferences that we were able to attend. It was good for my husband also as he got to speak with 'well spouses' also and my mom, she had the chance to meet other parents who suffer along with their children (no matter how old we are). I am very lucky that I have a great family support system on both sides. We have also had the opportunity to meet two gals locally when we attended a benefit for one almost 2 years ago.

Take care and hope you get tons of relief Monday!

Sandi