Guest guest Posted December 8, 2008 Report Share Posted December 8, 2008 , Your children are beautiful! Amy On Dec 9, 2008, at 1:36 AM, wrote: > LOL - well, me and my husband. > > > > On Mon, Dec 8, 2008 at 10:23 PM, Jodi & Juni > <junikins4me@...>wrote: > > > Hi ! > > Welcome back! Sorry to hear of your loss....We are glad your back! > I *do* > > remember you, but didnt realise u unsubbed from the list... > > > > Question: > > That's a ton of kids are you the sole care provider? > > phew! > > > > Jodi & Juni > > Digital Scrapbook Artist & Service Dog > > All Scraps 4 You > > www.freewebs.com/allscraps4you > > > > > > > > From: <monicathemighty@... <monicathemighty > %40gmail.com>> > > Subject: Overdue Introduction > > " " < < > %40> > > > > > Date: Monday, December 8, 2008, 9:46 PM > > > > > > Since I just replied to a post, it's probably time for me to > introduce > > myself as well. > > > > My name is English. I live in Utah and was originally a > member of > > this group a looooong time ago. Probably 6 or so years ago. At > that point > > I had three children, the youngest of whom had SMA type 1. My Taleah > > passed away two days before she turned four and I unsubbed from > the list. > > > > Since then I gave birth to two beautiful boys who have an > extremely rare > > asymptomatic form of SMA, adopted two children from Zambia and > then gave > > birth to my youngest who has SMA type 1. So if you're counting > that is 8 > > total children, 7 living with me. > > > > Tabitha was very weak early on, symptomatic by day 4, g-tube for > swallowing > > difficulties at 5 weeks old. She is in one of the research trials > and is on > > a couple different medications to decrease progression and > weakness. She's > > done amazingly well since then. Rather than just prevent loss of > strength, > > she has actually regained some of her swallow, arm strength, and > vocal > > volume. In the scans they've done she has increased lean muscle > mass and > > nerve function. > > > > She's a wonderful, beautiful, vibrant 14 month old little girl. > > > > You can check out my blog if you want far more info. about our > little > > family > > than you ever asked for: > > > > www.monicathemighty .blogspot. com > > > > Tabs just had a hospital stay for bleeding in her stomach, that > resolved, > > but left us with many unanswered questions. > > > > Glad to be here, I love it here. Even if I don't feel like I have > a ton to > > contribute, I read and am reassured of the kind of child/ > adolescent/ adult > > Tabitha might grow up to be. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.