Guest guest Posted December 5, 2002 Report Share Posted December 5, 2002 Gosh , your sister is really having a bad time with all of the autoimmune diseases. I am certain that you will find out much information here. How blessed your sister is to have found support in a family member. God bless! Debby [ ] Information Hi, My name is . My sister was diagnosed with autoimmune Liver Disease today. I have read the information I can find on the internet about autoimmune disease but there isn't much if any information mentioning this in the Liver. So I was wondering if anyone could explain to me what it is all about, long term effects etc. Any information would be appreciated. She has already had cancer of the leg at 17 and then secondary cancer in the lung at 21, she is now 29 and when her liver wasn't working we all thought that the cancer had returned. So some members of the family are relieved that it is this instead. I'm not sure how to feel at the moment and would love more information. Thankyou for your time in reading this email. Kind regards Aston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2005 Report Share Posted March 15, 2005 Thank for your information. Worcester is far away from California. Are there oriental groceries like California? If there are oriental groceries, you still can make kimchee, tempeh and others kind. As I know in California there are a lot of oriental groceries. Bye, Elly --- Vona Marengo <suntigermoon@...> wrote: --------------------------------- Elly: I was born and grew up in northern CA but for the last 41+ years I have lived in Worcester MA! I guess I have always enjoyed ethnic foods and when in college there were a lot of kids from Hawaii and one of them a, Korean Hawaiian taught me to make kimchee and I have done so over the years. Like I said I had no idea it was so good for you! I also enjoy tempeh and thought it would be good to learn to make that also! Then you mentioned the sweet rice and yum! that sounded delicious too! /do you use white or brown sweet rice or does it matter? Vona Re: intro: Elly in Vancouver > > >> >> >> Hi Vona, >> I am glad to meet you in this group. My husband has >> already tried to make tempeh when we visit our son > in >> Austin. The result was good. We got the yeast for >> making tempeh from our friend who live in Austin > too. >> Now we tried in Vancouver the result was not as good >> as the one we made in Austin. My husband now is > still >> trying hard to make good tempeh. We join and read >> from the expert in this group. >> >> Making fermented sweet rice is not difficult. The >> process is: 1 kg sweet rice rinse with water for >> several times. Put the sweet rice in a rice cooker >> soake with water until the surface of the sweet rice > 1 >> cm under the water. The rice cooker will >> automatically >> cooke the sweet rice until it is well done. After > it >> cooling down, we can sprinkle with ragi tape( > special >> yeast for making fermented sweet rice and cassava ). >> I have never observed whether the yeast as the same > as >> making for bread. I never compared them under >> microscope. The ragi are available in Indonesian >> store, or in Vancouver we can buy in Vietnamese > store. >> We keep it for about 3 days, when it taste sweet > then >> the fermentation is done. >> >> Bye, >> Elly >> >> >> >> >> --- Vona Marengo <suntigermoon@...> wrote: >> --------------------------------- >> > >>> >>> >>> >>> >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Oh, yes CA is far from MA!! there are oriental groceries here in MA too and I know they have them in CA! Vona Re: intro: Elly in Vancouver >> >> >>> >>> >>> Hi Vona, >>> I am glad to meet you in this group. My husband > has >>> already tried to make tempeh when we visit our son >> in >>> Austin. The result was good. We got the yeast for >>> making tempeh from our friend who live in Austin >> too. >>> Now we tried in Vancouver the result was not as > good >>> as the one we made in Austin. My husband now is >> still >>> trying hard to make good tempeh. We join and read >>> from the expert in this group. >>> >>> Making fermented sweet rice is not difficult. The >>> process is: 1 kg sweet rice rinse with water for >>> several times. Put the sweet rice in a rice cooker >>> soake with water until the surface of the sweet > rice >> 1 >>> cm under the water. The rice cooker will >>> automatically >>> cooke the sweet rice until it is well done. After >> it >>> cooling down, we can sprinkle with ragi tape( >> special >>> yeast for making fermented sweet rice and cassava > ). >>> I have never observed whether the yeast as the same >> as >>> making for bread. I never compared them under >>> microscope. The ragi are available in Indonesian >>> store, or in Vancouver we can buy in Vietnamese >> store. >>> We keep it for about 3 days, when it taste sweet >> then >>> the fermentation is done. >>> >>> Bye, >>> Elly >>> >>> >>> >>> >>> --- Vona Marengo <suntigermoon@...> wrote: >>> --------------------------------- >>> >> >>>> >>>> >>>> >>>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Elly: I forgot to ask you what do I ask for when I go to the Asian market? for tempeh and fermented sweet rice? It would be helpful to know the right words!!! Thanks, vona Re: intro: Elly in Vancouver >>> >>> >>>> >>>> >>>> Hi Vona, >>>> I am glad to meet you in this group. My husband >> has >>>> already tried to make tempeh when we visit our son >>> in >>>> Austin. The result was good. We got the yeast for >>>> making tempeh from our friend who live in Austin >>> too. >>>> Now we tried in Vancouver the result was not as >> good >>>> as the one we made in Austin. My husband now is >>> still >>>> trying hard to make good tempeh. We join and read >>>> from the expert in this group. >>>> >>>> Making fermented sweet rice is not difficult. The >>>> process is: 1 kg sweet rice rinse with water for >>>> several times. Put the sweet rice in a rice cooker >>>> soake with water until the surface of the sweet >> rice >>> 1 >>>> cm under the water. The rice cooker will >>>> automatically >>>> cooke the sweet rice until it is well done. After >>> it >>>> cooling down, we can sprinkle with ragi tape( >>> special >>>> yeast for making fermented sweet rice and cassava >> ). >>>> I have never observed whether the yeast as the same >>> as >>>> making for bread. I never compared them under >>>> microscope. The ragi are available in Indonesian >>>> store, or in Vancouver we can buy in Vietnamese >>> store. >>>> We keep it for about 3 days, when it taste sweet >>> then >>>> the fermentation is done. >>>> >>>> Bye, >>>> Elly >>>> >>>> >>>> >>>> >>>> --- Vona Marengo <suntigermoon@...> wrote: >>>> --------------------------------- >>>> >>> >>>>> >>>>> >>>>> >>>>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Vona, You can ask the shop keeper for rice yeast. There are many brands. There are made from China, Vietnam, and Indonesia. We have already tried only from China and Indonesia. The result are different depend on where it come from. The China's yeast will ferment the sweet rice into glucose which tasted sweet only, it will not produce alcohol. The Indonesian yeast will produce both glucose and alcohol. The vietnamese yeast I never had tried. The duration of fermenttation are 3 days, no longer then 3 days, otherwise it will turn into acetic acid. For making tempeh, you can ask for tempeh stater. As far as I know people who are making tempeh, they imported themself. Sometimes, if you know somebody will go back, you can ask him/her to bring it for you. If you have question, I am very pleased to answer it for you. Bye, Elly --- Vona Marengo <suntigermoon@...> wrote: --------------------------------- Elly: I forgot to ask you what do I ask for when I go to the Asian market? for tempeh and fermented sweet rice? It would be helpful to know the right words!!! Thanks, vona Re: intro: Elly in Vancouver >>> >>> >>>> >>>> >>>> Hi Vona, >>>> I am glad to meet you in this group. My husband >> has >>>> already tried to make tempeh when we visit our son >>> in >>>> Austin. The result was good. We got the yeast for >>>> making tempeh from our friend who live in Austin >>> too. >>>> Now we tried in Vancouver the result was not as >> good >>>> as the one we made in Austin. My husband now is >>> still >>>> trying hard to make good tempeh. We join and read >>>> from the expert in this group. >>>> >>>> Making fermented sweet rice is not difficult. The >>>> process is: 1 kg sweet rice rinse with water for >>>> several times. Put the sweet rice in a rice cooker >>>> soake with water until the surface of the sweet >> rice >>> 1 >>>> cm under the water. The rice cooker will >>>> automatically >>>> cooke the sweet rice until it is well done. After >>> it >>>> cooling down, we can sprinkle with ragi tape( >>> special >>>> yeast for making fermented sweet rice and cassava >> ). >>>> I have never observed whether the yeast as the same >>> as >>>> making for bread. I never compared them under >>>> microscope. The ragi are available in Indonesian >>>> store, or in Vancouver we can buy in Vietnamese >>> store. >>>> We keep it for about 3 days, when it taste sweet >>> then >>>> the fermentation is done. >>>> >>>> Bye, >>>> Elly >>>> >>>> >>>> >>>> >>>> --- Vona Marengo <suntigermoon@...> wrote: >>>> --------------------------------- >>>> >>> >>>>> >>>>> >>>>> >>>>> >>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2005 Report Share Posted March 16, 2005 Thanks Elly: As I do not want alcohol I'll be sure to ask for China yeast only!!! I printed out your letter for later reference!! Vona Re: information Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Is this considered spamming? Does this group allow this? -------------- Original message -------------- I refinanced my home loan at an incredible interest rate; this saved me 500.00 this month alone. Check this service out. http://allapprovelender.com take 30 seconds and fill out this free form Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 Just to clarify - I didn't send this and I am just wondering if this is something the group allows. It seems inappropriate here. -------------- Original message -------------- Is this considered spamming? Does this group allow this? -------------- Original message -------------- I refinanced my home loan at an incredible interest rate; this saved me 500.00 this month alone. Check this service out. http://allapprovelender.com take 30 seconds and fill out this free form Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 4, 2005 Report Share Posted May 4, 2005 , I think that is considered spam in my opinion..... nicole.tucker@... wrote: Is this considered spamming? Does this group allow this? -------------- Original message -------------- I refinanced my home loan at an incredible interest rate; this saved me 500.00 this month alone. Check this service out. http://allapprovelender.com take 30 seconds and fill out this free form Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 you can order it here http://www.alldaychemist.com/ and make it yourself > >  Can anyone inform me how can I get the LDN of 3 mg, without a recepy? and this is because doctors in Greece, hesitate to prescribe (and suggest) any medicine not authorized from the National Organization of Medicines of Greece. > > > > ___________________________________________________________ > ΧÏησιμοποιείτε ; > Î'αÏεθήκατε τα ενοχλητικά μηνÏματα (spam); Το > διαθÎτει την καλÏτεÏη δυνατή Ï€Ïοστασία κατά των ενοχλητικών > μηνυμάτων http://login./config/mail?.intl=gr > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008 How To Obtain Low Dose Naltrexone (LDN) http://www.webspawner.com/users/howtoobtainldn/index.html Art -- > >  Can anyone inform me how can I get the LDN of 3 mg, without a recepy? and this is because doctors in Greece, hesitate to prescribe (and suggest) any medicine not authorized from the National Organization of Medicines of Greece. > > > > ___________________________________________________________ > ΧÏησιμοποιείτε ; > Î'αÏεθήκατε τα ενοχλητικά μηνÏματα (spam); Το > διαθÎτει την καλÏτεÏη δυνατή Ï€Ïοστασία κατά των ενοχλητικών > μηνυμάτων http://login./config/mail?.intl=gr > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2008 Report Share Posted August 21, 2008  I am Greek. I will e-mail you privately about a doctor prescribing LDN in Athens. [low dose naltrexone] Information Can anyone inform me how can I get the LDN of 3 mg, without a recepy? and this is because doctors in Greece, hesitate to prescribe (and suggest) any medicine not authorized from the National Organization of Medicines of Greece. ΧÏησιμοποιείτε ΒαÏεθήκατε τα ενοχλητικά Î¼Î·Î½Ï Î¼Î±Ï„Î± (spam); Το διαθÎτει την καλÏτεÏη δυνατή Ï€Ïοστασία κατά των ενοχλητικών μηνυμάτων http://login./config/mail?.intl=gr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2008 Report Share Posted August 22, 2008 ΣΕ ΕΥΧΑΡΙΣΤΩ! ΠΕΡΙΜΕÎΩ ΤΗΠΔΙΕΎΘΥÎΣΗ ΚΑΙ ΤΟ ΤΗΛ. ΤΟΥ ΓΙΑΤΡΟΥ! --- Στις Î Îμ., 21/08/08, ο/η Triadafillou Katerina <triadaf@...> ÎγÏαψε: Από: Triadafillou Katerina <triadaf@...>ΘÎμα: Re: [low dose naltrexone] InformationÎ Ïος: low dose naltrexone ΗμεÏομηνία: Î Îμπτη, 21 ΑÏγουστος 2008, 20:17  I am Greek. I will e-mail you privately about a doctor prescribing LDN in Athens. [low dose naltrexone] Information Can anyone inform me how can I get the LDN of 3 mg, without a recepy? and this is because doctors in Greece, hesitate to prescribe (and suggest) any medicine not authorized from the National Organization of Medicines of Greece. ΧÏησιμοποιείτε ΒαÏεθήκατε τα ενοχλητικά Î¼Î·Î½Ï Î¼Î±Ï„Î± (spam); Το διαθÎτει την καλÏτεÏη δυνατή Ï€Ïοστασία κατά των ενοχλητικών μηνυμάτων http://login. / config/mail? .intl=gr ΧÏησιμοποιείτε ΒαÏεθήκατε τα ενοχλητικά Î¼Î·Î½Ï Î¼Î±Ï„Î± (spam); Το διαθÎτει την καλÏτεÏη δυνατή Ï€Ïοστασία κατά των ενοχλητικών μηνυμάτων http://login./config/mail?.intl=gr Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 2008 Report Share Posted November 16, 2008 I'm sure everyone has said this, but each child is different. I can only speak for my own. Nick started therapy with an SLP (Early intervention) at 26 mos. He " spoke " without opening his mouth. I added private speech at 29 mos. Both used PROMPT, which I understand is highly recommended for children that don't know how to use their mouth muscles at all. (Kaufmann is a great learning ladder, but if you don't know how to make the sound, how can you really simplify it). He gets 2 1/2 hours of speech a week between EI/ private. He now makes almost all age appropriate sounds, and I can say that I don't think he gets tactile prompts (hands on his face) more than 3-4 times a session. In context - I understand 90%, family/friends 50% if they're trying. Out of context, I understand 50%, strangers maybe 10%. It's still a huge jump from everyone (even me) understanding nothing only 10 mos ago. The therapists say when he learns closing sounds (so baa and bah become baT and baLL), his intelligibility will greatly improve. I know each child is different. The fact that she's so young, she has a much better chance of learning. Even 8 mos ago, I didn't know if my son would ever speak, and it's just amazing to hear his voice. For your questions> More therapy will help more. Progress depends on the child. Mine started a few sounds (during therapy only) within a month. You can tell a therapist is suitable based on how they work with the child. As mentioned above, I think PROMPT is great. My SLP modeled most of the PROMPTs for me so that I could continue to work with Nick between sessions. Definitely look for " homework " from your SLP. The more the learning environment is, the better your chances are of her speaking. Most importantly, try not to stress about it. I knew in my heart he was apraxic for months, but when I got the official dx, 3 mos after therapy started, I barely slept for over a month. It didn't make sense- after all, with a name I could do more research and find more solutions. Not to mention it didn't change who he was or how he spoke one bit, but it kept me up every night. I still remind myself every day that there are much worse issues out there that my child could've ended up with. And I also remember that this is a technology filled world... Polio crippled thousands of people just 50 years ago. And now it's all but gone. While autism is more prevalent, we're also finding out more about it every day. Who's to say that in a few more years, we won't make huge gains in apraxia cures? The way I see it, the fact that you're here, you're already making a huge step in your granddaughter's life. You're working towards helping her, and that's the best gift anyone can give a child. > > Hi Everyone, Can anyone (PARENTS OR SLP'S) offer any encouraging words, I have granddaughter 22mos. who has been diagnoised with dyspraxia. I know she will need extensive & intense therapy, but what I don't know are the results. Will she eventually learn to speak clearly? Will more therapy sessions help or will progress still be the same as with less? How long before I begin to see progress & how soon can I tell if the SLP is suitable? What would some of the lessons involve to begin speech? ETC. ETC. ETC.!!!!!! Thank You Phyllis ANIE38@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2009 Report Share Posted January 5, 2009 Why are you worried about this? Here is all the info on Dr. Peng: http://www.autismpedia.org/wiki/index.php?title=Treatments Here is a success story: http://www.autismpedia.org/wiki/index.php?title=Rei Results may vary. My son has been taking the custom herbal remedy from Nov 30 to present (Jan 5). It's not hurting, but the response has not been the same as with Rei. --penumbra > > Hello, to anyone on the list.. I am currently in contact with a family IN > Macedonia who is claiming that a Dr. Peng in Houston, Texas is helping > children with vaccine injured children.. he claims to have helped many.. > does anyone have any information on this Dr. ??? website is www.pengs > <http://www.pengs/> herb.com > > > > Please respond immediately, as I am very worried about this information. > > > > Thanks so much, > > > > Corinne > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Hi Everyone, I asked once before if anyone could send me some links to evidence that the Antibiotic Protocol worked so that I could show my rheumatologist. I got heaps of links sent to me but unfortunately my computer crashed and I lost it all. Is there any chance that the information could be sent to me again? I'm going to see him next week to see what my options are as the drug trial I'm currently on isn't really working. Is there any Australian evidence of AP working? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 : If someone else has not already responded, go to www.nih.gov and enter MIRA in the search window (upper right corner). The third article presents the results of the 1995 MIRA Trial (Minocin in treatment of Rheumatoid Arthritis) showing that Minocin is effective in treating RA. All the best, Diane ________________________________ From: L <cre8art@...> rheumatic Sent: Friday, July 10, 2009 5:58:27 AM Subject: rheumatic Information Hi Everyone, I asked once before if anyone could send me some links to evidence that the Antibiotic Protocol worked so that I could show my rheumatologist. I got heaps of links sent to me but unfortunately my computer crashed and I lost it all. Is there any chance that the information could be sent to me again? I'm going to see him next week to see what my options are as the drug trial I'm currently on isn't really working. Is there any Australian evidence of AP working? thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Hi If you visit www.roadback.org there is alot of information there. Try this link to Clinical Studies, including the MIRA trials. http://www.roadback.org/index.cfm/fuseaction/studies.sub/subgroup_id/16.html Also In March 2008 there was an ABC Radio National interview featuring Wall and his Dr, Schloeffel, on his success with AP. (I have had personal contact with ). You can access the interview at: http://www.abc.net.au/rn/healthreport/stories/2008/2260412.htm I have been on AP for 6 years, with great success. Best, Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Hi all, I seem to recall seeing an email saying that Minocin is now an FDA approved treatment for RA. If I can find that info I'll send it out again. I printed a copy and took it to my internist and he was pleased to have it. El _____ From: rheumatic [mailto:rheumatic ] On Behalf Of lynnie_sydney Sent: Friday, July 10, 2009 8:25 AM rheumatic Subject: rheumatic Re: Information Hi If you visit www.roadback.org there is alot of information there. Try this link to Clinical Studies, including the MIRA trials. http://www.roadback <http://www.roadback.org/index.cfm/fuseaction/studies.sub/subgroup_id/16.htm l> .org/index.cfm/fuseaction/studies.sub/subgroup_id/16.html Also In March 2008 there was an ABC Radio National interview featuring Wall and his Dr, Schloeffel, on his success with AP. (I have had personal contact with ). You can access the interview at: http://www.abc. <http://www.abc.net.au/rn/healthreport/stories/2008/2260412.htm> net.au/rn/healthreport/stories/2008/2260412.htm I have been on AP for 6 years, with great success. Best, Lynnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 El, Minocycline has been approved by the American College of Rheumatology for the treatment of RA. Please see http://www.rheumatology.org/publications/guidelines/raguidelines02.pdf Since this is a long article, simply search for occurrences of " minocycline. " Sincerely, Harald At 02:17 PM 7/10/2009, El wrote: >Hi all, > >I seem to recall seeing an email saying that Minocin is now an FDA approved >treatment for RA. If I can find that info I'll send it out again. I >printed a copy and took it to my internist and he was pleased to have it. >El > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Hi, If you find the information please send it to me. I would like to give it to my rummy, he disregarded the AB treatment as a trial and error many years ago. Thanks, kathy egenbacher rheumatic Re: Information Hi If you visit www.roadback.org there is alot of information there. Try this link to Clinical Studies, including the MIRA trials. http://www.roadback <http://www.roadback.org/index.cfm/fuseaction/studies.sub/subgroup_id/16.htm l> .org/index.cfm/fuseaction/studies.sub/subgroup_id/16.html Also In March 2008 there was an ABC Radio National interview featuring Wall and his Dr, Schloeffel, on his success with AP. (I have had personal contact with ). You can access the interview at: http://www.abc. <http://www.abc.net.au/rn/healthreport/stories/2008/2260412.htm> net.au/rn/healthreport/stories/2008/2260412.htm I have been on AP for 6 years, with great success. Best, Lynnie Quote Link to comment Share on other sites More sharing options...
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