Information

[Guest guest]

Hi Gillian

Lets see, also have AS, chronic sinus problems, always getting

bronchitis, High blood pressure and a few gynecological problems now...I

think that might be it. I'll let you know at the end of the week, since

they seem to come out of nowhere...

Jayne

Gillian Rowe wrote:

> Hi Everyone

> Can I ask you what 'overlapping' conditions you have besides PA?

> I have Ankylosing Spondylitis, Systemic Lupus, Raynauds Phenomenon,

> Fibromyalgia, Persistent Leucytosis[benign blood problem], Fibrocystic

> Breast disease, Myeloid Hyperplasia [overproduction of myeloid cells

> in my bone marrow] and High Cholesterol so far!

> I would be interested to know if any other member has any of the same

> overlap, or different overlaps?Love and God Bless

> Gillian

[Guest guest]

[This message contained attachments]

[Guest guest]

April

You have everything I have including depression.........the spondylitis

is the worse!!! I am is so much pain right now and I am walking bent

over.......not everyone with PA has there vertebrae involved, but that

is my chief problem. I had to stop my anti-inflamatories due to gyne

surgery next week...thats if I make it to that long. I can't sleep,

wish I could'nt eat (thats never a problem here)....and I definitely

can't walk very well...hubby told me to move to the spare room....I am

very agitated...dont touch me!!!!!!!!!!

Jayne

aka wrote:

> Overlapping conditions so far:

>

> P, PA, Spondylitis ( how do you know if it is ankylosing?) Premature

> Ovarian Failure (autoimmune), Gastroesophogeal Reflux (predates PA and

> meds), Chronic Sinusitis, and right now EXTREME depression bordering

> on suicidal...

>

> The lack of estrogen due to the POF is also responsible for Osteopenia

> (bone loss but not enough yet to classify as Osteoporosis)

>

> I thought the Spondylitis was part of PA - is it considered separate?

>

> For what it's worth.

> April

>

>

>

> t 12:45 AM 11/9/99 +0000, you wrote:

>

>> Hi Everyone

>> Can I ask you what 'overlapping' conditions you have besides PA?

>> I have Ankylosing Spondylitis, Systemic Lupus, Raynauds Phenomenon,

>> Fibromyalgia, Persistent Leucytosis[benign blood problem],

>> Fibrocystic Breast disease, Myeloid Hyperplasia [overproduction of

>> myeloid cells in my bone marrow] and High Cholesterol so far!

>> I would be interested to know if any other member has any of the

>> same overlap, or different overlaps?

>> Love and God Bless

>> Gillian

>

>

> ---------------------------

[Guest guest]

Re: [ ] Information

Hi Jayne

Thank you for replying to my information request.

I am just trying to figure out 'if' the medical profession have 'ideas' on what

conditions are 'known' to them with PA patients, and they fail or refuse to

inform the patient. For example, many females have replied with forms of cysts,

which I too suffer from, yet I never recall any medical person saying 'Gill

watch out for this condition'.

Love and God Bless

Gillian

[Guest guest]

Hi April

Thank you for replying to my information on overlap.

Well from the only book I have been able to lay my hands on, even TODAY the

clinical subsets of PA are really undefined. What I mean by clinical subsets,

the way the medics classify if you have PA, as say against AS, or RA! For

example I test POSITIVE to the Rheumatoid Factor, which according to certain

medical literature, I should not do IF I have PA. PA is classed as being a

seronegative arthritis, insofar as there are no blood markers unlike rheumatoid

arthritis, rheumatoid factor. So usually it is referred to as Psoriatic

Arthropathy, rather than Arthritis, as there is no blood marker, autoimmune

connection. Medics like to draw lines to diagnose, psoriasis, joint

inflammation, nail involvement, but no autoimmune marker, equals Arthropathy.

Its nice, its neat, and if we could all fall into that label they would have an

easier time. However, seems to me that some patients do not fall into that box

for labelling, which is where the problem arises. As some patients will always

have psoriasis and no Arthropathy, likewise older people will erupt in psoriasis

and also have the rheumatoid factor. Meanwhile just because you have this

rheumatoid factor, does not equal having rheumatoid arthritis. PA seems to be

one of those conditions where anything goes, and in my experience it does. As

for AS, well yes it is a separate condition, insofar as you can have AS with no

other form of skin rash, arthritis. There again it can also be found in PA. So

that is why I am interested in the overlaps. When I was eventually diagnosed,

the specialist told me he only had TWO other patients with the same overlap as

myself, and I did not want to know how they were getting on!

The difference between Ankylosing Spondylitis and Spondylitis, Ankylosing is

fusion of the bone across the joint space, either by bone growth or shortening

of connective tissue. Spondylitis is inflammation, which may lead to fusion? I

have the inflammation and the fusion, while some patients just have the

inflammation and no fusion. My cousin who I referred too had almost complete

fusion, he was growing spurs, but had them removed. Apart from that he has no

signs of joint inflammation.

Gillian

Re: [ ] Information

Overlapping conditions so far:

P, PA, Spondylitis ( how do you know if it is ankylosing?) Premature Ovarian

Failure (autoimmune), Gastroesophogeal Reflux (predates PA and meds), Chronic

Sinusitis, and right now EXTREME depression bordering on suicidal...

The lack of estrogen due to the POF is also responsible for Osteopenia (bone

loss but not enough yet to classify as Osteoporosis)

I thought the Spondylitis was part of PA - is it considered separate?

For what it's worth.

April

t 12:45 AM 11/9/99 +0000, you wrote:

Hi Everyone

Can I ask you what 'overlapping' conditions you have besides PA?

I have Ankylosing Spondylitis, Systemic Lupus, Raynauds Phenomenon,

Fibromyalgia, Persistent Leucytosis[benign blood problem], Fibrocystic Breast

disease, Myeloid Hyperplasia [overproduction of myeloid cells in my bone marrow]

and High Cholesterol so far!

I would be interested to know if any other member has any of the same

overlap, or different overlaps?

Love and God Bless

Gillian

---------------------------

[Guest guest]

larryyenko wrote:

>

> From: " larryyenko " <larryy@...>

>

> To All,

> FYI.

>RE: Cheese

Dear Larry: This one made me smile because my very first job at age 15

was working at Hickory Farms. My job involved scraping the mold off the

cheese and rewrapping it. Do you think I caused an epidemic by not

allowing my customers to have the mold???

Lovette

[Guest guest]

WOW cheese mold may help me!! Somebody pass the Bleu Cheese PLease!!!!!!!

Pepi

[Guest guest]

In a message dated 00-01-15 18:16:43 EST, you write:

<< " The risk after tick exposure is very low...There can be more

harm done with the overuse of antibiotics in the attempt to prevent Lyme

disease. " SOURCE: Pediatrics 2000

>>

Hi All,

GRRRR!

Much better to poison them with a vaccine & /or allow them to have chronic

lyme than to treat with abxs??????

How DO these people sleep at night???? (Can they really be that

stupid???????? Hard to imagine!)

Blessings & velcro hugs,

Chris

[Guest guest]

Gillian,

In view of what you wrote:

> Years ago when people contracted the HIV virus and progressed to full blown

> AIDS, towards the later stages of the disease,they broke out in Psoriasis

> followed by the Psoriatic Arthritis!

> So what does THAT tell you about your own disease?

Look at the information on this site

<http://www.planetveggie.com/bin/veggie.pl?location=89 & menu=7 & defaultpage=1>

that discusses the balance needed between hormones

with calcium, magnesium, zinc, assorted vitamins and

herbs (including primrose oil). " ... an increased

tendency to arthritis, mouth ulcers, epilepsy,

schizophrenia, infections, herpes, candida, asthma,

eczema, hay fever and allergic response may result. "

Perhaps you can put your analytical mind to work

and edit this article to make it interesting to the

males in our little group since this article initially addresses PMS.

> Answers please!

Have you found any more regarding your

original observation regarding P, PA & AIDS?

Patty in the spring like Pineywoods of East Texas

[Guest guest]

Gillian Rowe wrote:

> From: " Gillian Rowe " <roweg@...>

>

> Hi All

> I sat down to view " The Streets of Philadelphia " again, one of my all time

> favourite films.

> Then a pieces of information logged in my memory downloaded. My brain is

> akin to " Trivial Pursuits " stores snippets of useless information!

> Did you know?

> Years ago when people contracted the HIV virus and progressed to full blown

> AIDS, towards the later stages of the disease,they broke out in Psoriasis

> followed by the Psoriatic Arthritis!

>

Jeepers, Gill, are you talking about the movie " Philadelphia " (with

Springsteen's song, " Streets of Philadelphia " , in it)?? I thought what some of

the AIDS patients contracted late on was Kaposi's sarcoma, not psoriasis. Dunno

about the PA. I mean, opportunistic infections are one thing, but ..... say it

ain't so!!

--Louise

[Guest guest]

? I give up, what?

[ ] Information

>From: " Gillian Rowe " <roweg@...>

>

>Hi All

>I sat down to view " The Streets of Philadelphia " again, one of my all time

>favourite films.

>Then a pieces of information logged in my memory downloaded. My brain is

>akin to " Trivial Pursuits " stores snippets of useless information!

>Did you know?

>Years ago when people contracted the HIV virus and progressed to full blown

>AIDS, towards the later stages of the disease,they broke out in Psoriasis

>followed by the Psoriatic Arthritis!

>So what does THAT tell you about your own disease?

>Answers please!

>Love and God Bless

>Gillian

>

>

>---------------------------

[Guest guest]

Hi Larry,

Thanks for sharing this, I printed it out to ask my doctor about it. I

have peripheral neuropathy and suffer the constant pain and burning, the

Neurontin helps some but not all.

Hugs,

Marta

> From: " larryyenko " <larryy@...>

>

> Memantine Significantly Reduces Peripheral Neuropathy Pain In Diabetics

>

> --------------------------------------------------------------------------

--

> ----

>

> --------------------------------------------------------------------------

--

> ----

>

> RICHMOND, CA -- January 25, 2000 -- Neurobiological Technologies, Inc.

> announced preliminary results of the company's placebo-controlled Phase

IIB,

> dose-ranging human clinical trial of Memantine, an orally-available

> neuroprotective agent for the treatment of painful peripheral neuropathy

in

> diabetics. This three-armed study comparing daily doses of placebo, 20 mg

> and 40 mg of Memantine, demonstrated statistically significantly less

> nocturnal pain intensity with 40 mg of Memantine compared to placebo after

> eight weeks of dosing. In the group dosed with 20 mg of Memantine,

positive

> trends were seen, but statistical significance was not observed.

[Guest guest]

Good Points Larry, I often say that if it was proven that drinking battery acid, my LD would be cured, I would give it a try. But has for genetic engineering, OK by me as long as it has some part of the food included. I hate fake food stuff, yet I always buy that fake seafood, it's not bad. But I read it is make from other fish.

Hugs,

Marta

-From: " larryyenko " <larryy@...>

To All,

May I remind all that genetic engineering has been with us from the beginning of time, it's called selective breeding. In addition, you didn't hear an out cry when seed companies cross pollinated corn etc. or grafted different types of cherries to a single cherry tree etc. I agree that we humans need to pay attention to what we do and change, however, science is with us and it will be impossible to pick and choose what we want individually. What if (and it's not far off) science genetically engineers a cure for Lyme. Do we refuse the therapy?

Just my point of view.

Larry NV

[Guest guest]

From: "larryyenko" <larryy@...>

New drug helps juvenile rheumatoid arthritis March 17, 2000 NEW YORK (Reuters Health) -- A new drug for treating children and adolescents suffering from juvenile rheumatoid arthritis has been found to be remarkably effective, according to a report published in The New England Journal of Medicine.

Appreciate the article. Does make me feel sicker though that they are not working on a cause for juvenile arthritis! Or maybe just that no mention of possible causes. Just another pill to pop that may help pain. The Rhummies won't consider this may be bacterial in nature.

Barb F. - MI

[Guest guest]

From: "larryyenko" <larryy@...>

New drug helps juvenile rheumatoid arthritis March 17, 2000 NEW YORK (Reuters Health) -- A new drug for treating children and adolescents suffering from juvenile rheumatoid arthritis has been found to be remarkably effective, according to a report published in The New England Journal of Medicine.

Appreciate the article. Does make me feel sicker though that they are not working on a cause for juvenile arthritis! Or maybe just that no mention of possible causes. Just another pill to pop that may help pain. The Rhummies won't consider this may be bacterial in nature.

Barb F. - MI

[Guest guest]

Amy-

You're allowed to vent. That's what we're here for. How is Dakota doing on

the Naproxen? Is he still in a lot of pain? Are his joints still swollen?

Diane

[Guest guest]

, I very much have to say thank you for taking

the time to post the information and then giving me

the web page. You know when we were at the bowel

cleanse group there was a picture there that they

called it the 'cancer fuzzy'. Well I never passed

any full fuzzies but it did recognize the long wrinkled

tubes. I have seen it in my stool from time to time

especially after an enema. I am right now having

a SERIOUS problem with this stuff, it has taking up

housing everywhere. Including near my eye.

It is apparent that this information is out there and

the doctors are not understanding this connection.

I am so glad something was well described and as

what you posted. Now that I have his attention I

think I'll teach him a litter more about how serious

this stuff can behave.

LIZ D

> [Original Message]

> From: D & WMcPhail <dwmcphail@...>

> <candidiasis >

> Date: 4/14/01 6:58:14 AM

> Subject: Re: chest pains

>

> Liz - the candida article is at this site:

> http://www.bellnet.com/candida.htm

>

> wendy

>

>

> Re: chest pains

> >

> >

> > In a message dated 04/12/2001 3:33:26 AM Central Daylight Time,

> > nwgrant@... writes:

> >

> > << I know that we have talked about heart palpitations, but does anyone

> get

> > chest pain? I think it may be related to my middle back, but sometimes

it

> > is a sharp pain, other times, a pain/ache. I had test done 2 years ago,

> > when I was having a lot of heart palpitations, and it was fine. I feel

a

> > little nervous about it, and wonder if its cnadida related as well.

Does

> > anyone else get/had this? What do you think? I am only 39 years old by

> the

> > way. hardly on the way out, I hope. >>

> >

> > A friend of mine's brother just died from a massive heart condition that

> he

> > did not know he had, and he was only 41 - please take care of yourself.

> Not

> > to scare you but to say that anything is possible and that ALL of us

> should

> > take care of ourselves, I know a lot of us are quite sick with this

> candida.

> >

> >

> >

> > ------------/------------

> > Some people come into our lives and quickly go

> > Leaving bruises and scars on our hearts

> > Some stay awhile and leave gentle footprints

> > Of love and respect on our hearts and souls

> > And we are Never, Ever the same.

> >

> > 2001/04/13 21:09:33 CDT

> >

> > Send blank message to candidiasis-unsubscribeonelist if you want

to

> > UNSUBSCRIBE !

> >

[Guest guest]

Hi ,<br><br>I took so son to an

endocrinolgy clinic around the age of 14 because he did not

appear to be entering puberty. After monitoring his

progress for some time, I received a letter from the

consultant, copied to our GP saying that he suspected the boy

had Hypogonadotrophic Hypogonadism and that he should

be started on 50mg injections of Sustanon 4 weekly.

I was shocked. I had no idea what HH was. Never

heard of it. Didn't know what Sustanon was. I found

information on the internet! At least I now knew what HH is

and discovered that Sustanon is

testosterone.<br><br>Anyway, to cut a long story short. Two and a half years

later,the Sustanon injections have been increased to 100mg

4 weekly and I have learned a bit more, but not a

lot. Most recently my son was given a series of blood

tests. The results were sent to me by letter, but never

explained. I Quote " ....... S continues to grow at a

reasonable rate. He certainly has good pubertal ratings in

response to the Sustanon treatment. Nevertheless, his

testes seem stuck at 5 mls bilaterally. I therefore

suspect that he may have a diagnosis of partial

Hypogonadotrophic Hypogonadism. Hence he may be unable to produce

enough LH and FSH to give him a satisfactory increase in

his testicular volume and to maintain his

testosterone secretion. It is difficult to be sure of this at

present and S certainly needs more investigations in the

form of an LHRH and an HCG test. Nevertheless, I think

it is best that we wait until S has finished growing

before stopping the Sustanon and performing these

tests..... " <br><br>What are LH and FSH? What levels are considered

normal? What are LHRH and HCG tests? What would they

show? If my son does indeed have HH what would happen

to him if he stopped the Sustanon injections now?

Have the tests and then if necessary start the

injections again?<br><br>The situation has only become

urgent recently as my Son wants to join the army. I am

not in favour of this, at least not at this age but

he finally wore me down and I agreed. (He needs my

signature as he is under 18) We collected application forms

from the local recruitment centre and I then

discovered on reading through the medical questionaire that

the army will not accept anyone who " ......has

adrenal gland or pituitary gland disease requiring

replacement therapy " . In fact the form says that if you have

this don't bother applying. You can imagine the

disappointment for a young lad whose sole ambition all his life

has been to join the army. The more so as he himself

does not know or understand the possible full

implications of his possible condition or where he got it

from. Is it his fault? he asks. I don't know where he

got it from either. We don't have it in either

family. I read somewhere that it can be aquired through a

mutated gene? He doesn't even fully understand that the

army are very unlikely to take him and is unable or

unwilling to even contemplate choosing a different career

if there is still any chance that he may be

accepted. The doctor is not going to take him off the

Sustanon and do the tests for another 18 months to 2

years. I think it would do him more harm than good to

have to wait this long to find out. So what will hapen

to his normal pubertal development if he comes off

the Sustanon now? I think it is better for him to

know now rather than later if he has a chance with the

army or not. I have already had to accelerate

explanations of his condition because this situation has been

thrust upon me. I am not the one to give these

explanations as I am not knowledgeable enough myself. We have

our next appointment with the consultant next week

and I intend to try to force the issue. It is not

easy to get English doctors to discuss stuff they

don't want to get into. I will feel more confident if I

myself go armed with knowledge.<br><br>I hope you can

give me a bit more information and answer my questions

and or direct me to useful sites where I can find

further information.<br><br>Re

[Guest guest]

Majek-<br><br>It's no easier to get American

doctors to discuss<br>anything either...but...one thing

that seems to<br>come through from your post is how

little the<br>doctor appears to interacting with your

son directly, to help him understand his

problem<br>and find a way to handle what may be a

lifelong<br>issue.<br><br>It sounds like you are the conduit for all the

information.<br><br>It may be helpful to insist the doctor deal

more<br>directly with your son, to the point of recommending

psychotherapy or counseling if need<br>be. If he is so utterly

focused on a military <br>career to the point that he is

not dealing well<br>with his medical realities and

military policy,<br>sounds like there are issues that need

to be faced up to.<br><br>I suggest you explore the

options within your health system to find a doctor who

will take the<br>extra time and effort to deal with

you and your son as human beings. Don't count on the

doctor<br>paying a whole lot of attention to information<br>you've

unearthed, no matter how sound. They<br>are often stubborn

and narrow, and it's a sure way<br>to increase you

and your son's stress level <br>to try to get an

uncaring doc to care.<br><br>As for the technical stuff,

the AACE site is good.<br><br>Best

regards,<br><br>Grandslam

[Guest guest]

At last, some real sympathy and understanding.

Many thanks for your quick reply. What a great

site.<br><br>I have spent the last few hours scrolling through

past messages and I feel I should get my son to join

the site himself and he can post his own messages

from his own computer. He first needs to have a

greater understanding of his condition.<br><br>I found

message 2763 from dgrimm1270 telling us how he was kicked

out of the Marines OCS when they discovered he was on

TRT. I have printed it out. I am sure the British and

American military will have almost identical medical

requirement policies. I am thinking I might show this print

out to my son after our meeting with the consultant

next week. More especially as it seems he has been

told by the guy in charge of the school CCF (combined

cadet force, himself an ex army man that there will not

be a problem getting accepted. Pretty irresponsible

I think. I had telephoned this man to tell him my

son's problem as soon as I saw the medical

questionaire. His brief from me was to try to help the boy

understand that he is unlikely to be accepted and to start

thinking of alternative careers.<br><br>I will take your

advice and try to get the doctor to talk more directly

to my son particularly in view of the army

application issue which has now really forced the whole thing

to be confronted. Now. <br><br>Many many thanks.

[Guest guest]

Majek,<br><br> " He first needs to have a greater

understanding of his condition. " <br><br>Couldn't agree with you

more. I have found that you really must take charge of

your own health care. Here in the US it takes a

tremendous amount of research and proactivity on the part of

the patient to ensure you recieve the proper care.

Physicians can be wonderful, but many are too underinformed

and overworked to spend the time it takes to truly

give you the attention and care you deserve.<br><br>I

don't know what kind of physician you're seeing but I

would encourage you to try to get your son in to a

Pediatric Endocrinologist. Having HH can not only cause

physical problems like weak bones, but in the case of an

adolescent, Testosterone is directly related to things which

can have a profound psychological effect, such as

growth and enlargement of the penis and testes. Your son

only has a window of a few years for this development

to occur and then it is too late. I would make every

effort to get him in front of someone who really knows

and can help. He should be tested for Kleinfelters

and other genetic/congenital condidtions, have a bone

density scan, etc. <br><br>The army should be the least

of your son's worries! They have good reason not to

enlist men who have chronic illnesses. I'm sure you've

seen posts here from adult men - many in middle age -

who only now discovered they had this problem after

decades of health and psycological problems. Now is the

time to avert this sort of thing in the case of your

son. <br><br><br>Regards,<br><br>K4

[Guest guest]

" What are LH and FSH? " <br><br>LH is luteinizing

hormone and FSH is follicle stimulating hormone. Both are

produced in the pituitary gland in the brain and are part

of a feedback loop with the testes: LH stimulates

production of testosterone and when there's enough T, the

pituitary reduces the amount of LH released. FSH stimulates

sperm production.<br> <br> " What are LHRH and HCG tests?

What would they show? " <br><br>I don't know what LHRH

is, but it may be what we call here in the US " GnRH " ,

gonadotropin releasing hormone, and HCG is human chorionic

gonadotropin. They imitate LH and FSH and can be administered

by shots to make the testes produce sperm and

testosterone. If they gave him LHRH or HCG, they would look for

an increase in sperm and T level after a period of

time. His testes would also increase in size. That

would be the best solution for your son rather than

testosterone shots because testosterone shots will make him

sterile, due to the feedback loop with the brain chemicals

(LH/FSH) being inhibited. If he doesn't have enough sperm,

you may need to have some sperm harvested and frozen

in a sperm bank if he will want children later. T

supresses both LH and FSH.<br><br> " If my son does indeed

have HH what would<br>happen to him if he stopped the

Sustanon injections now? Have the tests and then if

necessary start the injections again? " <br><br>And

earlier:<br> " Nevertheless, his testes seem stuck at 5 mls bilaterally. I

therefore suspect that he may have a diagnosis of partial

Hypogonadotrophic Hypogonadism. Hence he may be unable to produce

enough LH and FSH to give him a satisfactory increase in

his testicular volume and to maintain his

testosterone secretion. " <br><br>Giving him sustanon would make

his testes remain small or artrophied because there

is no need for them if he's getting external T. I

suspect the doctor may have made a mistake by giving him

the sustanon in the first place.<br><br>They should

have started with the LHRH or HCG before anything

else, because that would have stimulated his testes to

grow and function normally. I think he should start

LHRH or HCG IMMEDIATELY to save whatever is left of

his remaining testicular tissues. You read about the

rest of us complaining about having atrophied

testicles here alot because of externally administered

testosterone. This is a common result of this treatment your

doctor does not seem aware of!<br><br>Keep in mind

giving men GnRH or HCG is fairly new medicine (within

the last 4 or 5 years, excpet for fertility

treatment) because they used to be very expensive and few

people knew how to administer them (quantity and

frequency). Even now they're not given very often.<br> <br>Is

this doctor an endocrinologist? I believe you say

andrologist?<br><br> " Nevertheless, I think it is best that we wait until S has

finished growing before stopping the Sustanon and

performing these tests..... " <br><br>He may be waiting, but

I'm not sure this is a good idea because of what I

said above. Could you get a second opinion? <br><br> " I

think it would do him more harm than good to have to

wait this long to find out. " <br><br>I agree. How tall

is he and does he have alot of signs of secondary

sexual characteristics such as body hair, deeper voice

and muscularity? Maybe he could afford a pause in the

T to see if the other hormones would work.<br>

<br>I'm still of the opinion the doctor is in error for

giving him sustanon, because that's why his testes are

so small. If you take him off everything, he will

probably just continue to have small testes and then his

secondary characteristics will diminish because he doesn't

produce enough T on his own. So he would need the LHRH or

HCG to see if they stimulate his testes, and maybe

they would begin to function normally, but they may

not respond.

[Guest guest]

go to houstonni.com... there are two enzymes you'll probably want to

get...Peptizide and Zyme Prime (one takes care of casein/gluten and the

other one everything else. You can also get enzymes through Kirkman

labs...most people think the Houston ones are better...and possibly

cheaper.

Jeanne A. Brohart

Rez Ashikino wrote:

> Hi, We have a six year old daughter w/autism and a hearing

> impairment,I have

> tired alot of different medications, vitamins etc., on Machaela, she

> has

> just begun to eat different foods, before it was just french fries. I

> have

> joined the enzmyes and autism group a few months ago and I really dont

>

> understand. Do you bring you child to a doctor and they help you with

> it or

> is it something you can start on your own? Is there a website that I

> can

> read to find out what this if all about.

> HELP

> Thanks

>

>

>

>

[Guest guest]

EMIL BARRETTE wrote:Date: Wed, 24 Jul 2002 09:23:13 -0700 (PDT)

From: EMIL BARRETTE

Subject: Information

CTNATIVE@...

Hello: I had an accident about 40 years ago and banged up my knees and after

trying to recouperate from a knee operation the knees had arrthritis in them and

would not heal properly. Inside of two weeks i was crippled and could not walk.

The pain was so great all of my body was affected especially by back and neck. I

tried all kinds of arthritic medicines including taking twenty eight aspirins a

day. Finally my wife and our four kids moved to a dry climate and started taking

ENBREL. the end result is that I have been on this medicine since it's inception

and feel great. I can't run or play football, but I can walk and my wife and I

go for a three to four mile walk just about every day. ENBREL is a life saver

and the depression that I experianced for years is now gone and I feel the best

ever. Thank You ENBREL.

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[Guest guest]

Dear - So sorry to hear about your sister. She's had a lot to deal with in her short life. I'm not the person to give you the clinical details of AIH but there are people here, especially Jerry, to explain things in finer details. The treatment of AIH depends on what stage it is diagnosed. Its an insidious illness (like most other liver diseases) inasmuch the symptoms are so vague to begin with its put down to stress, overwork etc etc. with the main symptom initially being tiredness. Your sister will have a good team of doctors. AIH is where the body thinks the liver is a foreign body and does its level best to destroy it. The good news is that, although not a cure, drugs like prednisone & immuran can stop further inflammation and scarring. Without treatment cirrosis takes over. Once the inflammation is controlled, prednisone is reduced and a maintenance drug like Immuran takes its place. Regular blood tests are required, usually lifelong, but these arent a hassle. AIH sufferers can and do live normal lives and reach their three score years and ten according to my specialist and I fully intend to to do so. Your family need to ascertain at what stage the AIH is upon the biopsy as this will show at what grade your sister's AIH is.

Regards to your sister

Jan

[ ] Information

Hi, My name is . My sister was diagnosed with autoimmune Liver Disease today. I have read the information I can find on the internet about autoimmune disease but there isn't much if any information mentioning this in the Liver. So I was wondering if anyone could explain to me what it is all about, long term effects etc. Any information would be appreciated. She has already had cancer of the leg at 17 and then secondary cancer in the lung at 21, she is now 29 and when her liver wasn't working we all thought that the cancer had returned. So some members of the family are relieved that it is this instead. I'm not sure how to feel at the moment and would love more information. Thankyou for your time in reading this email. Kind regards Aston