mark

[Guest guest]

Jo,

You tell him! (hehehe)

Teri

> Mark,

>

> I cannot believe that you went back to work before you were

supposed to (LOL

> - this from the workaholic business owner who stops at the office

on her way

> home from the hospital!)

>

> Really, though, you need to take it easy, it is the only way that

you are

> going to heal and have the SCS do it's job in the long term.

>

> Hugs,

> Jo

>

> aka

> Mark's New Mom

> (The " other " Furball's owner)

[Guest guest]

I was told today that I was "too into this group", and how do you make someone realize that the condition doesn't go away, and many of your old friends don't care anymore

Hey Mark,

I had my youngest daughter tell me that once, she was worried that it make me depressed. She is beginning to see how benefical this group is to me. However Mark I don't know how to make someone realize it, she would listen to me as I would tell Dwight about what someone in the group said to me when I have been down and she just realized that this is a group that truly cares for each other.

I am keeping in my prayers.

Lin

[Guest guest]

Lin,

I agree, wonder what they would do if all of us showed up at the company doctor's office? Could he still say RSD doesn't exist.......?

Almost sounds like the one they are sending you to see, The Only RSD Expert! right!

Hoping for Pain Free Days!Sandi

Sandi,

Now that would be a sight. I think Mark should go to the media, maybe a little bad publicity would help his company understand.

I am not looking forward to going to Dr. O as he shall be called, I have to go the 19th and the 20th next month. Maybe I should take that editorial with me and ask him about it. Having to go to him one day is bad enough but having to see him 2 days in a row, I will have to ask for prayer that I don't totally lose it LOL.

This disease is hard enough to deal with let alone all the crap we have to go through to get proper treatment.

Well I hope everyone is having a low pain day,

Lin

[Guest guest]

> I was told today that I was " too into this group " , and how do you

> make someone realize that the condition doesn't go away, and many

of

> your old friends don't care anymore

>

To be honest, thought its all new to me, without this group I would

be far more depressed than I am. Considering all thats going on I

know that I can vent here, get information, laugh and cry and people

here are my best support some days!

Donna

[Guest guest]

Any doc can filled out the FMLA paperwork. My doc put my husband on it when he needed to be home to help with my daughter. They can't deny it.

Good Evening and Everyone,

At my work it used to be that you would be eligible for the FMLA as soon as the document was placed in your supervisor's hand. Earlier this year that was changed to the form having to be sent and approved by the Disability Department. The Disability Department is the same group of people that have made my life a living hell all week long, and they said nothing about it being approved.

The thing that really got to me the most when I spoke with their representative, is that they said their consulting physician had spoken to the surgeon today. I know that this is false as my surgeon is operating every Friday, and the office is closed until Monday. He will not delay a surgery for something as minor as this.

I never thought that the company would ever treat me like this. I have letters to my supervisor about what a wonderful support technician I am, and I have all favorable performance evaluations. It just seems like I am not worth anything to them after all of this.

I hope everyone is have a pain free moment.

The Furball Formerly Known as Greybeard

[Guest guest]

Mark,

Sorry have not been here for you threw all this bull your coompany is doing to you..

Between my sister having surgery and having grandbaby everyday and lots more happening. My daughter home from college. Her car breaking down. And so on I just havent had the energy or drive to come on. But i did read some of your post today and i wish i had been a shoulder for you to lean on. Sorry i wasnt here for u. You are a strong, intelligant, kind, caring man and in no way deserve this. I wish i could win the lotto or something and when my friends on here were alone and hurting i could fly to them and make things better or at least be company for them. Hang in there Mark. Have you ever thought of opening your own computer shop from your home? Then you could work at your own pace. Again my yahoo id is crazyformytim if ya need me. I stay in invisable mode but will turn it off just for you. Hugs and much Love JB Mark D Boone wrote:

Any doc can filled out the FMLA paperwork. My doc put my husband on it when he needed to be home to help with my daughter. They can't deny it.

Good Evening and Everyone,

At my work it used to be that you would be eligible for the FMLA as soon as the document was placed in your supervisor's hand. Earlier this year that was changed to the form having to be sent and approved by the Disability Department. The Disability Department is the same group of people that have made my life a living hell all week long, and they said nothing about it being approved.

The thing that really got to me the most when I spoke with their representative, is that they said their consulting physician had spoken to the surgeon today. I know that this is false as my surgeon is operating every Friday, and the office is closed until Monday. He will not delay a surgery for something as minor as this.

I never thought that the company would ever treat me like this. I have letters to my supervisor about what a wonderful support technician I am, and I have all favorable performance evaluations. It just seems like I am not worth anything to them after all of this.

I hope everyone is have a pain free moment.

The Furball Formerly Known as Greybeard

[Guest guest]

Mark,

I understand stubborn, and understand how you can want to try and deal with all

this yourself (physically, at least).

You do know what comes after stubborn in the dictionary, don't you???

Please, get thee to the ER.

Hugs,

Jo

[Guest guest]

sorry to hear of the infection. if the antibiotics work why cann't they

leave the scs in. i will ay extra prayers that no surgery wil be needed

and infection goes away. what casues ths anyway. hug cathy

[Guest guest]

Mark - I absolutely hate hearing that you have to go through all of this. Lordy, I'd send you my own SCS if I could just get it to work properly.....I bet it would treat you better than yours has. Please know that each one of us will be holding your hand while you're in the OR . Hope you have a lot of hands (picturing this image).

I truly believe that as difficult as all of this is for us that there will come a time when it will all make sense....that we will come to understand that there is a balance in our lives between the garbage and the treasures. I sincerely hope that for you this point will be quick in arriving. Hugs to you - Barbara

[Guest guest]

Mark - Please

know that each one of us will be holding your hand while you're in the OR

.. Hope you have a lot of hands (picturing this image).

I

truly believe that as difficult as all of this is for us that there will come a

time when it will all make sense....that we will come to understand that there

is a balance in our lives between the garbage and the treasures. I

sincerely hope that for you this point will be quick in arriving. Hugs to

you - Barbara

Barbara,

            I have to admit when I first read

your post I was almost in tears. The visual that you presented to me helped me

enormously today, and just made everything that much easier. I did have to give

up the SCS because the infection was just too much to take care of. The

incision has just been leaking infectious material all week, and there was no

easy way to clear it up without the removal of the controller. The doctors also

checked the entire length of the lead to make sure that there was nothing that

had grown into that area. They have taken a total of three cultures at

different times during the week so hopefully we will be able to make sure that

it doesn’t make a repeat appearance.

I have to tell you

that I could visualize everyone holding my hand, and I swear I felt a soft

caress lightly touching the back of my hand. I just hope looking at my butt

didn’t scare too many of you away. Back to the serious side of things, I want

to thank all of you for the prayers and the good thoughts to keep me going

through all of this. The doctors want to let this completely heal before we

talk about going back down that path, and I know this will take a month or

better to complete the healing.

This has been a true

pain in the butt, but it has taught me a great deal about the group, and all of

the members. I know that there may come a time where we all go separate ways,

but I know that all of you will be in my mind, and my heart for many years to

come. I hope that everyone is having a reduced pain night, and I hope that

everyone knows just how much you all mean to me.

The Furball Formerly

Known as Greybeard

Mark B

           

[Guest guest]

Mark - I'm hoping that this will be the last unforeseen truck stop on your journey. Originally I had started to type that we would all be in your pocket but it then occurred to me that you wouldn't exactly be wearing that piece of apparel and that the group would have been placed in a position that was a mite awkward. This is all behind you now (literally and figuratively). After a time, I hope that they are able to hook you back up again. I also hope that they are doing their level best to keep you comfortable in the meanwhile.

Were they able to keep the leads and electrodes undisturbed? I'm also hoping this for you since it would make the eventual reimplantation easier on you. Rest up, bucko, and give yourself some good healing time. You're cared about. BarbaraMark D Boone wrote:

Mark - Please know that each one of us will be holding your hand while you're in the OR . Hope you have a lot of hands (picturing this image).

[Guest guest]

I did have to give up the SCS because the infection was just too much to take care of.

Mark,

Sorry to hear you had to give it up, and hope you can try it again and it be successful. Are you pretty sore from having been operated on in the same place so close together? Talked to my pain doc's nurse Fri. and she said there is still some processing for them to go through since he is new to the hospital I use, so they can't work on scheduling yet. It'll be into August before anything will happen. I'm supposed to call back after the first week of Aug. and see how they are progressing. I'm glad she invited the call so I won't feel as if I'm pestering this time, though the nurse has always been very courteous and not acted like I'm a nuisance. You're right--the surgery is a literal "pain in the butt!"

Love,

N.__________________________________________________

[Guest guest]

Hi my friend, it is JoAnn and have not got a note to you for awhile. Sure have kept you in my prayers and thoughts though just wish as Barbara said could of been there to actually hold your hand. I think we all need the touch of a friend that really cares for us. It is soothing and helps relax us. Sorry you loss the SCS for now but perhaps it is only gone for short time. Try not to give up hope for one to be put in and do great job.

Hey, I would most likely taken a peek at your behind just out of plain old curiosity. Besides like to watch surgery so that alone would of gotten me to watch. Most likely your behind was covered anyway my friend. Just glad you felt our hands holding you and loving on you. Many hugs my friend, and know you touch my heart with your caring and your just being such a wonderful man who makes me proud to call you friend. Hugs

s Momma

JoAnn

RE: Mark

Mark - Please know that each one of us will be holding your hand while you're in the OR . Hope you have a lot of hands (picturing this image).

I truly believe that as difficult as all of this is for us that there will come a time when it will all make sense....that we will come to understand that there is a balance in our lives between the garbage and the treasures. I sincerely hope that for you this point will be quick in arriving. Hugs to you - Barbara

Barbara,

I have to admit when I first read your post I was almost in tears. The visual that you presented to me helped me enormously today, and just made everything that much easier. I did have to give up the SCS because the infection was just too much to take care of. The incision has just been leaking infectious material all week, and there was no easy way to clear it up without the removal of the controller. The doctors also checked the entire length of the lead to make sure that there was nothing that had grown into that area. They have taken a total of three cultures at different times during the week so hopefully we will be able to make sure that it doesn’t make a repeat appearance.

I have to tell you that I could visualize everyone holding my hand, and I swear I felt a soft caress lightly touching the back of my hand. I just hope looking at my butt didn’t scare too many of you away. Back to the serious side of things, I want to thank all of you for the prayers and the good thoughts to keep me going through all of this. The doctors want to let this completely heal before we talk about going back down that path, and I know this will take a month or better to complete the healing.

This has been a true pain in the butt, but it has taught me a great deal about the group, and all of the members. I know that there may come a time where we all go separate ways, but I know that all of you will be in my mind, and my heart for many years to come. I hope that everyone is having a reduced pain night, and I hope that everyone knows just how much you all mean to me.

The Furball Formerly Known as Greybeard

Mark B

[Guest guest]

Mark, Take care of yourself during this healing period and you will

soon be feeling so much better. I'm sure it must be very difficult

having that SCS and then it being removed so suddenly even before it

had a chance to truly work but there will come a time again when

things will improve!

Many gentle hugs

Donna

[Guest guest]

Hi my

friend, it is JoAnn and have not got a note to you for awhile. Sure have

kept you in my prayers and thoughts though just wish as Barbara said could of

been there to actually hold your hand. I think we all need the touch of a

friend that really cares for us. It is soothing and helps relax us. Sorry

you loss the SCS for now but perhaps it is only gone for short time. Try

not to give up hope for one to be put in and do great job.

Hey, I would most likely taken a peek at your behind just out of plain old

curiosity. Besides like to watch surgery so that alone would of gotten me

to watch. Most likely your behind was covered anyway my friend.

Just glad you felt our hands holding you and loving on you. Many hugs my

friend, and know you touch my heart with your caring and your just being such a

wonderful man who makes me proud to call you friend. Hugs

s

Momma

JoAnn

JoAnn,

          You are

so right as it has been quite some time since we have spoken. I thank you for

the thoughts and prayers, and I have to say that this procedure probably was

easier to face than any of the others, and I have to say that I did picture

some of my friends with me. I swear that I even felt the soft caress of a

friend’s hand brushing against mine. I think that it was easier just because I

knew that I didn’t have a choice in the matter due to the infection. I am still

not sure how I got the cellulitis, but it was relatively easy to guess how I

was going to get rid of it. I had 5 days worth of antibiotics pumped through an

IV lead that I had for 5 days, and it still had not gone away.

I thank everyone for the prayers, and I know that I

will get the SCS back, but it is kind of hard to taste a little relief, and

then have to have it taken away. I do have to say that this is getting to be a

pain in the butt, and I mean that literally. I now have a bandage about two

inches thick on my right cheek so I guess that they don’t want me to see what

it looks like.

I also take pride in calling you friend, and I

apologize that it has taken me this long to speak with you again. I haven’t

been as active as I would like to be these days as I have so many different

things going on with the insurance company, doctors, and my employer all

digging for a piece of me at the same time. My doctor said that they want this

to fully heal prior to talking about implanting the SCS again. I guess in the

meantime I will just pray a lot and try to keep the pain to a minimum.

I hope that everyone is doing well, and I will be as

active as long as my butt will let me sit on it. Thank all of you for the

prayers and encouragement,

Greybeard the Wonder Dog

PS: I will always be Greybeard to you JoAnn    

[Guest guest]

Hey, I would most likely taken a peek at your behind just out of plain old curiosity.

JoAnn,

Is this the same JoAnn that I know?!!! You shocked me, lady!!

Love,

N.

[Guest guest]

Hey, I

would most likely taken a peek at your behind just out of plain old

curiosity.

JoAnn,

Is this

the same JoAnn that I know?!!! You shocked me, lady!!

Love,

N.

            Hey Ladies,

     I

am glad I could be the Butt of someone’s joke!!

     Furball

           

 

[Guest guest]

Mark,

Please know my thoughts and prayers are with you all the time. Even if i dont come on for a few days and post im still thinking of you and the group. It is so weird but the other day when i read Barbara's post , in my mind i pictured it too.. My mind took the pic i saw of you and a whole group of hands on you. Im so sorry you had to give your buddy up. I will prayer that you heal fast and can get your buddy back. Just remember i love ya buddy and im me you know the name if you need me... Hugs Jeannie

Mark D Boone wrote:

Barbara,

I have to admit when I first read your post I was almost in tears. The visual that you presented to me helped me enormously today, and just made everything that much easier. I did have to give up the SCS because the infection was just too much to take care of. The incision has just been leaking infectious material all week, and there was no easy way to clear it up without the removal of the controller. The doctors also checked the entire length of the lead to make sure that there was nothing that had grown into that area. They have taken a total of three cultures at different times during the week so hopefully we will be able to make sure that it doesn’t make a repeat

appearance.

I have to tell you that I could visualize everyone holding my hand, and I swear I felt a soft caress lightly touching the back of my hand. I just hope looking at my butt didn’t scare too many of you away. Back to the serious side of things, I want to thank all of you for the prayers and the good thoughts to keep me going through all of this. The doctors want to let this completely heal before we talk about going back down that path, and I know this will take a month or better to complete the healing.

This has been a true pain in the butt, but it has taught me a great deal about the group, and all of the members. I know that there may come a time where we all go separate ways, but I know that all of you will be in my mind, and my heart for many years to come. I hope that everyone is having a reduced pain night, and I hope that everyone knows just how much you all mean to me.

The Furball Formerly Known as Greybeard

Mark B

[Guest guest]

Mark,

At least there is a little bit of fun going around.....you need the laughs anyways!

I went for my appointment to see a Surgeon about having the SCS trial, and was told that my appointment had been cancelled 2 days after I made the appointment......(and no one called to tell me that, so I had to ride 1 1/2 hours in the car just to get there, and then listen to Gene b**ch and complain all the way home over it, another 1 1/2 hours!).....and the next earliest appointment I could get in would be in November!

I just told the Receptionist to forget it, waiting that long is just plain out of the question, because for one, I would forget all about the appointment, and, because Gene won't drive in that area during the winter ever again. We did it all winter while I was pregnant with Petey, back and forth to my OB appointments each month/week.....and watched too many vehicles slide down the hills and thru red lights because of the ice, and too many accidents. He absolutely refuses to drive down there again.

So, it looks like I'm just totally out of luck.......but, I'm hoping that my Pain doc will be able to get my pain meds to work better for me and that way, I won't have to worry about it.

Tonia

-------Original Message-------

Hey, I would most likely taken a peek at your behind just out of plain old curiosity.

JoAnn,

Is this the same JoAnn that I know?!!! You shocked me, lady!!

Love,

N.

Hey Ladies,

I am glad I could be the Butt of someone’s joke!!

Furball

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Thanks Greybeard and wonder will you be able to get pain meds and other meds to help with the rsd? Do not know if you are covered for that at this time. What is going on at your job. Did they lay you off or do you still work there? You might not recall but last Oct. HW/Compact laid off saying that her position title and duties not needed now which was told on Friday. On Monday the girl from HW that had been moved into her office area was now holding 's title and oh how we tried to get to sue but she was so scared of going without insurance length of suit as her husbands is not as good. She just panicked and we were not able to get her to do anything. She had to sign some paper later saying she would not sue but still think she should check with lawyer. HW/Compact though would be hard one to go against.

Anyway, thanks for being a friend, and know you and Rhonda speak often. I called her and she was asleep and talked to her mom and wrote her but not heard back and wondering if she is okay? I will try again to get ahold of her. She is really special I know to you but she is special to me also.

Take care my friend and don't worry about writing and how often, just once in awhile if you want to talk let me know. I listen well, comes with kids, age and having to live through and with many trials in life. Hugs and get well fast.

JoAnn

RE: Mark

Hi my friend, it is JoAnn and have not got a note to you for awhile. Sure have kept you in my prayers and thoughts though just wish as Barbara said could of been there to actually hold your hand. I think we all need the touch of a friend that really cares for us. It is soothing and helps relax us. Sorry you loss the SCS for now but perhaps it is only gone for short time. Try not to give up hope for one to be put in and do great job.

Hey, I would most likely taken a peek at your behind just out of plain old curiosity. Besides like to watch surgery so that alone would of gotten me to watch. Most likely your behind was covered anyway my friend. Just glad you felt our hands holding you and loving on you. Many hugs my friend, and know you touch my heart with your caring and your just being such a wonderful man who makes me proud to call you friend. Hugs

s Momma

JoAnn

JoAnn,

You are so right as it has been quite some time since we have spoken. I thank you for the thoughts and prayers, and I have to say that this procedure probably was easier to face than any of the others, and I have to say that I did picture some of my friends with me. I swear that I even felt the soft caress of a friend’s hand brushing against mine. I think that it was easier just because I knew that I didn’t have a choice in the matter due to the infection. I am still not sure how I got the cellulitis, but it was relatively easy to guess how I was going to get rid of it. I had 5 days worth of antibiotics pumped through an IV lead that I had for 5 days, and it still had not gone away.

I thank everyone for the prayers, and I know that I will get the SCS back, but it is kind of hard to taste a little relief, and then have to have it taken away. I do have to say that this is getting to be a pain in the butt, and I mean that literally. I now have a bandage about two inches thick on my right cheek so I guess that they don’t want me to see what it looks like.

I also take pride in calling you friend, and I apologize that it has taken me this long to speak with you again. I haven’t been as active as I would like to be these days as I have so many different things going on with the insurance company, doctors, and my employer all digging for a piece of me at the same time. My doctor said that they want this to fully heal prior to talking about implanting the SCS again. I guess in the meantime I will just pray a lot and try to keep the pain to a minimum.

I hope that everyone is doing well, and I will be as active as long as my butt will let me sit on it. Thank all of you for the prayers and encouragement,

Greybeard the Wonder Dog

PS: I will always be Greybeard to you JoAnn

[Guest guest]

Oh well, just a little quirk of looking at what know shouldn't and besides after working 4 years in hospital unless Mark has some secret, do you Mark, think it just would look like most seen already. Hey, you would look also , bet ya!

s Momma

JoAnn

RE: Mark

Hey, I would most likely taken a peek at your behind just out of plain old curiosity.

JoAnn,

Is this the same JoAnn that I know?!!! You shocked me, lady!!

Love,

N.

[Guest guest]

Take picture of that bandage so and rest of nurses and those with SCS's can make sure it looks okay.......see we take care of one another so we need that peek Greybeard/Mark.

s Momma(well maybe not today)

JoAnn

RE: Mark

Hey, I would most likely taken a peek at your behind just out of plain old curiosity.

JoAnn,

Is this the same JoAnn that I know?!!! You shocked me, lady!!

Love,

N.

Hey Ladies,

I am glad I could be the Butt of someone’s joke!!

Furball

[Guest guest]

> Oh well, just a little quirk of looking at what know shouldn't and

besides after working 4 years in hospital unless Mark has some

secret, do you Mark, think it just would look like most seen

already. Hey, you would look also , bet ya!

After all the years I've worked in medical settings one butt looks

just like another (well of course those young ones thats a different

story *blush*)LOL!

Hugs

Donna

[Guest guest]

Joann,

They did that same thing to my husband and just changed job title. Was her injury from work?JeannieJoAnn & Russ Ford wrote:

Thanks Greybeard and wonder will you be able to get pain meds and other meds to help with the rsd? Do not know if you are covered for that at this time. What is going on at your job. Did they lay you off or do you still work there? You might not recall but last Oct. HW/Compact laid off saying that her position title and duties not needed now which was told on Friday. On Monday the girl from HW that had been moved into her office area was now holding 's title and oh how we tried to get to sue but she was so scared of going without insurance length of suit as her husbands is not as good. She just panicked and we were not able to get her to do anything. She had to sign some paper later saying she would not sue but still think she should check with lawyer. HW/Compact though would be hard one to go against.

Anyway, thanks for being a friend, and know you and Rhonda speak often. I called her and she was asleep and talked to her mom and wrote her but not heard back and wondering if she is okay? I will try again to get ahold of her. She is really special I know to you but she is special to me also.

Take care my friend and don't worry about writing and how often, just once in awhile if you want to talk let me know. I listen well, comes with kids, age and having to live through and with many trials in life. Hugs and get well fast.

JoAnn

RE: Mark

Hi my friend, it is JoAnn and have not got a note to you for awhile. Sure have kept you in my prayers and thoughts though just wish as Barbara said could of been there to actually hold your hand. I think we all need the touch of a friend that really cares for us. It is soothing and helps relax us. Sorry you loss the SCS for now but perhaps it is only gone for short time. Try not to give up hope for one to be put in and do great job.

Hey, I would most likely taken a peek at your behind just out of plain old curiosity. Besides like to watch surgery so that alone would of gotten me to watch. Most likely your behind was covered anyway my friend. Just glad you felt our hands holding you and loving on you. Many hugs my friend, and know you touch my heart with your caring and your just being such a wonderful man who makes me proud to call you friend. Hugs

s Momma

JoAnn

JoAnn,

You are so right as it has been quite some time since we have spoken. I thank you for the thoughts and prayers, and I have to say that this procedure probably was easier to face than any of the others, and I have to say that I did picture some of my friends with me. I swear that I even felt the soft caress of a friend’s hand brushing against mine. I think that it was easier just because I knew that I didn’t have a choice in the matter due to the infection. I am still not sure how I got the cellulitis, but it was relatively easy to guess how I was going to get rid of it. I had 5 days worth of antibiotics pumped through an IV

lead that I had for 5 days, and it still had not gone away.

I thank everyone for the prayers, and I know that I will get the SCS back, but it is kind of hard to taste a little relief, and then have to have it taken away. I do have to say that this is getting to be a pain in the butt, and I mean that literally. I now have a bandage about two inches thick on my right cheek so I guess that they don’t want me to see what it looks like.

I also take pride in calling you friend, and I apologize that it has taken me this long to speak with you again. I haven’t been as active as I would like to be these days as I have so many different things going on with the insurance company, doctors, and my employer all digging for a piece of me at the same time. My doctor said that they want this to fully heal prior to talking about implanting the SCS again. I guess in the meantime I will just pray a lot and try to keep the pain to a minimum.

I hope that everyone is doing well, and I will be as active as long as my butt will let me sit on it. Thank all of you for the prayers and encouragement,

Greybeard the Wonder Dog

PS: I will always be Greybeard to you JoAnn