Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 In a message dated 8/22/00 9:53:04 AM Eastern Daylight Time, carmela999@... writes: << Prevacid, but I have big trouble swallowing capsules... so if anyone can suggest something I can take OTC which is NOT a capsule I'd appreciate it... I tried taking Gaviscon for acid reflux, it works OK, but doesn't really have long-lasting effects. >> Carmela Rene' here. I use Prevacid, I open the capsule and empty it in a glass and pour orange juice in the glass. Remember you must pour the orange juice in the glass immediately, to assure that the med does not lose it's potency. Hope this can help!! I haven't been posting much lately, but when I get home, hopefully I'll be able to post more often. Hope everyone is having a pain free day! Love and squeezes, Rene' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 In a message dated 8/22/00 9:53:04 AM Eastern Daylight Time, carmela999@... writes: << should I be taking Folic acid or any other vitamins? If so, what kind? My doctor didn't say anything about vitamins either.. >> Carmela, If you are taking the metho, you should take folic acid!!!! Believe me it helps a lot. I'm on 9 pills a week right now and I'm not having any stomach problems. As far as the vitamins are concern. I don't take them, I can't because I take Rocaltrol. Rocaltrol is a calcium supplement, much more powerful than calcium. I would like to ask you and anyone else in the group, if their having problems w/hair loss while taking the metho. My hair is coming out pretty bad!! Does anyone have any suggestion. Love and squeezes Rene' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Carmela, My dr told me to take Pepcid AC chewable tablets OTC at 11pm with a glass of water. I take this with the prevecid which I take in the morning. It seems to help me. Might want to check with your doctor. Are you one Methotrexate, I can't remember. The folic acid is taken to go along with the meth. Are you feeling better besides the acid reflux? I sure do hope so. Keep us posted. Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Rene, hair loss is a side effect of the methotrexate. Fortunately, I was never on a high enough dose to loose mine. Hobbs uses Rogaine for men and it has helped her a lot. She could be more specific with the regime she does and she uses it or was using it twice a day. I'm sure she'll give her input on the Rogaine. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Carmela, I take Tetralac. It works really fast. The are pills about the size of an asprin and you can chew them or just swallow them. I got to where I hated the sight of Tums and one of my friends told me about the Tetralac. I couldn't believe how fast they worked. Glenda Luvs you >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>> On Tue, 22 Aug 2000 11:18:11 EDT, Rpolychondritisegroups wrote: > Carmela, My dr told me to take Pepcid AC chewable tablets OTC at 11pm with a > glass of water. I take this with the prevecid which I take in the morning. > It seems to help me. Might want to check with your doctor. > > Are you one Methotrexate, I can't remember. The folic acid is taken to go > along with the meth. > > Are you feeling better besides the acid reflux? I sure do hope so. > > Keep us posted. > > Love > _______________________________________________________ Say Bye to Slow Internet! http://www.home.com/xinbox/signup.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 In a message dated 8/22/00 4:54:34 PM Pacific Daylight Time, carmela999@... writes: << again, sorry, I'm just in one of those moods... happy/sad/happy/depressed/happy/ballistic/happy/depressed........ >> Carmela, I'm going through the same mood swings. I think mine is hormones though. Must get them checked before I hurt someone.LOL Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Rene', and we are happy to have you too. You bring so much into the group. We have all been where you are today. ( and that's normal, if you can consider any of us normal.lol) Don't feel guilty about the way you feel. I find when I get like this, I just go with it. Let the crying out, the yelling and all the frustrations go. I know you don't get instant relief, but it does help. Please don't ever hesitate to tell us how you are feeling. This is why we are all here. You know that we all love you and will do anything to help you through the bad times, just as you are there for us. It will be brighter, maybe tomorrow or the next day, but it does get better. You're in my thoughts as always. love & a REALLY BIG HUG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Rene, I am having hair loss. My Rheumy said it is from the Metho also. He suggested lowering my dose but I said no. I'm having some improvements and I'd rather have less hair and feel better so I see it as a tradeoff. Hugs, Sandy ----- Original Message ----- > Believe me it > > I would like to ask you and anyone else in the group, if their having > problems w/hair loss while taking the metho. My hair is coming out pretty > bad!! Does anyone have any suggestion. > > Love and squeezes > > Rene' > > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Hi Well, this is my latest update... I saw my GYN today for an annual check up... can you imagine that to have the result of a pap smear it's a 12 week wait if sent to the hospital... but if I bring the papsmear to a lab next door for $40 I can have the result in 24 hrs... so I paid the $40....:o/ anyway, my GYN now knows about my recent illness and told me to take Citracal-D, apparently it's easier on the tummy and easily absorbed into the GI system... I'll be trying that, plus the pepcid AC... But on Thur I'll be seeing my GP to have my salary insurance form filled out to continue one more month of progressive return to work... so I'll be asking her about the Prevacid... and perhaps vitamins in general, I'm hoping it'll help with the fatigue I've been feeling, also due to anemia, which I've had for a long time now... On Monday I have my colonoscopy, which I'm not looking forward to, but it has to be done... then I'll know why I bleed with almost every BM I have...and that is what is probably causing my anemia too,... but it's the preparation for the test I'm not looking forward to... I won't be able to eat the whole day before and with the prednisone making me stir crazy to eat, I have no idea how I'm gonna cope... I'll just have to take it easy and rest and pray... so far, that's it... I have other appointments later on with a hematologist to review and check my anemia, but that's in Sept... I have another rheumy appt on Sept 5, just for a follow-up visit.. I should be down to 50 mg of pred by then... other than that I'm feeling fine, except the occasional feeling of depression and crazy hunger...... ok, I'm rambling....sigh.. love you all Carmela ********************************* >From: RCColloran@... >Reply-To: Rpolychondritisegroups >To: Rpolychondritisegroups >Subject: Re: tummy upset! >Date: Tue, 22 Aug 2000 11:18:11 EDT > >Carmela, My dr told me to take Pepcid AC chewable tablets OTC at 11pm with >a >glass of water. I take this with the prevecid which I take in the morning. >It seems to help me. Might want to check with your doctor. > >Are you one Methotrexate, I can't remember. The folic acid is taken to go >along with the meth. > >Are you feeling better besides the acid reflux? I sure do hope so. > >Keep us posted. > >Love > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Hey I haven't hurt anyone yet, well not physically anyway...but i'm damn close though, especially when i'm driving... OH LORD!! road rage!! another pred side effect!!! what's next?? LOL!! Carmela **************** ><< again, sorry, I'm just in one of those moods... > happy/sad/happy/depressed/happy/ballistic/happy/depressed........ > >> >Carmela, I'm going through the same mood swings. I think mine is hormones >though. Must get them checked before I hurt someone.LOL > >Love > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 22, 2000 Report Share Posted August 22, 2000 Hi yep, that's what it's come to... and the $40 is only for the testing, I brought it over, because it's just the next building over and the doctor's office doesn't deliver... if you want the result pronto, you bring it yourself... it's just an extra service they provide if you don't want to wait the 12 wks through the hospital labs... If I'm feeling up to it, I will take you up on the chat on Sunday, I'll let you know.... I'm truly not looking forward to Sun/Mon... I'm worried I'm gonna get sick and throw up...if I don't eat, I get hunger pangs and feel nauseous... plus I have to drink that fleet thingy twice, ugh!!! I use to take iron for the longest time because the doctor thought I was anemic due to heavy periods, but even while on iron, i was borderline anemic but my body wasn't using the iron properly... they even thought I had Thalassemia (sp?) or pernicious anemia, I don't have either apparently, but may be a carrier... the hematologist will explain all this to me when I see him in Sept. I think I may have internal hemmies as well due to being constipated for such a long period of time, even Colace and roughage wouldn't help very much... Ever since I got sick in May, I stopped taking iron because I thought the pain on my side was perhaps due to the iron and iron stores in my system or a colon blockage or something, but that was not the case, but once I noticed the bleeding I just stopped taking it altogether, because it would constipate me and make things worse...now i just feel tired, but not that much more than when I was taking the iron. go figure!! anyway, thanks for the offer for the chat... I'll let you know... I'm thinking of you also, you are in my prayers and thoughts love you to bits Carmela ********************* >Carmela, that is outrageous about your pap test. $40???? to walk it to the >lab. Boy we just can't seem to win huh? I'll be praying for you all day >Mon. but I just know everything is going to be okay. My husband had it >done >a few months ago and he did just fine. He also had bleeding and they found >it was internal hemmies and a polyp they removed. While you are prepping >for >this just e mail us and we will give you moral support. If you feel like >chatting just tell me. I have a headset now so we can talk and take your >mind off food. (although you might be running to the bathroom every now and >then.LOL) > >I'm glad you are checking into your anemia. Are you taking iron for it >now? > > >I just want you to get all better and start feeling really good again. You >know I'm thinking of you. Take care and let me know if you need to chat or >something. > >Love > ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
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