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Hi everyone, sorry I haven’t been on the boards lately, I have been so

busy! Where does time go and so quickly at that?

Thanks to Elaine and all who replied about the horse riding and ice

skating. I think I will stay clear of them for now until I see my

surgeon. Which isn’t until the 13th of December? Unless I see him when

I go to my Ortho’s office?

How is everyone, hope you are all ok and posting lots of beautiful

photos……..reminds me to post some recent ones of my self- I will be 3

months post op this coming Thursday, I can’t believe it!!!!!!!!!

Everyone on the boards is looking great and sounding great…….Joanne from

London, how are those braces treating you?

Remember to keep on smiling and to the new comers welcome and no worries

for you have come to the right place.

Good look to those with up coming surgeries……I have everything crossed

possible for you and will send my post op vibes your ways!

Regards,

Kat_uk

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  • 1 year later...

hello im new here.im trying to get more support from someone who has

had this surgery.my doctors want me to get it,im scared big time.im

457 pounds,i have been this way since my 20s,but its starting to

affect my health.i hope someone can help me through this.my name is

wanda,im from minnesota,im 43,my email is patrishamae@... same

as my yahoo instant messenger.

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Hi! I have not " crossed over yet " but will on Feb 3/04. I too live

in Minnesota, where do you live? I live in St. . I am only a

year younger than you, (42), and so far starting out at 310# pre-op.

I know how ou feel. Everytime I read about a death or complications,

I start 2nd guessing myself. Now, I have decided that this surgery

will give me an opportunity to start a new life. I have been heavy

all my life, I don't know what it's like to be thin, or not obese. I

have only one co-morbidity and that is severe sleep apnea, which was

diagnosed 4 years ago and I have been sleeping with a Bi-level CPAP

everynight since. I can't wait to get rid of it! To shut it off for

good. I think about my 8 year old son, who want's me to play ball

with him, and do other " active things " that I can't do right now

because it's physically impossible. What a blessing to me it would

be to take advantage of this tool. I have not doubt in my mind, I

will go through with it. If you need to research more, obesity.com

is a big help. If you need any help, I'm just an " e-mail " away. :)

Pat

Pre-op: 310

Date: 2/3/04

Open RNY

Dr. Glenn Burleson

> hello im new here.im trying to get more support from someone who

has

> had this surgery.my doctors want me to get it,im scared big time.im

> 457 pounds,i have been this way since my 20s,but its starting to

> affect my health.i hope someone can help me through this.my name is

> wanda,im from minnesota,im 43,my email is patrishamae@y... same

> as my yahoo instant messenger.

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  • 2 months later...

Dear Cara,

Hope sounds like a beautiful name.

Congrats!

Love isha.

-- RE: Hello Everyone

Hi. Everyone ...it has been a really long time since I have posted. As for

the new folks...welcome these guys are a great sister/brotherhood and are

truly lifesavers.

Okay.... so are you ready for the big news everyone?/// I AM PREGNANT!

ANY ADVICE?

I love you all very much.

Love,

Cara

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Hi Gail,

Welcome to the family!

Please don't be scared. You are lucky to be diagnosed now. The best thing

you can do is to be proactive in your treatment and fight this illness hard.

It has been beaten and can be again. Don't be a victim.

The main problem with many people on this list is that they were

misdiagnosed or mistreated with long doses of prednisone for so long that by

the time they had a chance to fight against this illness, they were fighting

secondary conditions also, so now they fight to reclaim their lives harder.

You won't be like that. Just learn to take no crap from a doctor, learn that

you are the boss, and find the treatment plan that works for you. We are all

here to support you on your journey to health again.

Once again welcome,

Aisha.

-- Hello Everyone

Hello Everyone,

I'm new to this group and this is my first post. I haven't been

formally diagnosed with NS yet but I'm having a bronchoscopy and

mediastinoscopy with biopsy tomorrow. Hopefully, after that the docs

will know for sure and start me on treatment.

I've been having problems since August '03. First, it was

joints - ankles and wrists. The rheumatologist told me it was RA.

Then in November, the neuro part started. First, it was numbness and

tingling in my face and head. Then the numbness went to my torso and

legs. An MRI showed demylination, so then the neurologist thought it

was MS. After a multitude of negative blood work and lumbar puncture,

something finally showed up on a chest X-ray in December. The

neurologist referred me to chest specialist who ordered a CT scan and

the biopsy. The radiologist reporting the CT told me it looked like

sarcoid and the chest doc is sure that it's neurosarcoid but won't

treat me until he gets the results of the biopsy. So, here I am.

I've enjoyed reading your e-mails but to tell the truth, they really

scare me. My mother had Alzheimer's before she died and the thought

of losing my memory is not vey appealing.

Anyway, I've rambled on long enough.

Thanks for listening,

Gail

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