Re: Do any of ya'll fall into this category - from June bug

[Guest guest]

Hi June,

My PLS started in the top and is moving down. So, I don't use a wheelchair or

walker and can walk okay right now. My speech and swallowing are terrible;

however, with the right medication I can talk better now (slower but better)

than I have in the past several months. It is much clearer than before. And,

with everything, there are good days and bad days. Speech and swallowing are

much more difficult when I'm tired.

Hope this helps.

Rick Pallas

4855 Lakeridge Drive

Apt 2B

Ypsilanti, MI 48197

rpallas@...

Do any of ya'll fall into this category - from June bug

Hi this is June in Tallahassee, Fl. I just wanted to ask any of you the

following questions: Are any of you in a wheelchair all day? Do you have

therapy 3 times a week at home? Has your legs " jumped " steady for 3 days

without

sleeping? And what do you take or do when it goes on that long? And the last

question for all of you: Has your speech gotten worse to the point that

others

cannot understand what you are saying or are there good days and bad days for

the speech or does the medication affect the speech? My husband Charlie has

6 crowns in his mouth and the crowns have been coming off and the dentist has

reglued them or something and they still are coming off, so now he wants to

pull 6 teeth and put in a whole upper plate and I was wondering do you think

it

will affect his condition to go thru the extraction of the six teeth and put

the upper denture in. Please let me know all you good sweet people out there.

June bug

[Guest guest]

Hi June,

I have varying speech. It goes from being almost normal to barely

understandable. It all depends on how I'm feeling, how much sleep I

get, etc.

I don't see it getting worse though, thank goodness!

Thomson

[Guest guest]

Hey there June,

I dont have a lot of problems with my speach, only when I am tired or try to

raise my voice.

I used to have problems sleeping too, but now I sleep all night until my dogs

wake me up to go potty.

I take 4 baclofen, 3 Trazadone, 1 Neurotin, and smoke a little medical

marijuanna at bed time.

Since I started the Neurotin and med marijuana I get a real restful sleep.

My hubby has been having a hard time sleeping lately and they are going to put

him through a sleep study to try to figure things out, that might be an option

for Charlie too.

Your poor Charlie and your self have been through so much. My prayers are with

you. Sandy

Do any of ya'll fall into this category - from June bug

Hi this is June in Tallahassee, Fl. I just wanted to ask any of you the

following questions: Are any of you in a wheelchair all day? Do you have

therapy 3 times a week at home? Has your legs " jumped " steady for 3 days

without

sleeping? And what do you take or do when it goes on that long? And the last

question for all of you: Has your speech gotten worse to the point that

others

cannot understand what you are saying or are there good days and bad days for

the speech or does the medication affect the speech? My husband Charlie has

6 crowns in his mouth and the crowns have been coming off and the dentist has

reglued them or something and they still are coming off, so now he wants to

pull 6 teeth and put in a whole upper plate and I was wondering do you think

it

will affect his condition to go thru the extraction of the six teeth and put

the upper denture in. Please let me know all you good sweet people out there.

June bug

[Guest guest]

Hi Sandy, thank you for the e-mail. I am still gonna send the dance video

reallllllll soon I promise. Lots of love to you. June bug