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,

I've had severe sinus problems since I've had AIH. Don't know if there's a

link between sinuses and AIH, but I suspect there might be. My Internist

gave me a prescription for an anti-bacterial to see if it would help. It

didn't make much difference, so it's not a bacterial infection. I've

learned to live with it except when I have sinus headaches (rarely). Then

I take two Sinutab, undoubtedly verboten, with two Bufferin. I only have

to do this about once every couple of weeks and it gets rid of the

headache. I wouldn't recommend this to anyone who is sensitive to meds or

who doesn't want to take risks, but it does work for me.

Take care,

Geri/AIH

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The only thing that really works for me is Ciprofalaxin~ Cipro for short, i even

take it post~transplant. Another good one for sinus is Augmentin. Good Luck!! I

am just getting over a sinus infection, I get them quite often and quite frankly

they SUCK!!

Take Care!! Lori C. AIH Transplanted 3~11~97

[ ] antibiotic

Does anyone know of a safe anti-biotic for a sinus infection? I took

Septra, a sulfa, and got the brown urine symptom of liver distress. This Septra

was supposed to be OK, filtered through the kidneys, not the liver. I took 10

mg. of Pred. instead of my usual 5 , but had to stop the anti-biotic., even

though I skipped 1 dose and then tried taking one-half the dose at a time.

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Leona,

Augmentin was what I took. It didn't make a radical difference, which

means the cause is not bacterial. That's good news, but I still have the

problem though it seems a little better than it was. At one time they

considered doing some kind of procedure and when I saw the graph and

description I decided I'd rather live with the sinusitis or whatever it is!

Take care,

Geri

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Lori,

I think they use Cipro for chronic bladder infections, too - I'm just

guessing, but I've taken it pre-AIH and the only problems I used to have

were bladder infections. I wish that the Augmentin would have worked for

me because it drives me crazy to have this constant congestion, worse in

the morning. I've also had a congestive type cough for several weeks but

an x-ray a few weeks ago found nothing in my lungs. My doctor told me that

reflux can cause a congestion type cough but I didn't know I have acid

reflux problems. Sometimes I feel like one of those Tupperware containers

full of mystery decay that sometimes finds it's way to the back of the

refrigerator. Who knows what's going on in there? As long as it won't

kill me, I often wonder if I care.

Take care,

Geri

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Hi Geri, I think they do too!! Cipro may not be the best andmost prescribed

antibiotic for sinus infection, but pre & post transplant that is the only

drug that has been strong enough to knock out my sinus infection. I have

always had trouble with my sinuses. I saw an ENT and he told me I had a

deviated septum, and should have surgery, but I put it off. I have talked to

a few people who say that they hace had the same thing done, and not much

relief. Don't know what to do, but the sinus infections and the sinus

blockage is miserable to say the least.

take care Geri and have a good evening!! Lori C. AIH transplant 3~11~97

Re: [ ] antibiotic

>From: Geri Spang <spangs@...>

>

>Lori,

>I think they use Cipro for chronic bladder infections, too - I'm just

>guessing, but I've taken it pre-AIH and the only problems I used to have

>were bladder infections. I wish that the Augmentin would have worked for

>me because it drives me crazy to have this constant congestion, worse in

>the morning. I've also had a congestive type cough for several weeks but

>an x-ray a few weeks ago found nothing in my lungs. My doctor told me that

>reflux can cause a congestion type cough but I didn't know I have acid

>reflux problems. Sometimes I feel like one of those Tupperware containers

>full of mystery decay that sometimes finds it's way to the back of the

>refrigerator. Who knows what's going on in there? As long as it won't

>kill me, I often wonder if I care.

>Take care,

>Geri

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

>

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Hi Geri; I agree with you about having any procedures. I told the Dr I

would have to have more infections a yr than I have had to go that route

after he said it would be close to the eye wall & brain. I have had

enough eye & vision problems to not ask for more. I did need to refill

the perscriptions once to clear it up. Now when I feel it coming on I

use the salt & warm water irrigation system they advised & have not had

a need for meds for a yr.

Before I was diagnosed with AIH I had several bad sinus infections & was

sent twice for ct scan because they suspected cancer possibility & the

tech even came once during the scan & ask if I had ever had cancer.

Thank heavens it wasn't & that was long ago enough that I don't worry

about it. I have wondered if the trauma I have had to the eye on that

side had some effect. Have you tried very warm moist packs on your

sinus area?

I am concerned we can have an infection but because of the meds it might

have to get worse before we realize we have it. So far I have been lucky

not to have had any colds or flu for over a yr.

I hope you find something for sinus relief.

Leona M. AIH

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Hi Sue:

I can't really recommend an antibiotic since I don't get sinus infections

(although I seem to pick them up everywhere else LOL), but I can tell you since

I started taking prednisone 15 years ago I became alergic to any medications

that contained Sulfa. Instant rash .. kinda like a very bad case of hives over

my entire body.

Debbie

AIH

Michigan

[ ] antibiotic

Does anyone know of a safe anti-biotic for a sinus infection? I took

Septra, a sulfa, and got the brown urine symptom of liver distress. This Septra

was supposed to be OK, filtered through the kidneys, not the liver. I took 10

mg. of Pred. instead of my usual 5 , but had to stop the anti-biotic., even

though I skipped 1 dose and then tried taking one-half the dose at a time.

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Debbie,

Interesting that you should mention a sulfa reaction. I had to take sulfa

last year for a urinary tract infection and several days later developed

giant hives - big as saucers - on my back, over my entire chest and

abdomen, and under my arms, down to my elbows. My doctor and the

Dermatologist he sent me to both told me that a sulfa reaction would have

been more immediate but my Hepatologist clearly wasn't positive. The

Dermatologist, however, was the kind of woman doctor who obviously couldn't

believe there is anything about skin reactions that she doesn't

know. Claritan, Benadryl and a temporary increase in Prednisone got rid of

it in a few days.

Take care,

Geri

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Leona,

I'm glad that you reminded me. I was told to use non-medicated

over-the-counter saline nose drops and in fact, they do help. I just

forget to use them. She told me that the dry desert air is part of the

problem, since I come from a humid climate (Seattle). What's the warm

water treatment that you use? I read somewhere that a comparatively

dangerous type of sinus infection can develop in immuno suppressed people,

but what aren't we vulnerable to? That's okay. I've never felt fragile

before and now I get to be a delicate little thing. Ha!

I think that the cough I have has gone on much too long but it doesn't seem

to get worse. It's like it's become part of the package. Haven't had any

blood tests for awhile but I suspect I will soon. I suppose any worrisome

problems will show up there somehow.

Take care,

Geri

>

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Lori,

I've also had off and on sinus problems for years. I've never complained

much to doctors about it because I smoke and don't want to hear any

lectures. Life is already so damned limited, I don't feel up to further

restrictions. However, I didn't have sinus problems when we lived in

Switzerland and I don't know why. The weather there is similar to

Seattle. I was doing fine here in Las Vegas until I started getting sick

from AIH. Now the sinus congestion is worse than it's ever been but for

some strange reason, I rarely get sinus headaches. They used to be a daily

thing.

If you have a humidifier, that might help. My already very pretty next

door neighbor just had a " nose job " and she couldn't breathe. We loaned

her our humidifier (which I forget to use) and she said it made

considerable difference and allowed her to sleep at night.

Looking back at my recent posts, I must be a doctor's nightmare. I don't

tell them everything that's going on, keep on smoking and don't do the

little things I could do to help myself. Maybe it's time for me to get

serious?

Take care,

Geri

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The treatment the ENT at Mayo told me about is 2cups warm water with 1/4

tsp salt, using a nasal syringe irrigate your sinus leaning over the

sink. I also subscribe to the Mayo Clinic Health Letter & the Oct. issue

had an article about sinus infections often mistaken for a cold. It also

says to rinse sinus 3or4 times a day with 8oz water mixed with 1/4 tsp

salt & 1/4 tsp baking soda. I would be glad to make a copy of the issue

& mail it to you. I was told it looks like I might have broken my nose

but I am not aware of it except I was in an accident & hit my head on

the steering wheel making me semi conscious but did not even have a nose

bleed. But he thought the narrow side of my nose was the cause of my

sinus infections. I did use to think I had a cold that went into a sinus

infection & I guess it was sinus infection from the beginning & the

sinus drainage made my throat sore. Like you, I have always been healthy

& the strong one but I guess the stress over those yrs of being the

indespensible one brings out the bad genes in us eventually. Now tho it

is hard to accept but I was older than most(it was after I

retired)before I had my first alarm that lead Dr to suspect AIH & with

meds I lead a pretty normal day. My big complaint is wt gain & mostly

the stomach size creates a problem finding sizes to accomadate. I feel

fortunate & wonder if my day of suffering like so many are & especially

the very young is coming. At my age I most likely would not qualify for

transplant so my Dr said. So being on the meds forever is the concern as

to what will they cause. I am being reduced on prednisone now 1mg a

month & he suspects I will be on 5 forever with 100mg of azathioprine.

The last ultrasound showed 2 ducts had increased in size from the one

done 3 mnths earlier so he will be observing that & I may have to have a

egd or ercp (dont remember) which he said. I have a tendency to not be

concerned until it becomes a fact, I think. I tell myself better

larger than smaller for all I know.

This has been a long answer to your sinus question.

Leona M. AIH

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Lori,

Have you checked with your doctor to see if you could take something like

claritin or zyrtec for your sinus'? I have no idea if they are " liver

friendly " , but I know they work great!

Hugs,

(AIH?)

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In a message dated 11/15/1999 9:04:35 PM Eastern Standard Time,

majuli@... writes:

<< , are you resting? You are supposed to be resting! Do I need to

bring a big can of whoop-ass with me to Florida, girlfriend???! >>

Kay,

Ok so I'm being a bad girl! But it is wonderful to be able to get through

all of this mail! I'll quit soon, I promise. <g>

Hugs,

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I have nonallergic rhinitis - permanent and 365 days/year. There's nothing

to my knowledge that can be done for that, either. Sucks!

, are you resting? You are supposed to be resting! Do I need to

bring a big can of whoop-ass with me to Florida, girlfriend???!

Kay ;~)))

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Hi , Yes I talked to my hepatologist about it a couple weeks ago,

because I do have allergic rhinitis also. They really didn't want me to take

too much as far as oral meds, so I used Flonase for a while, but got

headaches from it. So he did give me a trial of Zyrtec, it does seem to help

some. Thanks , Have a good day!!

Lori C. AIH Transplanted 3~11~97

Re: [ ] antibiotic

>From: La7de@...

>

>Lori,

>Have you checked with your doctor to see if you could take something like

>claritin or zyrtec for your sinus'? I have no idea if they are " liver

>friendly " , but I know they work great!

>Hugs,

>(AIH?)

>

>>Please support the American Liver Foundation!

>

>1.) To subscribe send e-mail to -subscribeonelist

>2.) To UNsubscribe send to -unsubscribeonelist

>3.) Digest e-mail format send to -digestonelist

>4.) Normal e-mail format send to -normalonelist

>

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  • 1 year later...

Georgina,

Kefir is even better for you at replacing the essential friendly bacteria

than yogurt is. I make it daily here and make great shakes with strawberry

and banana with it. It's really easy to make. Here's a great websites to

check out. I can send you some culture if you'd like.

http://www.chariot.net.au/~dna/kefirpage.html

Bonnie

Regional Director, PHD Products

http://phdproducts.com mailto:bonnie@...

800-863-3403

OT: Re: Re: antibiotic

> Hi Ywellen,

>

> Wait a minute! Had to butt in here. Some of us actually like the taste

> of yogurt. We LOVE it. Josh is more picky, only likes strawberry/banana

> ... but it's one of our weekly staples. It's a fast, easy breakfast or

> snack and you can make delicious frozen smoothies even more healthy by

> adding in yogurt. I know. I still can't convince you :)

>

> Take care,

> Georgina

>

> sweetpea200001@... wrote:

> >

> > ,

> > Have you tried eating yogurt while taking antibiotics? I usually eat

> > yogurt when on it. I take acidophlis (no sure if I spelled it right) to

help

> > with keeping the yeast away. These two works for me and Zhondrese too.

Just

> > about all antibiotics causes yeast infections. There are some other

things

> > that can be use while on antibiotics, but you just gotta find out what

works

> > for you. I'll be the first to say I hate antibiotics too for that same

> > reason, but when I need them I buy all the yogurt I can to help me out.

I

> > never thought I would eat yogurt, because I'm a very picky eater. Yes

it's

> > yucky, but it works.

> > Ywellen

>

>

> For links to websites with JRA info please visit:

> http://www.geocities.com/Heartland/Village/8414/Links.html

>

> To manage your subscription settings, visit:

> subscribe/

>

>

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  • 2 years later...
Guest guest

Hi, ,

Thanks for the encouragement - again! and yes, I was given an

antibiotic right out of the hospital following surgery as well.

:o) Jackie

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  • 6 years later...
Guest guest

Hi, :

Yes, I make my own colloidal silver and it can be useful for some things and not

so much for others.  My friend was providing Ag and Au in this form to treat

hepatitis C, prostate cancer, equine eye cancer, and one case of mouth cancer

went into complete remission.  Also fibromyalgia seemed to respond to this.

Chronic diseases, however, are more often lifestyle issues and until the

underlying causes are removed no amount of treatment can prevent the return of

these conditions.

Good luck with Ag,

From: Mckenna <kitty31439@...>

Subject: rheumatic antibiotic

rheumatic

Date: Sunday, May 9, 2010, 1:15 AM

 

Hi Everyone

Has anyone tried or had any experience with colloidal silver which is claimed to

be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6),

and is making a resurgence despite negative press?

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Guest guest

Hi ,

how do you make your colloidal silver and how much do you take?

I have the device that makes it but the concentration of Ag is important to

avoid side effects

thanks,

EMAILING FOR THE GREATER GOOD

Join me

rheumatic

From: anzaltopo@...

Date: Sun, 9 May 2010 08:53:02 -0700

Subject: Re: rheumatic antibiotic

Hi, :

Yes, I make my own colloidal silver and it can be useful for some things and not

so much for others. My friend was providing Ag and Au in this form to treat

hepatitis C, prostate cancer, equine eye cancer, and one case of mouth cancer

went into complete remission. Also fibromyalgia seemed to respond to this.

Chronic diseases, however, are more often lifestyle issues and until the

underlying causes are removed no amount of treatment can prevent the return of

these conditions.

Good luck with Ag,

From: Mckenna <kitty31439@...>

Subject: rheumatic antibiotic

rheumatic

Date: Sunday, May 9, 2010, 1:15 AM

Hi Everyone

Has anyone tried or had any experience with colloidal silver which is claimed to

be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6),

and is making a resurgence despite negative press?

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Guest guest

Hi, :

The most important thing is to begin with distilled water, in fact I use

something called " electron water " that really is highly distilled and might have

some debatable properties related to bond-angle issues (the lower the angle, the

more " polar " the water appears).

Problems have happened with argyria when people use tap water and it is loaded

with chlorine.  My friend drank at least 1 litre daily of his " elixir " for

previous five years with no problem.  The Ag concentration was between 6 and

22ppM.

We pass an alternating current--a square wave--through the distilled water (not

identical, but similar, to Dr. Beck's arrangement).  After many hours I

measure the ppM and stop at about 40.  Then concentrate this through reduction

boiling to about 300ppM (more concentrated than this is a problem for various

reasons.

I found information on the educate yourself site that 1) 99.999 (5-9s) Ag was

not necessary, however, I have used this ultra-pure material, along with Au at

same refined values.  Also the idea in colloidal Ag is that the concentration is

not as important as the fact it is there--something like firing one little

bullet or many smaller pellets (shotgun) at a target.

Hope this helps,

From: Mckenna <kitty31439@...>

Subject: rheumatic antibiotic

rheumatic

Date: Sunday, May 9, 2010, 1:15 AM

Hi Everyone

Has anyone tried or had any experience with colloidal silver which is claimed to

be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6),

and is making a resurgence despite negative press?

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Guest guest

Hello ,

thank you so much for your prompt response!

where do you get the electron water?

also, please inform me on the antibiotics that you are using.

I have RA and I am HLA B-27 positive. I have been at the end of my wits for

years now and my doctor is pushing me to biologics. Mino seemed to work in the

beginning, then all blood tests plateau. I also have a positive ASO titer.

thanks for your help,

EMAILING FOR THE GREATER GOOD

Join me

rheumatic

From: anzaltopo@...

Date: Sun, 9 May 2010 15:39:30 -0700

Subject: RE: rheumatic antibiotic

Hi, :

The most important thing is to begin with distilled water, in fact I use

something called " electron water " that really is highly distilled and might have

some debatable properties related to bond-angle issues (the lower the angle, the

more " polar " the water appears).

Problems have happened with argyria when people use tap water and it is loaded

with chlorine. My friend drank at least 1 litre daily of his " elixir " for

previous five years with no problem. The Ag concentration was between 6 and

22ppM.

We pass an alternating current--a square wave--through the distilled water (not

identical, but similar, to Dr. Beck's arrangement). After many hours I

measure the ppM and stop at about 40. Then concentrate this through reduction

boiling to about 300ppM (more concentrated than this is a problem for various

reasons.

I found information on the educate yourself site that 1) 99.999 (5-9s) Ag was

not necessary, however, I have used this ultra-pure material, along with Au at

same refined values. Also the idea in colloidal Ag is that the concentration is

not as important as the fact it is there--something like firing one little

bullet or many smaller pellets (shotgun) at a target.

Hope this helps,

From: Mckenna <kitty31439@...>

Subject: rheumatic antibiotic

rheumatic

Date: Sunday, May 9, 2010, 1:15 AM

Hi Everyone

Has anyone tried or had any experience with colloidal silver which is claimed to

be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6),

and is making a resurgence despite negative press?

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Share on other sites

Guest guest

Hi, :

" Electron water " I have a distiller with a design that incorporates a uV source

during the distillation process.

I would not even consider doing antibiotics until some time on the

starch-excluding diet--although Tanalbit can help eliminate some Klebsiella

pneumoniae, dietary modification is much better for this.  Nearly all

broad-spectrum antibiotics have some activity against this bacterium and I have

used Cipro in cycles (11days@1g/day) while being extremely strict about

starches.  Then, tetracycline for maintenance and now Tanalbit--about two

capsules 1 hour before meals and 500mg tetracycline 15 minutes before each of 3

meals.

RA and AS have some symptom overlap and although some people have had both, I

would be skeptical about this and make sure MHC results were HLA B27 and HLA DR1

or DR4 for the RA (from Ebringer's work on molecular mimicry).  They could be

treated together, but the main thing would be eliminate AS first and the RA will

follow.

HEALTH,

From: Mckenna <kitty31439@...>

Subject: rheumatic antibiotic

rheumatic

Date: Sunday, May 9, 2010, 1:15 AM

Hi Everyone

Has anyone tried or had any experience with colloidal silver which is claimed to

be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6),

and is making a resurgence despite negative press?

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