Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 , I've had severe sinus problems since I've had AIH. Don't know if there's a link between sinuses and AIH, but I suspect there might be. My Internist gave me a prescription for an anti-bacterial to see if it would help. It didn't make much difference, so it's not a bacterial infection. I've learned to live with it except when I have sinus headaches (rarely). Then I take two Sinutab, undoubtedly verboten, with two Bufferin. I only have to do this about once every couple of weeks and it gets rid of the headache. I wouldn't recommend this to anyone who is sensitive to meds or who doesn't want to take risks, but it does work for me. Take care, Geri/AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 The only thing that really works for me is Ciprofalaxin~ Cipro for short, i even take it post~transplant. Another good one for sinus is Augmentin. Good Luck!! I am just getting over a sinus infection, I get them quite often and quite frankly they SUCK!! Take Care!! Lori C. AIH Transplanted 3~11~97 [ ] antibiotic Does anyone know of a safe anti-biotic for a sinus infection? I took Septra, a sulfa, and got the brown urine symptom of liver distress. This Septra was supposed to be OK, filtered through the kidneys, not the liver. I took 10 mg. of Pred. instead of my usual 5 , but had to stop the anti-biotic., even though I skipped 1 dose and then tried taking one-half the dose at a time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 I also have been perscribed Cipro & Augmentin for sinus infection with success. Leona M. AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 Leona, Augmentin was what I took. It didn't make a radical difference, which means the cause is not bacterial. That's good news, but I still have the problem though it seems a little better than it was. At one time they considered doing some kind of procedure and when I saw the graph and description I decided I'd rather live with the sinusitis or whatever it is! Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 Lori, I think they use Cipro for chronic bladder infections, too - I'm just guessing, but I've taken it pre-AIH and the only problems I used to have were bladder infections. I wish that the Augmentin would have worked for me because it drives me crazy to have this constant congestion, worse in the morning. I've also had a congestive type cough for several weeks but an x-ray a few weeks ago found nothing in my lungs. My doctor told me that reflux can cause a congestion type cough but I didn't know I have acid reflux problems. Sometimes I feel like one of those Tupperware containers full of mystery decay that sometimes finds it's way to the back of the refrigerator. Who knows what's going on in there? As long as it won't kill me, I often wonder if I care. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 Hi Geri, I think they do too!! Cipro may not be the best andmost prescribed antibiotic for sinus infection, but pre & post transplant that is the only drug that has been strong enough to knock out my sinus infection. I have always had trouble with my sinuses. I saw an ENT and he told me I had a deviated septum, and should have surgery, but I put it off. I have talked to a few people who say that they hace had the same thing done, and not much relief. Don't know what to do, but the sinus infections and the sinus blockage is miserable to say the least. take care Geri and have a good evening!! Lori C. AIH transplant 3~11~97 Re: [ ] antibiotic >From: Geri Spang <spangs@...> > >Lori, >I think they use Cipro for chronic bladder infections, too - I'm just >guessing, but I've taken it pre-AIH and the only problems I used to have >were bladder infections. I wish that the Augmentin would have worked for >me because it drives me crazy to have this constant congestion, worse in >the morning. I've also had a congestive type cough for several weeks but >an x-ray a few weeks ago found nothing in my lungs. My doctor told me that >reflux can cause a congestion type cough but I didn't know I have acid >reflux problems. Sometimes I feel like one of those Tupperware containers >full of mystery decay that sometimes finds it's way to the back of the >refrigerator. Who knows what's going on in there? As long as it won't >kill me, I often wonder if I care. >Take care, >Geri > >>Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 Hi Geri; I agree with you about having any procedures. I told the Dr I would have to have more infections a yr than I have had to go that route after he said it would be close to the eye wall & brain. I have had enough eye & vision problems to not ask for more. I did need to refill the perscriptions once to clear it up. Now when I feel it coming on I use the salt & warm water irrigation system they advised & have not had a need for meds for a yr. Before I was diagnosed with AIH I had several bad sinus infections & was sent twice for ct scan because they suspected cancer possibility & the tech even came once during the scan & ask if I had ever had cancer. Thank heavens it wasn't & that was long ago enough that I don't worry about it. I have wondered if the trauma I have had to the eye on that side had some effect. Have you tried very warm moist packs on your sinus area? I am concerned we can have an infection but because of the meds it might have to get worse before we realize we have it. So far I have been lucky not to have had any colds or flu for over a yr. I hope you find something for sinus relief. Leona M. AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 14, 1999 Report Share Posted November 14, 1999 Hi Sue: I can't really recommend an antibiotic since I don't get sinus infections (although I seem to pick them up everywhere else LOL), but I can tell you since I started taking prednisone 15 years ago I became alergic to any medications that contained Sulfa. Instant rash .. kinda like a very bad case of hives over my entire body. Debbie AIH Michigan [ ] antibiotic Does anyone know of a safe anti-biotic for a sinus infection? I took Septra, a sulfa, and got the brown urine symptom of liver distress. This Septra was supposed to be OK, filtered through the kidneys, not the liver. I took 10 mg. of Pred. instead of my usual 5 , but had to stop the anti-biotic., even though I skipped 1 dose and then tried taking one-half the dose at a time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Debbie, Interesting that you should mention a sulfa reaction. I had to take sulfa last year for a urinary tract infection and several days later developed giant hives - big as saucers - on my back, over my entire chest and abdomen, and under my arms, down to my elbows. My doctor and the Dermatologist he sent me to both told me that a sulfa reaction would have been more immediate but my Hepatologist clearly wasn't positive. The Dermatologist, however, was the kind of woman doctor who obviously couldn't believe there is anything about skin reactions that she doesn't know. Claritan, Benadryl and a temporary increase in Prednisone got rid of it in a few days. Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Leona, I'm glad that you reminded me. I was told to use non-medicated over-the-counter saline nose drops and in fact, they do help. I just forget to use them. She told me that the dry desert air is part of the problem, since I come from a humid climate (Seattle). What's the warm water treatment that you use? I read somewhere that a comparatively dangerous type of sinus infection can develop in immuno suppressed people, but what aren't we vulnerable to? That's okay. I've never felt fragile before and now I get to be a delicate little thing. Ha! I think that the cough I have has gone on much too long but it doesn't seem to get worse. It's like it's become part of the package. Haven't had any blood tests for awhile but I suspect I will soon. I suppose any worrisome problems will show up there somehow. Take care, Geri > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Lori, I've also had off and on sinus problems for years. I've never complained much to doctors about it because I smoke and don't want to hear any lectures. Life is already so damned limited, I don't feel up to further restrictions. However, I didn't have sinus problems when we lived in Switzerland and I don't know why. The weather there is similar to Seattle. I was doing fine here in Las Vegas until I started getting sick from AIH. Now the sinus congestion is worse than it's ever been but for some strange reason, I rarely get sinus headaches. They used to be a daily thing. If you have a humidifier, that might help. My already very pretty next door neighbor just had a " nose job " and she couldn't breathe. We loaned her our humidifier (which I forget to use) and she said it made considerable difference and allowed her to sleep at night. Looking back at my recent posts, I must be a doctor's nightmare. I don't tell them everything that's going on, keep on smoking and don't do the little things I could do to help myself. Maybe it's time for me to get serious? Take care, Geri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 The treatment the ENT at Mayo told me about is 2cups warm water with 1/4 tsp salt, using a nasal syringe irrigate your sinus leaning over the sink. I also subscribe to the Mayo Clinic Health Letter & the Oct. issue had an article about sinus infections often mistaken for a cold. It also says to rinse sinus 3or4 times a day with 8oz water mixed with 1/4 tsp salt & 1/4 tsp baking soda. I would be glad to make a copy of the issue & mail it to you. I was told it looks like I might have broken my nose but I am not aware of it except I was in an accident & hit my head on the steering wheel making me semi conscious but did not even have a nose bleed. But he thought the narrow side of my nose was the cause of my sinus infections. I did use to think I had a cold that went into a sinus infection & I guess it was sinus infection from the beginning & the sinus drainage made my throat sore. Like you, I have always been healthy & the strong one but I guess the stress over those yrs of being the indespensible one brings out the bad genes in us eventually. Now tho it is hard to accept but I was older than most(it was after I retired)before I had my first alarm that lead Dr to suspect AIH & with meds I lead a pretty normal day. My big complaint is wt gain & mostly the stomach size creates a problem finding sizes to accomadate. I feel fortunate & wonder if my day of suffering like so many are & especially the very young is coming. At my age I most likely would not qualify for transplant so my Dr said. So being on the meds forever is the concern as to what will they cause. I am being reduced on prednisone now 1mg a month & he suspects I will be on 5 forever with 100mg of azathioprine. The last ultrasound showed 2 ducts had increased in size from the one done 3 mnths earlier so he will be observing that & I may have to have a egd or ercp (dont remember) which he said. I have a tendency to not be concerned until it becomes a fact, I think. I tell myself better larger than smaller for all I know. This has been a long answer to your sinus question. Leona M. AIH Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Geri, One of the other lovely autoimmune diseases is Allergic Rhinitis! So that is probably where all the sinus stuff is coming from! Aren't we lucky? NOT Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 Lori, Have you checked with your doctor to see if you could take something like claritin or zyrtec for your sinus'? I have no idea if they are " liver friendly " , but I know they work great! Hugs, (AIH?) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 In a message dated 11/15/1999 9:04:35 PM Eastern Standard Time, majuli@... writes: << , are you resting? You are supposed to be resting! Do I need to bring a big can of whoop-ass with me to Florida, girlfriend???! >> Kay, Ok so I'm being a bad girl! But it is wonderful to be able to get through all of this mail! I'll quit soon, I promise. <g> Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 15, 1999 Report Share Posted November 15, 1999 I have nonallergic rhinitis - permanent and 365 days/year. There's nothing to my knowledge that can be done for that, either. Sucks! , are you resting? You are supposed to be resting! Do I need to bring a big can of whoop-ass with me to Florida, girlfriend???! Kay ;~))) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 16, 1999 Report Share Posted November 16, 1999 Hi , Yes I talked to my hepatologist about it a couple weeks ago, because I do have allergic rhinitis also. They really didn't want me to take too much as far as oral meds, so I used Flonase for a while, but got headaches from it. So he did give me a trial of Zyrtec, it does seem to help some. Thanks , Have a good day!! Lori C. AIH Transplanted 3~11~97 Re: [ ] antibiotic >From: La7de@... > >Lori, >Have you checked with your doctor to see if you could take something like >claritin or zyrtec for your sinus'? I have no idea if they are " liver >friendly " , but I know they work great! >Hugs, >(AIH?) > >>Please support the American Liver Foundation! > >1.) To subscribe send e-mail to -subscribeonelist >2.) To UNsubscribe send to -unsubscribeonelist >3.) Digest e-mail format send to -digestonelist >4.) Normal e-mail format send to -normalonelist > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2001 Report Share Posted February 1, 2001 Georgina, Kefir is even better for you at replacing the essential friendly bacteria than yogurt is. I make it daily here and make great shakes with strawberry and banana with it. It's really easy to make. Here's a great websites to check out. I can send you some culture if you'd like. http://www.chariot.net.au/~dna/kefirpage.html Bonnie Regional Director, PHD Products http://phdproducts.com mailto:bonnie@... 800-863-3403 OT: Re: Re: antibiotic > Hi Ywellen, > > Wait a minute! Had to butt in here. Some of us actually like the taste > of yogurt. We LOVE it. Josh is more picky, only likes strawberry/banana > ... but it's one of our weekly staples. It's a fast, easy breakfast or > snack and you can make delicious frozen smoothies even more healthy by > adding in yogurt. I know. I still can't convince you > > Take care, > Georgina > > sweetpea200001@... wrote: > > > > , > > Have you tried eating yogurt while taking antibiotics? I usually eat > > yogurt when on it. I take acidophlis (no sure if I spelled it right) to help > > with keeping the yeast away. These two works for me and Zhondrese too. Just > > about all antibiotics causes yeast infections. There are some other things > > that can be use while on antibiotics, but you just gotta find out what works > > for you. I'll be the first to say I hate antibiotics too for that same > > reason, but when I need them I buy all the yogurt I can to help me out. I > > never thought I would eat yogurt, because I'm a very picky eater. Yes it's > > yucky, but it works. > > Ywellen > > > For links to websites with JRA info please visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > To manage your subscription settings, visit: > subscribe/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 6, 2003 Report Share Posted June 6, 2003 Hi, , Thanks for the encouragement - again! and yes, I was given an antibiotic right out of the hospital following surgery as well. ) Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi, : Yes, I make my own colloidal silver and it can be useful for some things and not so much for others. My friend was providing Ag and Au in this form to treat hepatitis C, prostate cancer, equine eye cancer, and one case of mouth cancer went into complete remission. Also fibromyalgia seemed to respond to this. Chronic diseases, however, are more often lifestyle issues and until the underlying causes are removed no amount of treatment can prevent the return of these conditions. Good luck with Ag, From: Mckenna <kitty31439@...> Subject: rheumatic antibiotic rheumatic Date: Sunday, May 9, 2010, 1:15 AM  Hi Everyone Has anyone tried or had any experience with colloidal silver which is claimed to be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6), and is making a resurgence despite negative press? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi , how do you make your colloidal silver and how much do you take? I have the device that makes it but the concentration of Ag is important to avoid side effects thanks, EMAILING FOR THE GREATER GOOD Join me rheumatic From: anzaltopo@... Date: Sun, 9 May 2010 08:53:02 -0700 Subject: Re: rheumatic antibiotic Hi, : Yes, I make my own colloidal silver and it can be useful for some things and not so much for others. My friend was providing Ag and Au in this form to treat hepatitis C, prostate cancer, equine eye cancer, and one case of mouth cancer went into complete remission. Also fibromyalgia seemed to respond to this. Chronic diseases, however, are more often lifestyle issues and until the underlying causes are removed no amount of treatment can prevent the return of these conditions. Good luck with Ag, From: Mckenna <kitty31439@...> Subject: rheumatic antibiotic rheumatic Date: Sunday, May 9, 2010, 1:15 AM Hi Everyone Has anyone tried or had any experience with colloidal silver which is claimed to be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6), and is making a resurgence despite negative press? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2010 Report Share Posted May 9, 2010 Hi, : The most important thing is to begin with distilled water, in fact I use something called " electron water " that really is highly distilled and might have some debatable properties related to bond-angle issues (the lower the angle, the more " polar " the water appears). Problems have happened with argyria when people use tap water and it is loaded with chlorine. My friend drank at least 1 litre daily of his " elixir " for previous five years with no problem. The Ag concentration was between 6 and 22ppM. We pass an alternating current--a square wave--through the distilled water (not identical, but similar, to Dr. Beck's arrangement). After many hours I measure the ppM and stop at about 40. Then concentrate this through reduction boiling to about 300ppM (more concentrated than this is a problem for various reasons. I found information on the educate yourself site that 1) 99.999 (5-9s) Ag was not necessary, however, I have used this ultra-pure material, along with Au at same refined values. Also the idea in colloidal Ag is that the concentration is not as important as the fact it is there--something like firing one little bullet or many smaller pellets (shotgun) at a target. Hope this helps, From: Mckenna <kitty31439@...> Subject: rheumatic antibiotic rheumatic Date: Sunday, May 9, 2010, 1:15 AM Hi Everyone Has anyone tried or had any experience with colloidal silver which is claimed to be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6), and is making a resurgence despite negative press? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2010 Report Share Posted May 10, 2010 Hello , thank you so much for your prompt response! where do you get the electron water? also, please inform me on the antibiotics that you are using. I have RA and I am HLA B-27 positive. I have been at the end of my wits for years now and my doctor is pushing me to biologics. Mino seemed to work in the beginning, then all blood tests plateau. I also have a positive ASO titer. thanks for your help, EMAILING FOR THE GREATER GOOD Join me rheumatic From: anzaltopo@... Date: Sun, 9 May 2010 15:39:30 -0700 Subject: RE: rheumatic antibiotic Hi, : The most important thing is to begin with distilled water, in fact I use something called " electron water " that really is highly distilled and might have some debatable properties related to bond-angle issues (the lower the angle, the more " polar " the water appears). Problems have happened with argyria when people use tap water and it is loaded with chlorine. My friend drank at least 1 litre daily of his " elixir " for previous five years with no problem. The Ag concentration was between 6 and 22ppM. We pass an alternating current--a square wave--through the distilled water (not identical, but similar, to Dr. Beck's arrangement). After many hours I measure the ppM and stop at about 40. Then concentrate this through reduction boiling to about 300ppM (more concentrated than this is a problem for various reasons. I found information on the educate yourself site that 1) 99.999 (5-9s) Ag was not necessary, however, I have used this ultra-pure material, along with Au at same refined values. Also the idea in colloidal Ag is that the concentration is not as important as the fact it is there--something like firing one little bullet or many smaller pellets (shotgun) at a target. Hope this helps, From: Mckenna <kitty31439@...> Subject: rheumatic antibiotic rheumatic Date: Sunday, May 9, 2010, 1:15 AM Hi Everyone Has anyone tried or had any experience with colloidal silver which is claimed to be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6), and is making a resurgence despite negative press? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2010 Report Share Posted May 11, 2010 Hi, : " Electron water " I have a distiller with a design that incorporates a uV source during the distillation process. I would not even consider doing antibiotics until some time on the starch-excluding diet--although Tanalbit can help eliminate some Klebsiella pneumoniae, dietary modification is much better for this. Nearly all broad-spectrum antibiotics have some activity against this bacterium and I have used Cipro in cycles (11days@1g/day) while being extremely strict about starches. Then, tetracycline for maintenance and now Tanalbit--about two capsules 1 hour before meals and 500mg tetracycline 15 minutes before each of 3 meals. RA and AS have some symptom overlap and although some people have had both, I would be skeptical about this and make sure MHC results were HLA B27 and HLA DR1 or DR4 for the RA (from Ebringer's work on molecular mimicry). They could be treated together, but the main thing would be eliminate AS first and the RA will follow. HEALTH, From: Mckenna <kitty31439@...> Subject: rheumatic antibiotic rheumatic Date: Sunday, May 9, 2010, 1:15 AM Hi Everyone Has anyone tried or had any experience with colloidal silver which is claimed to be the best antibiotic known to man killing 650 pathogens (Penicillin kills 6), and is making a resurgence despite negative press? Quote Link to comment Share on other sites More sharing options...
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