Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 Glad to see you here! How long you been sitting there reading without posting? Come on in and join the posting. I don't know what a telangictasiac deformity/fissure/AVM is or that Osler-Weber-Rendu Syndromes are, but I'm going to look them up now. I'm . My 16 year old boy has EDS 3. (we think type three). I've only been here since Febuary this year, when my son was Dx. Been here ever since learning as much as I can. WELCOME! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2003 Report Share Posted April 18, 2003 Welcome Suzanne, I have been on here abot 6-8 months (I guess, it feels like I have known everyone here for ever, so I can't even guess how long I have been here <LOL>). I am thought to have HEDS (old EDS 3), but as we can't get 2 doctors to agree (let alone the 2 geneticists)I guess I will never know for certain (my GP says it is HEDS, so that is what we have sort of decided to call it). I am a 32 yr old feamle from Canberra, Australia. Nice to meet you and Welcome. Sharon (shazz_in_ozz) > Glad to see you here! How long you been sitting there reading without posting? Come on in and join the posting. I don't know what a telangictasiac deformity/fissure/AVM is or that Osler-Weber-Rendu Syndromes are, but I'm going to look them up now. > I'm . My 16 year old boy has EDS 3. (we think type three). I've only been here since Febuary this year, when my son was Dx. Been here ever since learning as much as I can. > WELCOME! > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.