Re: From Maureen re please help - A BIG THANKYOU!!!!!!!

[Guest guest]

Maureen, that sounds great. Its a step in the right direction hope all your

effects work out........................Flora/Florida

[Guest guest]

Maureen,

What I found most encouraging was that you said as soon as your husband and

daughter came home from their drive they apologized so they had been talking

about it and felt bad and that's a good sign. It's great what you have

accomplished in a few days as far as getting family help. It's particularly

hard

waiting for a diagnosis; it took me 4 years to get a PLS diagnosis.

At the recent PLS Symposium where there were 48 neurologists from all over

the world, one of the things that they discussed was how long should they wait

to make a PLS diagnosis and the feeling was 3 years and that's because they

are ruling out other disorders plus just waiting to see how our bodies react.

It's not easy but most of us have been down that road of waiting. It's a

family affair and affects everyone.

Best of luck and keep up your spirits. I'm one who couldn't paint---I'd be

tossing the paint and brushes aside, I don't have patience for painting or

sewing. I do a lot on the computer and I still volunteer at the hospital so we

all have our ways of finding our " thing " . Keep us posted -- we care.

Alone we can do so little. Together we can do so much.

Helen Keller (1880-1968)

[Guest guest]

Maureen:

What wonderful news to hear that you are ALL taking the steps to help you

deal with your situation. I give you ( & especially your husband as

sometimes men aren't willing to admit they need help-NO OFFENCE TO THE MALE

MEMBERS OF THIS GROUP). He, your daughter and yourself are stepping up to

the plate and that is definitely a step in the right direction. I sincerely

hope you can get your 'family life and support' back on track. It won't be

an easy task but LOVE conques all (and plus you have all of us friends here

for moral support any time you need it).

Take care my friend and wishing you all the best.

Jo. (WAY UP in Northern Ontario)

From Maureen re please help - A BIG THANKYOU!!!!!!!

> I want to say hello and a big thank you to all of you who responded to

> my post.

>

> My husband and daughter came back from their drive and apologised and

> promised they would not act that way again. well lets hope so. I

> made them read every one of your responses. I also made them read

> about PLS. something i have never done. I guess because i am not

> sure that i have it but after reading all the messages on this board,

> I am sure that I have. I also took steps today to hopefully get our

> family back on track and this is because of you wonderful people. I

> rang the Australian MND (ALS) association and arranged for a

> counsellor to visit the family. We need a lot of help.

>

> My husband has not been coping with my illness, so much so, that in

> dec 2002 he had a breakdown. ever since he has not been the same

> towards me . We went to our local doctor today and he agreed that he

> should see a psychiatrist to be reassessed and he thinks that it could

> just be a matter of changing his anti depressant. Hubby has also

> agreed to see a marriage counsellor. So i feel that things are going

> in the right direction. I feel very happy with my life today.

>

> Just something i want to clarify from my original post is that i DONT

> take out the garbage. that is something i definitely cant do.

>

> For Sandy: In australia it is winter right now.

>

> To the people who spoke about teenage girls being a trial. You are so

> right!!! I love her dearly but she has been a trial from the day she

> was born. and i dont get to send her away to college next year as we

> have a different system in AUstralia. If you live in a major city,

> you dont need to leave home to attend university. You only do that if

> you are from the country. Also our universities are not easy to get

> into.

>

> To : I also want to take up art classes. I believe it would

> be good therapy. Its good to hear that you could only draw stick

> figures before as i am the same. so there is hope for me!!!!

>

> to everyone: I am glad that i can do most things as this makes me

> feel useful and very happy. I am a perfectionist and prefer to do

> things my own way. but i make sure that i dont tire myself out. I do

> things a little at a time. I also am going to take a long vacation as

> soon as daughter finishes her HSC which are the final year exams.

>

> This board has been a Godsend to me. Thank you to all the wonderful

> people that sent me personal replies and thankyou to all of you and

> God Bless you all !!!!

>

> Maureen

>

>

>

>

>

>

[Guest guest]

I'm happy things worked out. God does answer prayer. One day at a time is all

our God expects us to deal with right? I'll keep you and the family in prayer

as I do for all as I know all of us and our families need it. Take care and...

God Bless

Yolanda

From Maureen re please help - A BIG THANKYOU!!!!!!!

I want to say hello and a big thank you to all of you who responded to

my post.

My husband and daughter came back from their drive and apologised and

promised they would not act that way again. well lets hope so. I

made them read every one of your responses. I also made them read

about PLS. something i have never done. I guess because i am not

sure that i have it but after reading all the messages on this board,

I am sure that I have. I also took steps today to hopefully get our

family back on track and this is because of you wonderful people. I

rang the Australian MND (ALS) association and arranged for a

counsellor to visit the family. We need a lot of help.

My husband has not been coping with my illness, so much so, that in

dec 2002 he had a breakdown. ever since he has not been the same

towards me . We went to our local doctor today and he agreed that he

should see a psychiatrist to be reassessed and he thinks that it could

just be a matter of changing his anti depressant. Hubby has also

agreed to see a marriage counsellor. So i feel that things are going

in the right direction. I feel very happy with my life today.

Just something i want to clarify from my original post is that i DONT

take out the garbage. that is something i definitely cant do.

For Sandy: In australia it is winter right now.

To the people who spoke about teenage girls being a trial. You are so

right!!! I love her dearly but she has been a trial from the day she

was born. and i dont get to send her away to college next year as we

have a different system in AUstralia. If you live in a major city,

you dont need to leave home to attend university. You only do that if

you are from the country. Also our universities are not easy to get

into.

To : I also want to take up art classes. I believe it would

be good therapy. Its good to hear that you could only draw stick

figures before as i am the same. so there is hope for me!!!!

to everyone: I am glad that i can do most things as this makes me

feel useful and very happy. I am a perfectionist and prefer to do

things my own way. but i make sure that i dont tire myself out. I do

things a little at a time. I also am going to take a long vacation as

soon as daughter finishes her HSC which are the final year exams.

This board has been a Godsend to me. Thank you to all the wonderful

people that sent me personal replies and thankyou to all of you and

God Bless you all !!!!

Maureen