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Hello Everyone...

I joined the group a couple weeks ago, and just last

week I got my surgery date..it is Feb. 17...and I am

not sure if I am real excited or real scared! Now it

seems more real to me since I do have a date....and so

now I say things like..'won't be able to do this after

the surgery' or 'can't wait until after the surgery

so I can do this!'....Yikes...I just bouce back and

forth with so many thoughts....

But I am glad I joined this group..have been reading some

files and posts...and am still learning new things! I

look forward to seeing more pics...they do inspire me!

Good Luck to all members..

SweetLady

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  • 1 year later...

Hi Marlis and welcome to a great group of friends.

I am truely sorry you have this darn disease, but since you do you have found

the right place to be. You will find fantastic support with everyone here.

I too started with the tripping and falling, then it moved to my right arm and

hand.

That is great news that you have such a careing and loving family, it surely

helps.

I have been married to a wonderful man for 23 years, and have to fantastic sons,

23 and 17.

Again welcome to our group of buddys, Sandy in Oregon

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Welcome Marlis

To a group to which none of us wants to BELONG but find friends and

support here anyway.

Since I've been planning this move to Florida or what's left of it

after Charley, I must ask if you noticed any change in your walking

or health when you moved.

Yep it sure is hard to mentally give up on those physical things we

once enjoyed. Hiking for you. Dancing for me. Two years ago I was

on the dance floor every Friday and Saturday night. Now I dance where

no one can see and very close to a wall. lol

Again Welcome and glad you came out of the shadows

Eva in WV

> Hi all,

> I was diagnosed with PLS in August 2003. I started out with an

> unexplained limp, then began falling for no apparent reason. All

> manner of testing and an EMG confirmed the doctor's suspicion. I

> began using a cane last December, and now use a rollator almost

> exclusively. It was either stay home in fear of falling, or get

over

> myself, use a rollator, and " get back out there. " I still am able

to

> drive, thankfully.

>

> I am 59 years old. My husband and I were lucky enough to retire

> early, and we moved to the high country of Arizona from MN five

years

> ago. We are both avid outdoors lovers, and we spent the first two

> years in AZ hiking and exploring our new home state. Sadly, I

cannot

> hike anymore, but I encouraged my husband to join a hiking club.

Our

> three adult children, their spouses, and our grandchildren are all

in

> MN, but we get to see them often when they come visiting or when we

> return home.

>

> My husband and family are extremely supportive and we've all tried

to

> accept this life changing turn of events caused by PLS. I've

> been " eavesdropping " on this message board for the past two weeks,

> which is when I joined. Thanks for allowing me this forum.

> Marlis

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