Guest guest Posted December 22, 2003 Report Share Posted December 22, 2003 I just got home from my Rheum appt. Here's what I know so far--I have bone spurs on my neck and hands (maybe elsewhere, but definitely those two) from my osteoarthritis, and that's what is causing the severe hand and neck pain (in combo with the FMS, of course).Since I can't take NSAIDS because of my IBS, the Doc has me starting flax seed oil (which works as an anti-inflamatory--and apparently you can't get enough of the oil through consumption of the seeds without eating too many seeds to contemplate,LOL). She also wants me to start glucosamine. I had taken it for about 6 months years ago, but I guess I got to feeling better, quit it and forgot about it--I guess I should have continued, LOL. She has me scheduled for a salivary gland biopsy to see if I in fact have sjogren's, or if my dryness is because of my meds. My rashes are difficult to evaluate because of my complexion and the fact that I've had some burns throughout my life, but she feels it isn't lupus because of the labs I've had done. Also, I will be getting a call from her nurse to schedule an exercise and bloodwork test to evaluate me for metabolic muscle disease--I had to look those up. Apparently they are forms of MD that were first diagnosed in the late 20th century, and if you want more info go to the MDA site. It's fairly involved, and I'm bushed. So , that's where I stand . I can increase my Trazodone to help with my sleep, but I think maybe I'll wait 'til after Christmas in case it really knocks me out. My decorating and cookie baking and shopping are done. Now between now and Christmas I need to clean (just the bathrooms and vaccum and dust, not deep clean) and wrap the packages. That will all be done by tomorrow night. Weds I will back a couple of pies. Thursday about 20 people to dinner, but things have been delegated. I'll be online tomorrow, but I'm probably done for today. I at least SHOULD be done, lol, I'm beat. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Kathy, I'm glad you are getting the answers to some of your problems. I know this helps me when my problems are "labelled" at least so that I can start to get my head around them and work out how to "treat" them. My husband swears by glucosamine. He was on the list for a knee transplant a couple of years ago. They experimented with him on injections of chicken comb into his knee around that time but he couldn't tolerate the injections. The specialists who had him on this experiment suggested he try glucosamine. According to the specialist, glucosamine would eventually put many knee replacement specialists out of work. It sure works for . He rarely has any pain any more from his knee. But you have to be patient. It takes 2- 3 months to get into your system and then you MUST take it continually forever. But it is such a little hassle compared to a knee replacement. It is also a bit expensive in Australia, I don't know what it is like over there. Hope you find your solutions real soon. Enjoy Christmas, don't get tied down by the "things you still have to do". Christmas will happen even if there is dust in the house or every dish hasn't been prepared. (((Hugs))) RobynKathy wrote: I just got home from my Rheum appt. Here's what I know so far--I have bone spurs on my neck and hands (maybe elsewhere, but definitely those two) from my osteoarthritis, and that's what is causing the severe hand and neck pain (in combo with the FMS, of course).Since I can't take NSAIDS because of my IBS, the Doc has me starting flax seed oil (which works as an anti-inflamatory--and apparently you can't get enough of the oil through consumption of the seeds without eating too many seeds to contemplate,LOL). She also wants me to start glucosamine. I had taken it for about 6 months years ago, but I guess I got to feeling better, quit it and forgot about it--I guess I should have continued, LOL. She has me scheduled for a salivary gland biopsy to see if I in fact have sjogren's, or if my dryness is because of my meds. My rashes are difficult to evaluate because of my complexion and the fact that I've had some burns throughout my life, but she feels it isn't lupus because of the labs I've had done. Also, I will be getting a call from her nurse to schedule an exercise and bloodwork test to evaluate me for metabolic muscle disease--I had to look those up. Apparently they are forms of MD that were first diagnosed in the late 20th century, and if you want more info go to the MDA site. It's fairly involved, and I'm bushed. So , that's where I stand . I can increase my Trazodone to help with my sleep, but I think maybe I'll wait 'til after Christmas in case it really knocks me out. My decorating and cookie baking and shopping are done. Now between now and Christmas I need to clean (just the bathrooms and vaccum and dust, not deep clean) and wrap the packages. That will all be done by tomorrow night. Weds I will back a couple of pies. Thursday about 20 people to dinner, but things have been delegated. I'll be online tomorrow, but I'm probably done for today. I at least SHOULD be done, lol, I'm beat. KathyPlease visit our website at:http://ACES_Autoimmune.tripod.com Quote Link to comment Share on other sites More sharing options...
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