sphincter of oddi

[Guest guest]

Hi everyone,

I am new here and must say that I am a bit overwhelmed by all of the

information. I am not sure how all of this works here but would love

to talk with people who have SOD. I have had it for 4 years and have

had 7 ERCPs with stents and sphincterotomies, and am still having

problems. I haven't been diagnosed with chronic pancreatitis but have

had acute pancreatitis many times. How does a doc give that

diagnosis? What are the criteria? I am seeing a wonderful doc but I

think he might be giving up on me. I live in southeast Michigan and

if anyone knows a good doc around here, I would be grateful.

Thanks in advance for any help.

[Guest guest]

,

I too was diagnosed with Sphincter of oddi dysfunction. which the

doc at johns hopkins thought was causing my attacks. They cut the muscle and

it helped for a while. However I now have a stricture that completely blocks

tha pancreatic duct, along with chronic pancreatitus. From what I've been

told by The GI docs and what I've read the only way to check for chronic is

to do a CT scan, I guess maybe an MRI would also work. At this point my

blood levals are not elevated because my pancreas is " burned out " . So if

they tell you the blood test are fine, you still could have chronic panc. If

you have any more questions let me know if I can help.

Rob