Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 what does adding sugar free choc pudding do to PS100? does it change the texture? love, ceep Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 4, 2001 Report Share Posted June 4, 2001 In a message dated 6/4/01 3:27:13 PM, Graduate-OSSG writes: << Too bad you didn't come, being as shy as you are, no one would've noticed, right? >> I wooda had to wear a nametag that said, well, lets see, maybe it could say, um, er, VITALADY!!! Hey, what an original idea! Boy talk about circle the one that doesn't look like the picture (of vitalady online) (grin) love, ceep the airline attendant on my recent trip when I had a medical letter for permission to board nearer the front of the line loudly snarled, you don't look like you need help. The other passengers behind me (and my cane), boarded and then raised holy h.e. double hockey sticks, so much so that the captain and the ombudsman from United airlines came to the back of the plane and apologized to me and my staff, and promised us extra food (sounds like the Ruski black market, doesn't it) and etc. All I can say is that the change I have noticed at the airlines over the years is from regular service to sometimes snarly service. I do not know why. Your luggage is looking for you . Soon, it will be there. Rest easy dear girl. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Hi, my name is , and my husband, Jeff has been recently diagnosed with MSA. We live in West Central Texas, and this is the first MSA patient that our neurologist has ever seen. She is thinking about referring him down to Baylor medical in Houston to confirm the diagnosis. The doctor's name starts with a " J " , but we were so floored by all of this, that I don't remember the name. Does anyone in Texas know of good doctors in the state who specialize in this disorder? Jeff is in the early stages, according to our doctor, but his symptoms have been present for about 2 years. They just couldn't figure out what was wrong. And our neurologist is not 100% sure on the diagnosis, as he has some of the " symptoms " , but not all of them. Any help/input would be appreciated. Thanks. Re: Mark is starting his journey home Hi Annette- I know that there are some great things for saliva- used by rheumatologists and oncologists. What is going on? I admire your fight- the good fight!!!! Best wishes, Waverley >>> Jwmop@... 09/05/01 05:55PM >>> Hi, Judy, This is Annette, We have talked about Mark and being much alike, I can't really identify with what you are facing right now but my prayers are with you.....I think I know what you mean about it being a little easier since his mind is going. I didn't expect that to happen. I hope to keep at home until the end too but I will scream for Iv antibiotics until they prove to me that they won't help. has surprised us before and I have no way of knowing how many times lie ahead of us. We just this hour got back from the doctor's office.....semi-annual visit now. The Doctor doesn't do anything but talk to me. I asked for something to help with his saliva as we hope to celebrate the marriage of our youngest son in a little over six weeks. It was this time last year that i thought he would not live move then a couple of weeks.....I made arrangements to donate his brain, bought funeral plots etc. but just three days of iv fluids and he perked up and we have had a very blessed year with our family. I hope when the time comes though that I will be brave enough to accept God's wisdom and soveranty. I pray for the peace of his presence to be with you . Love from a kindred caregiver. > Hi All, > > Mr. Mark has began the process of traveling home. His Doctor was back today > and read the lung report from last week and said Mark has a very drug > resistant bacteria growing and gave me two choices. One to bring him to the > hospital and treat him with IV drugs or begin the process of letting him go. > I chose letting him go and the Doctor said it's the best thing to do because > he couldn't even promise that the IV drugs would kick the bacteria and even > if they did, Mark will be right back to the same place within 30 days. > > The poor soul is crazy out of his mind, pulled out his cath and inner cannula > to the trach list night, insists that little men came in the back door and > took him for a ride down the street in the Hoyer Lift, talks on the phone > constantly even though the line isn't connected, etc. > > The Doctor said the craziness is from so little oxygen getting to his brain > and Hospice started him on Roxenal (morphine) and Haldol (a psychotic drug) > but it hasn't calmed him down very much. I can give the Roxenal every two > hours and we can increase the dose if needed. It will be just a day to day > thing right now, Mark still has no clue what's happening for which I'm very > glad. > > To end on a lighter note, after the Hospice nurse explained the drugs to Mark > and what they were going to be used for he said " I STILL want the viagra " . > > Take Care, > > Judy If you do not wish to belong to shydrager, you may unsubscribe by sending a blank email to shydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 Hi, Dr. Jankovic at Baylor is great. He is a specialist and very well known. He is my husband's Dr. and has been good at telling us what was going on, what could be done, just everything. Don't hesitate to go, they have so much experience with all sorts of movement disorders. Feel free to ask me anything , I will tell you anything I am able to- Ginger Re: Mark is starting his journey home > > Hi Annette- I know that there are some great things for saliva- used by > rheumatologists and oncologists. What is going on? > I admire your fight- the good fight!!!! > > Best wishes, > Waverley > > > >>> Jwmop@... 09/05/01 05:55PM >>> > Hi, Judy, This is Annette, We have talked about Mark and being > much alike, I can't really identify with what you are facing right > now but my prayers are with you.....I think I know what you mean > about it being a little easier since his mind is going. I didn't > expect that to happen. I hope to keep at home until the end too > but I will scream for Iv antibiotics until they prove to me that they > won't help. has surprised us before and I have no way of > knowing how many times lie ahead of us. We just this hour got back > from the doctor's office.....semi-annual visit now. The Doctor > doesn't do anything but talk to me. I asked for something to help > with his saliva as we hope to celebrate the marriage of our youngest > son in a little over six weeks. It was this time last year that i > thought he would not live move then a couple of weeks.....I made > arrangements to donate his brain, bought funeral plots etc. but > just three days of iv fluids and he perked up and we have had a very > blessed year with our family. I hope when the time comes though that > I will be brave enough to accept God's wisdom and soveranty. I pray > for the peace of his presence to be with you . Love from a kindred > caregiver. > > Hi All, > > > > Mr. Mark has began the process of traveling home. His Doctor was > back today > > and read the lung report from last week and said Mark has a very > drug > > resistant bacteria growing and gave me two choices. One to bring > him to the > > hospital and treat him with IV drugs or begin the process of > letting him go. > > I chose letting him go and the Doctor said it's the best thing to > do because > > he couldn't even promise that the IV drugs would kick the bacteria > and even > > if they did, Mark will be right back to the same place within 30 > days. > > > > The poor soul is crazy out of his mind, pulled out his cath and > inner cannula > > to the trach list night, insists that little men came in the back > door and > > took him for a ride down the street in the Hoyer Lift, talks on the > phone > > constantly even though the line isn't connected, etc. > > > > The Doctor said the craziness is from so little oxygen getting to > his brain > > and Hospice started him on Roxenal (morphine) and Haldol (a > psychotic drug) > > but it hasn't calmed him down very much. I can give the Roxenal > every two > > hours and we can increase the dose if needed. It will be just a > day to day > > thing right now, Mark still has no clue what's happening for which > I'm very > > glad. > > > > To end on a lighter note, after the Hospice nurse explained the > drugs to Mark > > and what they were going to be used for he said " I STILL want the > viagra " . > > > > Take Care, > > > > Judy > > > If you do not wish to belong to shydrager, you may > unsubscribe by sending a blank email to > > shydrager-unsubscribe > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 , Doctor Dewey, head of neurological department at Southwestern in Dallas treated and tested Ralph for several years. You have to be referred by you neurologist tho. You can't just drop in. Where are you here in Texas? I am in Arlington. Hang in there. With all the help on this list, you can expect to get words of wisdom and help when asked. Have a lovely day. Barb -- "I have held many things in my hands and lost them all; but whatever I have placed in God's hands, that I still possess." Corrie Ten Boom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2001 Report Share Posted September 8, 2001 The name of the Dr. in Houston is Dr. Jankovich. He is very knowledgeable but leaves something to be desired in his bedside manner. Re: Mark is starting his journey homeHi Annette- I know that there are some great things for saliva- used by rheumatologists and oncologists. What is going on?I admire your fight- the good fight!!!!Best wishes,Waverley>>> Jwmop@... 09/05/01 05:55PM >>>Hi, Judy, This is Annette, We have talked about Mark and beingmuch alike, I can't really identify with what you are facing rightnow but my prayers are with you.....I think I know what you meanabout it being a little easier since his mind is going. I didn'texpect that to happen. I hope to keep at home until the end toobut I will scream for Iv antibiotics until they prove to me that theywon't help. has surprised us before and I have no way ofknowing how many times lie ahead of us. We just this hour got backfrom the doctor's office.....semi-annual visit now. The Doctordoesn't do anything but talk to me. I asked for something to helpwith his saliva as we hope to celebrate the marriage of our youngestson in a little over six weeks. It was this time last year that ithought he would not live move then a couple of weeks.....I madearrangements to donate his brain, bought funeral plots etc. butjust three days of iv fluids and he perked up and we have had a veryblessed year with our family. I hope when the time comes though thatI will be brave enough to accept God's wisdom and soveranty. I prayfor the peace of his presence to be with you . Love from a kindredcaregiver.> Hi All,>> Mr. Mark has began the process of traveling home. His Doctor wasback today> and read the lung report from last week and said Mark has a verydrug> resistant bacteria growing and gave me two choices. One to bringhim to the> hospital and treat him with IV drugs or begin the process ofletting him go.> I chose letting him go and the Doctor said it's the best thing todo because> he couldn't even promise that the IV drugs would kick the bacteriaand even> if they did, Mark will be right back to the same place within 30days.>> The poor soul is crazy out of his mind, pulled out his cath andinner cannula> to the trach list night, insists that little men came in the backdoor and> took him for a ride down the street in the Hoyer Lift, talks on thephone> constantly even though the line isn't connected, etc.>> The Doctor said the craziness is from so little oxygen getting tohis brain> and Hospice started him on Roxenal (morphine) and Haldol (apsychotic drug)> but it hasn't calmed him down very much. I can give the Roxenalevery two> hours and we can increase the dose if needed. It will be just aday to day> thing right now, Mark still has no clue what's happening for whichI'm very> glad.>> To end on a lighter note, after the Hospice nurse explained thedrugs to Mark> and what they were going to be used for he said "I STILL want theviagra".>> Take Care,>> JudyIf you do not wish to belong to shydrager, you mayunsubscribe by sending a blank email toshydrager-unsubscribe Quote Link to comment Share on other sites More sharing options...
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