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Hi all - I am very happy to have found this site and to slowly start

connecting with people with more experience in the day to day living

with MSA. My father is in the process of being diagnosed, but his

doctors are leaning more and more towards MSA. I suppose what I

initially need to know is what can I do to help him?? Does anybody

have experiences with altenative therapy, counselling or excercise

that they found to be usefull and supportive?

In adwance thank you. Cathrine

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  • 3 years later...
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--- Kurt wrote:

> Hello all, I am new to this group. My sister in law

> was just diagnosed

> with Neurosarcoidosis, and I would like to know what

> we can do for

> her. Apparently it is progressing quite quickly and

> I would like to

> know what we can expect and what to do.

> Im now researching this (how I came about you all).

> Is there a support group here in South Carolina

> (Myrtle Beach area)?

> Thank you and God Bless.

>

> Kurt

> Kurt- Sorry to here about your sister in law. One

place you may want her to call is National Jewish

hospital in Denver, Colo ().ask for there

lung line. They do a lot of research on Sarcoids, and

will tell u all u ever needed to know about it.. Also

the Univ Of North Carolina at Chapel Hill hospital is

doing a study on Sarcaids and they were looking for

volunteers, so she may want to look into that.

> Hope this info helps- ( A former Carolinian

myself)

>

>

>

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