Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Alyssa...did I read that you are only 15? Seriously? You are one amazing and level headed girl!!! Kelley W. > > > > > > > Hi Everyone, > > > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so > > that means I have to fast longer which never makes me feel good. > > They did not tell me the hour I need to be in the hospital though- > > need to call Monday morning. > > > > For the clear liquids I am having strained bone broth, diluted > > pineapple juice and apple juice jello. I am doing the Miralax prep > > as it was ok for me during my colonoscopy. Not really sure how to > > adjust prep time since I am not morning surgery. The surgeon said I > > can drink clear liquids until 6am Monday. > > > > I was told since they are not sure how long the surgery will take > > they scheduled me " for the longest block " as the surgeon will do > > short procedures in the morning and I am after that. > > > > I have opted to go with the Epidural Catheter for the first 2-3 days > > of surgery. They deliver the pain meds through the spine (Epidural > > Catheter) and apparently it is a lot more efficient and they need to > > use a lot less narcotics than IV. Also, it has far less nausea as a > > side effect (I suffer from AWFUL nausea from IV pain meds that is > > one of the reasons I met the pain specialist on Friday as I believe > > in the past it was hard for me to get out of the hospital due to the > > nausea) I was also concerned with post op pain killers due to > > Tylenol making me sick- and usually they give Percocet or Percodan. > > But they will give me Dilaudid if need be. I hope I am one of those > > people that doesn't need much pain meds. My husband thinks that I > > have a good threshold since going through so many bowel obstructions > > with recent ones being on LDN and not really getting anything > > besides an NSAID shot or NSAID IV which as we know as IBD'ers does > > wonders for the gut <vbg> > > > > I am also having an acupuncturist come to the hospital and while I > > am at home post op. I hope this will also mitigate the pain and > > promote healing. > > > > I am definitely scared. I don't have the greatest track record when > > it comes to Western Medicine. > > > > All my docs have been wonderful except my last appt on Friday with a > > pain specialist that was a crass a$$hole. He literally told me that > > Crohn's pain -never- goes away and it is a hard disease and I will > > be on pain meds a long time. He just made me feel " why should I do > > this surgery? Why should I go through this? if nothing will help " My > > brother was with me and we both felt the rug being swept from > > underneath us. My brother spoke up for me. But needless to say the > > stress from that appointment caused me anal bleeding when I came > > home. I felt so disempowered and discouraged. It brought me back to > > the days pre-SCD where I felt like a victim and betrayed by the > > medical establishment. I hate coming from that place. It was a bad > > blast from the past. > > > > All vibes and prayers welcomed.. > > > > Thank you all for your help and support.. > > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers > > for helping me through this process regaining control and getting my > > life back from this awful disease. > > I have been house-bound and sick for so many years it is really hard > > to see beyond this and getting my life back. I hope as Elaine says > > that this surgery will give me a fresh page, a fresh start.. Healing > > from all of this debilitating scar tissue. Lord knows I have tried > > to avoid this path but perhaps some of us are too far gone.. I wish > > I would of found this diet sooner. I try to find the meaning why all > > of this is happening to me.. It's hard to know why... > > > > Hope to have some good updates soon.. > > > > Jodi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Alyssa...did I read that you are only 15? Seriously? You are one amazing and level headed girl!!! Kelley W. > > > > > > > Hi Everyone, > > > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so > > that means I have to fast longer which never makes me feel good. > > They did not tell me the hour I need to be in the hospital though- > > need to call Monday morning. > > > > For the clear liquids I am having strained bone broth, diluted > > pineapple juice and apple juice jello. I am doing the Miralax prep > > as it was ok for me during my colonoscopy. Not really sure how to > > adjust prep time since I am not morning surgery. The surgeon said I > > can drink clear liquids until 6am Monday. > > > > I was told since they are not sure how long the surgery will take > > they scheduled me " for the longest block " as the surgeon will do > > short procedures in the morning and I am after that. > > > > I have opted to go with the Epidural Catheter for the first 2-3 days > > of surgery. They deliver the pain meds through the spine (Epidural > > Catheter) and apparently it is a lot more efficient and they need to > > use a lot less narcotics than IV. Also, it has far less nausea as a > > side effect (I suffer from AWFUL nausea from IV pain meds that is > > one of the reasons I met the pain specialist on Friday as I believe > > in the past it was hard for me to get out of the hospital due to the > > nausea) I was also concerned with post op pain killers due to > > Tylenol making me sick- and usually they give Percocet or Percodan. > > But they will give me Dilaudid if need be. I hope I am one of those > > people that doesn't need much pain meds. My husband thinks that I > > have a good threshold since going through so many bowel obstructions > > with recent ones being on LDN and not really getting anything > > besides an NSAID shot or NSAID IV which as we know as IBD'ers does > > wonders for the gut <vbg> > > > > I am also having an acupuncturist come to the hospital and while I > > am at home post op. I hope this will also mitigate the pain and > > promote healing. > > > > I am definitely scared. I don't have the greatest track record when > > it comes to Western Medicine. > > > > All my docs have been wonderful except my last appt on Friday with a > > pain specialist that was a crass a$$hole. He literally told me that > > Crohn's pain -never- goes away and it is a hard disease and I will > > be on pain meds a long time. He just made me feel " why should I do > > this surgery? Why should I go through this? if nothing will help " My > > brother was with me and we both felt the rug being swept from > > underneath us. My brother spoke up for me. But needless to say the > > stress from that appointment caused me anal bleeding when I came > > home. I felt so disempowered and discouraged. It brought me back to > > the days pre-SCD where I felt like a victim and betrayed by the > > medical establishment. I hate coming from that place. It was a bad > > blast from the past. > > > > All vibes and prayers welcomed.. > > > > Thank you all for your help and support.. > > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers > > for helping me through this process regaining control and getting my > > life back from this awful disease. > > I have been house-bound and sick for so many years it is really hard > > to see beyond this and getting my life back. I hope as Elaine says > > that this surgery will give me a fresh page, a fresh start.. Healing > > from all of this debilitating scar tissue. Lord knows I have tried > > to avoid this path but perhaps some of us are too far gone.. I wish > > I would of found this diet sooner. I try to find the meaning why all > > of this is happening to me.. It's hard to know why... > > > > Hope to have some good updates soon.. > > > > Jodi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Alyssa...did I read that you are only 15? Seriously? You are one amazing and level headed girl!!! Kelley W. > > > > > > > Hi Everyone, > > > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so > > that means I have to fast longer which never makes me feel good. > > They did not tell me the hour I need to be in the hospital though- > > need to call Monday morning. > > > > For the clear liquids I am having strained bone broth, diluted > > pineapple juice and apple juice jello. I am doing the Miralax prep > > as it was ok for me during my colonoscopy. Not really sure how to > > adjust prep time since I am not morning surgery. The surgeon said I > > can drink clear liquids until 6am Monday. > > > > I was told since they are not sure how long the surgery will take > > they scheduled me " for the longest block " as the surgeon will do > > short procedures in the morning and I am after that. > > > > I have opted to go with the Epidural Catheter for the first 2-3 days > > of surgery. They deliver the pain meds through the spine (Epidural > > Catheter) and apparently it is a lot more efficient and they need to > > use a lot less narcotics than IV. Also, it has far less nausea as a > > side effect (I suffer from AWFUL nausea from IV pain meds that is > > one of the reasons I met the pain specialist on Friday as I believe > > in the past it was hard for me to get out of the hospital due to the > > nausea) I was also concerned with post op pain killers due to > > Tylenol making me sick- and usually they give Percocet or Percodan. > > But they will give me Dilaudid if need be. I hope I am one of those > > people that doesn't need much pain meds. My husband thinks that I > > have a good threshold since going through so many bowel obstructions > > with recent ones being on LDN and not really getting anything > > besides an NSAID shot or NSAID IV which as we know as IBD'ers does > > wonders for the gut <vbg> > > > > I am also having an acupuncturist come to the hospital and while I > > am at home post op. I hope this will also mitigate the pain and > > promote healing. > > > > I am definitely scared. I don't have the greatest track record when > > it comes to Western Medicine. > > > > All my docs have been wonderful except my last appt on Friday with a > > pain specialist that was a crass a$$hole. He literally told me that > > Crohn's pain -never- goes away and it is a hard disease and I will > > be on pain meds a long time. He just made me feel " why should I do > > this surgery? Why should I go through this? if nothing will help " My > > brother was with me and we both felt the rug being swept from > > underneath us. My brother spoke up for me. But needless to say the > > stress from that appointment caused me anal bleeding when I came > > home. I felt so disempowered and discouraged. It brought me back to > > the days pre-SCD where I felt like a victim and betrayed by the > > medical establishment. I hate coming from that place. It was a bad > > blast from the past. > > > > All vibes and prayers welcomed.. > > > > Thank you all for your help and support.. > > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers > > for helping me through this process regaining control and getting my > > life back from this awful disease. > > I have been house-bound and sick for so many years it is really hard > > to see beyond this and getting my life back. I hope as Elaine says > > that this surgery will give me a fresh page, a fresh start.. Healing > > from all of this debilitating scar tissue. Lord knows I have tried > > to avoid this path but perhaps some of us are too far gone.. I wish > > I would of found this diet sooner. I try to find the meaning why all > > of this is happening to me.. It's hard to know why... > > > > Hope to have some good updates soon.. > > > > Jodi > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Yeah, I'm 15. Thank you Kelley! That's so nice of you to say, it really made me smile =) Must be something about having IBD!AlyssaAlyssa...did I read that you are only 15? Seriously? You are one amazing and level headed girl!!!Kelley W.> > >> >> > Hi Everyone,> >> > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so > > that means I have to fast longer which never makes me feel good.> > They did not tell me the hour I need to be in the hospital though- > > need to call Monday morning.> >> > For the clear liquids I am having strained bone broth, diluted > > pineapple juice and apple juice jello. I am doing the Miralax prep > > as it was ok for me during my colonoscopy. Not really sure how to > > adjust prep time since I am not morning surgery. The surgeon said I > > can drink clear liquids until 6am Monday.> >> > I was told since they are not sure how long the surgery will take > > they scheduled me "for the longest block" as the surgeon will do > > short procedures in the morning and I am after that.> >> > I have opted to go with the Epidural Catheter for the first 2-3 days > > of surgery. They deliver the pain meds through the spine (Epidural > > Catheter) and apparently it is a lot more efficient and they need to > > use a lot less narcotics than IV. Also, it has far less nausea as a > > side effect (I suffer from AWFUL nausea from IV pain meds that is > > one of the reasons I met the pain specialist on Friday as I believe > > in the past it was hard for me to get out of the hospital due to the > > nausea) I was also concerned with post op pain killers due to > > Tylenol making me sick- and usually they give Percocet or Percodan. > > But they will give me Dilaudid if need be. I hope I am one of those > > people that doesn't need much pain meds. My husband thinks that I > > have a good threshold since going through so many bowel obstructions > > with recent ones being on LDN and not really getting anything > > besides an NSAID shot or NSAID IV which as we know as IBD'ers does > > wonders for the gut <vbg>> >> > I am also having an acupuncturist come to the hospital and while I > > am at home post op. I hope this will also mitigate the pain and > > promote healing.> >> > I am definitely scared. I don't have the greatest track record when > > it comes to Western Medicine.> >> > All my docs have been wonderful except my last appt on Friday with a > > pain specialist that was a crass a$$hole. He literally told me that > > Crohn's pain -never- goes away and it is a hard disease and I will > > be on pain meds a long time. He just made me feel "why should I do > > this surgery? Why should I go through this? if nothing will help" My > > brother was with me and we both felt the rug being swept from > > underneath us. My brother spoke up for me. But needless to say the > > stress from that appointment caused me anal bleeding when I came > > home. I felt so disempowered and discouraged. It brought me back to > > the days pre-SCD where I felt like a victim and betrayed by the > > medical establishment. I hate coming from that place. It was a bad > > blast from the past.> >> > All vibes and prayers welcomed..> >> > Thank you all for your help and support..> > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers > > for helping me through this process regaining control and getting my > > life back from this awful disease.> > I have been house-bound and sick for so many years it is really hard > > to see beyond this and getting my life back. I hope as Elaine says > > that this surgery will give me a fresh page, a fresh start.. Healing > > from all of this debilitating scar tissue. Lord knows I have tried > > to avoid this path but perhaps some of us are too far gone.. I wish > > I would of found this diet sooner. I try to find the meaning why all > > of this is happening to me.. It's hard to know why...> >> > Hope to have some good updates soon..> >> > Jodi> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Yeah, I'm 15. Thank you Kelley! That's so nice of you to say, it really made me smile =) Must be something about having IBD!AlyssaAlyssa...did I read that you are only 15? Seriously? You are one amazing and level headed girl!!!Kelley W.> > >> >> > Hi Everyone,> >> > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so > > that means I have to fast longer which never makes me feel good.> > They did not tell me the hour I need to be in the hospital though- > > need to call Monday morning.> >> > For the clear liquids I am having strained bone broth, diluted > > pineapple juice and apple juice jello. I am doing the Miralax prep > > as it was ok for me during my colonoscopy. Not really sure how to > > adjust prep time since I am not morning surgery. The surgeon said I > > can drink clear liquids until 6am Monday.> >> > I was told since they are not sure how long the surgery will take > > they scheduled me "for the longest block" as the surgeon will do > > short procedures in the morning and I am after that.> >> > I have opted to go with the Epidural Catheter for the first 2-3 days > > of surgery. They deliver the pain meds through the spine (Epidural > > Catheter) and apparently it is a lot more efficient and they need to > > use a lot less narcotics than IV. Also, it has far less nausea as a > > side effect (I suffer from AWFUL nausea from IV pain meds that is > > one of the reasons I met the pain specialist on Friday as I believe > > in the past it was hard for me to get out of the hospital due to the > > nausea) I was also concerned with post op pain killers due to > > Tylenol making me sick- and usually they give Percocet or Percodan. > > But they will give me Dilaudid if need be. I hope I am one of those > > people that doesn't need much pain meds. My husband thinks that I > > have a good threshold since going through so many bowel obstructions > > with recent ones being on LDN and not really getting anything > > besides an NSAID shot or NSAID IV which as we know as IBD'ers does > > wonders for the gut <vbg>> >> > I am also having an acupuncturist come to the hospital and while I > > am at home post op. I hope this will also mitigate the pain and > > promote healing.> >> > I am definitely scared. I don't have the greatest track record when > > it comes to Western Medicine.> >> > All my docs have been wonderful except my last appt on Friday with a > > pain specialist that was a crass a$$hole. He literally told me that > > Crohn's pain -never- goes away and it is a hard disease and I will > > be on pain meds a long time. He just made me feel "why should I do > > this surgery? Why should I go through this? if nothing will help" My > > brother was with me and we both felt the rug being swept from > > underneath us. My brother spoke up for me. But needless to say the > > stress from that appointment caused me anal bleeding when I came > > home. I felt so disempowered and discouraged. It brought me back to > > the days pre-SCD where I felt like a victim and betrayed by the > > medical establishment. I hate coming from that place. It was a bad > > blast from the past.> >> > All vibes and prayers welcomed..> >> > Thank you all for your help and support..> > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers > > for helping me through this process regaining control and getting my > > life back from this awful disease.> > I have been house-bound and sick for so many years it is really hard > > to see beyond this and getting my life back. I hope as Elaine says > > that this surgery will give me a fresh page, a fresh start.. Healing > > from all of this debilitating scar tissue. Lord knows I have tried > > to avoid this path but perhaps some of us are too far gone.. I wish > > I would of found this diet sooner. I try to find the meaning why all > > of this is happening to me.. It's hard to know why...> >> > Hope to have some good updates soon..> >> > Jodi> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Yeah, I'm 15. Thank you Kelley! That's so nice of you to say, it really made me smile =) Must be something about having IBD!AlyssaAlyssa...did I read that you are only 15? Seriously? You are one amazing and level headed girl!!!Kelley W.> > >> >> > Hi Everyone,> >> > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so > > that means I have to fast longer which never makes me feel good.> > They did not tell me the hour I need to be in the hospital though- > > need to call Monday morning.> >> > For the clear liquids I am having strained bone broth, diluted > > pineapple juice and apple juice jello. I am doing the Miralax prep > > as it was ok for me during my colonoscopy. Not really sure how to > > adjust prep time since I am not morning surgery. The surgeon said I > > can drink clear liquids until 6am Monday.> >> > I was told since they are not sure how long the surgery will take > > they scheduled me "for the longest block" as the surgeon will do > > short procedures in the morning and I am after that.> >> > I have opted to go with the Epidural Catheter for the first 2-3 days > > of surgery. They deliver the pain meds through the spine (Epidural > > Catheter) and apparently it is a lot more efficient and they need to > > use a lot less narcotics than IV. Also, it has far less nausea as a > > side effect (I suffer from AWFUL nausea from IV pain meds that is > > one of the reasons I met the pain specialist on Friday as I believe > > in the past it was hard for me to get out of the hospital due to the > > nausea) I was also concerned with post op pain killers due to > > Tylenol making me sick- and usually they give Percocet or Percodan. > > But they will give me Dilaudid if need be. I hope I am one of those > > people that doesn't need much pain meds. My husband thinks that I > > have a good threshold since going through so many bowel obstructions > > with recent ones being on LDN and not really getting anything > > besides an NSAID shot or NSAID IV which as we know as IBD'ers does > > wonders for the gut <vbg>> >> > I am also having an acupuncturist come to the hospital and while I > > am at home post op. I hope this will also mitigate the pain and > > promote healing.> >> > I am definitely scared. I don't have the greatest track record when > > it comes to Western Medicine.> >> > All my docs have been wonderful except my last appt on Friday with a > > pain specialist that was a crass a$$hole. He literally told me that > > Crohn's pain -never- goes away and it is a hard disease and I will > > be on pain meds a long time. He just made me feel "why should I do > > this surgery? Why should I go through this? if nothing will help" My > > brother was with me and we both felt the rug being swept from > > underneath us. My brother spoke up for me. But needless to say the > > stress from that appointment caused me anal bleeding when I came > > home. I felt so disempowered and discouraged. It brought me back to > > the days pre-SCD where I felt like a victim and betrayed by the > > medical establishment. I hate coming from that place. It was a bad > > blast from the past.> >> > All vibes and prayers welcomed..> >> > Thank you all for your help and support..> > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers > > for helping me through this process regaining control and getting my > > life back from this awful disease.> > I have been house-bound and sick for so many years it is really hard > > to see beyond this and getting my life back. I hope as Elaine says > > that this surgery will give me a fresh page, a fresh start.. Healing > > from all of this debilitating scar tissue. Lord knows I have tried > > to avoid this path but perhaps some of us are too far gone.. I wish > > I would of found this diet sooner. I try to find the meaning why all > > of this is happening to me.. It's hard to know why...> >> > Hope to have some good updates soon..> >> > Jodi> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2009 Report Share Posted May 9, 2009 Dear Jody.You have been on my mind.   There is so much support for you.  so much caring.  Hope that you and your brother can enjoy some light moments, and enjoy whatever ironies-- and other hits of humor--that come your way.  So sorry for 1PM time........  doesn't seem fair.  Tho perhaps better to let the doc warm up on other patients!  After all being the first may not always be the best.  How wonderful: it is close to over.... less than 48 hours.  then a big whew of relief from you and your supporters. With wishes for moments of ease, moments of joy and of peace,Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Thank you Marilyn! Your guidance and mentorship has been incredible. Thank you for teaching me to get my power back. Big hugs- Jodi > We will all be praying for you, in whatever > belief system each of us professes. > > HUGS, Lady.... be well! And don't forget to take your Towel! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Thank you Marilyn! Your guidance and mentorship has been incredible. Thank you for teaching me to get my power back. Big hugs- Jodi > We will all be praying for you, in whatever > belief system each of us professes. > > HUGS, Lady.... be well! And don't forget to take your Towel! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Thank you Marilyn! Your guidance and mentorship has been incredible. Thank you for teaching me to get my power back. Big hugs- Jodi > We will all be praying for you, in whatever > belief system each of us professes. > > HUGS, Lady.... be well! And don't forget to take your Towel! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Thank you all for your wonderful replies of encouragement. I love my SCD'ers! You guys give me so much. Big hugs- Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Jodi-- Just wanted to say good luck with your surgery--I will be thinking of you the whole day. Don't let one person ( pain doc) sway you in your faith in what you have accomplished with the SCD. You, and only you, have the power and ability to make happen what is in your power to do so. You can't change the fact that you have IBD--but you have been able to change your diet with positive results and positive quality of life. This well thought out surgery is also a positive step for an even better quality of life. Your strength, perseverance and positive attitude will make it happen for you. Even over the online airwaves, you have a wonderful energy that we all feel. You will do great. We are all here for you. Fond well wishes, Terry Surgery Hi Everyone,So I got my surgery hour- it's a bit of a bummer as it is at 1pm so that means I have to fast longer which never makes me feel good.They did not tell me the hour I need to be in the hospital though- need to call Monday morning.For the clear liquids I am having strained bone broth, diluted pineapple juice and apple juice jello. I am doing the Miralax prep as it was ok for me during my colonoscopy. Not really sure how to adjust prep time since I am not morning surgery. The surgeon said I can drink clear liquids until 6am Monday.I was told since they are not sure how long the surgery will take they scheduled me "for the longest block" as the surgeon will do short procedures in the morning and I am after that.I have opted to go with the Epidural Catheter for the first 2-3 days of surgery. They deliver the pain meds through the spine (Epidural Catheter) and apparently it is a lot more efficient and they need to use a lot less narcotics than IV. Also, it has far less nausea as a side effect (I suffer from AWFUL nausea from IV pain meds that is one of the reasons I met the pain specialist on Friday as I believe in the past it was hard for me to get out of the hospital due to the nausea) I was also concerned with post op pain killers due to Tylenol making me sick- and usually they give Percocet or Percodan. But they will give me Dilaudid if need be. I hope I am one of those people that doesn't need much pain meds. My husband thinks that I have a good threshold since going through so many bowel obstructions with recent ones being on LDN and not really getting anything besides an NSAID shot or NSAID IV which as we know as IBD'ers does wonders for the gut <vbg>I am also having an acupuncturist come to the hospital and while I am at home post op. I hope this will also mitigate the pain and promote healing.I am definitely scared. I don't have the greatest track record when it comes to Western Medicine.All my docs have been wonderful except my last appt on Friday with a pain specialist that was a crass a$$hole. He literally told me that Crohn's pain -never- goes away and it is a hard disease and I will be on pain meds a long time. He just made me feel "why should I do this surgery? Why should I go through this? if nothing will help" My brother was with me and we both felt the rug being swept from underneath us. My brother spoke up for me. But needless to say the stress from that appointment caused me anal bleeding when I came home. I felt so disempowered and discouraged. It brought me back to the days pre-SCD where I felt like a victim and betrayed by the medical establishment. I hate coming from that place. It was a bad blast from the past.All vibes and prayers welcomed..Thank you all for your help and support..I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers for helping me through this process regaining control and getting my life back from this awful disease.I have been house-bound and sick for so many years it is really hard to see beyond this and getting my life back. I hope as Elaine says that this surgery will give me a fresh page, a fresh start.. Healing from all of this debilitating scar tissue. Lord knows I have tried to avoid this path but perhaps some of us are too far gone.. I wish I would of found this diet sooner. I try to find the meaning why all of this is happening to me.. It's hard to know why...Hope to have some good updates soon..Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Jodi you will be in my thoughts and prayers tomorrow. PJ > > Hi Everyone, > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so that means I have to fast longer which never makes me feel good. > They did not tell me the hour I need to be in the hospital though- need to call Monday morning. > > For the clear liquids I am having strained bone broth, diluted pineapple juice and apple juice jello. I am doing the Miralax prep as it was ok for me during my colonoscopy. Not really sure how to adjust prep time since I am not morning surgery. The surgeon said I can drink clear liquids until 6am Monday. > > I was told since they are not sure how long the surgery will take they scheduled me " for the longest block " as the surgeon will do short procedures in the morning and I am after that. > > I have opted to go with the Epidural Catheter for the first 2-3 days of surgery. They deliver the pain meds through the spine (Epidural Catheter) and apparently it is a lot more efficient and they need to use a lot less narcotics than IV. Also, it has far less nausea as a side effect (I suffer from AWFUL nausea from IV pain meds that is one of the reasons I met the pain specialist on Friday as I believe in the past it was hard for me to get out of the hospital due to the nausea) I was also concerned with post op pain killers due to Tylenol making me sick- and usually they give Percocet or Percodan. But they will give me Dilaudid if need be. I hope I am one of those people that doesn't need much pain meds. My husband thinks that I have a good threshold since going through so many bowel obstructions with recent ones being on LDN and not really getting anything besides an NSAID shot or NSAID IV which as we know as IBD'ers does wonders for the gut <vbg> > > I am also having an acupuncturist come to the hospital and while I am at home post op. I hope this will also mitigate the pain and promote healing. > > I am definitely scared. I don't have the greatest track record when it comes to Western Medicine. > > All my docs have been wonderful except my last appt on Friday with a pain specialist that was a crass a$$hole. He literally told me that Crohn's pain -never- goes away and it is a hard disease and I will be on pain meds a long time. He just made me feel " why should I do this surgery? Why should I go through this? if nothing will help " My brother was with me and we both felt the rug being swept from underneath us. My brother spoke up for me. But needless to say the stress from that appointment caused me anal bleeding when I came home. I felt so disempowered and discouraged. It brought me back to the days pre-SCD where I felt like a victim and betrayed by the medical establishment. I hate coming from that place. It was a bad blast from the past. > > All vibes and prayers welcomed.. > > Thank you all for your help and support.. > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers for helping me through this process regaining control and getting my life back from this awful disease. > I have been house-bound and sick for so many years it is really hard to see beyond this and getting my life back. I hope as Elaine says that this surgery will give me a fresh page, a fresh start.. Healing from all of this debilitating scar tissue. Lord knows I have tried to avoid this path but perhaps some of us are too far gone.. I wish I would of found this diet sooner. I try to find the meaning why all of this is happening to me.. It's hard to know why... > > Hope to have some good updates soon.. > > Jodi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 God Bless - I will add you to my prayer request list ASAP and will certainly be praying - you'll be fine - can't wait to see how good you're doing !!!!!!!! good vibes heading your way!!!! eileen > > > > Hi Everyone, > > > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so that means I have to fast longer which never makes me feel good. > > They did not tell me the hour I need to be in the hospital though- need to call Monday morning. > > > > For the clear liquids I am having strained bone broth, diluted pineapple juice and apple juice jello. I am doing the Miralax prep as it was ok for me during my colonoscopy. Not really sure how to adjust prep time since I am not morning surgery. The surgeon said I can drink clear liquids until 6am Monday. > > > > I was told since they are not sure how long the surgery will take they scheduled me " for the longest block " as the surgeon will do short procedures in the morning and I am after that. > > > > I have opted to go with the Epidural Catheter for the first 2-3 days of surgery. They deliver the pain meds through the spine (Epidural Catheter) and apparently it is a lot more efficient and they need to use a lot less narcotics than IV. Also, it has far less nausea as a side effect (I suffer from AWFUL nausea from IV pain meds that is one of the reasons I met the pain specialist on Friday as I believe in the past it was hard for me to get out of the hospital due to the nausea) I was also concerned with post op pain killers due to Tylenol making me sick- and usually they give Percocet or Percodan. But they will give me Dilaudid if need be. I hope I am one of those people that doesn't need much pain meds. My husband thinks that I have a good threshold since going through so many bowel obstructions with recent ones being on LDN and not really getting anything besides an NSAID shot or NSAID IV which as we know as IBD'ers does wonders for the gut <vbg> > > > > I am also having an acupuncturist come to the hospital and while I am at home post op. I hope this will also mitigate the pain and promote healing. > > > > I am definitely scared. I don't have the greatest track record when it comes to Western Medicine. > > > > All my docs have been wonderful except my last appt on Friday with a pain specialist that was a crass a$$hole. He literally told me that Crohn's pain -never- goes away and it is a hard disease and I will be on pain meds a long time. He just made me feel " why should I do this surgery? Why should I go through this? if nothing will help " My brother was with me and we both felt the rug being swept from underneath us. My brother spoke up for me. But needless to say the stress from that appointment caused me anal bleeding when I came home. I felt so disempowered and discouraged. It brought me back to the days pre-SCD where I felt like a victim and betrayed by the medical establishment. I hate coming from that place. It was a bad blast from the past. > > > > All vibes and prayers welcomed.. > > > > Thank you all for your help and support.. > > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers for helping me through this process regaining control and getting my life back from this awful disease. > > I have been house-bound and sick for so many years it is really hard to see beyond this and getting my life back. I hope as Elaine says that this surgery will give me a fresh page, a fresh start.. Healing from all of this debilitating scar tissue. Lord knows I have tried to avoid this path but perhaps some of us are too far gone.. I wish I would of found this diet sooner. I try to find the meaning why all of this is happening to me.. It's hard to know why... > > > > Hope to have some good updates soon.. > > > > Jodi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 God Bless - I will add you to my prayer request list ASAP and will certainly be praying - you'll be fine - can't wait to see how good you're doing !!!!!!!! good vibes heading your way!!!! eileen > > > > Hi Everyone, > > > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so that means I have to fast longer which never makes me feel good. > > They did not tell me the hour I need to be in the hospital though- need to call Monday morning. > > > > For the clear liquids I am having strained bone broth, diluted pineapple juice and apple juice jello. I am doing the Miralax prep as it was ok for me during my colonoscopy. Not really sure how to adjust prep time since I am not morning surgery. The surgeon said I can drink clear liquids until 6am Monday. > > > > I was told since they are not sure how long the surgery will take they scheduled me " for the longest block " as the surgeon will do short procedures in the morning and I am after that. > > > > I have opted to go with the Epidural Catheter for the first 2-3 days of surgery. They deliver the pain meds through the spine (Epidural Catheter) and apparently it is a lot more efficient and they need to use a lot less narcotics than IV. Also, it has far less nausea as a side effect (I suffer from AWFUL nausea from IV pain meds that is one of the reasons I met the pain specialist on Friday as I believe in the past it was hard for me to get out of the hospital due to the nausea) I was also concerned with post op pain killers due to Tylenol making me sick- and usually they give Percocet or Percodan. But they will give me Dilaudid if need be. I hope I am one of those people that doesn't need much pain meds. My husband thinks that I have a good threshold since going through so many bowel obstructions with recent ones being on LDN and not really getting anything besides an NSAID shot or NSAID IV which as we know as IBD'ers does wonders for the gut <vbg> > > > > I am also having an acupuncturist come to the hospital and while I am at home post op. I hope this will also mitigate the pain and promote healing. > > > > I am definitely scared. I don't have the greatest track record when it comes to Western Medicine. > > > > All my docs have been wonderful except my last appt on Friday with a pain specialist that was a crass a$$hole. He literally told me that Crohn's pain -never- goes away and it is a hard disease and I will be on pain meds a long time. He just made me feel " why should I do this surgery? Why should I go through this? if nothing will help " My brother was with me and we both felt the rug being swept from underneath us. My brother spoke up for me. But needless to say the stress from that appointment caused me anal bleeding when I came home. I felt so disempowered and discouraged. It brought me back to the days pre-SCD where I felt like a victim and betrayed by the medical establishment. I hate coming from that place. It was a bad blast from the past. > > > > All vibes and prayers welcomed.. > > > > Thank you all for your help and support.. > > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers for helping me through this process regaining control and getting my life back from this awful disease. > > I have been house-bound and sick for so many years it is really hard to see beyond this and getting my life back. I hope as Elaine says that this surgery will give me a fresh page, a fresh start.. Healing from all of this debilitating scar tissue. Lord knows I have tried to avoid this path but perhaps some of us are too far gone.. I wish I would of found this diet sooner. I try to find the meaning why all of this is happening to me.. It's hard to know why... > > > > Hope to have some good updates soon.. > > > > Jodi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 God Bless - I will add you to my prayer request list ASAP and will certainly be praying - you'll be fine - can't wait to see how good you're doing !!!!!!!! good vibes heading your way!!!! eileen > > > > Hi Everyone, > > > > So I got my surgery hour- it's a bit of a bummer as it is at 1pm so that means I have to fast longer which never makes me feel good. > > They did not tell me the hour I need to be in the hospital though- need to call Monday morning. > > > > For the clear liquids I am having strained bone broth, diluted pineapple juice and apple juice jello. I am doing the Miralax prep as it was ok for me during my colonoscopy. Not really sure how to adjust prep time since I am not morning surgery. The surgeon said I can drink clear liquids until 6am Monday. > > > > I was told since they are not sure how long the surgery will take they scheduled me " for the longest block " as the surgeon will do short procedures in the morning and I am after that. > > > > I have opted to go with the Epidural Catheter for the first 2-3 days of surgery. They deliver the pain meds through the spine (Epidural Catheter) and apparently it is a lot more efficient and they need to use a lot less narcotics than IV. Also, it has far less nausea as a side effect (I suffer from AWFUL nausea from IV pain meds that is one of the reasons I met the pain specialist on Friday as I believe in the past it was hard for me to get out of the hospital due to the nausea) I was also concerned with post op pain killers due to Tylenol making me sick- and usually they give Percocet or Percodan. But they will give me Dilaudid if need be. I hope I am one of those people that doesn't need much pain meds. My husband thinks that I have a good threshold since going through so many bowel obstructions with recent ones being on LDN and not really getting anything besides an NSAID shot or NSAID IV which as we know as IBD'ers does wonders for the gut <vbg> > > > > I am also having an acupuncturist come to the hospital and while I am at home post op. I hope this will also mitigate the pain and promote healing. > > > > I am definitely scared. I don't have the greatest track record when it comes to Western Medicine. > > > > All my docs have been wonderful except my last appt on Friday with a pain specialist that was a crass a$$hole. He literally told me that Crohn's pain -never- goes away and it is a hard disease and I will be on pain meds a long time. He just made me feel " why should I do this surgery? Why should I go through this? if nothing will help " My brother was with me and we both felt the rug being swept from underneath us. My brother spoke up for me. But needless to say the stress from that appointment caused me anal bleeding when I came home. I felt so disempowered and discouraged. It brought me back to the days pre-SCD where I felt like a victim and betrayed by the medical establishment. I hate coming from that place. It was a bad blast from the past. > > > > All vibes and prayers welcomed.. > > > > Thank you all for your help and support.. > > I bless this diet, Elaine G, Dr Haas and countless long term SCD'ers for helping me through this process regaining control and getting my life back from this awful disease. > > I have been house-bound and sick for so many years it is really hard to see beyond this and getting my life back. I hope as Elaine says that this surgery will give me a fresh page, a fresh start.. Healing from all of this debilitating scar tissue. Lord knows I have tried to avoid this path but perhaps some of us are too far gone.. I wish I would of found this diet sooner. I try to find the meaning why all of this is happening to me.. It's hard to know why... > > > > Hope to have some good updates soon.. > > > > Jodi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Jodi, In the words of the Canadian Mounties, " The difficult we do at once. The impossible takes a little longer. " So chin up, and remember, Nole illegitimi carborundum. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2009 Report Share Posted May 10, 2009 Jodi, In the words of the Canadian Mounties, " The difficult we do at once. The impossible takes a little longer. " So chin up, and remember, Nole illegitimi carborundum. — Marilyn New Orleans, Louisiana, USA Undiagnosed IBS since 1976, SCD since 2001 Darn Good SCD Cook No Human Children Shadow & Sunny Longhair Dachshund Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2009 Report Share Posted May 11, 2009 Marilyn my friend and teacher.. Thank you. Jodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Delighted!  Thank BoJ: Brother of Jodi!  Yes:  this List is an amazing support network!Thank you for the good news.Jodi: hope you allow yourself to rest rest rest, and take all needed time for healing...and rest.  warmly,Ruth Jodi's out of surgery! Here's the word: Hello Jodi's SCD community peeps Jodi came out of surgery 4:47pm (she went in to the OR @ 1:47pm). She did great. Right now she's in her room settling in... and at the moment falling asleep. Thank you so much for being such a support system for her. My heart is warmed by how resourced she has become due to this community. Please do me a favor and post this on all other SCD related Yahoo Groups. I know there is a google group as well. Big Love, (Jodi's Brother) — Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001    Darn Good SCD Cook    No Human Children    Shadow & Sunny Longhair Dachshund        Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2009 Report Share Posted May 12, 2009 Delighted!  Thank BoJ: Brother of Jodi!  Yes:  this List is an amazing support network!Thank you for the good news.Jodi: hope you allow yourself to rest rest rest, and take all needed time for healing...and rest.  warmly,Ruth Jodi's out of surgery! Here's the word: Hello Jodi's SCD community peeps Jodi came out of surgery 4:47pm (she went in to the OR @ 1:47pm). She did great. Right now she's in her room settling in... and at the moment falling asleep. Thank you so much for being such a support system for her. My heart is warmed by how resourced she has become due to this community. Please do me a favor and post this on all other SCD related Yahoo Groups. I know there is a google group as well. Big Love, (Jodi's Brother) — Marilyn    New Orleans, Louisiana, USA    Undiagnosed IBS since 1976, SCD since 2001    Darn Good SCD Cook    No Human Children    Shadow & Sunny Longhair Dachshund        Quote Link to comment Share on other sites More sharing options...
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