Re: I LOST THE KNOT IN MY ROPE - HELP!!!!

[Guest guest]

Betty, you have had your share of troubles that is for sure. Just something

to think about and I'm sure you have already thought about it, but if you

become unable to care for Don then who would over see his needs. Would it not

be better for both of you to be in a care facility until you recover from

your physical conditions are under control. You would still be with Don and be

able to see that he is being taken care of. It would be better mentally and

stress free for that time. Give it some thought.......Flora

[Guest guest]

Dear Bonnie & Don,

You poor, poor dear!! It sounds like you are doing pretty darn good despite

your horrific summer. Being able to write and tell all of us about it, is a

positive sign. Keep us informed about your blood, & hang onto that loose knot

real tight!

God bless you!

Laurel

[Guest guest]

Oh Bonnie

My heart goes out to you and Don. You've had more than your share of

stress for sure.

Now please don't close your mind completely to a care facility. My

friend was diagnosed with Bell's Palsy. Her daughter is disabled and

couldn't help so she agreed to assisted living. She was there a year

while re-learning to eat and walk etc....She then moved back into a

place of her own. She laughs when she shares that one could get

spoiled in those places where they cook great meals and serve you, do

your laundry and hang it in your closet, and come in often to talk

and keep your spirits up. They even bussed her to the musical

concerts in town. Several of her neighbors were couples on the mend

who wanted to stay together.

Sounds like to me that you could use some spoiling and pampering just

for a while until your health gets better.

Hang in there

Eva in WV

[Guest guest]

Dear Bonnie and Don,

Please know that I will say some prayers for you and you keep

holding on and Eva is right, maybe some assisted living care

facility would help both of you get more strength back even sooner!

....and having someone you depended on, your angel, and having her

not be there can be a real blow to your security, so think about it

and may God continue to give you strength to face each new day!

HUGS,

Sue Me

>

> I HAVE GOTTEN SOME STRENGTH BACK. AND HAVE BEEN ABLE TO CARE FOR

DON DURING THE DAY AND WE ARE BACK TO THE REGULAR SCHEDULE WITH THE

AIDS.

>

> SINCE I HAVE GOTTEN HOME MY BLOOD COUNT IS GOING DOWN AGAIN. BUT

SINCE I BROKE THE LIFT ON THE VAN AND IT CAN'T BE FIXED UNTIL NEXT

FRIDAY ALL MY DR. APPOINTMENT HAVE TO WAIT. WE BOTH HAVE A HOME

NURSE COMING A COUPLE DAYS A WEEK TO CHECK ON US AND TAKE BLOOD.

>

> I HAVE THE BEGINNINGS OF A KNOT BUT IT IS PRETTY LOOSE.

> CAN'T TIGHTEN IT UNTIL WE FIND OUT WHAT IS GOING ON WITH ME.

> ]

>

> I MISS YOU ALL. AND MAYBE SOME DAY I WILL CATCH UP ON EVERYTHING.

>

> LOVE

> BONNIE

>

[Guest guest]

Bonnie,

Bless your heart. You have so much going on, I don't know how you

do it. But you are one strong lady and the love you have in your

heart shows. Don is truly a lucky man for having such a loving,

caring wife.

Is your daughter able to help? Does your local ALSA help?

I'm praying for you and Don. I'm sure others on this list are doing

the same.

Hang on, you can't let go now.

Love Thomson

[Guest guest]

Hey Bonnie,

I made your zucchini bread yesterday, only I used carrots, as that

is what I had on hand. It was wonderful.

I use my cookbook all the time. It has such good recipes and I

think fondly of those that have contributed the ones I use.

[Guest guest]

Oh Bonnie, what a horrid summer, I do hope things are getting better. I

will keep you guys in my thoughts.

dale

I LOST THE KNOT IN MY ROPE - HELP!!!!

> HI ALL,

>

> WELL IT HAS BEEN QUITE SOME TIME SINCE I HAVE POSTED.

> I READ AS OFTEN AS I CAN BUT AM SO FAR BEHIND I WILL NEVER CATCH UP. I

> KNOW THAT THERE IS A LOT GOING ON WITH YOU ALL. I HOPE EVERYTHING WORKS

> OUT WELL FOR ALL.

>

[Guest guest]

Whew Bonnie, that's more than a handful of mishaps!! I'm sorry to hear you've

had it so rough. When it rains, it pours sometimes. I will definitely keep you

in my prayers. You are a strong woman though and I'm glad you took control.

Sometimes these events make us stronger. Don't neglect your body though. Don

needs you whole so take care of yourself for his sake as well as yours. Take

care and hang in there better days are ahead for you.

God Bless

Yolanda

I LOST THE KNOT IN MY ROPE - HELP!!!!

HI ALL,

WELL IT HAS BEEN QUITE SOME TIME SINCE I HAVE POSTED.

I READ AS OFTEN AS I CAN BUT AM SO FAR BEHIND I WILL NEVER CATCH UP. I KNOW

THAT THERE IS A LOT GOING ON WITH YOU ALL. I HOPE EVERYTHING WORKS OUT WELL FOR

ALL.

THIS SUMMER HAS JUST BEEN AWFUL. DON'S CONDITION CONTINUES TO GET WORST. WE

ARE STILL WAITING FOR HIS TALKER. HIS BI-PAP HAD TO BE INCREASED, AND WE ARE

FIGHTING TO KEEP HIS BOTTOM IN THE PINK WITH NOT BLISTERS OR RASHES. THE

ANGEL OF AN AID WE HAD FOR TWO YEARS HAS STARTED NURSING SCHOOL. SHE STILL

COMES ON THE WEEK ENDS TO CARE FOR DON. I AM SO HAPPY FOR THAT WE MISS HER SO

MUCH. SOME GOOD NEWS IS THAT SHE IS EXPECTING. SHE HADN'T PLANNED THAT FOR

DURING SCHOOL. SHE WILL DO FINE. SO WE HAVE HAD ALL KINDS OF REPLACEMENTS.

DON HAS NOT BEEN HAPPY WITH MANY OF THEM. WE NOW HAVE 4 DIFFERENT AIDS DOING

THE WORK THAT OUR ANGEL DID.

I HAVE BEEN HAVING QUITE A FEW HEALTH PROBLEMS. I HAVE A LUNG CONDITION THAT

HAS AFFECTED MY HEART.

AS A RESULT MY HEART CAN NOT CIRCULATE PROPERLY AND I AM JUST FILLING WITH

FLUIDS. MY LEGS LOOKED LIKE THE BELONGED ON AN ELEPHANT AND BEGAN LEAKING. SO

AS A RESULT OF THAT I ENDED UP WITH A VASCULAR SURGEON TO HELP WITH MY LEGS. I

HAVE FELT LIKE H--- AND MY DR. ORDERED TESTS. IT SEEMS THAT I AM NOT PRODUCING

RED OR WHITE BLOOD CELLS. I DEVELOPED AN INFECTION OF SOME SORT IN MY MOUTH AND

THAT HAS BEEN GOING ON ALL SUMMER. CAN'T GET IT CLEARED UP. THE SKIN ON MY

RIGHT LEG GETS AND INFECTION AND I CAN'T STAND ANYTHING TO TOUCH IT. THE DR.

SENDS ME TO AN ONCOLOGIST TO TRY AND FIND OUT WHAT IS GOING ON. HE RUNS ME

THROUGH THE GAMETE OF TESTS AND PICTURES.AND CT SCANS. SO THIS ONE MORNING

FEELING SO SICK I HAD AN APPOINTMENT WITH THE ONCOLOGIST AS WELL AS THE FAMILY

DR. LATER THAT DAY. SO I MAKE MY

DAUGHTER GO WITH ME BECAUSE I DIDN'T REALY WANT TO HEAR WHAT THIS GUY WAS

GOING TO TELL ME. ER ARE LOADING DON ON THE VAN. HE'S IN AND I GO TO GET IN

AND TRIP ACROSS THE LIFT AND FELL FLAT ON MY FACE IN THE DRIVE ACROSS THE LIFT

BARS. SMASHED MY POOR SORE LIPS ON THE BLACK TOP. I BLED SO MUCH I DIDN'T

THINK I HAD A MOUTH LEFT. THEY HAD TO GET AN AMBULANCE TO TAKE ME TO THE

HOSPITAL. I MISSED MY APPOINTMENT BUT WAS ADMITTED. MY BLOOD COUNT WAS SO LOW

THAT THEY STARTED ME ON BLOOD RIGHT AWAY. ANTIBIOTICS CAME LATER AFTER THEY

DECIDED THAT THE LEG WAS INFECTED BUT THAT MY BODY DID NOT HAVE ENOUGH WHIT

CELLS TO FIGHT IT. WELL THEY KEPT ME FOR A WEEK. CINDI WOULD BRING DON OVER

EACH DAY. SHE COME IN ONE DAY AND I COULDN'T UNDERSTAND A WORD THAT HE SAID. I

SENT HER DOWN TO THE ER WITH HIM. SEEMS THAT WHEN THE ORDERLY GAVE HIS A SHOWER

WHILE I WAS IN THE HOSPITAL HE CAUSED DON TO ASPIRATE WATER. HE HAD WATER ON

HIS LUNGS. SO HE WAS ADMITTED JUST 2 ROOMS DOWN FORM ME. THEY WOULD NOT ALLOW

US TO BE IN THE SAME ROOM.

SO AFTER DON WAS PUT IN THEY CAME IN AND TOLD ME THAT I WAS NOT ABLE TO CARE

FOR DON AND THAT HE WAS GOING TO HAVE TO GO INTO A NURSING HOME. THAT IS WHEN I

LOST MY KNOT. I CRIED FOR DAYS. THEN THEY TRIED TO TELL ME THAT I WAS GOING

TO HAVE TO GO INTO A NURSING HOME ALSO. WILL I STOPPED CRYING AND TOOK BACK THE

CONTROL.

WE BOTH CAME HOME ON TUESDAY. THANK GOODNESS THAT DON NEVER GOT PHENOMENA

THEY TREATED HIM WITH IV ANTIBIOTICS TO WARD IT OFF. PASSPORT PROVIDED HIM WITH

EXTRA CARE FOR EIGHT HOURS A DAY FOR 3 DAYS. THEN AND AID FOR AN EXTRA HOUR IN

THE AFTER NOON FOR A WEEK AFTER.

I HAVE GOTTEN SOME STRENGTH BACK. AND HAVE BEEN ABLE TO CARE FOR DON DURING

THE DAY AND WE ARE BACK TO THE REGULAR SCHEDULE WITH THE AIDS.

SINCE I HAVE GOTTEN HOME MY BLOOD COUNT IS GOING DOWN AGAIN. BUT SINCE I

BROKE THE LIFT ON THE VAN AND IT CAN'T BE FIXED UNTIL NEXT FRIDAY ALL MY DR.

APPOINTMENT HAVE TO WAIT. WE BOTH HAVE A HOME NURSE COMING A COUPLE DAYS A WEEK

TO CHECK ON US AND TAKE BLOOD.

I HAVE THE BEGINNINGS OF A KNOT BUT IT IS PRETTY LOOSE.

CAN'T TIGHTEN IT UNTIL WE FIND OUT WHAT IS GOING ON WITH ME.

]

I MISS YOU ALL. AND MAYBE SOME DAY I WILL CATCH UP ON EVERYTHING.

LOVE

BONNIE

[Guest guest]

Bonnie, what a nightmare you have been having! I am so sorry and will pray for

you and Don. God bless, Susieq in Calif