Re: Leigh Rose

[Guest guest]

Salut Nanci;

This is a great group and you will

have a lot of help from them.I expect

you live near me.I had a terrible time

trying to figure this all out in English

but one gets the hang of it after a few

months and a good dictionary. Lynne

[Guest guest]

Nanci...Buy your niece any of Henry Scammell's books on AP treatment. The

Road Back, or The Arthritis Breakthrough. It will be the best gift you could

possibly give her. Once I got well on AP, I began buying copies of these

books and loaning and giving them out to people who need them or are

interested.

I believe in that old theory.. " what goes around comes around. " People

showed me the way to better health, now it is my duty to pass the favor on.

Martha

[Guest guest]

Hi everyone,

I joined this list today. My name is Nanci. I am Aunt Nanci to my 22 year

old niece, Leigh Rose, diagnosed with JRA at 9 months old. The following

is a list of the meds she is currently taking:

The meds I am on is: Enbrel injections 30ml twice a week. Methotrexate 20ml

injection once a week. Indomyacin 75mg three times a day for the chest pain

and inflammation around my heart. Remeron 30mg a night for sleep. Methadone

10mg two times a day per pain. I just got done with cortisone injections a

three series. And also prednisone up to 60mg then taper down. So that is my

meds. I have alot more too but these are the ones i take everyday. The other

ones are more prn or as needed. Now I will have to look over all this again.

And I am going to have to tell my mother because she is going to have to pay

for it. I would like your help and appreciate your concern. And thank you

for taking the time to show me that someone still loves me and thinks about

my health as well.

About 2 weeks ago, I started doing research to help her. I found someone in

Concord, MA, Dr. Malis. I have only emailed him and he has been

very nice to email me back. His treatment is antibiotics.

My niece is going to read up on him tonight and let me know what she

decides. I will also let her know about this support group.

I suppose what I am hoping to find from this list is positive feedback from

the antibiotic treatment and your thoughts.

Sincerely,

Nanci

[Guest guest]

Sweet Martha, thank you! I will do this....Nanci

Re: rheumatic Leigh Rose

Nanci...Buy your niece any of Henry Scammell's books on AP treatment. The

Road Back, or The Arthritis Breakthrough. It will be the best gift you

could possibly give her. Once I got well on AP, I began buying copies of

these books and loaning and giving them out to people who need them or are

interested. I believe in that old theory.. " what goes around comes around. "

People showed me the way to better health, now it is my duty to pass the

favor on. Martha

[Guest guest]

Hi Nanci,

You are doing a wonderful thing for your niece. It was good advice to get

the Arthritis Breakthrough book because it contains all you need to know to

get started on AP, together with a good doctor. It might not always be

easy, starting AP after so long on all those other medications but the long

term benefits will be amazing. Go for it!!

Caroline Stronge.

[Guest guest]

Hi, !

Sally from Little Rock here.

Lots of us in this group have benefitted greatly from the AP (antibiotic

protocol) and hope your niece will, too!

I've been seropositive for RA since '99, but have had trouble with joints

since the fall of '92.

Saw Marge's reply to you-do get the book and also read some of the

wonderfully inspiring stories on rheumatic.org of people getting well.

I hate hearing your niece is on all those toxic meds. I remember the days I

spent in hellish pain and taking so many meds and still not getting relief.

I'm down to MWF 100 mg of Minocycline and 250 mg of Zithromax on W. I do

still taking Celebrex and Tylenol at nite and sometimes a muscle relaxer,

but I used to max out on everything, w/out relief!!

I also take Flax & Fish Oil, 1000 mg. daily, a multi-vitamin, B6 & B12, and

1600 units of Vit E to ward off hot flashes. I use MSM cream on my hands

when they hurt and it's wonderful relief. I started back on MSM capsules 2

days ago, in hopes of getting off Celebrex.

Best of luck to your niece!

She's in our thoughts and prayers!

Sally in Little Rock

RE: rheumatic Leigh Rose

> Hi everyone,

>

>

>

> I joined this list today. My name is Nanci. I am Aunt Nanci to my 22

year

> old niece, Leigh Rose, diagnosed with JRA at 9 months old. The following

> is a list of the meds she is currently taking:

>

>

>

> The meds I am on is: Enbrel injections 30ml twice a week. Methotrexate

20ml

>

> injection once a week. Indomyacin 75mg three times a day for the chest

pain

>

> and inflammation around my heart. Remeron 30mg a night for sleep.

Methadone

>

> 10mg two times a day per pain. I just got done with cortisone injections a

>

> three series. And also prednisone up to 60mg then taper down. So that is

my

>

> meds. I have alot more too but these are the ones i take everyday. The

other

>

>

> ones are more prn or as needed. Now I will have to look over all this

again.

>

>

> And I am going to have to tell my mother because she is going to have to

pay

>

>

> for it. I would like your help and appreciate your concern. And thank you

>

> for taking the time to show me that someone still loves me and thinks

about

>

> my health as well.

>

>

>

> About 2 weeks ago, I started doing research to help her. I found someone

in

> Concord, MA, Dr. Malis. I have only emailed him and he has been

> very nice to email me back. His treatment is antibiotics.

>

> My niece is going to read up on him tonight and let me know what she

> decides. I will also let her know about this support group.

>

>

>

> I suppose what I am hoping to find from this list is positive feedback

from

> the antibiotic treatment and your thoughts.

>

>

>

> Sincerely,

>

> Nanci

>

>

>

>

>

>

>

>