Re: Re: [ACES)Taking hubby to the appt./Jim

[Guest guest]

I'm with you!!! My face is round and distorted from the Cushings and I also have the new lines between my eyes. I noticed I seem to have a permanent frown as well. It takes more effort to put my face into a smile and it seems that my "neutral" face is a frown instead of a straight mouth. I HATE that. It makes me look like a miserable person!

finaly a diagnosess.> > > > > whent to the rumatologest today..> got a diagnosess finaly.> I have chronic Fatuige, and Fibro.> > I am in soo much pain now becouse of the poking andprodding. but he> sugested doing yoga and other stuff.> Im having a lot of truble getting the hubby to listen to thestuff> that the dr told me to do, like not to do long walks and stuff, andto do> mainly yoga and water arobics.....> i dont think that he understands my illness quite yet, andit hurts.> I mean there is nothing much i can do and im always in pain.> The rummy also told me that i should go off my harsh painpills, the> t3's and im not sure if i want to... they realy help...> > if anyone who has these diagnosess could let me know whatthey do to> help the symptoms that woudl be great.> > well im off to bed now..> > thx for everythign!> Kat> > > ------------------------------------------------------------------------> > > > > Please visit our website at:> http://ACES_Autoimmune.tripod.com> >

[Guest guest]

My face looks like it's falling. I've noticed my neutral face is a frown now, too - thought it was just me.

P.

-- Re: Re: [ACES)Taking hubby to the appt./Jim

I'm with you!!! My face is round and distorted from the Cushings and I also have the new lines between my eyes. I noticed I seem to have a permanent frown as well. It takes more effort to put my face into a smile and it seems that my "neutral" face is a frown instead of a straight mouth. I HATE that. It makes me look like a miserable person!

finaly a diagnosess.> > > > > whent to the rumatologest today..> got a diagnosess finaly.> I have chronic Fatuige, and Fibro.> > I am in soo much pain now becouse of the poking andprodding. but he> sugested doing yoga and other stuff.> Im having a lot of truble getting the hubby to listen to thestuff> that the dr told me to do, like not to do long walks and stuff, andto do> mainly yoga and water arobics.....> i dont think that he understands my illness quite yet, andit hurts.> I mean there is nothing much i can do and im always in pain.> The rummy also told me that i should go off my harsh painpills, the> t3's and im not sure if i want to... they realy help...> > if anyone who has these diagnosess could let me know whatthey do to> help the symptoms that woudl be great.> > well im off to bed now..> > thx for everythign!> Kat> > > ------------------------------------------------------------------------> > > > > Please visit our website at:> http://ACES_Autoimmune.tripod.com> >

[Guest guest]

Jane, had a large tunor removed form her inner knee/thigh about 9 years ago. They said it was a hemangioma. Now another doc (original one won't take the insurance anymore) is doing an ultrasound next week and he thinks it's a mass of varicose veins. No discoloration at all, just a lot of swelling and it's painful for her to walk when it swells. It isn't swollen all the time though. I assumed varicose veins would be discolored and you would see the veins. We'll see but I am so nervous about this. They sent her to an orthopedic surgeon last year and he told her to just wear the stocking when it swelled. She tries to do this but it hurts her so bad to have anything touch it and the compresison is horrible. Everyone has a different opinion and I don't know who to let do the surgery. The ortho surgeon said no surgery since it was a mass of veins and he couldn't tell what was what and it would make things worse rather than better. Now this one says it's varicose veins and he'll just "go in and take the mass of veins out." Hmmmmmmmm

When the first doc did the original surgery, nothing showed on an MRI or CT or ultrasound so when he went in, he had prepared us for her losing her leg. That was the longest wait of my life!!

I've heard of them injecting the veins and shrinking them but never "going in and taking them out."

Jane what kind of surgery are they talking about?

finaly a diagnosess.> > > > > > > > > > whent to the rumatologest today..> > got a diagnosess finaly.> > I have chronic Fatuige, and Fibro.> > > > I am in soo much pain now becouse of the poking and> prodding. but he> > sugested doing yoga and other stuff.> > Im having a lot of truble getting the hubby to listen to the> stuff> > that the dr told me to do, like not to do long walks and stuff, and> to do> > mainly yoga and water arobics.....> > i dont think that he understands my illness quite yet, and> it hurts.> > I mean there is nothing much i can do and im always in pain.> > The rummy also told me that i should go off my harsh pain> pills, the> > t3's and im not sure if i want to... they realy help...> > > > if anyone who has these diagnosess could let me know what> they do to> > help the symptoms that woudl be great.> > > > well im off to bed now..> > > > thx for everythign!> > Kat> > > > > >------------------------------------------------------------------------> > > > > > > > > > Please visit our website at:> > http://ACES_Autoimmune.tripod.com> > > >

[Guest guest]

OK Jane, you know I want to kick his ass but then I want to kick your's too for letting him get away with it. Don't lie to spare his feelings. Whine, bitch, moan..... let him know how you're feeling and tell him: "I have an appointment and YOU'RE taking me." He's been with you too long to get away with not caring!!

Yep, we've been through a lot with him, huh?

Hugs!!

Re: [ACES)Taking hubby to the appt./Jim

You don't have to worry about hurting my feelings about the way Jimacted. Just ask Christy or some of the others who've been here a longtime just what a complete ASS he can be about my problems. Today Ihad to go for a cervical spine MRI. I didn't want questions from himso I told him I was going to go to Target to get a couple of thingsfor Christmas.Jane> Whew Jane, sounds like you've been put thru the wringer lately. I sure> wouldn't like to take that test, they might find out I'm a serialkiller or> something. What's it for? Sure Praying you'll get to feeling bettersoon.> BTW, just my own opinion and not to offend anyone specially youJane, but I> woulda been pissed at Jim for getting so darn upset about being latefor a> bridge game when you were having a rough medical procediure done, uhh,> excuse me you're the one hurting there not him. Okay, off my soapbox.> > Big gentle hugs sweetie!> > Please visit our website at:http://ACES_Autoimmune.tripod.com

[Guest guest]

Hmmm I thought it was just me too!

finaly a diagnosess.> > > > > whent to the rumatologest today..> got a diagnosess finaly.> I have chronic Fatuige, and Fibro.> > I am in soo much pain now becouse of the poking andprodding. but he> sugested doing yoga and other stuff.> Im having a lot of truble getting the hubby to listen to thestuff> that the dr told me to do, like not to do long walks and stuff, andto do> mainly yoga and water arobics.....> i dont think that he understands my illness quite yet, andit hurts.> I mean there is nothing much i can do and im always in pain.> The rummy also told me that i should go off my harsh painpills, the> t3's and im not sure if i want to... they realy help...> > if anyone who has these diagnosess could let me know whatthey do to> help the symptoms that woudl be great.> > well im off to bed now..> > thx for everythign!> Kat> > > ------------------------------------------------------------------------> > > > > Please visit our website at:> http://ACES_Autoimmune.tripod.com> >

[Guest guest]

My husband always comments that I have a "worried look" as well. I'm not conscious of feeling "worried". The look seems to be when I'm just feeling fine. I know my pain sometimes causes me to withdraw, be quiet, or even hide my feelings so that I don't bring concern to others. Perhaps this causes my face to absorb some of this and be "worried" looking when I'm really just okay. Or perhaps it is part of the AI disease we carry?

I'm interested in the comment Kathy made about the Sjorgen's bump on her face. I know my left cheek sometimes feels swollen under my eye. Is this the same thing Kathy? I don't know that it actually looks swollen but I feel like it is and is actually bordering on being in my eyesight particularly when I look down. I wonder whether this is the same thing?

(((Hugs)))

Robyn wrote:

My face looks like it's falling. I've noticed my neutral face is a frown now, too - thought it was just me.

P.

-- Re: Re: [ACES)Taking hubby to the appt./Jim

I'm with you!!! My face is round and distorted from the Cushings and I also have the new lines between my eyes. I noticed I seem to have a permanent frown as well. It takes more effort to put my face into a smile and it seems that my "neutral" face is a frown instead of a straight mouth. I HATE that. It makes me look like a miserable person!

finaly a diagnosess.> > > > > whent to the rumatologest today..> got a diagnosess finaly.> I have chronic Fatuige, and Fibro.> > I am in soo much pain now becouse of the poking andprodding. but he> sugested doing yoga and other stuff.> Im having a lot of truble getting the hubby to listen to thestuff> that the dr told me to do, like not to do long walks and

stuff, andto do> mainly yoga and water arobics.....> i dont think that he understands my illness quite yet, andit hurts.> I mean there is nothing much i can do and im always in pain.> The rummy also told me that i should go off my harsh painpills, the> t3's and im not sure if i want to... they realy help...> > if anyone who has these diagnosess could let me know whatthey do to> help the symptoms that woudl be great.> > well im off to bed now..> > thx for everythign!> Kat> > > ------------------------------------------------------------------------> > >

> > Please visit our website at:> http://ACES_Autoimmune.tripod.com> >

[Guest guest]

Don't you sometimes wish you could do pain transference and let them understand a little better? (for just a few minutes... we could never deal with all the whining they would do) I know what you mean about the pain going down... when I find something that works, even for a short time, it seems to make it that much worse when it comes back because I had a brief taste of "painlessness." I think we get to a point where our minds deal with the pain in their own way and when we take it away for a brief time and then get the pain back, it doubles!

Christy I really think our minds work the same some times. lol This sounds just like what I've been telling . Now to tell one on me - the other morning (or nearly afternoon) when I had finally drug myself out of bed after a few days of little sleep and a lotta pain I was brushing my teeth and started crying because I just felt so bad and then I swear I felt a tap on my head and then "oopps" I farted and I just started laughing. It was like someone giving me a message that no bad how I feel that something does work right with me and it does get better sometimes. It was just one of those moments that if anyone would have been there they'd have thought I was nut, but it was just like a wake up call to "lighten up", ya know!

Hugs and a big smile,

[Guest guest]

The skin on your legs, or all of your skin? Either way--there are alot of reasons they could have surfaced again, but it sounds like you have some circulatory problems with that color change--maybe you should see a cardiac Doc? What does your regular Doc say?

I don't have varicose veins--well, one very small one from when I had Kayly, and of course the damn hemorrhoids, LOL. I DO have an over abundance of spider veins that I was going to have fixed before this other stuff started, but how my legs look nude is the least of my worries. I know the spider vein things runs in my family.

Kathy

finaly a diagnosess.> > > > > > > > > > whent to the rumatologest today..> > got a diagnosess finaly.> > I have chronic Fatuige, and Fibro.> > > > I am in soo much pain now becouse of the poking and> prodding. but he> > sugested doing yoga and other stuff.> > Im having a lot of truble getting the hubby to listen to the> stuff> > that the dr told me to do, like not to do long walks and stuff, and> to do> > mainly yoga and water arobics.....> > i dont think that he understands my illness quite yet, and> it hurts.> > I mean there is nothing much i can do and im always in pain.> > The rummy also told me that i should go off my harsh pain> pills, the> > t3's and im not sure if i want to... they realy help...> > > > if anyone who has these diagnosess could let me know what> they do to> > help the symptoms that woudl be great.> > > > well im off to bed now..> > > > thx for everythign!> > Kat> > > > > >------------------------------------------------------------------------> > > > > > > > > > Please visit our website at:> > http://ACES_Autoimmune.tripod.com> > > >

[Guest guest]

LOLOLOL!

OK--I'd be embarrassed too, but it IS funny!

Kathy

Re: [ACES)Taking hubby to the appt./Jim

, you should have been with me yesterday when I was lying on thetable after the ultrasound (also something else but the mind isn'tworking this morning). The PT had gone out to get a hot pack and toget the diathermy set up when I had this very unexpected and quietexpelling of air...can't say it was odorless though. I was so hopingthat by the PT came back, they might think it came from the big burlyguy in the next cubicle. It did make me smile though.Jane> Don't you sometimes wish you could do pain transference and let them> understand a little better? (for just a few minutes... we couldnever deal> with all the whining they would do) I know what you mean about thepain> going down... when I find something that works, even for a shorttime, it> seems to make it that much worse when it comes back because I had abrief> taste of "painlessness." I think we get to a point where our minds deal> with the pain in their own way and when we take it away for a brieftime and> then get the pain back, it doubles!> > Christy I really think our minds work the same some times. lol Thissounds> just like what I've been telling . Now to tell one on me - theother> morning (or nearly afternoon) when I had finally drug myself out of bed> after a few days of little sleep and a lotta pain I was brushing myteeth> and started crying because I just felt so bad and then I swear Ifelt a tap> on my head and then "oopps" I farted and I just started laughing. It was> like someone giving me a message that no bad how I feel thatsomething does> work right with me and it does get better sometimes. It was just one of> those moments that if anyone would have been there they'd havethought I was> nut, but it was just like a wake up call to "lighten up", ya know!> > Hugs and a big smile,> > Please visit our website at:http://ACES_Autoimmune.tripod.com

[Guest guest]

Sorry to hear that.

What are you doing for Thanksgiving?

Kathy

finaly a diagnosess.> > > > > > > > > > > > > > > whent to the rumatologest today..> > > got a diagnosess finaly.> > > I have chronic Fatuige, and Fibro.> > > > > > I am in soo much pain now becouse of the poking and> > prodding. but he> > > sugested doing yoga and other stuff.> > > Im having a lot of truble getting the hubby tolisten to the> > stuff> > > that the dr told me to do, like not to do long walks andstuff, and> > to do> > > mainly yoga and water arobics.....> > > i dont think that he understands my illness quiteyet, and> > it hurts.> > > I mean there is nothing much i can do and im always in pain.> > > The rummy also told me that i should go off my harshpain> > pills, the> > > t3's and im not sure if i want to... they realy help...> > > > > > if anyone who has these diagnosess could let me knowwhat> > they do to> > > help the symptoms that woudl be great.> > > > > > well im off to bed now..> > > > > > thx for everythign!> > > Kat> > > > > > > > >> ------------------------------------------------------------------------> > > > > > > > > > > > > > > Please visit our website at:> > > http://ACES_Autoimmune.tripod.com> > > > > >

[Guest guest]

That's very typical in circulatory problems and can be a problem.

He should be looking at your feet and legs anyway, but put it on your list.

Make sure you inspect you legs and feet every day for any open areas starting or any area that looks different. If you get an infection of anykind--even one that starts with a blister or something--it can be hard to heal.

Be sure to get some exercise in every day, but keep the legs elevated whenever you can.

Kathy

finaly a diagnosess.> > > > > > > > > > > > > > > whent to the rumatologest today..> > > got a diagnosess finaly.> > > I have chronic Fatuige, and Fibro.> > > > > > I am in soo much pain now becouse of the poking and> > prodding. but he> > > sugested doing yoga and other stuff.> > > Im having a lot of truble getting the hubby to listento the> > stuff> > > that the dr told me to do, like not to do long walks andstuff, and> > to do> > > mainly yoga and water arobics.....> > > i dont think that he understands my illness quite yet, and> > it hurts.> > > I mean there is nothing much i can do and im always in pain.> > > The rummy also told me that i should go off my harsh pain> > pills, the> > > t3's and im not sure if i want to... they realy help...> > > > > > if anyone who has these diagnosess could let me know what> > they do to> > > help the symptoms that woudl be great.> > > > > > well im off to bed now..> > > > > > thx for everythign!> > > Kat> > > > > > > > >> ------------------------------------------------------------------------> > > > > > > > > > > > > > > Please visit our website at:> > > http://ACES_Autoimmune.tripod.com> > > > > >