Re: New Here

[Guest guest]

Welcome . I'm Bonnie Heintskill and I live in Wisconsin USA. I got to

meet Glenda Millgate when she was in the states last year. Wonderful, funny,

inspiring lady! (waves at Glenda!)

What's your rheumy's name and what article did he write on HEDS?

Bonnie

New Here

Hi I live in Western Australia. I have three children.

[Guest guest]

Hi Niclole.

I too am an Aussie (I live in Canberra) with HEDS. WElcome to the

board and I hope that you can get all the love, support and help here

that I have gotten sionce joining (a few months ago). I don't know

what I would do with out the people here. It is nice to meet another

Aussie (but NOT nice that your kids have EDS).

Good Lcuk in your QUEST for help and doctors and treatment etc

Sharon

> Hi I live in Western Australia. I have three children. My six

year

> old daughter was recently diagnosed with Hypermobile Ehlers Danlos

> Syndrome. She suffers from a lot of pain and gets frequent

> headaches. My three year old son has also started complaining of

> pain. He is very hypermobile, bruises easily and at the moment has

a

> very bad sprain. His Paediatrician feels he has HEDS but has done

> blood tests to rule out any other problems. I also have a four

year

> old son who has Autism. He never complains about having pain, but

> then he never complains even when he is injured. While I was at

the

> Paediatrician she checked him and said that he was also very

> hypermobile. He has also suffered a sprain after jumping on a

jumpy

> castle. None of my children have had dislocations but my 4yo broke

> his leg when he fell down our one back step. Thanks to Glenda

> Millgate, the school is very understanding. Glenda sent me a copy

of

> the letter she sent to the school for Allie and I was able to adapt

> it form my daughter. At the moment it's a waiting game to see if

the

> boys do have HEDS. They will probably be sent to Perth to the

> Rheumatologist. My daughters Rheumy is excellent. He is very up

to

> date with EDS and has actually written a paper on Benign

> Hypermobility Syndrome. Thankyou for taking the time to read

this.

>

[Guest guest]

Welcome , I'm from Michigan USA. My youngest of 5

boys has EDS although the others all have signs but no problems. My

boy has also had to deal with the head aches, migrains. The last one

lasted almost 8 weeks. It's been a busy weekend here, Usually the

weekends are slow. Well, give them a subject they like and the

fingers fly on the keys! You will find friends here. I've been here

since this Febuary and we are like a family. For me, I get the

understanding and help I don't get at home. They " get it " here. They

have walked in our shoes.

In my son's case the blood tests never showed anything. We have

to go by his symptems. My boys' dislocations didn't start till about

age 8 or 9. Seems growth spurts are times of havic for kids. And

hormomal changes like puberty and minapuase (ok, I spell bad)

Any way.... welcome to our family. I have found it a great help

and support. Hope we can help you too. :~)

> Hi I live in Western Australia. I have three children. My six

year

> old daughter was recently diagnosed with Hypermobile Ehlers Danlos

> Syndrome. She suffers from a lot of pain and gets frequent

> headaches. My three year old son has also started complaining of

> pain. He is very hypermobile, bruises easily and at the moment

has a

> very bad sprain. His Paediatrician feels he has HEDS but has done

> blood tests to rule out any other problems. I also have a four

year

> old son who has Autism. He never complains about having pain, but

> then he never complains even when he is injured. While I was at

the

> Paediatrician she checked him and said that he was also very

> hypermobile. He has also suffered a sprain after jumping on a

jumpy

> castle. None of my children have had dislocations but my 4yo

broke

> his leg when he fell down our one back step. Thanks to Glenda

> Millgate, the school is very understanding. Glenda sent me a copy

of

> the letter she sent to the school for Allie and I was able to

adapt

> it form my daughter. At the moment it's a waiting game to see if

the

> boys do have HEDS. They will probably be sent to Perth to the

> Rheumatologist. My daughters Rheumy is excellent. He is very up

to

> date with EDS and has actually written a paper on Benign

> Hypermobility Syndrome. Thankyou for taking the time to read

this.

>

[Guest guest]

In a message dated 11/10/2004 9:04:51 AM Eastern Standard Time,

kathleyn@... writes:

> I am

> finally taking my weight and health seriously and have so much to

> learn about this disease and keeping sugar levels under control

Hi Kathleyn,

Welcome to the group. You have taken the first step to controlling diabetes

and with your positive outlook you will succeed.

hugs

Eunice