RE: Autonomic Test Done Today

[Guest guest]

Sandy T., I'm glad things went ok for you today even though you still have to wait for the results. I know what you mean about the temp. thing though. My foot sometimes feels like it is as cold as ice on the inside, but when I (very gently) touch it, the skin feels hot. Other times it's the other way around. Mostly though, it's as hot on the outside as the inside feels!

I'm happy for you to be seeing the doc so soon! Good luck! Good luck with your apps. with the disibility advocate & lawyer also! Hopefully you won't have too much longer to wait so that you can go on living the best that you can!

I'm still Praying for a cure, Faith

> >Reply-To: RSD-CRPSofAmerica >To: RSD-CRPSofAmerica >Subject: Autonomic Test Done Today >Date: Mon, 14 Jun 2004 22:54:27 -0000 > >Hi everyone, >Hope you are all having a good and as pain-free day as possible. I >went to UPMC Presby today and had the autonomic test done. It was >very odd. As odd as it sounds actually. When I came out my husband >was joking that my arms looked like "some kind of blood sucking >martian" attacked me. Well, that was where they strapped the cups to >me to collect the sweat that the test stimulated. My arms did have >these very big odd looking suction cup marks on them. Anyway, I'm >not sure what it showed. One part I thought was strange was that the >temperature of my right arm, which is the bad arm & usually feels >cold to me, was actually warmer than my left arm by a few degrees. >Who knows??? I called my neurologist after the appt. and instead of >waiting for 6 weeks for an appointment, they are going to try and get >me in next week. That is because I am not on anything for pain right >now since I could not take the neurontin. > >I'm also waiting for a call back from my disability advocate to get >the 1st appt. set up. I'm also seeing a lawyer about how my employer >treated my return to work with restrictions request. > >Oh, well ... the waiting continues.... > >Take care, >Sandy T. > Get fast, reliable Internet access with MSN 9 Dial-up – now 3 months FREE!

[Guest guest]

Thanks Faith,

I'm hoping for a resolution soon. It frustrates me when I read that some people

take 2 or more years to get some type of diagnosis and relief. I'm not a

patient

person (or a very good patient LOL) so I can only hope.

Wishing you a pain-free day!

Sandy T.

http://www.connecttime.net

[Guest guest]

Thanks Lin,

I appreciate your prayers. I'm so very depressed over this. I don't think

I am near as bad as some of you on the board here, so I feel quilty complaining,

but it is what it is I guess.

Have a pain-free day!

Sandy T.

http://www.connecttime.net

[Guest guest]

Sandy,

Glad that you made it through that part of the process. Hope that

it will bring back the information that the docs need to diagnois

the RSD and get you moving on some treatments and definately

something for the pain.

My prayers and thoughts will be with you.

Teri

> Hi everyone,

> Hope you are all having a good and as pain-free day as possible.

I

> went to UPMC Presby today and had the autonomic test done. It was

> very odd. As odd as it sounds actually. When I came out my

husband

> was joking that my arms looked like " some kind of blood sucking

> martian " attacked me. Well, that was where they strapped the cups

to

> me to collect the sweat that the test stimulated. My arms did have

> these very big odd looking suction cup marks on them. Anyway, I'm

> not sure what it showed. One part I thought was strange was that

the

> temperature of my right arm, which is the bad arm & usually feels

> cold to me, was actually warmer than my left arm by a few degrees.

> Who knows??? I called my neurologist after the appt. and instead

of

> waiting for 6 weeks for an appointment, they are going to try and

get

> me in next week. That is because I am not on anything for pain

right

> now since I could not take the neurontin.

>

> I'm also waiting for a call back from my disability advocate to

get

> the 1st appt. set up. I'm also seeing a lawyer about how my

employer

> treated my return to work with restrictions request.

>

> Oh, well ... the waiting continues....

>

> Take care,

> Sandy T.

[Guest guest]

I was on 2700mg/day and had it doing that to me.....not a good thing when driving with my kids in the backseat of my car. I almost ditched my car with them with me......

The reason why your boss is doing what he/she is doing, is because it sounds like they are trying to get you to Quit. If you quit, they wouldn't have to pay Unemployment to you like they would if they Fired you.

Just get your mind set thinking: "They will not beat me, I am better than them and I deserve this job".

Tonia

-------Original Message-------

Tonia,Thanks for the info. I did not do well on neurontin; at a dose of only 300mg I was having trouble walking and standing. At 600 mg it got bad enough thatI called my neurologist. He took me off it. It really didn't do anything forme other than make me feel like I'm drunk. That won't do since I'm still working.I don't think it did anything else, but I probably was not on it long enoughto make a difference.

It seems as if since I came back from 3 weeks off on short-term disabiltythat my supervisor is being unusually hard on me for taking DR. appts and alsoon my back constantly about getting things done. This didn't happen beforemy leave.It's no wonder my depression has gotten worse. I see my therapist tonight soI hope to talk through my frustrations.This board is defintely a help with this too. It amazes me that so many peoplewho don't know me at all, are so willing to lend a helpful ear. It is whatI need - and I'm sure what most need on the board )Thanks again to everyone!Sandy T. http://www.connecttime.net

____________________________________________________ IncrediMail - Email has finally evolved - Click Here

[Guest guest]

Tonia,

I think she is trying to come up with ways to fire me. They know I came back

because I did not have any " objective " test results for the company's STD

insurance

company to continue to pay me. I was sort of forced into a corner in making

the decision to return even though I am still in a lot of pain and don't really

have a solid diagnosis yet. They would not make any work schedule accomodations

for me to allow me time to rest my arm either.

I think they know that I could go out again (probably permanently) as soon as

I get a solid diagnosis.

But you are right, I am better than she is and I will persevere as long as I

can.

Thanks,

Sandy T.

> I was on 2700mg/day and had it doing that to me.....not a good thing when

>driving with my kids in the backseat of my car. I almost ditched my car wit>h

>them with me......

>

>The reason why your boss is doing what he/she is doing, is because it sound>s

>like they are trying to get you to Quit. If you quit, they wouldn't have to

>pay Unemployment to you like they would if they Fired you.

>

>Just get your mind set thinking: " They will not beat me, I am better than

>them and I deserve this job " .

>

>Tonia

>-------Original Message-------

>

>Tonia,

>Thanks for the info. I did not do well on neurontin; at a dose of only 300>

>mg I was having trouble walking and standing. At 600 mg it got bad enough

>that

>I called my neurologist. He took me off it. It really didn't do anything

>for

>me other than make me feel like I'm drunk. That won't do since I'm still

>working.

>I don't think it did anything else, but I probably was not on it long enoug>h

>to make a difference.

> It seems as if since I came back from 3 weeks off on short-term disabilty>

>that my supervisor is being unusually hard on me for taking DR. appts and

>also

>on my back constantly about getting things done. This didn't happen before>

>my leave.

>It's no wonder my depression has gotten worse. I see my therapist tonight

>so

>I hope to talk through my frustrations.

>This board is defintely a help with this too. It amazes me that so many

>people

>who don't know me at all, are so willing to lend a helpful ear. It is what>

>I need - and I'm sure what most need on the board )

>

>Thanks again to everyone!

>Sandy T.

>http://www.connecttime.net

>

Attachment: imstp.gifAttachment: 23b.jpg>

>

http://www.connecttime.net

[Guest guest]

They know I came back

because I did not have any " objective " test results for the company's

STD insurance

company to continue to pay me. I was sort of forced into a corner in

making

the decision to return even though I am still in a lot of pain and

don't really

have a solid diagnosis yet.

Hello Sandy,

My name is Mark and I have been going through the same problem with my

employer. They have a nice Short Term Disability, but they have

refused to allow me to utilize that, and it has gotten to the point

where they messed me up so bad that I was in danger of being

terminated. In addition to them sending the letter to my surgeon, they

made it sound like they were the insurance company that would be

paying for my care in an effort to have the surgery cancelled.

I had the permanent SCS implanted just a little over a week ago, and I

was forced to return to work last Thursday since they have rejected my

Short Term Disability requests. I had to use all of my vacation and

employee holiday leave to cover the trial and days where the pain was

just so horrible that I couldn't move, so there was no option for me

but return to work, but I have finally decided to fight it. Their

reason for rejecting me was that there was no " objective " evidence

that supported my diagnosis. They even went so far as sending a letter

to my surgeon urging him to cancel the surgery because it was

unnecessary. All of my co-workers and supervisors were talked to by

the STD unit, and they told them just how horrible it was, but they

didn't even take that into account.

Everything that you said you were put through by your employer sounds

exactly like what I was put through, and it has me wondering if we

have the same employer. You even used the exact same language as what

I was told so I seriously wonder if it is the same. If you don't mind

me asking where are you located, and would you share your employers

name? You could even send me the info off group, or I could send you

my information. It just sounds a little too coincidental.

Hopefully we can talk a little more about this because you have me

seriously wondering now. If you don't want to share the information,

that is fine. I hope that you are doing a little better, and I hope

that your employer works with you a little better in the future. Have

a great afternoon, and I hope a pain free afternoon.

The Furball Formerly Known as Greybeard

Mark B

----------------------------------------

My Inbox is protected by SPAMfighter

3742 spam mails have been blocked so far.

Download free www.spamfighter.com today!

---

Outgoing mail is certified Virus Free.

Checked by AVG anti-virus system (http://www.grisoft.com).

Version: 6.0.705 / Virus Database: 461 - Release Date: 06/12/2004

[Guest guest]

I had the permanent SCS implanted just a little over a week ago, and Iwas forced to return to work last Thursday since they have rejected myShort Term Disability requests. I had to use all of my vacation andemployee holiday leave to cover the trial and days where the pain wasjust so horrible that I couldn't move, so there was no option for mebut return to work, but I have finally decided to fight it. Theirreason for rejecting me was that there was no "objective" evidencethat supported my diagnosis. They even went so far as sending a letterto my surgeon urging him to cancel the surgery because it wasunnecessary. All of my co-workers and supervisors were talked to bythe STD unit, and they told them just how horrible it was, but theydidn't even take that into account.

Mark,

I am not a sue happy person, but I think it is time for you to talk to a lawyer. Because I am pretty sure that the Family Medical Leave Act states that your employer has to give 12 weeks off for medical reasons is a federal law. I was on that from November through January, then I had to switch over to the long term benefit that I wisely paid for all these years, I am glad I did something right for a change LOL.

Lin

[Guest guest]

Faith this is s Momma, JoAnn and I am asking others on digest why it is that my foot like how Faith can feel, is sometimes fairly warm to touch but feels like ice is running through it? My doctor thinks the rsd is really so good as foot doesn't feel cold most of time he touches it so what does one do. Faith, hope it is okay to ask this along with your message but I just don't know what to say to doctors when this occurs. Hope you are doing better.

s Momma

JoAnn

Autonomic Test Done Today >Date: Mon, 14 Jun 2004 22:54:27 -0000 > >Hi everyone, >Hope you are all having a good and as pain-free day as possible. I >went to UPMC Presby today and had the autonomic test done. It was >very odd. As odd as it sounds actually. When I came out my husband >was joking that my arms looked like "some kind of blood sucking >martian" attacked me. Well, that was where they strapped the cups to >me to collect the sweat that the test stimulated. My arms did have >these very big odd looking suction cup marks on them. Anyway, I'm >not sure what it showed. One part I thought was strange was that the >temperature of my right arm, which is the bad arm & usually feels >cold to me, was actually warmer than my left arm by a few degrees. >Who knows??? I called my neurologist after the appt. and instead of >waiting for 6 weeks for an appointment, they are going to try and get >me in next week. That is because I am not on anything for pain right >now since I could not take the neurontin. > >I'm also waiting for a call back from my disability advocate to get >the 1st appt. set up. I'm also seeing a lawyer about how my employer >treated my return to work with restrictions request. > >Oh, well ... the waiting continues.... > >Take care, >Sandy T. >

Get fast, reliable Internet access with MSN 9 Dial-up – now 3 months FREE!